La FDA está trabajando para aumentar la participación de las minorías en los estudios clínicos de nuevos productos médicos. Los miembros de los grupos minoritarios son más vulnerables a ciertas enfermedades, pero están mal representados en estas pruebas
‘Fair Foundations: The VicHealth framework for health equity’ was developed by VicHealth under the leadership of author O'Rourke. It was published in 2013. It is a conceptual and planning framework adapted from work done by the WHO Commission on the Social Determinants of Health (Solar and Irwin, 2010). Social determinants of health inequities are depicted as three layers of influence – socioeconomic, political and cultural context; daily living conditions; and individual health-related factors. These determinants and their unequal distribution according to social position, result in differences in health status between population groups that are avoidable and unfair. The layers of influence also provide practical entry points for action (VicHealth, 2013). Fair Foundations can be accessed at www.vichealth.vic.gov.au.
ention the phrase “patient engagement,” and you’ll probably see puzzled looks and glazed expressions.
Why are clinicians, executives and other leaders so confused, and what’s being done to solve the mystery?
First, a few days ago the U.S. Food and Drug Administration announcedthe formation of the Patient Engagement Advisory Committee.The panel will advise the FDA commissioner on a range of issues such as the use and regulation of medical devices.The FDA’s blogsays the group will focus on improving communication of benefits and risks, along with integrating patient perspectives into the regulatory process.
The post opens with an interesting observation:
Although it may seem odd in retrospect, the development of new technologies intended to improvepatients’ lives has largely relied upon expert opinions rather than asking patients and families directlywhat they consider most important.
In addition to government leaders, other stakeholders are working to improve patient engagement. Thisinfographic from Healthcare Intelligence Networkoffers communicators ideas on how to adapt technology to your outreach efforts. Those include:
ecancermedicalscience is the peer-reviewed open access cancer journal founded by the European Institute of Oncology in Milan. We consider articles on all aspects of research relating to cancer, including molecular biology, genetics, pathophysiology, epide
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