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Is pharma's risk aversion threatening patient and public health?

Is pharma's risk aversion threatening patient and public health? | SavingCase | Scoop.it

Leading figures in the European Medicines Agency (EMA) have warned that a climate of risk-aversion in medicines regulation is threatening patient and public health.


In Nature Reviews Drug Discovery, EMA's executive director Guido Rasi and senior medical officer Hans-Georg Eichler - along with other senior colleagues - suggest there has been a shift towards an intolerance to risk that is denying patients access to new treatments.


Via Andrew Spong
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Top pharma companies in social media: whose opinion are we polling?

Top pharma companies in social media: whose opinion are we polling? | SavingCase | Scoop.it

Millions of words have been written over recent years across media channels about the relative performance of pharmaceutical companies in social environments. This site has contributed a few thousand of its own, it should probably be noted at the outset.

 

No aspect of the management of the portfolio of presences of companies has been deemed to be too small to analyse in detail.

 

Repeatedly.

As the novelty wore off, we have for the most part managed to emerge collectively from the pleasure palace of social with our sanity intact, our humanity undiminished, and our sights firmly set on using social technologies to do things differently.

 

Somewhere along the way, a pharma social hegemony appears to have been established...


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Andrew Spong's curator insight, February 13, 2013 12:20 PM

Click on the title link above to read the full post on stwem.com

Jarek Kucia's curator insight, February 14, 2013 5:22 AM

Seems like "wait and see" strategy. Pharma is conservative, but it does not explain everyting. They're affraid or don't know like to do it.

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Wikipedia Founder: Online Connections Foster Real Change

Wikipedia Founder: Online Connections Foster Real Change | SavingCase | Scoop.it
Jimmy Wales, founder of the Wikimedia Foundation and Wikipedia.org, spoke about digital campaigning for global health at the 2012 Social Good Summit on Monday. Gabriel Jaramillo, general manager of the Global Fund to Fight AIDS, Tuberculosis and Malaria, joined him on the panel moderated by Mashable‘s Pete Cashmore.

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my thoughts and photos: Global Genes Project

my thoughts and photos: Global Genes Project | SavingCase | Scoop.it

@GlobalGenes 1 in 10 people have rare & genetic diseases. Unite 1 Million people who support rare & genetic disease awareness. 7,000 different #rarediseases exist - 95% have no treatments. Support 30 million Americans and 350 million ...


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Free access to British scientific research to be available within two years

Free access to British scientific research to be available within two years | SavingCase | Scoop.it
RThe government is to unveil controversial plans to make publicly funded scientific research immediately available for anyone to read for free by 2014, in the most radical shakeup of academic publishing since the invention of the internet.

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Best Practices for Twitter for Healthcare and Pharma Professionals


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Can Special Education Personnel Pick And Choose Services And ...

Have уou bееn told bу special education personnel that they do nоt provide Applied Behavioral Analysis therapy, fоr children wіth autism? Have you bееn told thаt уоur school district onlу рrоvіdеs сеrtain services, due to ...
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University of Florida News – Children with rare, incurable brain disease improve after gene therapy

University of Florida News – Children with rare, incurable brain disease improve after gene therapy | SavingCase | Scoop.it
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U.S. may speed approval of 'breakthrough' drugs

Experimental drugs that show a big effect early in development for treating serious or life-threatening diseases would get a faster and cheaper path to U.S. approval, under a proposal likely to become law this year.
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Estimating rare disease prevalence: a tough nut to crack ? | Rare disease matters

Estimating rare disease prevalence: a tough nut to crack ? | Rare disease matters | SavingCase | Scoop.it
How can one retrieve reliable and acceptable data on rare disease prevalence and do specific resources exist that can be consulted ?
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MPS/ML Bookshelf

MPS/ML Bookshelf | SavingCase | Scoop.it
You may have noticed that rare disease finds its way into books, and on television and movies here and there. There’s nothing more popular for rare disease geeks than House,...
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The 200 Best Special Education Apps | Edudemic

The 200 Best Special Education Apps | Edudemic | SavingCase | Scoop.it
@spe221 The 200 Best Special Education Apps | Edudemic http://t.co/hnzRB9m0 via @edudemic...
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The future of pharma digital | Velocity

The future of pharma digital | Velocity | SavingCase | Scoop.it

Is digital a strategy, a way of thinking, a context, or a milestone in an ongoing journey for the pharma industry towards an evolving future the outlines of which it is only now beginning to discern? Who better to review and assess possible digital futures for pharma than Kai Gait, a long-standing and globally respected digital expert who has helped shape the industry's thinking through his personal contributions.


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Using social data to drive business objectives

Using social data to drive business objectives | SavingCase | Scoop.it

It's a familiar litany now, that the openness and transparency of social media will unleash a wide range of compelling outcomes for our organizations, if we'll only embrace it. While there is little doubt that social media is one of the great phenomenons of our age, there are certainly those that think the hype surrounding it is also a bit over-egged.

 

Yet a growing set of compelling examples is showing us unique and vitally useful outcomes that are only possible in social media. For those just catching up with the story, part of the uniqueness and power of social media is that it generaly makes the information that's shared -- using social networks, blogs, and other forms -- public by default.

 

This is in contrast to earlier forms of analog and digital communication, where we were required to have perfect foreknowledge of who should be involved in a conversation, such as their phone number(s), e-mail address(es), or other contact info. Everyone else was automatically excluded from the process and the contents of the discourse itself was largely invisible and left little behind.


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First Pathfinder Awards announced tackling rare and orphan diseases

Peer to peer partnership! The first two projects to be funded under the Wellcome Trust's new Pathfinder Awards are announced today, tackling rare and orphan diseases for which there are currently no or very limited treatment options. #raredisease


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Rare diseases part 2: orphan drugs – a paradigm shift for marketing ...

Rare diseases part 2: orphan drugs – a paradigm shift for marketing ... | SavingCase | Scoop.it
This article is about the marketing of orphan drugs for rare diseases by pharmaceutical companies.
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Facebook And GE’s Newest App, HealthyShare, Points To How Open Graph Can Go Beyond The Web

Facebook And GE’s Newest App, HealthyShare, Points To How Open Graph Can Go Beyond The Web | SavingCase | Scoop.it
The Open Graph has proven to be a major tool for Facebook to extend its reach beyond its own social network into the wider Internet, and today comes news of an app that could just be the first sign of how that might even go even further than...
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Pharma Marketing Blog: Shire Seeks to Maintain YouTube "Loophole" ...

Pharma Marketing Blog: Shire Seeks to Maintain YouTube "Loophole" ... | SavingCase | Scoop.it
FDA has received several comments from the pharmaceutical industry regarding the agency's "Draft Guidance for Industry Direct-to-Consumer Television Advertisements." In past posts I reviewed comments from PhRMA (the ...
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The Housing Dilemma for Digital Pharma Marketing

The Housing Dilemma for Digital Pharma Marketing | SavingCase | Scoop.it
The structure of digital pharma marketing groups runs the gamut from globally centralized to support teams situated under brand managers.
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Teaching Learners with Multiple Special Needs: iPossibilities: iPods and iPads in Special Education | Web 2.0 & 21st Century Learning

Teaching Learners with Multiple Special Needs: iPossibilities: iPods and iPads in Special Education | Web 2.0 & 21st Century Learning | SavingCase | Scoop.it
You are hereby invited to view the slideshows from the iPossibilities: iPods and iPads in Special Education Presentation give by Kate Ahern, M.S.Ed. and Bonnie Dwyer on August 30, 2010.
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UK pharma won’t have to 'trawl internet' for adverse event reports - NEWS - articles - Pharmaceutical Industry - PMLiVE

UK pharma won’t have to 'trawl internet' for adverse event reports - NEWS - articles - Pharmaceutical Industry - PMLiVE | SavingCase | Scoop.it
Pharmaceutical Industry | NEWS | | UK pharma won’t have to 'trawl internet' for adverse event reports - MHRA confirms that limits of pharmacovigilance responsibility also apply to blogs, chat rooms and social media sites | PMLiVE (UK pharma won’t...
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Talk to Us! Health Journalism from a Patient's Perspective | Reporting on Health

Talk to Us! Health Journalism from a Patient's Perspective | Reporting on Health | SavingCase | Scoop.it
Reporting on Health is a place where journalists, bloggers and health policy thinkers can share ideas on health reporting, health journalism, health communication and our communities.
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Collaboration can advance rare-disease work, researcher says

Collaboration can advance rare-disease work, researcher says | SavingCase | Scoop.it
Researchers working on rare diseases should get access to EMRs, clinical trial data, patient registries, tissue samples, biofluid repositories and other information that is being collected but not shared, says amyotrophic lateral sclerosis...
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The Merits of Data Sharing in Tackling Rare Diseases - Bio-IT World

The Merits of Data Sharing in Tackling Rare Diseases - Bio-IT World | SavingCase | Scoop.it
By Shraddha Chakradhar

May 7, 2012 | BOSTON—Alex Sherman, director of systems in neurology at Massachusetts General Hospital (MGH) presented promising new initiatives in the battle against rare diseases at the Bio-IT World Conference.
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