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5 ways to start engaging patients on social media | Articles | Main

5 ways to start engaging patients on social media | Articles | Main | Social Media and Healthcare Evaluation | Scoop.it
We like this tip: Listen. See what this communicator learned at #mayoragan.


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"5 ways to start engaging patients

Listen more than you speak: It’s an easy enough adage. Social media is a great monitoring tool. Yes, you should be tweeting and posting relevant important information about your hospital or health system, but remember to listen. Use social media as a way to connect directly to your users—there’s nothing between you but a screen.Have a great story to tell: You don’t always need to have a super touching narrative to tell, but have stories in your back pocket you use to engage people. As human beings, we have an aching need to connect. Don’t forget how you learned your earliest lessons about life—from stories. Make sure you are using different types of stories as you engage with your communities.Focus on your content: Content is a BIG word for a much smaller word—information. Think about it. When you hear content, you probably get nervous. When you hear information, it’s an easy, familiar concept. So remember, your content is simply information molded into a recognizable content type for your users. Ads, direct mail, press releases, tweets and posts—they are all versions of content that people instantaneously recognize. Work this and choose the right type of content to best serve the story.Hire a community engagement manager—NOT a social media person: What I hear is that most hospitals want to hire a social media “guy” or “gal.” What you need is someone who understands how to transform your hospital’s online social activities into a community. Then the engagement part needs to happen by LISTENING to what patients, families and visitors want and need.Encourage teamwork: Community engagement is really the intersection of several different parts of an organization: marketing, PR, customer service, crisis communications and emergency response. Work with other people in those departments: ensure you are delivering the best possible experience for your customers as they engage with your brand using these technologies.
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Social Media and Healthcare Evaluation
Program evaluation and research of social media strategies in healthcare
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The Era Of Big Data And Its Implications For Big Pharma

The Era Of Big Data And Its Implications For Big Pharma | Social Media and Healthcare Evaluation | Scoop.it
Health Affairs is the leading peer-reviewed journal at the intersection of health, health care, and policy.
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Medicine X, as a Patient Centric Conference, has Set the Bar Higher

Medicine X, as a Patient Centric Conference, has Set the Bar Higher | Social Media and Healthcare Evaluation | Scoop.it
A personal reflection on attending Stanford Medicine's "Medicine X" conference by Symplur ... the world's leading healthcare social media analytics company.
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BMC Pediatrics | Full text | A systematic review of the use and effectiveness of social media in child health

Social media use is highly prevalent among children, youth, and their caregivers, and its use in healthcare is being explored. The objective of this study was to conduct a systematic review to determine: 1) for what purposes social media is being used in child health and its effectiveness; and 2) the attributes of social media tools that may explain how they are or are not effective.
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Background

Social media use is highly prevalent among children, youth, and their caregivers, and its use in healthcare is being explored. The objective of this study was to conduct a systematic review to determine: 1) for what purposes social media is being used in child health and its effectiveness; and 2) the attributes of social media tools that may explain how they are or are not effective.

Methods

We searched Medline, CENTRAL, ERIC, PubMed, CINAHL, Academic Search Complete, Alt Health Watch, Health Source, Communication and Mass Media Complete, Web of Knowledge, and Proquest Dissertation and Theses Database from 2000–2013. We included primary research that evaluated the use of a social media tool, and targeted children, youth, or their families or caregivers. Quality assessment was conducted on all included analytic studies using tools specific to different quantitative designs.

Results

We identified 25 studies relevant to child health. The majority targeted adolescents (64%), evaluated social media for health promotion (52%), and used discussion forums (68%). Most often, social media was included as a component of a complex intervention (64%). Due to heterogeneity in conditions, tools, and outcomes, results were not pooled across studies. Attributes of social media perceived to be effective included its use as a distraction in younger children, and its ability to facilitate communication between peers among adolescents. While most authors presented positive conclusions about the social media tool being studied (80%), there is little high quality evidence of improved outcomes to support this claim.

Conclusions

This comprehensive review demonstrates that social media is being used for a variety of conditions and purposes in child health. The findings provide a foundation from which clinicians and researchers can build in the future by identifying tools that have been developed, describing how they have been used, and isolating components that have been effective.

Keywords: 

Social media; Pediatrics; Systematic review


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Weight loss in Social Media

Weight loss in Social Media | Social Media and Healthcare Evaluation | Scoop.it
Weight loss and Web 2.0. Collection of weight loss related blogs, podcasts, slideshows, mobile applications and community sites to help you keep yourself up-to-date.
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Transcript of Chat with Gonzalo Bacigalupe (with images, tweets) · hchlitss

A Social Media Story storified by hchlitss
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Midnight Friends: How Wired Patients Are Transforming Chronic Illness

Midnight Friends: How Wired Patients Are Transforming Chronic Illness | Social Media and Healthcare Evaluation | Scoop.it
Over the years, Deborah Haber, plagued by a rare and painful medical condition, has discovered a lifeline that's lifted her outlook and improved her health. It combines the best qualities of a mother, best friend, therapist and trusted doctor to help her cope: it's social media.
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Esteve Foundation | El periodismo biomédico en la era 2.0

Esteve Foundation | El periodismo biomédico en la era 2.0 | Social Media and Healthcare Evaluation | Scoop.it
bacigalupe's insight:

This publication stems from the international symposium held in Barcelona in September 2011, which brought together more than 70 scientific communications professionals. Moderated by Vladimir de Semir, director of the OCC, the first block of the day addressed the challenges posed by the Internet for biomedical journalists, something that Connie St Louis, from BBC Radio 4, examines closely as Director of the Masters in Biomedical Journalism at City University, London. In an age dominated by the communication of information, the journalist must resurrect their role of investigating and questioning that which surrounds them.

 
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Patient Privacy in a Mobile World: A Framework to Address Privacy Law Issues in Mobile Health | K4Health

Patient Privacy in a Mobile World: A Framework to Address Privacy Law Issues in Mobile Health | K4Health | Social Media and Healthcare Evaluation | Scoop.it
bacigalupe's insight:

Protecting personal health information that is collected and transmitted over mobile devices has been cited as an essential factor to bringing mHealth to scale. Led by the mHealth Alliance, the Thomson Reuters Foundation, Merck, and Baker & McKenzie this report aims to increase the understanding of privacy and security policies related to the use of mHealth.

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Can Cell Phones Improve Latinas’ Health? - COLORLINES

Can Cell Phones Improve Latinas’ Health? - COLORLINES | Social Media and Healthcare Evaluation | Scoop.it
From cooking tips to domestic violence resources, text messages in Spanish from Únete Latina are helping some of Fresno’s Latinas take good care of themselves.
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Go where the patients are: Why this doctor is active on social media

Go where the patients are: Why this doctor is active on social media | Social Media and Healthcare Evaluation | Scoop.it
Why am I online blogging or pushing content through my website? Because my patients are there.
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Living the quantified self: the realities of self-tracking for health

Living the quantified self: the realities of self-tracking for health | Social Media and Healthcare Evaluation | Scoop.it
The end of 2012 and the dawning of a new year brought with it a multitude of news reports and blogs on the phenomenon of the quantified self or using self-tracking tools for health promoting purpos...
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Patient-Computer Dialogue: A Hope for the Future

bacigalupe's insight:

Dialogue between physician and patient continues to be the mainstay of clinical medicine. During the clinical visit, the physician endeavors to establish rapport, develop bonds of mutual respect and trust, obtain information relevant to the patient's medical problems and general health, and communicate information for the patient's immediate and long-range use. In turn, the patient can communicate personal preferences to the physician, and the two can work together to develop an approach to treatment that is consistent with both the patient's wishes and the dictates of medical science. However, a detailed, thoughtful clinical interview requires a great deal of time, and too often medical histories are inadequate and counseling is insufficient because of limitations of time beyond the physician's control.1-4

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Couples, the Internet, and Social Media | Pew Research Center's Internet & American Life Project

How American couples use digital technology to manage life, logistics, and emotional intimacy within their relationships
bacigalupe's insight:

As technology becomes more deeply integrated into people’s lives, couples are feeling both the positive and negative effects of digital communications tools in their relationships.

Fully 27% of online adults who are married or in committed relationships say that the internet has had an impact on their relationships; and a majority of them say that impact has been positive. However, technology is also seen as a negative source of distraction in some relationships; 25% of cell owners in serious relationships say the phone distracts their spouse or partner when they are alone together.

Technology makes itself felt in many ways in relationships – in how couples communicate, grow closer, plan, fight and make up. A new report from the Pew Research Center looks at how technology matters in the lives of married or partnered adults. Some of the main findings from the report explore the both the good and the bad.

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The role of social media in online weight... [J Med Internet Res. 2013] - PubMed - NCBI

The role of social media in online weight... [J Med Internet Res. 2013] - PubMed - NCBI | Social Media and Healthcare Evaluation | Scoop.it
PubMed comprises more than 23 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
bacigalupe's insight:
BACKGROUND:

Social media applications are promising adjuncts to online weight management interventions through facilitating education, engagement, and peer support. However, the precise impact of social media on weight management is unclear.

OBJECTIVE:

The objective of this study was to systematically describe the use and impact of social media in online weight management interventions.

METHODS:

PubMed, PsycINFO, EMBASE, Web of Science, and Scopus were searched for English-language studies published through March 25, 2013. Additional studies were identified by searching bibliographies of electronically retrieved articles. Randomized controlled trials of online weight management interventions that included a social media component for individuals of all ages were selected. Studies were evaluated using 2 systematic scales to assess risk of bias and study quality.

RESULTS:

Of 517 citations identified, 20 studies met eligibility criteria. All study participants were adults. Because the included studies varied greatly in study design and reported outcomes, meta-analysis of interventions was not attempted. Although message boards and chat rooms were the most common social media component included, their effect on weight outcomes was not reported in most studies. Only one study measured the isolated effect of social media. It found greater engagement of participants, but no difference in weight-related outcomes. In all, 65% of studies were of high quality; 15% of studies were at low risk of bias.

CONCLUSIONS:

Despite the widespread use of social media, few studies have quantified the effect of social media in online weight management interventions; thus, its impact is still unknown. Although social media may play a role in retaining and engaging participants, studies that are designed to measure its effect are needed to understand whether and how social media may meaningfully improve weight management.

KEYWORDS:

Internet; obesity; overweight; social media; systematic review; weight loss

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Informed Patient Choice

Informed Patient Choice | Social Media and Healthcare Evaluation | Scoop.it
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The Behavioral Intervention Technology Model: An Integrated Conceptual and Technological Framework for eHealth and mHealth Interventions

The Behavioral Intervention Technology Model: An Integrated Conceptual and Technological Framework for eHealth and mHealth Interventions
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http://www.jmir.org/2014/6/e146/

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Electronic Word of Mouth on Twitter About Physical Activity in the United States: Exploratory Infodemiology Study

Electronic Word of Mouth on Twitter About Physical Activity in the United States: Exploratory Infodemiology Study | Social Media and Healthcare Evaluation | Scoop.it

Background: Twitter is a widely used social medium. However, its application in promoting health behaviors is understudied.
Objective: In order to provide insights into designing health marketing interventions to promote physical activity on Twitter, this exploratory infodemiology study applied both social cognitive theory and the path model of online word of mouth to examine the distribution of different electronic word of mouth (eWOM) characteristics among personal tweets about physical activity in the United States.


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Marie Ennis-O'Connor's curator insight, December 7, 2013 5:30 PM

This study recommends that future health marketing interventions promoting physical activity should segment Twitter users based on their number of followers, followings, and gaps between the number of followers and followings. The innovative application of both marketing and public health theory to examine tweets about physical activity could be extended to other infodemiology or infoveillance studies on other health behaviors (eg, vaccinations).

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Gaps in the gaze: Informatic practice and the work of public health surveillance | French | Surveillance & Society

Gaps in the gaze: Informatic practice and the work of public health surveillanceMartin French
Abstract
Many works that may be situated within the interdisciplinary field of Surveillance Studies have described dangerous potentialities associated with the pervasive, IT-mediated merger of once discrete data sets. In effect, these works cautioned about the rise of “big data” before it was named as such. Even so, they share an uncomfortable consonance with euphoric claims about the revolutionary transformation portended by big data. Situating both euphoric and critical accounts of the IT-mediated gaze within a larger informatic ethos — a spirit in the Weberian sense of this term, defined above all by its concealment of the labor that makes IT work — this article argues that discourse on the data-driven, information revolution must be supplemented by a more modest discourse empirically rooted in the everyday, pragmatic realities of IT. Where it departs from well-established social scientific analyses of IT, however, is in its development of a novel concept: informatic practice. Informatic practice may be defined as the sum of labor or activity that materializes information, including, for instance, such mundane activities as data entry. To empirically illustrate some complexities associated with informatic practice, this article discusses process challenges associated with the implementation of a large-scale (or “big”), regionally interconnected public health information system in Ontario, Canada. Informed by science and technology studies (STS) and actor-network theory (ANT), it uses documentary evidence and interviews with 38 key informants to describe informatic practice and to illustrate the mutations—the natural change—introduced into the IT-mediated gaze by everyday, material practices. This complicates both critical and euphoric claims about big data.Gaps in the gaze: Informatic practice and the work of public health surveillance
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List of Digital Health Solutions | Story of Digital Health

List of Digital Health Solutions | Story of Digital Health | Social Media and Healthcare Evaluation | Scoop.it
Digital health solutions range the gamut from consumer, medical, and clinical devices, apps, and related services leveraging them, to genetic and DNA testing to
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Enabling Community Through Social Media

Enabling Community Through Social Media
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Background: Social network analysis provides a perspective and method for inquiring into the structures that comprise online groups and communities. Traces from interaction via social media provide the opportunity for understanding how a community is formed and maintained online.
Objective: The paper aims to demonstrate how social network analysis provides a vocabulary and set of techniques for examining interaction patterns via social media. Using the case of the #hcsmca online discussion forum, this paper highlights what has been and can be gained by approaching online community from a social network perspective, as well as providing an inside look at the structure of the #hcsmca community.
Methods: Social network analysis was used to examine structures in a 1-month sample of Twitter messages with the hashtag #hcsmca (3871 tweets, 486 unique posters), which is the tag associated with the social media–supported group Health Care Social Media Canada. Network connections were considered present if the individual was mentioned, replied to, or had a post retweeted.
Results: Network analyses revealed patterns of interaction that characterized the community as comprising one component, with a set of core participants prominent in the network due to their connections with others. Analysis showed the social media health content providers were the most influential group based on in-degree centrality. However, there was no preferential attachment among people in the same professional group, indicating that the formation of connections among community members was not constrained by professional status.
Conclusions: Network analysis and visualizations provide techniques and a vocabulary for understanding online interaction, as well as insights that can help in understanding what, and who, comprises and sustains a network, and whether community emerges from a network of online interactions.


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Nancy Lublin | Speaker | TED

Nancy Lublin | Speaker | TED | Social Media and Healthcare Evaluation | Scoop.it
TED is a nonprofit devoted to Ideas Worth Spreading - through TED.com, our annual conferences, the annual TED Prize and local TEDx events.
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Dialog wearable epilepsy aid by Artefact predicts seizures

Dialog wearable epilepsy aid by Artefact predicts seizures | Social Media and Healthcare Evaluation | Scoop.it
This wearable design concept helps epilepsy sufferers manage symptoms, predict potential seizures and alert passersby or loved ones when having a fit.
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Societies | Free Full-Text | Visualized and Interacted Life: Personal Analytics and Engagements with Data Doubles

Societies | Free Full-Text | Visualized and Interacted Life: Personal Analytics and Engagements with Data Doubles | Social Media and Healthcare Evaluation | Scoop.it
A field of personal analytics has emerged around self-monitoring practices, which includes the visualization and interpretation of the data produced. This paper explores personal analytics from the perspective of self-optimization, arguing that the ways in which people confront and engage with visualized personal data are as significant as the technology itself. The paper leans on the concept of the “data double”: the conversion of human bodies and minds into data flows that can be figuratively reassembled for the purposes of personal reflection and interaction. Based on an empirical study focusing on heart-rate variability measurement, the discussion underlines that a distanced theorizing of personal analytics is not sufficient if one wants to capture affective encounters between humans and their data doubles. Research outcomes suggest that these explanations can produce permanence and stability while also profoundly changing ways in which people reflect on themselves, on others and on their daily lives.
bacigalupe's insight:

Abstract: A field of personal analytics has emerged around self-monitoring practices, which includes the visualization and interpretation of the data produced. This paper explores personal analytics from the perspective of self-optimization, arguing that the ways in which people confront and engage with visualized personal data are as significant as the technology itself. The paper leans on the concept of the “data double”: the conversion of human bodies and minds into data flows that can be figuratively reassembled for the purposes of personal reflection and interaction. Based on an empirical study focusing on heart-rate variability measurement, the discussion underlines that a distanced theorizing of personal analytics is not sufficient if one wants to capture affective encounters between humans and their data doubles. Research outcomes suggest that these explanations can produce permanence and stability while also profoundly changing ways in which people reflect on themselves, on others and on their daily lives.

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Decision Aid Library Inventory - Patient Decision Aids - Ottawa Hospital Research Institute

Decision Aid Library Inventory - Patient Decision Aids - Ottawa Hospital Research Institute | Social Media and Healthcare Evaluation | Scoop.it
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The Patient, the Provider, and Participatory Medicine—Are We a House Divided? | Journal of Participatory Medicine

The Patient, the Provider, and Participatory Medicine—Are We a House Divided? | Journal of Participatory Medicine | Social Media and Healthcare Evaluation | Scoop.it
What does "participatory medicine" really mean? Widely varying interpretations have sometimes led to confusion and conflict, and threaten to limit our progress in advancing health.
bacigalupe's insight:

I may have a provider bias, but I don’t believe it is productive for our organization to debate whether participatory medicine is primarily about the doctor/patient interface or whether it should focus on patient self-care. Both perspectives are important and are not in conflict. As fellow JoPM Editor Alan Greene is fond of saying, “There is room at the table for all.” It is no more appropriate to focus all our energy on how to promote self-care than it would be to ignore it completely! On the other hand, helping patients navigate more effectively by discussing and promoting a collaborative doctor-patient relationship needs time and attention from the Society of Participatory Medicine as well as from the Journal and other organizational conduits. This definition was published in the first editorial of the Journal of Participatory Medicine in October, 2009: Participatory medicine is a cooperative model of health care that encourages, supports, and expects active involvement by all parties (clinicians, patients, caregivers, administrators, payers, and communities) in the prevention, management, and treatment of disease and disability and the promotion of health.[3] This statement, a balanced view, is what we are about.

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