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10 Best mHealth Papers of 2012

The mobile health (mHealth) space, especially as it relates to health behavior change and chronic and infectious disease management, has been a long running theme of mine for increasing reach, effectiveness, efficiency and equity of interventions.
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Social Media and Healthcare
Program evaluation and research of social media strategies in healthcare
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How do Americans use Twitter for news?

How do Americans use Twitter for news? | Social Media and Healthcare | Scoop.it
Nearly two-thirds of U.S. adults who use Twitter get news on the platform, according to a recent survey. But we wanted a finer-grained understanding of how they use Twitter for news – not only whether they tweet about news and follow news organizations, but also what news topics they tweet about, and how many news media accounts they follow. We approached these questions through some exploratory research, leveraging one of social media’s greatest advantages for researchers: its openness.
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Twitter as a Potential Disaster Risk Reduction Tool. Part I: Introduction, Terminology, Research and Operational Applications

Twitter as a Potential Disaster Risk Reduction Tool. Part I: Introduction, Terminology, Research and Operational Applications | Social Media and Healthcare | Scoop.it
Twitter, a popular communications platform, is identified as contributing to improved mortality and morbidity outcomes resulting from the 2013 Hattiesburg, Mississippi EF-4 Tornado. This study describes the methodology by which Twitter was investigated ...
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Twitter, a popular communications platform, is identified as contributing to improved mortality and morbidity outcomes resulting from the 2013 Hattiesburg, Mississippi EF-4 Tornado. This study describes the methodology by which Twitter was investigated as a potential disaster risk reduction and management tool at the community level and the process by which the at-risk population was identified from the broader Twitter user population. By understanding how various factors contribute to the superspreading of messages, one can better optimize Twitter as an essential communications and risk reduction tool. This study introduces Parts II, III and IV which further define the technological and scientific knowledge base necessary for developing future competency base curriculum and content for Twitter assisted disaster management education and training at the community level. 

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Social Media 4 Emergency Management - Connect, Collaborate, Contribute

Social Media 4 Emergency Management - Connect, Collaborate, Contribute | Social Media and Healthcare | Scoop.it
Connect, Collaborate, Contribute
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Psychosocial Support in Disasters: Resource for health professionals in Australia

Psychosocial Support in Disasters: Resource for health professionals in Australia | Social Media and Healthcare | Scoop.it
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Social media and suicide prevention: findings from a stakeholder survey

Social media and suicide prevention: findings from a stakeholder survey | Social Media and Healthcare | Scoop.it
Suicide is a leading cause of death, particularly among young adults. The rapid growth of social media and its heavy use by young adults presents new challenges and opportunities for suicide prevention. Social media sites are commonly used for communicating ...
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Capturing Social and Behavioral Domains and Measures in Electronic Health Records: Phase 2

Determinants of health - like physical activity levels and living conditions - have traditionally been the concern of public health and have not been linked closely to clinical practice. However, if standardized social and behavioral data can be incorporated into patient electronic health records (EHRs), those data can provide crucial information about factors that influence health and the effectiveness of treatment. Such information is useful for diagnosis, treatment choices, policy, health care system design, and innovations to improve health outcomes and reduce health care costs. Capturing Social and Behavioral Domains and Measures in Electronic Health Records: Phase 2 identifies domains and measures that capture the social determinants of health to inform the development of recommendations for the meaningful use of EHRs. This report is the second part of a two-part study. The Phase 1 report identified 17 domains for inclusion in EHRs. This report pinpoints 12 measures related to 11 of the initial domains and considers the implications of incorporating them into all EHRs. This book includes three chapters from the Phase 1 report in addition to the new Phase 2 material. Standardized use of EHRs that include social and behavioral domains could provide better patient care, improve population health, and enable more informative research. The recommendations of Capturing Social and Behavioral Domains and Measures in Electronic Health Records: Phase 2 will provide valuable information on which to base problem identification, clinical diagnoses, patient treatment, outcomes assessment, and population health measurement.
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Decision Aid Toolkit - Patient Decision Aids - Ottawa Hospital Research Institute

Decision Aid Toolkit - Patient Decision Aids - Ottawa Hospital Research Institute | Social Media and Healthcare | Scoop.it
The development toolkit is a set of resources for people developing decision aids.

Ottawa Patient Decision Aid Development eTraining (ODAT) an online, self-guided tutorial that takes people through the Ottawa patient decision aid development process.

The International Patient Decision Aid Standards (IPDAS) Collaboration established an internationally approved set of criteria to determine the quality of patient decision aids.

We lead an international group of researchers in the ongoing systematic review of patient decision aids for health-related treatment or screening decisions.

Developers can use the Decision Aid Library Inventory (DALI) system to register their decision aids. They can also download the current Complete Inventory to see what other developers are working on now and have worked on in the past.

Decisional Needs Assessment in Populations
Originally written in 1999 and updated in 2013, this workbook outlines the steps in completing an assessment of the decision making needs of a population.
bacigalupe's insight:

The development toolkit is a set of resources for people developing decision aids.

Ottawa Patient Decision Aid Development eTraining (ODAT) an online, self-guided tutorial that takes people through the Ottawa patient decision aid development process.

The International Patient Decision Aid Standards (IPDAS) Collaboration established an internationally approved set of criteria to determine the quality of patient decision aids.

We lead an international group of researchers in the ongoing systematic review of patient decision aids for health-related treatment or screening decisions.

Developers can use the Decision Aid Library Inventory (DALI) system to register their decision aids. They can also download the current Complete Inventory to see what other developers are working on now and have worked on in the past. 

Decisional Needs Assessment in Populations
Originally written in 1999 and updated in 2013, this workbook outlines the steps in completing an assessment of the decision making needs of a population.

 
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The Legal And Ethical Concerns That Arise From Using Complex Predictive Analytics In Health Care

The Legal And Ethical Concerns That Arise From Using Complex Predictive Analytics In Health Care | Social Media and Healthcare | Scoop.it
Predictive analytics, or the use of electronic algorithms to forecast future events in real time, makes it possible to harness the power of big data to improve the health of patients and lower the cost of health care. However, this opportunity raises policy, ethical, and legal challenges. In this article we analyze the major challenges to implementing predictive analytics in health care settings and make broad recommendations for overcoming challenges raised in the four phases of the life cycle of a predictive analytics model: acquiring data to build the model, building and validating it, testing it in real-world settings, and disseminating and using it more broadly. For instance, we recommend that model developers implement governance structures that include patients and other stakeholders starting in the earliest phases of development. In addition, developers should be allowed to use already collected patient data without explicit consent, provided that they comply with federal regulations regarding research on human subjects and the privacy of health information.
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Planning for a New Decision Aid: Mammography | Informed Medical Decisions Foundation

Planning for a New Decision Aid: Mammography | Informed Medical Decisions Foundation | Social Media and Healthcare | Scoop.it
Breast cancer screening with mammography is a highly personal health decision for women age 40 and older. There are few decision aids to help guide women about
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Risks to patient safety associated with implementation of electronic applications for medication management in ambulatory care - a systematic review

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The objective was to find evidence to substantiate assertions that electronic applications for medication management in ambulatory care (electronic prescribing, clinical decision support (CDSS), electronic health record, and computer generated paper prescriptions), while intended to reduce prescribing errors, can themselves result in errors that might harm patients or increase risks to patient safety.

Methods

Because a scoping search for adverse events in randomized controlled trials (RCTs) yielded few relevant results, we systematically searched nine databases, including MEDLINE, EMBASE, and The Cochrane Database of Systematic Reviews for systematic reviews and studies of a wide variety of designs that reported on implementation of the interventions. Studies that had safety and adverse events as outcomes, monitored for them, reported anecdotally adverse events or other events that might indicate a threat to patient safety were included.

Results

We found no systematic reviews that examined adverse events or patient harm caused by organizational interventions. Of the 4056 titles and abstracts screened, 176 full-text articles were assessed for inclusion. Sixty-one studies with appropriate interventions, settings and participants but without patient safety, adverse event outcomes or monitoring for risks were excluded, along with 77 other non-eligible studies. Eighteen randomized controlled trials (RCTs), 5 non-randomized controlled trials (non-R,CTs) and 15 observational studies were included. The most common electronic intervention studied was CDSS and the most frequent clinical area was cardio-vascular, including anti-coagulants. No RCTS or non-R,CTS reported adverse event. Adverse events reported in observational studies occurred less frequently after implementation of CDSS. One RCT and one observational study reported an increase in problematic prescriptions with electronic prescribing

Conclusions

The safety implications of electronic medication management in ambulatory care have not been established with results from studies included in this systematic review. Only a minority of studies that investigated these interventions included threats to patients’ safety as outcomes or monitored for adverse events. It is therefore not surprising that we found little evidence to substantiate fears of new risks to patient safety with their implementation. More research is needed to focus on the draw-backs and negative outcomes that implementation of these interventions might introduceagemebnt

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Wikipedia, Twitter, facebook, and YouTube: uses in health

Wikipedia, Twitter, facebook, and YouTube: uses in health | Social Media and Healthcare | Scoop.it
Wikipedia, Twitter, facebook, and YouTube: uses in health

Via Andrew Spong
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ChemaCepeda's curator insight, July 31, 2014 9:09 AM

¿Qué usos podemos dar a cada red social aplicados a la salud? Interesante gráfico con las ventajas y desventajas de cada una

rob halkes's curator insight, August 1, 2014 3:35 AM

Great overview !

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The role of social media in online weight... [J Med Internet Res. 2013] - PubMed - NCBI

The role of social media in online weight... [J Med Internet Res. 2013] - PubMed - NCBI | Social Media and Healthcare | Scoop.it
PubMed comprises more than 23 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
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BACKGROUND:

Social media applications are promising adjuncts to online weight management interventions through facilitating education, engagement, and peer support. However, the precise impact of social media on weight management is unclear.

OBJECTIVE:

The objective of this study was to systematically describe the use and impact of social media in online weight management interventions.

METHODS:

PubMed, PsycINFO, EMBASE, Web of Science, and Scopus were searched for English-language studies published through March 25, 2013. Additional studies were identified by searching bibliographies of electronically retrieved articles. Randomized controlled trials of online weight management interventions that included a social media component for individuals of all ages were selected. Studies were evaluated using 2 systematic scales to assess risk of bias and study quality.

RESULTS:

Of 517 citations identified, 20 studies met eligibility criteria. All study participants were adults. Because the included studies varied greatly in study design and reported outcomes, meta-analysis of interventions was not attempted. Although message boards and chat rooms were the most common social media component included, their effect on weight outcomes was not reported in most studies. Only one study measured the isolated effect of social media. It found greater engagement of participants, but no difference in weight-related outcomes. In all, 65% of studies were of high quality; 15% of studies were at low risk of bias.

CONCLUSIONS:

Despite the widespread use of social media, few studies have quantified the effect of social media in online weight management interventions; thus, its impact is still unknown. Although social media may play a role in retaining and engaging participants, studies that are designed to measure its effect are needed to understand whether and how social media may meaningfully improve weight management.

KEYWORDS:

Internet; obesity; overweight; social media; systematic review; weight loss

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The Impact of Social Media on Dissemination and Implementation of Clinical Practice Guidelines: A Longitudinal Observational Study

The Impact of Social Media on Dissemination and Implementation of Clinical Practice Guidelines: A Longitudinal Observational Study | Social Media and Healthcare | Scoop.it
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Social media-based dissemination methods did not confer additional benefit over print-, email-, and Internet-based methods in increasing CPG awareness and changing intent in physicians or patients.

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The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness

The Role of Social Network Technologies in Online Health Promotion: A Narrative Review of Theoretical and Empirical Factors Influencing Intervention Effectiveness | Social Media and Healthcare | Scoop.it
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Getting Better: Online Communities Elevate Voice of the Patient

Getting Better: Online Communities Elevate Voice of the Patient | Social Media and Healthcare | Scoop.it
Image via CrunchBase In my last column, I discussed the need for a better way of connecting the discrete healthcare-related problems identified by patients and physicians with solvers who might be able to develop a solution – perhaps an immediate fix, perhaps a longer-term effort. I’m grateful for the volume of feedback [...]
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COC Student Health 101

COC Student Health 101 | Social Media and Healthcare | Scoop.it
In honor of National Healthcare Decisions Day, learn what to look for in a health website.
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Digitally Connected: Global Perspectives on Youth and Digital Media by Sandra Cortesi, Urs Gasser, Gameli Adzaho, Bruce Baikie, Jacqueline Baljeu, Matthew Battles, Jacqueline Beauchere, Elsa Brown,...

Digitally Connected: Global Perspectives on Youth and Digital Media by Sandra Cortesi, Urs Gasser, Gameli Adzaho, Bruce Baikie, Jacqueline Baljeu, Matthew Battles, Jacqueline Beauchere, Elsa Brown,... | Social Media and Healthcare | Scoop.it
Reflecting on the 25th anniversaries of the invention of the World Wide Web by Sir Tim Berners-Lee and the adoption of the Convention on Rights of the Child by
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Using electronic health records to improve the physical healthcare of people with serious mental illnesses: A view from the front lines, International Review of Psychiatry, Informa Healthcare

Using electronic health records to improve the physical healthcare of people with serious mental illnesses: A view from the front lines, International Review of Psychiatry, Informa Healthcare | Social Media and Healthcare | Scoop.it
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Developing a Framework to Generate Evidence of Health Outcomes From Social Media Use in Chronic Disease Management

Developing a Framework to Generate Evidence of Health Outcomes From Social Media Use in Chronic Disease Management | Social Media and Healthcare | Scoop.it
Background: While there is an abundance of evidence-based practice (EBP) recommendations guiding management of various chronic diseases, evidence suggesting best practice for using social media to improve health outcomes is inadequate. The variety of social media platforms, multiple potential uses, inconsistent definitions, and paucity of rigorous studies, make it difficult to measure health outcomes reliably in chronic disease management. Most published investigations report on an earlier generation of online tools, which are not as user-centered, participatory, engaging, or collaborative, and thus may work differently for health self-management.
Objective: The challenge to establish a sound evidence base for social media use in chronic disease starts with the need to define criteria and methods to generate and evaluate evidence. The authors’ key objective is to develop a framework for research and practice that addresses this challenge.
Methods: This paper forms part of a larger research project that presents a conceptual framework of how evidence of health outcomes can be generated from social media use, allowing social media to be utilized in chronic disease management more effectively. Using mixed methods incorporating a qualitative literature review, a survey and a pilot intervention, the research closely examines the therapeutic affordances of social media, people with chronic pain (PWCP) as a subset of chronic disease management, valid outcome measurement of patient-reported (health) outcomes (PRO), the individual needs of people living with chronic disease, and finally translation of the combined results to improve evidence-based decision making about social media use in this context.
Results: Extensive review highlights various affordances of social media that may prove valuable to understanding social media’s effect on individual health outcomes. However, without standardized PRO instruments, we are unable to definitively investigate these effects. The proposed framework that we offer outlines how therapeutic affordances of social media coupled with valid and reliable PRO measurement may be used to generate evidence of improvements in health outcomes, as well as guide evidence-based decision making in the future about social media use as part of chronic disease self-management.
Conclusions: The results will (1) inform a framework for conducting research into health outcomes from social media use in chronic disease, as well as support translating the findings into evidence of improved health outcomes, and (2) inform a set of recommendations for evidence-based decision making about social media use as part of chronic disease self-management. These outcomes will fill a gap in the knowledge and resources available to individuals managing a chronic disease, their clinicians and other researchers in chronic disease and the field of medicine 2.0.
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An unhealthy digital divide | News | Harvard School of Public Health

An unhealthy digital divide | News | Harvard School of Public Health | Social Media and Healthcare | Scoop.it
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On the usage of health records for the design of virtual patients: a systematic review

On the usage of health records for the design of virtual patients: a systematic review | Social Media and Healthcare | Scoop.it
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Background

The process of creating and designing Virtual Patients for teaching students of medicine is an expensive and time-consuming task. In order to explore potential methods of mitigating these costs, our group began exploring the possibility of creating Virtual Patients based on electronic health records. This review assesses the usage of electronic health records in the creation of interactive Virtual Patients for teaching clinical decision-making.

Methods

The PubMed database was accessed programmatically to find papers relating to Virtual Patients. The returned citations were classified and the relevant full text articles were reviewed to find Virtual Patient systems that used electronic health records to create learning modalities.

Results

A total of n=362 citations were found on PubMed and subsequently classified, of which n=28 full-text articles were reviewed. Few articles used unformatted electronic health records other than patient CT or MRI scans. The use of patient data, extracted from electronic health records or otherwise, is widespread. The use of unformatted electronic health records in their raw form is less frequent. Patient data use is broad and spans several areas, such as teaching, training, 3D visualisation, and assessment.

Conclusions

Virtual Patients that are based on real patient data are widespread, yet the use of unformatted electronic health records, abundant in hospital information systems, is reported less often. The majority of teaching systems use reformatted patient data gathered from electronic health records, and do not use these electronic health records directly. Furthermore, many systems were found that used patient data in the form of CT or MRI scans. Much potential research exists regarding the use of unformatted electronic health records for the creation of Virtual Patients.

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Portal de Iniciativas de eSalud | eHealth Initiatives in Latin America Database

Portal de Iniciativas de eSalud | eHealth Initiatives in Latin America Database | Social Media and Healthcare | Scoop.it
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Access information on projects from institutions that use information and communication technology (ICT)
in health. PAHO/WHO

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The Era Of Big Data And Its Implications For Big Pharma

The Era Of Big Data And Its Implications For Big Pharma | Social Media and Healthcare | Scoop.it
Health Affairs is the leading peer-reviewed journal at the intersection of health, health care, and policy.
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Medicine X, as a Patient Centric Conference, has Set the Bar Higher

Medicine X, as a Patient Centric Conference, has Set the Bar Higher | Social Media and Healthcare | Scoop.it
A personal reflection on attending Stanford Medicine's "Medicine X" conference by Symplur ... the world's leading healthcare social media analytics company.
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