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Science ouverte - Open science
Cinq thèmes sont suivis dans ce scoop.it : le libre accès (Open Access), la science citoyenne (citizen science), la science en ligne (Open Science), la science 2.0 et les cours en ligne gratuits (MOOCs).
Curated by Florence Piron
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Healthcare Policy, une revue dorée

Healthcare Policy, une revue dorée | Science ouverte - Open science | Scoop.it

Open Access Policy
All content published in Healthcare Policy is deposited with PubMed Central by the publisher with a 12 month embargo. Authors/funders may pay an Open Access fee to make the article free on the Healthcare Policy website and PMC immediately on publication. All content older than 12 months is freely available on this website.

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Prescrire - e ''Pharmacovigilance : mission impossible pour les firmes'', 1er novembre 2012

Prescrire - e ''Pharmacovigilance : mission impossible pour les firmes'', 1er novembre 2012 | Science ouverte - Open science | Scoop.it

Des firmes pharmaceutiques dissimulent les effets indésirables de leurs médicaments, discréditant leurs prétentions en termes d'information du public et d'activité de pharmacovigilance.

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Crowdsourcing a cure for my brain cancer - opinion - 31 October 2012 - New Scientist

Crowdsourcing a cure for my brain cancer - opinion - 31 October 2012 - New Scientist | Science ouverte - Open science | Scoop.it
Digital artist Salvatore Iaconesi hacked his medical records to put them online in a global search for the best treatments...
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Open health data in practice: Increase your access to lab results

Open health data in practice: Increase your access to lab results | Science ouverte - Open science | Scoop.it

Voice your support for a proposed federal rule that expands patients' access to test results.

I’m convinced that there’s a wave of innovation coming in healthcare, driven by new kinds of data, new ways of extracting meaning from that data, and new business models that data can enable. That’s one of the reasons why we launched our StrataRx Conference, which focuses on the importance of data science to the future of health care.

Unfortunately, much of the data that will enable an entrepreneurial explosion is still locked up — in paper records, in proprietary data formats, and by well-intentioned but conflicting privacy regulations.

We’re making progress towards open data in healthcare, but there are still so many obstacles! Ann Waldo recently introduced me to one of these. (...) - by Tim O'Reilly, O'Reilly radar, October 16, 2012




Via Julien Hering, PhD
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Open Access Is Not for Scientists. It’s for Patients. | Speaking of Medicine

Open Access Is Not for Scientists. It’s for Patients. | Speaking of Medicine | Science ouverte - Open science | Scoop.it
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US Doctor Data to be “Open Eventually” | Open Knowledge Foundation Blog

US Doctor Data to be “Open Eventually” | Open Knowledge Foundation Blog | Science ouverte - Open science | Scoop.it

Here’s an interesting project using slightly unorthodox means to get data out into the open: crowdfunding the purchase of US healthcare data for subsequent open release.

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What is OSDD - Open Source Drug Discovery (OSDD)

What is OSDD - Open Source Drug Discovery (OSDD) | Science ouverte - Open science | Scoop.it

OSDD is a CSIR led team India Consortium with global partnership with a vision to provide affordable healthcare to the developing world by providing a global platform where the best minds can collaborate & collectively endeavor to solve the complex problems associated with discovering novel therapies for neglected tropical diseases like Malaria, Tuberculosis, Leshmaniasis, etc.OSDD is a translational platform for drug discovery, bringing together informaticians, wet lab scientists, contract research organizations, clinicians, hospitals and others who are willing to adhere to the affordable healthcare philosophy. It is a concept to collaboratively aggregate the biological, genetic and chemical information available to scientists in order to use it to hasten the discovery of drugs. This will provide a unique opportunity for scientists, doctors, technocrats, students and others with diverse expertise to work for a common cause. The success of Open Source models in Information Technology (For e.g., Web Technology, The Linux Operating System) and Biotechnology (For e.g., Human Genome Sequencing) sectors highlights the urgent need to initiate a similar model in healthcare, i.e., an Open Source model for Drug Discovery.

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Bloke puts full medical records online, asks for advice

Bloke puts full medical records online, asks for advice | Science ouverte - Open science | Scoop.it
I think this is an interesting idea, odd that it's so difficult to get hold of the information as a patient.  http://www.newscientist.com/article/mg21628880.300-crowdsourcing-a-cure-for-my-brain-cancer.htm dr ben goldacre ben@goldacre.net http://www.badscience.net/...
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Community-Based Participatory Research from the Margin to the Mainstream: Are Researchers Prepared?

Community-Based Participatory Research from the Margin to the Mainstream: Are Researchers Prepared? | Science ouverte - Open science | Scoop.it

CBPR is a kind of citizen science.


Via Marybeth Shea
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