In 2008 The HELP Project of Bellevue Hospital released results of research on medication administration by caregivers of young children. They found that graphics instead of text heavy narratives resulted in improved compliance with instructions.
One of the biggest ways the changing digital health landscape will affect the pharma industry is that pharma companies increasingly stand to lose control over their own stories, according to a new report from McKinsey & Company, who spoke to 20 thought leaders in various pharma-adjacent sectors.
A nonprofit institute, spun off from the healthcare entrepreneurship program at Massachusetts Institute of Technology, will soon start producing consumer reviews of mobile apps and other digital health tools that have been vetted by Harvard University clinicians, the nonprofit's co-founder said.Set to launch in early December, these will consist of a consumer-focused list of the best apps, connected medical devices and technology-enabled services that are reviewed by Harvard physicians as well as by technical experts from MIT's Hacking Medicine Institute.
Via Alex Butler
Researchers from Intel and the Michael J. Fox Foundation are testing a wrist-borne monitor on Parkinson's patients, with the hope of creating a platform to improve diagnosis and treatment of the debilitating disease.
SOURCE NoNovember 11, 2015 The common method for diagnosing Parkinson's disease is a 60-question test, with answers rated on a scale of 1 to 5. "Pass" the test, and you've got Parkinson's mHealth is going to change that. Intel and the Michael J. Fox Foundation are joining forces on a project to collect and analyze data from Parkinson's patients through wearable devices – more specifically, a Pebble watch. The idea is that a wrist-borne monitor will give researchers more insight to the debilitating disease than any Q&A. TO CONTINUE, GO TO mHEALTH NEWS
A new study published in the journal Obesity finds that mobile health applications were no more effective than informational handouts provided during a physician visit in promoting sustained weight loss. Unlike other weight-loss research, the study was conducted over two years and focused on individuals between ages 18 and 35. MobiHealthNews, Obesity.
There’s been a lot of hand wringing over robots andartificial intelligence that reflects our darkest fears ranging from concerns that they will lull us into dependence and then destroy us (ala Terminator) to learning and exploiting our weaknesses. Yet avatars don’t seem to attract that kind of negative publicity.
A USC study showed that people are inclined to trust avatars more than humans because they don’t view them as judgemental and find it easier to develop a rapport with them. Maybe avatars remind us of a game guide and we’re just inclined to relax and spill our guts around them.
One of the most interesting projects iDAvatars CEO and founder Norrie Daroga highlighted is its work with Intel on its Realsense 3D camera platform to help patients do certain medical tests remotely, such as evaluating bradykinesia in Parkinson's disease patients.
Utilizing social media could help drive healthcare quality improvement.
The rise of social media could provide an excellent source of data to help track healthcare consumer’s experiences, and apparentlymost patients would be ok with thataccording to the results of astudypublished by BMJ Quality and Safety.
Researchers asked adult ED patients if they would be willing to link their social media accounts to their EHR for medical research purposes, to which 71 percent of the patients agreed. The study examined Twitter as a potential source of data for capturing patient experience and patient-perceived quality of care in US hospitals.
More than 1,000 participants consented to share their social media and medical data over seven months. Analyzing content from as far back as 2009, the shared social media data consisted of nearly 1.4 million posts and tweets to Facebook and Twitter, comprising almost 12 million words.
The study was authored by Raina M. Merchant, MD, MSHP, director of the Social Media and Health Innovation Lab and an assistant professor of Emergency Medicine at Penn Medicine; Lyle Ungar, PhD, a professor of Computer and Information Science at the University of Pennsylvania Kevin A. Padrez MD (also with the department of Emergency Medicine, the University of California, San Francisco); H. Andrew Schwartz PhD; Robert J Smith; Shawndra Hill PhD; Tadas Antanavicius; Dana M. Brown; Patrick Crutchley; and David A. Asch MD, MBA. It was funded through an Innovation Grant from the Leonard Davis Institute of Health Economics at the University of Pennsylvania.
According to the findings, patients who shared their social media were younger, tended to post at least once a day, were more likely to take themselves to the emergency room, and were more likely to hold private insurance than those who declined to share their data.
“We don’t often think of our social media content as data, but the language we use and the information we post may offer valuable insights into the relationship between our everyday lives and our health,”said Merchant. “Finding ways to effectively harness and mine that data could prove to be a valuable source of information about how and why patients communicate about their health. There is a rich potential to identify health trends both in the general public and at the individual level, create education campaigns and interventions, and much more. One of the unique aspects of this data is the ability to link social media data with validated information from a health record.”
The study authors suggest a database that merges social media with EMR data has the potential to provide significant insights into patients’ health and health outcomes.
“These findings suggests that social media is a promising avenue for exploring how patients conceptualize and communicate about their specific health issues,” said Ungar. “We see this as just the first of many studies to come examining the relationship between health and social media.”
The Health Insurance Portability and Accountability Act, a landmark 1996 patient-privacy law, only covers patient information kept by health providers, insurers and data clearinghouses, as well as their business partners. At-home paternity tests fall outside the law’s purview. For that matter, so do wearables like Fitbit that measure steps and sleep, testing companies like 23andMe, and online repositories where individuals can store their health records.
Advances in technology offer patients ways to monitor their own health that were impossible until recently: Internet-connected scales to track their weight; electrodes attached to their iPhones to monitor heart rhythms; virtual file cabinets to store their medical records.
“Consumer-generated health information is proliferating,” FTC Commissioner Julie Brill said at a forum last year. But many users don’t realize that much of it is stored “outside of the HIPAA silo.”
As startups gather in Helsinki for the annual Slush event, one of the fastest growing areas on the scene is the health and wellness sector. Within that growing category, digital health and wellbeing wearables are shifting from wrist-top to ring-top, with two Finnish companies poised to make their mark.
Dr. Robert Pearl of the Permanente Medical Group recently implied that wearable tech fitness trackers like the Fitbit don’t serve much purpose in medical practice. While Fitbit does have a disappointing user abandonment rate of 50%, general purpose wearables like the Apple Watch—which has sold an estimated 5-6 million units—has a tiny 6% abandonment rate. And 83% of users state that the apps like the three-rings (activity and stand-up alerts) have contributed to their overall health and fitness. Also, the Hello Heart app reported that Apple Watch users were nearly 4 times more likely to stick with the cardiovascular health management program vs other users. They discovered that 25% of users decreased their blood pressure by 22 points or more.
Coming back to how we get wearable tech and other digital health data into the medical system, Drew Schiller, co-founder and CTO of Validic, a Durham, North Carolina-based vendor that provides access to data from digital health apps and devices (and one of my valued ecosystem partners), agreed that consumer/patient-generated digital data must be provided to a physician and care management team in a form that makes it actionable. “Patient-generated data is useful for showing health trends,” according to Schiller. So if that’s the case, it seems that as we see the wearable tech market doubling in the next four years, there will be a wealth of data available to healthcare systems with an interest in seeing patient trends and influencing their behavior, especially to prevent, manage, and even predict chronic disease. According to the CDC, chronic, behavior-based diseases account for 86% of healthcare costs.
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