Self-care and self-management
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Self-care and self-management
Assorted feeds about self-care and lifestyle management
Curated by John Worth
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Type 2 diabetes and the diet that cured me

Type 2 diabetes and the diet that cured me | Self-care and self-management | Scoop.it
After receiving a shock diagnosis of type 2 diabetes, I followed an extremely low-calorie eating plan and saw my blood sugar levels rapidly return to normal
John Worth's insight:

Key words are: "Scientists are cautious, and research is continuing, but evidence is growing that the diet can indeed remove the symptoms of type 2 diabetes."

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My mad night out at the local A&E - Telegraph

My mad night out at the local A&E  - Telegraph | Self-care and self-management | Scoop.it
It's where the buck stops in the health service, and the strain is showing
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I've got a long-term condition...get me out of here! - Health Foundation

I've got a long-term condition...get me out of here! - Health Foundation | Self-care and self-management | Scoop.it
In this blog, Graham Kramer compares being diagnosed with a long-term condition to suddenly having to live in the jungle - facing an unfamiliar landscape where you lack knowledge and understanding of what you might encounter.
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Pharma is going to have to become a tech company

Pharma is going to have to become a tech company | Self-care and self-management | Scoop.it
If the new about an Apple iWatch turns out to be reality healthcare marketers had better be ready because the healthcare applications are endless for device like this.   Imagine a watch reminding y...

Via rob halkes
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rob halkes's curator insight, February 17, 2013 12:47 PM

Pharma has to find its way through this: eventually acknowledging to its strategic position as a partner to care, to begin with it and so adding for its very proper part to the integration of different aspects into the outcome of care. If not it will, however excluded for these single really innovative drugs, be a commodity provider. I 'd state pharma must go the way of partnering to integrate, be it only for the needs of personal medication....

 

OMG why is it so slowly dwaning..?

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Patient-centred healthcare, social media and the internet: the perfect storm? -- Rozenblum and Bates -- BMJ Quality and Safety

Patient-centred healthcare, social media and the internet: the perfect storm? -- Rozenblum and Bates -- BMJ Quality and Safety | Self-care and self-management | Scoop.it

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bacigalupe's curator insight, February 13, 2013 12:12 PM

Patients are central to healthcare delivery, yet all too often their perspectives and input have not been considered by providers.1 ,2 This is beginning to change rapidly and is having a major impact across a range of dimensions. Patients are becoming more engaged in their care and patient-centred healthcare has emerged as a major domain of quality.3–6

At the same time, social media in particular and the internet more broadly are widely recognised as having produced huge effects across societies. For example, few would have predicted the Arab Spring, yet it was clearly enabled by media such as Facebook and Twitter. Now these technologies are beginning to pervade the healthcare space, just as they have so many others. But what will their effects be?

These three domains—patient-centred healthcare, social media and the internet—are beginning to come together, with powerful and unpredictable consequences. We believe that they have the potential to create a major shift in how patients and healthcare organisations connect, in effect, the ‘perfect storm’, a phrase that has been used to describe a situation in which a rare combination of circumstances result in an event of unusual magnitude creating the potential for non-linear change.7

Historically, patients have paid relatively little attention to quality, safety and the experiences large groups of other patients have had, and have made choices about where to get healthcare based largely on factors like reputation, the recommendations of a friend or proximity.8 Part of the reason for this was that information about quality or the opinions of others about their care was hard to access before the internet.

Today, patients appear to be becoming more engaged with their care in general, and one of the many results is that they are increasingly using the internet to share and rate their experiences of health care. They are also using the internet to connect with others having similar illnesses, to share experiences, and beginning to manage their illnesses by leveraging these technologies. While it is not yet clear what impact patients’ use of the internet and social media will have on healthcare, they will definitely have a major effect.

Healthcare organisations have generally been laggards in this space—they need to start thinking about how they will use the internet in a variety of ways, with specific examples being leveraging the growing number of patients that are using the internet to describe their experiences of healthcare and how they can incorporate patient's feedback via the internet into the organisational quality improvement process.

  
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Quantifying the digital health revolution

A presentation delivered by Stephen Davies at the Fitness Writers' Association in London, UK


Via Andrew Spong
John Worth's insight:

Digital health revolution.... great technological developments!  But raises a lot of questions, like how do we match this tech revolution to the challenges of dealing with paternalistic health systems? How do we integrate it?

 

Problem is that, right now, digital health can be effective for the 'already engaged', but what about the majority for whom a meaningful and sustainable engagement with their health is challenging because they lack the skills knowledge and confidence to engage in ways that make them feel good about their health - and are perhaps dependent on the paternalistic approach and prefer it?

 

How do we help people cross that chasm so they can benefit from this excellent technology?

 

Was it Rock Health who said that 80% of health apps are deleted within 10 days of download? Digital health will provide powerful tools in a box of tools for health systems. They can act as enablers, facilitators, perhaps even glue - but only if the context is right for the individual person/patient.

 

It seems that when we talk about digital health we sometimes forget to discuss the chasm - it's one that PR and marketing alone will not bridge.

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Camilo Erazo's curator insight, January 25, 2013 7:35 AM

Doctors will have to deal with a minority of 'super-engaged' patients who attempt to control their bodies through data gathering, analysis and visualization. Are they ready for it?

rob halkes's comment, January 25, 2013 8:39 AM
Personal communication styles have always been around. My hypothesis is that the higher the impact of the health condition and the more vulnerable therapy compliance is (e.g. in (breast) cancer, HIV), the more motivation for patients to tend to issues in coping with their conditions. So, let's not desire to 'connect' all patients, but start to try and learn. Culture and styles of doing care is a learning process..;-)
Rowan Norrie's curator insight, February 16, 2013 5:52 AM

Now is the time of biology, technology and big data! Great overview to show how we are now able to measure billions of datapoints about ourselves, track, analyse and take action accordingly.

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Podcast: e-Patient Dave on the Future, Past of Patient Engagement (Part 2)

Podcast: e-Patient Dave on the Future, Past of Patient Engagement (Part 2) | Self-care and self-management | Scoop.it
Healthcare Informatics Magazine | Health IT | Information Technology,Health care information technology & IT strategy news for CIOs, CMIOs & clinical informaticists. Learn about EMR EHR, ARRA HITECH, wireless technologies & meaningful use policy.
John Worth's insight:

Dave says he still hasn’t seen a framework for patient engagement “that nails the issue from beginning to end". The year of care work done with diabates in the NHS has a lot to offer to answer that.

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Living the quantified self: the realities of self-tracking for health

Living the quantified self: the realities of self-tracking for health | Self-care and self-management | Scoop.it
The end of 2012 and the dawning of a new year brought with it a multitude of news reports and blogs on the phenomenon of the quantified self or using self-tracking tools for health promoting purpos...

Via Dan Baxter
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Dan Baxter's curator insight, January 14, 2013 2:38 AM

Interesting point about interoperability, are we moving towards a time when your fitbit/runkeeper/strava data will work together with your glucose/bodyfat data to see the interelationship and further encourage the right behaviours?

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Health Design Challenge: d+collab // THE PATIENT RECORD

Health Design Challenge: d+collab // THE PATIENT RECORD | Self-care and self-management | Scoop.it
It's time for the patient medical record to get a refresh. We can do better than this.
John Worth's insight:

Great stuff here.  Really support the Thomas Goetz work to get this stuff moving and improve the overall quality of information for patients.  Without this we cannot help patients build their health literacy and confidence to manage their healthcare and make good choices in consultation with their healthcare professionals.

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Health Online 2013 | Pew Research Center's Internet & American Life Project

Health Online 2013 | Pew Research Center's Internet & American Life Project | Self-care and self-management | Scoop.it
35% of U.S. adults have gone online to figure out a medical condition; of these, half followed up with a visit to a medical professional.
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The value of big data, patient self-care and achieving behaviour change

The value of big data, patient self-care and achieving behaviour change | Self-care and self-management | Scoop.it
Innovation in healthcare delivery is no longer simply defined by the range of fixes that can be made from blockbuster drugs or even disease management, nor is it about the great technological advances...
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ePatient Self-Management

ePatient Self-Management | Self-care and self-management | Scoop.it
Using digital health and social media to engage patients and support people to self-manage their...
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Transferring my blog posts to Tumblr now - so no longer on self-management.kyoh.org

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Michael Seres's curator insight, January 15, 2013 3:32 PM

a fascinating insight in to the future

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Top Articles in Health Gamification for 2012

Top Articles in Health Gamification for 2012 | Self-care and self-management | Scoop.it
Just a few more left in our Best of 2012 series! This week we're looking at some of the top articles for Health Gamification in 2012.

Via Alex Butler
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Psychiatrists under fire in mental health battle

Psychiatrists under fire in mental health battle | Self-care and self-management | Scoop.it
British Psychological Society to launch attack on rival profession, casting doubt on biomedical model of mental illness
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» Understanding Stroke

» Understanding Stroke | Self-care and self-management | Scoop.it

Excellent 14 page pull-out on understanding stroke and the need to support people with emotional as well as clinical components.

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Patient engagement key for healthcare systems

Patient engagement key for healthcare systems | Self-care and self-management | Scoop.it
In a recent study, 77 percent of physicians believed patients understood their diagnosis, but only 57 percent of patients could correctly state their diagnosis. Limited or poor communication channe...

 

Go direct to summary of the refered research:

http://www.ncbi.nlm.nih.gov/pubmed/20696951


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rob halkes's curator insight, February 21, 2013 1:07 PM
rob halkes's insight:

It is interesting to note that all discussions about patient empowerment, social media, engagement, social health and ehealth are now slowly, but as it seems to me, definitely moving into recognizing the most fundamental notion of change in health care: the notion that it is indeed the patient's understanding, reflection, attitude and subsequent behaviour that matters in care for health. And, that hence the caregiver's most important role beyond his possible physical intervention, is the guidance and coaching of the patient's very behaviour.

So we are going to see more discussions of how to guide effectively, instruct, teach, reflect, co-learn etc etc.. between physicians and patients.

We are back at school. And upon the dawning of this very notion, it so seems that all protagonists of the system of caring for heath are with us too...

Let's learn..

Good.

 

Karl Wabst's curator insight, February 22, 2013 1:03 PM

A study that sought to assess patient knowledge and perspectives of inpatient care vs. physician assessments of their own communications found what  many of us who have been patients in a hospital would consider predictable results. While Doctors believed they communicated significant facts about diagnosis and care, patients were confused about their diagnosis and instructions for continuing care. This is a common communications gap. Those with advanced knowledge in a subject have a hard time communicating with relative novices. Knowing something does not mean that one can effectively communicate that knowledge to another. Check out this YouTube video, about tappers and listeners, for a better understanding of this phenomenon https://www.youtube.com/watch?v=DWeL9E2Rl5E

Karl Wabst's comment, February 22, 2013 1:05 PM
Rob - Thanks for scooping this article!
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Big data and the future of healthcare

Big data and the future of healthcare | Self-care and self-management | Scoop.it

Via Andrew Spong, Chatu Jayadewa, Lionel Reichardt / le Pharmageek, Dan Baxter
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Lauri Eloranta's curator insight, January 24, 2013 6:04 PM

Over-simplistic and unrealistically positive picture of big data in healthcare. I wish it would be this easy.

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The variable nature of 'health literacy'

I answered a survey on health literacy for the Patient Information Forum yesterday and in presenting my answers, found myself getting increasingly unsettled by the idea that a person can be defined as ‘health literate’ or to have ‘low levels of health literacy’.

 

What defines somebody as health literate.

 

Generally speaking, people normally do two things when they are worried about their health or get ill - go to the doctor and go onto Google. They might also discuss the issue with family or neighbours...

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Michigan HIEs Able to Share Behavioral Health Data

Michigan HIEs Able to Share Behavioral Health Data | Self-care and self-management | Scoop.it
Michigan Health Information Network Shared Services, the federally funded, state-designated entity to support health information exchange across the state, has taken steps to support the secure sharing of behavioral health information.
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5 steps to forming a true partnership with your patient

5 steps to forming a true partnership with your patient | Self-care and self-management | Scoop.it
Leana Wen, MD
Emergency Medicine
Harvard/Brigham & Women’s/Mass. General Hospital
As an emergency physician and patient advocate, I meet more and more patients who are confused and frustrated because...
John Worth's insight:

Great post. It would be good to link these tips to the techniques patients could use in the many thousands of hours they spend self-managing outside of the consulting room.

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The changing social media landscape in healthcare — Digital Media In Healthcare From EPG Health Media

The changing social media landscape in healthcare — Digital Media In Healthcare From EPG Health Media | Self-care and self-management | Scoop.it
Welcome to the EPG Health Media blog! Here we reflect on our research and experiences within the digital health field. EPG Health Media is a digital health publisher with access to HCP and patient audiences.
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Measuring the ROI of Digital Health Technologies | The Digital Health Corner

Measuring the ROI of Digital Health Technologies | The Digital Health Corner | Self-care and self-management | Scoop.it

  Alere’s purchase of Medapps prompts me to discuss a question posed to me daily, “What is the ROI of digital health technologies?”  Discussants in the Digital Health Linkedin Group were surprised at the purchase price of ‘no greater than $22M’ for Medapps.  The real issue of these technologies in my mind is not as much what the potential market is as what the ROI is. I am not going to apply economic theory or formulas in this post, as I have no formal training in economics.  However, I will make this a qualitative discussion because it is a fundamental which is relevant to the adoption of such technologies, as well as furnishing some examples.


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rob halkes's curator insight, January 14, 2013 4:56 AM

ROI always a tricky concept, but it need exploring..

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'My child's massive stroke, aged 11'

'My child's massive stroke, aged 11' | Self-care and self-management | Scoop.it
Soniya Mundy did not know how brain damaged her son Kray was after a stroke when he was just 11 years old, but she was determined to help him on the long road to recovery.
John Worth's insight:

The recovery process for strokes is all about techniques in self-management and ensuring people have access to the right information and knowledge.

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The Social Life of Health Information and the Internet - CHCF.org

The Social Life of Health Information and the Internet - CHCF.org | Self-care and self-management | Scoop.it
A national survey by the Pew Research Center finds that patients and caregivers increasingly use the Internet to find and share information about symptoms, treatments, and support.
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