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FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives

FDA May Establish “Office of Patient Affairs” to Capture Patient Perspectives | Santé Industrie Pharmaceutique | Scoop.it

As part of efforts to better capture patients' perspectives, the US Food and Drug Administration (FDA) on Monday said it is considering establishing an "Office of Patient Affairs," to be tasked with supporting and coordinating patient engagement across the agency.

 

The move to create the office would be part of the agency’s efforts to offer “a single, central entry point to the Agency for the patient community,” as well as “triage and navigation services for inbound inquiries from patient stakeholders.”

 

The office would likely host and maintain data management systems to incorporate and formalize knowledge shared with FDA by patient stakeholders and FDA's relationships with patient communities, and the office would be part of efforts to develop a scalable and forward-looking platform for communicating with patient stakeholders, particularly online.

 

Further Reading:

“The New, Patient-Centric FDA: A Double-edged Sword”; http://sco.lt/5la6qn
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Pharma Guy's curator insight, March 15, 11:55 AM

I wonder who would head up this office?

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Les médecins attendent beaucoup des technologies - #hcsmeufr

Les médecins attendent beaucoup des technologies - #hcsmeufr | Santé Industrie Pharmaceutique | Scoop.it
Le géant japonais de l’électronique Epson vient de sonder sept mille ‘’professionnels de la santé’’ en Europe.

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Télémédecine : en finir avec les idées reçues sur la consultation en ligne par Mathilde Le Rouzic, fondatrice d'Hellocare

Télémédecine : en finir avec les idées reçues sur la consultation en ligne par Mathilde Le Rouzic, fondatrice d'Hellocare | Santé Industrie Pharmaceutique | Scoop.it

La téléconsultation est-elle victime de ses idées reçues? Déjà (très) développée en Europe, notamment dans les pays Baltes, aux Etats-Unis et dans les pays asiatiques, la télémédecine a du mal à se frayer un chemin en France. Pourtant, grâce à l’innovation, elle peut désormais répondre aux problèmes qui agitent à la fois le parcours de santé, le corps médical et sa patientèle.


Via Jerome Leleu, Coralie Bouillot, Chanfimao, Rémy TESTON, Philippe Marchal
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Vivi Doctor : la première plateforme belge de consultation médicale à distance

Vivi Doctor : la première plateforme belge de consultation médicale à distance | Santé Industrie Pharmaceutique | Scoop.it
Si la télémédecine est déjà une réalité dans de nombreux pays européens, en particulier dans les pays nordiques, en Belgique la santé digitale s’amorce, portée par le dynamisme de jeunes entrepreneurs. ViVi Doctor fait partie de ces start-ups prometteuses qui entendent améliorer l’accessibilité des soins et faciliter le suivi grâce à la téléconsultation.

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Rescooped by Sandra Boyer from Social Media and Healthcare
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Why Do Healthcare Professionals Find Social Media Useful?

Why Do Healthcare Professionals Find Social Media Useful? | Santé Industrie Pharmaceutique | Scoop.it

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rob halkes's curator insight, June 10, 2016 7:08 AM

Nice Overview: WHy do healthcare professionals find social media useful!

Art Jones's curator insight, March 13, 4:02 PM

60% of doctors say social media improves the quality of care delivered to patients. (source: Demi & Cooper Advertising and DC Interactive Group) . How are you using social media?

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Sanofi lance des essais cliniques "numériques" à distance

Sanofi lance des essais cliniques "numériques" à distance | Santé Industrie Pharmaceutique | Scoop.it
Le groupe pharmaceutique français Sanofi a annoncé jeudi le lancement d'essais cliniques numériques permettant en particulier de suivre le

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IBM : les maladies du cœur n'ont plus de secret pour l'IA Watson 

IBM : les maladies du cœur n'ont plus de secret pour l'IA Watson  | Santé Industrie Pharmaceutique | Scoop.it
IBM a amélioré Watson, son IA capable de détecter des maladies et des cancers à travers l'analyse d'imagerie médicale. Le système séduit de plus en plus dans le monde hospitalier.

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Une intelligence artificielle conçue pour éviter les erreurs de prescription - CRIP

Une intelligence artificielle conçue pour éviter les erreurs de prescription - CRIP | Santé Industrie Pharmaceutique | Scoop.it
Une intelligence artificielle conçue pour éviter les erreurs de prescription Grâce à un système basé sur l’intelligence artificielle, deux médecins françai

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Santé : des technologies toujours plus bluffantes. #hcsmeufr

Santé : des technologies toujours plus bluffantes. #hcsmeufr | Santé Industrie Pharmaceutique | Scoop.it
Voici les dernières innovations qui nous attendent en matière de santé. Certaines s'utilisent avec un simple smartphone !

Via LEO INNOVATION LAB FRANCE, Esposito Christelle, Lionel Reichardt / le Pharmageek
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Elie Lobel (Orange Healthcare) : « La France connaît un problème d’échelle en e-santé »

Elie Lobel (Orange Healthcare) : « La France connaît un problème d’échelle en e-santé » | Santé Industrie Pharmaceutique | Scoop.it
Mêlant le maillage territorial d’Orange avec une expérience de dix années dans le secteur, la filiale healthcare du groupe télécom veut révolutionner l’univers des soins. Grâce à une stratégie d’innovation ambitieuse, son directeur général Elie Lobel mène plusieurs projets de front afin de faire bénéficier à ses clients, et in fine aux malades, les potentialités du digital.

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La Santé face au tsunami NBIC et aux plateformistes

La Santé face au tsunami NBIC et aux plateformistes | Santé Industrie Pharmaceutique | Scoop.it
Télécharger le rapport au format PDF L’émergence des NBIC  (Nanotechnologies, Biotechnologies, Informatique et sciences Cognitives)  va provoquer un bouleversement majeur du secteur de la santé. Au-delà de la remise en cause radicale du rôle et de la valeur ajoutée du personnel médical, ce sont à plus long terme les caractéristiques humaines qui sont en jeu.…

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Rescooped by Sandra Boyer from Digital Delights - Digital Tribes
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An Anatomy of the Modern Learning Professional

An Anatomy of the Modern Learning Professional | Santé Industrie Pharmaceutique | Scoop.it

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How Wearable Technology is Transforming Healthcare? #Infographic

How Wearable Technology is Transforming Healthcare? #Infographic | Santé Industrie Pharmaceutique | Scoop.it
Health care providers are using wearable technology to enhance the clinical outcomes of sufferers of chronic diseases and improve clinician/patient engagement processes.
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Les médecins attendent beaucoup des technologies 

Les médecins attendent beaucoup des technologies  | Santé Industrie Pharmaceutique | Scoop.it
Le géant japonais de l’électronique Epson vient de sonder sept mille ‘’professionnels de la santé’’ en Europe.

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NTIC : Comment promouvoir leur usage chez les médecins et les professionnels de santé 

NTIC : Comment promouvoir leur usage chez les médecins et les professionnels de santé  | Santé Industrie Pharmaceutique | Scoop.it

Recueillir, stocker, traiter et partager l'information et notamment les données « patients » par voie électronique fait partie des enjeux et des défis prioritaires à relever dans nos systèmes de santé.


Via Doc-Ifsi-Narbonne, Pharmacomptoir / Corinne Thuderoz, LA BLOUSE BLANCHE , Philippe Marchal
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FELIX's curator insight, March 27, 4:08 PM
Les NTIC ont le potentiel d'améliorer les soins de santé et la santé des patients, c’est ce qu’il faut retenir sur la nécessité de convaincre les professionnels de santé à mieux choisir leurs outils et à es utiliser.
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The wonder drug: A digital revolution in health care is speeding up | The Economist

The wonder drug: A digital revolution in health care is speeding up | The Economist | Santé Industrie Pharmaceutique | Scoop.it
WHEN someone goes into cardiac arrest, survival depends on how quickly the heart can be restarted. Enter Amazon’s Echo, a voice-driven computer that answers to the name of Alexa, which can recite life-saving instructions about cardiopulmonary resuscitation, a skill taught to it by the American Heart Association.

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Art Jones's curator insight, March 15, 6:28 PM

Amazon's ALEXA is capable of delivering credible CPR instruction because Alexa was trained by the American Heart Association.

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La fiabilité des applications et objets connectés de santé mise en question

La fiabilité des applications et objets connectés de santé mise en question | Santé Industrie Pharmaceutique | Scoop.it

Aujourd’hui, il est assez simple de créer et développer des applications de fitness et de diagnostic santé. Les applications de santé se multiplient sur l’App Store (il en existe plus de 165 000), et face à ce phénomène la question qu’il faut se poser est la suivante : parmi toutes ces applications, combien fournissent des résultats fiables ?


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Etude « Internet of Things » L'Internet des Objets dans l'univers de la Santé

Etude « Internet of Things » L'Internet des Objets dans l'univers de la Santé | Santé Industrie Pharmaceutique | Scoop.it
Dans le cadre de cette étude, 3 100 décideurs d’entreprises provenant de 20 pays différents ont été interrogés dans le but d’évaluer l’état actuel de l’IoT et son impact dans différents secteurs.

Les acteurs de la santé, 3èmes à avoir adopté de l'IoT

Le secteur de la santé a adopté l’IoT pour améliorer la surveillance des patients, réduire les dépenses et encourager l’innovation :

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Takeda Tests Apple Watch App for Patients with Major Depressive Disorder (MDD)

Takeda Tests Apple Watch App for Patients with Major Depressive Disorder (MDD) | Santé Industrie Pharmaceutique | Scoop.it

Working with UK firm Cambridge Cognition the company is piloting the app to monitor and assess cognitive function in patients with MDD, which affects around 350 million around the world.

 

Nicole Mowad-Nassar, vice president of external partnerships at Takeda Pharmaceuticals USA, said: “This collaboration is part of our strategy to embrace new technology to better understand the patient experience and assist healthcare professionals in creating improved patient care pathways.”

 

The small 30-patient trials of adults who have been prescribed an antidepressant will evaluate the app's feasibility and compliance, and aims to understand how a wearable's measures of mood and cognition compare to traditional neuropsychological testing and patient reported assessments.


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Pharma Guy's curator insight, March 2, 1:44 PM

Further Reading:

Prabhas Buddu's comment, March 2, 2:06 PM
http://techfeastpro.com/news/nokia-icon-back-nokia-3310-nokia-3-nokia-5/
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What the FDA did in digital health in 2016

What the FDA did in digital health in 2016 | Santé Industrie Pharmaceutique | Scoop.it
Over and above clearing a number of devices, the FDA had a busy year in 2016, passing a number of draft and final guidances related to digital health, having some notable conversations with vendors, and even turning down some devices whose FDA clearance was expected this year. We've rounded up the year's 510(k)'s in a separate article, but here's a rundown on some of the other actions the regulatory body took, as well as a brief look ahead at what 2017 might have in store for the FDA.
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Ces 21 innovations qui vont bousculer la médecine du futur

Ces 21 innovations qui vont bousculer la médecine du futur | Santé Industrie Pharmaceutique | Scoop.it
Révolution de la chirurgie, essor de la nanorobotique, nouvelles biothérapies… Jamais les promesses d’être mieux soigné n’ont été si nombreuses.

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The modern doctor is a digital nomad 

The modern doctor is a digital nomad  | Santé Industrie Pharmaceutique | Scoop.it

There seems to be a new tool for communication appearing on a weekly basis, be it a closed messaging app or broad social sharing tool, there is always a new medium for us to connect with the world.

Data shows that doctors, nurses and other medical professionals have flocked to tools like Twitter to share their opinions and engage with their peers on a multitude of topics, but where do they go from there? Do doctors use Snapchat? Is your pharmacist on Instagram?

Tools such as Facebook and Twitter are a decade old and have become part of the social consciousness of a generation. For many, social networks have become the primary individual communication platforms between friends, peers and groups, and these personal interactions have spread into all sectors and markets, including healthcare.

The rise Of Dr Millennial
We are seeing a positive shift in the uptake of social platforms by healthcare professionals (HCPs) due largely to a new generation of physicians, nurses and pharmacists who have qualified in the last 5-10 years.

These 'millennial' HCPs grew up with digital tools, researching not in libraries or using books, but using the Internet, collaborating and questioning their peers through social communities. Naturally their usage continued through both their medical study years and their qualified practice.

Most of the world aged 40 and under can now be found across multiple social networks both personally and professionally, and the healthcare community is no different. It would, however, be wrong to say that social activity is the reserve of the millennial HCP generation.

At the other end of the spectrum, there are highly-skilled and experienced healthcare professionals, wanting to stay relevant and adapting the way they work to incorporate social media and new technologies into their daily lives.

These individuals are pioneers who have embraced change and more often than not, use their professional credibility to lead the conversation and influence others.

The combination of these two groups has created a confluence of conversation that results in a resource of in-depth knowledge and insight provided online for all to access.

Millennial HCPs grew up using digital tools and social communities

Moving beyond 140-characters
Research shows that Twitter still holds the leading share of voice when it comes to the communication practices of healthcare professionals; however, other networks are becoming more and more prevalent.

Some, perhaps frustrated by Twitter's limited 140-character posting limit, have migrated to Medium.com, the site where users share stories, as well as interacting with each other.

Medium was created by Twitter co-founder Evan Williams in 2012, with a vision of offering the same broad accessibility of information that Twitter provided, but with much longer-form, in-depth content.

The site attracts roughly 30 million monthly visitors, and preliminary research showed a significant number of HCPs on the platform, with some writing, some engaging and others simply listening to the conversation.

The predominant content from HCPs on Medium was advice around specialist topics, usually a disease or therapy area.

These articles range from health tips, as with a post from orthopaedic surgeon Paul McDonough MD (@DrPaulMcDonoughMD) on looking after your back, to deep analysis of focused topics, such as a data-backed analysis of the single payer system in the US by Pat Salber MD (@Docweighsin), an emergency physician and founder of 'The Doctor Weighs In' blog. Pat has used Medium to spark conversation around this and many other topics on policy and governance in healthcare.

Another long-form content channel largely utilised by HCPs is Quora. The network applies a simple question and answer format to its content and hosts a wealth of knowledge, some broad, around topics such as technology, with wide interest groups, as well as other very specific conversations, such as evolutionary genetics, with few contributors, but rich depth of content.

With any channel, cutting through the noise of generalist conversation is often a challenge; Quora, however, is more approachable than others in that it breaks down conversations into topics and groups, as well as by user.

While it would be wrong to call Quora an 'emergent' site, having been set up in 2009, it is one that has recently seen a lot of activity from healthcare professionals. The number of interactions and the size of groups have grown steadily and are now at a point where it can be considered a significant outlet for HCP engagement.

The largest group to feature HCPs on Quora was 'Medicine and Healthcare'. At the time of writing, the topic had over 157,000 questions and 1.6 million individuals following the conversation. Of the top 10 writers within the topic, seven were HCPs.

A secondary topic group is 'Doctors', a group with over half-a-million followers and 18,500 questions. Of the ten most active writers, nine were HCPs.

Many physicians use Quora to test theories and ask questions of other HCPs. Sometimes these discussions are around disease areas or treatment methodologies.

In one response from radiation oncologist Marc-Emile Plourde to the question 'As a medical doctor, what is the biggest mistake that you've made?', he shares details about a mistake involving drug administration that resulted in a very negative experience for his patient. As this is in print, I cannot link to it, but I encourage you to look it up.

Plourde moved on from this mistake, which happened early in his career, to create a mobile app called MD on Call, to provide other healthcare professionals with advice on frequently encountered 'on-call' medical situations.

More often than not, social media channels and online networks can appear one-sided, with communication being very outward looking. Quora changes this dynamic. By using questions instead of statements as the starting point, conversations flow more naturally.

Many physicians use Quora to test theories and ask questions of other HCPs

Smile, you're on camera!
While channels like Twitter, Quora and Medium extend the reach of traditional knowledge sharing by healthcare professionals, there are a number of truly innovative implementations of new social channels by healthcare professionals.

One that has caused a furore, both in the healthcare world and with the wider public, is that of surgeons taking their surgery global through video and photo live sharing networks like Facebook live, Instagram and Snapchat.

These social trailblazers, generally from the field of cosmetic surgery, have opened up their theatres to tens of thousands of people, all of whom chose to watch plastic surgeons in action.

Dr Sandra Lee, otherwise known as 'Dr Pimple Popper,' performs blackhead extractions and more to an audience of about 1.6 million on Instagram.

The California based, board-certified dermatologist has performed thousands of procedures, all documented through Instagram. From an analysis of the comments, many seem to find her work fascinating, while others use the innovative interactive approach to ask questions, relating either to a personal condition or advice regarding the profession of cosmetic surgeon.

Other examples of 'live' surgery include plastic surgeon, Matthew Schulman MD, who uses Snapchat to share images and video of a variety of plastic surgery procedures, including those performed under general anaesthesia such as liposuction and hernia repair.

While these videos garner huge media attention, and views in the millions, not everyone is pleased with this latest development. Many physicians claim that the videos distract from the procedure and can potentially pose a threat to the patient.

In 2013 the General Medical Council introduced a set of guidelines on how HCPs should conduct themselves on social media. However, with constantly evolving social and technological changes, a further revision will soon be needed to keep up with the pace of innovation.

The way we interact has changed beyond recognition over the past decade and will continue to do so over the decade to follow. For those in healthcare, social media and technology provide new and innovative opportunities to educate, engage and learn. The challenges for healthcare professionals will be to find the balance between what is possible and what is best for the patient.


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Internet : 68 millions de pubs de médicaments non approuvés bloquées par Google

Internet : 68 millions de pubs de médicaments non approuvés bloquées par Google | Santé Industrie Pharmaceutique | Scoop.it
Dans son rapport annuel sur son activité de veille, Google affirme avoir bloqué l’année dernière, 68 millions d’annonces publicitaires pour des produits pharmaceutiques non autorisés, soit six fois plus qu’en 2015.

En 2016, Google a doublé son activité dans la détection de sites proposant des contenus et des produits illégaux. Sur le 1,7 milliard d’annonces publicitaires bloquées l’année dernière par le géant du Web, 68 millions concernaient des produits de santé illicites. C’est six fois plus que les 12,5 millions supprimés un an auparavant.

Via Annick Valentin Smith, Lionel Reichardt / le Pharmageek
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Researchers have Found a Way to Delay Aging

Researchers have Found a Way to Delay Aging | Santé Industrie Pharmaceutique | Scoop.it
More and more, Scientists are becoming convinced that Aging is a Disease that can be stopped or, at least, slowed.

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prgnewshawaii's curator insight, February 23, 12:40 AM

The "Fountain of Youth" may actually be possible. Scientists now believe that aging is a type of disease that could be controlled by manipulating the role of mitochondria in organisms, including humans.  Could we become immortal?  This raises a host of ethical, religious, and cultural issues.

Russell Roberts

Hawaii Intelligence Digest

http://hawaiiintelligencedigest.com

https://paper.li/f-1482109921