Patient engagement, defined as the process of placing patients at the center and in control of their own healthcare, is becoming a chief healthcare priority
Concurrently, a number of national information infrastructure initiatives are targeting increased patient engagement and the design of health information systems that improve the availability of health information and integrate it in meaningful ways for patients. So far, these technology goals have been advanced primarily through the design of personal health records (PHRs), patient portals, electronic health records (EHRs), and health information exchanges (HIEs). However, we remain far from achieving the goal of truly engaging patients in their care.
Generation and exchange of health data with patients is a requirement for Stage 3 EHR meaningful use incentives. Patients are entitled to an electronically generated copy of the record of their encounters with providers.
Sharing provider-generated data with patients is expected to promote patient engagement and accountability, but our own experiences suggest that the data that are being shared are currently a mixed blessing. For example, one encounter report took the form of a 6-page document in which the vast majority of information was copied and pasted from previous encounters and in which there were several factual errors. The errors will be discussed with the provider during the next visit.
Certainly the report got our attention; whether empowerment will result remains an open question. On another occasion, although the visit itself had included making decisions about future treatment, the plan was not mentioned in the document, leaving the patient to rely on her own memory and notes.
The National eHealth Collaborative Technical Expert Panel recommends fully integrating patient-generated data (e.g., home monitoring of daily weights, blood glucose, or blood pressure readings) into the clinical workflow of healthcare providers
Although patients want this type of involvement, we have only begun to address their wishes and concerns. In the next sections, we summarize the current status of several potential building blocks to achieving patient engagement goals and emphasize the role of the nurse informaticist as fundamental to the process.
more at the original : http://ojni.org/issues/?p=2848