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Open health, patient privacy and the digital divide

Open health, patient privacy and the digital divide | Salud Publica | Scoop.it

Open health refers to a set of developing information technologies that make it easier for patients, professionals and administrators to access health-care information or make it anonymous and open to the public.

 

This is done by integrating existing health-care records and data. It is hoped the result will be more health information for more people to access more easily.

 

Open health requires online access. It’s easy to think of this as a background issue because the national broadband network is due to roll out in Australia over the next few years. But the so-called digital divide is a real concern in Australia and around the world.

 

What’s more, the world isn’t just divided between those who have internet access and those who don’t. We also need to consider the staggering differences between the quality of access, individual internet literacy, and how these variables can be leveraged to create good outcomes.

 

Although the digital divide is closing, a large number of vulnerable individuals still don’t have basic internet access. And technological literacy is a necessary part of using open health services.

 

Open health will hold data on vulnerable populations that those populations may not be able to use through lack of access. The elderly, for instance, are major users of health-care services so we need to ensure that they have the technological access and the capacity to engage with open health.

 

New technologies can bring huge benefits to those with the resources, education, and opportunity to access them. Open health is no exception.

 

Perhaps the most obvious concern for open data policy is the privacy of individuals. If there’s enough identifiable information in a data set that has become public, then individuals can be picked out and potentially targeted by private businesses, government agencies, and even by police in ways they might not want.

 

Even if the intentions of the viewer are good, we still have the right to expect that our personal information remains anonymous and our privacy is protected.

 

Linked data can be very useful to citizens and businesses alike, but carries with it the risk of de-anonymisation. There’s a concern that primary data, which hasn’t been interpreted or aggregated, can be used to identify individuals.

 

The important thing about linking data is that individual data sets, such as age, height, car model and postcode, are not considered overly private. And a lot of this sort of innocuous personal information can be accessed online – through sites such as Facebook, and census data, for instance.

 

We should also be concerned about who can exploit the data, and how much control we have over access. Some of us may not want even our anonymised data being used in ways we don’t agree with.

Open health should make opting out simple. While large scale opt-outs are likely to diminish the utility of data, we have to weigh the trade-off between privacy and potential innovation carefully.

 

Finally, to whom do we turn if something goes wrong? With a move towards more automated and rapid release of data, there’s more urgency around what options individual citizens and groups have to question, comment, or contest the release and use of open data.

 


Via Andrew Spong, Valentina Jaramillo
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Que hay en salud? Tendencias y nuevas formas de lograr mejoras sanitarias en las comunidades
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La Salud 2.0 y la atención de la salud en la era digital | Fernández Silano | Revista Médica de Risaralda

La Salud 2.0 y la atención de la salud en la era digital | Fernández Silano | Revista Médica de Risaralda | Salud Publica | Scoop.it
La Salud 2.0 y la atención de la salud en la era digital
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#Zika Virus Associated with Microcephaly — NEJM

Original Article from The New England Journal of Medicine — Zika Virus Associated with Microcephaly
Mariano Fernandez S.'s insight:

Posible asociación entre la infecciòn del Virus del Zika con la Microcefalia

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La mHealth y la gestión sanitaria del futuro - Blog Salud-Digital

La mHealth y la gestión sanitaria del futuro - Blog Salud-Digital | Salud Publica | Scoop.it
Entrevista para el Videoblog de Wake App Health La mHealth no solamente en el futuro, sino ahora en el presente, es algo fundamental en nuestro sistema sanitario. No solamente porque va a permitir optimizar los recursos de los que disponemos, sino que también porque va a significar un beneficio para el paciente: va a estar …
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Situación de Salud en las Américas: Indicadores Básicos de Salud 2015. OPS OMS | Datos y estadísticas

Situación de Salud en las Américas: Indicadores Básicos de Salud 2015. OPS OMS | Datos y estadísticas | Salud Publica | Scoop.it
This health measure contributes to the growing evidence of health attainment associated with health system performance. Situación de Salud en las Américas: I
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Los siete errores que con más frecuencia cometemos en la cocina

Los siete errores que con más frecuencia cometemos en la cocina | Salud Publica | Scoop.it
Una manipulación segura de los alimentos va mucho más allá de tirar la leche caducada o lavar las frutas y las verduras antes de comer.
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Collaboration Between Health Care and Public Health: Workshop Summary

Collaboration Between Health Care and Public Health: Workshop Summary | Salud Publica | Scoop.it
Download a PDF of "Collaboration Between Health Care and Public Health" by the Institute of Medicine for free. Description: On February 5, 2015, the Institute of Medicine Roundtable on Population Health Improvement hosted a workshop to explore the relationship between public health and health care, including opportunities, challenges, and practical lessons. The workshop was convened in partnership with the Association of State and Territorial Health Officials (ASTHO)-Supported Primary Care and Public Health Collaborative. Organized in response to the 2012 IOM report Primary Care and Public Health: Exploring Integration to Improve Population Health, this workshop focused on current issues at the interface of public health and health care, including opportunities presented by and lessons learned from the Centers for Medicaid and Medicare Services State Innovation Models program. The workshop featured presentations on several dimensions of the public health-health care relationship. Collaboration Between Health Care and Public Health summarizes the presentations and discussion of the event.
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La epidemia de #zika avanza y los casos de Guillain Barré aumentan

La epidemia de #zika avanza y los casos de Guillain Barré aumentan | Salud Publica | Scoop.it
Aunque el zika es menos peligroso que el dengue y chikungunya, las complicaciones con Guillain Barré y microcefalia cambiaron la óptica sobre el virus
Mariano Fernandez S.'s insight:

“EL ZIKA NO DEJARÁ DE CIRCULAR, COMO TAMPOCO LO HAN HECHO EL CHIKUNGUNYA NI EL DENGUE”

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6 alimentos que un experto en seguridad alimentaria dice que nunca comería - BBC Mundo

6 alimentos que un experto en seguridad alimentaria dice que nunca comería - BBC Mundo | Salud Publica | Scoop.it
Bill Marler ha representado a víctimas de casi todos los brotes de intoxicación alimentaria que han ocurrido en EE.UU. en los útlimos 20 años, incluidos los de Chipotle el año pasado. Hay seis alimentos que nunca toca.
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Patient engagement strategies in a digital environment: Life sciences companies respond to changing patient expectations

Patient engagement strategies in a digital environment: Life sciences companies respond to changing patient expectations | Salud Publica | Scoop.it
In a shifting health care landscape, nontraditional players are trying to frame patient engagement strategies that are focused on providing patients solutions that are coordinated, convenient, customized, and accessible.

Via Lionel Reichardt / le Pharmageek, Valentina Jaramillo
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Investigadores brasileños detectaron Zika en orina y saliva

El principal instituto de investigación de Brasil informó que se detectó el zika en orina y saliva, aunque indicó que no hay pruebas de que el virus pueda ser transmitido a través de esos fluidos.Video cortesía de afpes
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Enfoque Ocupacional en la Red.Salud y Seguridad Laboral: Descargue Gratis Factores Psicosociales. Identificación de situaciones de riesgo. Instituto Navarro de Salud Laboral.

Enfoque Ocupacional en la Red.Salud y Seguridad Laboral: Descargue Gratis Factores Psicosociales. Identificación de situaciones de riesgo. Instituto Navarro de Salud Laboral. | Salud Publica | Scoop.it
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Mental healthcare should be 'digital by default', says SLaM CEO

Mental healthcare should be 'digital by default', says SLaM CEO | Salud Publica | Scoop.it
Technology fundamentally changes the relationship between patient and doctor, says SLaM's Matthew Patrick
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Don't rely on Google for medical judgment (At least for now)

Don't rely on Google for medical judgment (At least for now) | Salud Publica | Scoop.it
Patients need to be wary of an avalanche of medical information that spews forth unfiltered noise and static.

Via ChemaCepeda
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Possible Association Between Zika Virus Infection and Microcephaly — Brazil, 2015 | MMWR

The Morbidity and Mortality Weekly Report (MMWR) Series is prepared by the Centers for Disease Control and Prevention (CDC).
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Sospechan que fiebre de Guanarito causó 12 muertes en Barinas

Tasa de mortalidad de fiebre hemorrágica venezolana es de 23%, por lo que calculan que 52 personas podrían estar infectadas
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Enfermedad por el virus del Zika 2016

Descripción General: El Zika es una enfermedad causada por un virus del género Flavivirus transmitido por mosquitos del género Aedes. Los pacientes con enferm…

Mariano Fernandez S.'s insight:

Triptico

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Mitochondrial Replacement Techniques: Ethical, Social, and Policy Considerations

Mitochondrial Replacement Techniques: Ethical, Social, and Policy Considerations | Salud Publica | Scoop.it
Download a PDF of "Mitochondrial Replacement Techniques" by the National Academies of Sciences, Engineering, and Medicine for free. Description: Mitochondrial replacement techniques (MRTs) are designed to prevent the transmission of mitochondrial DNA (mtDNA) diseases from mother to child. While MRTs, if effective, could satisfy a desire of women seeking to have a genetically related child without the risk of passing on mtDNA disease, the technique raises significant ethical and social issues. It would create offspring who have genetic material from two women, something never sanctioned in humans, and would create mitochondrial changes that could be heritable (in female offspring), and therefore passed on in perpetuity. The manipulation would be performed on eggs or embryos, would affect every cell of the resulting individual, and once carried out this genetic manipulation is not reversible.

Mitochondrial Replacement Techniques considers the implications of manipulating mitochondrial content both in children born to women as a result of participating in these studies and in descendants of any female offspring. This study examines the ethical and social issues related to MRTs, outlines principles that would provide a framework and foundation for oversight of MRTs, and develops recommendations to inform the Food and Drug Administration’s consideration of investigational new drug applications.
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Virus zika: 13 preguntas clave que los científicos todavía no han logrado responder | Sumarium

Virus zika: 13 preguntas clave que los científicos todavía no han logrado responder  |  Sumarium | Salud Publica | Scoop.it
Hace unos días la Organización Mundial de la Salud (OMS) declaró una emergencia sanitaria global, debido a que la infección …
Mariano Fernandez S.'s insight:

Esta imagen granulada es una de las pocas fotografías que tenemos del virus zika.

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Alertan de casos de fiebre hemorrágica aguda en Barinas

Alertan de casos de fiebre hemorrágica aguda en Barinas | Salud Publica | Scoop.it
Lo que fue diagnosticado como "dengue hemorrágico" en Barinas, donde 60 personas han fallecido, causa alarma y preocupación en epidemiólogos, quienes consideran que la enfermedad que ha producido estas muertes estaría relacionada a un brote de (...)
Mariano Fernandez S.'s insight:

Fiebre Hemorrágica Venezolana o de Guanarito

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The challenge of saving lives with 'big data' - BBC News

The challenge of saving lives with 'big data' - BBC News | Salud Publica | Scoop.it
When it comes to saving lives, the bigger the data the better - but what to do with it all?
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Objetivos y metas de desarrollo sostenible - Desarrollo Sostenible

Objetivos y metas de desarrollo sostenible - Desarrollo Sostenible | Salud Publica | Scoop.it
El 25 de septiembre, los países tendrán la oportunidad de adoptar un conjunto de objetivos globales para erradicar la pobreza, proteger el planeta y asegurar la prosperidad para todos como parte de una nueva agenda de desarrollo sostenible. Cada objetivo tiene metas específicas que deben alcanzarse en los próximos 15 años. Para alcanzar estas metas, …
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A Very Happy Brain / Un cerebro muy feliz

This is the story of how Broody, a very unhappy brain, became very happy. If you liked this story, click here to see how Broody learned to meditate, with his...
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10 motivos por los que un profesional de salud debería utilizar las redes sociales

10 motivos por los que un profesional de salud debería utilizar las redes sociales | Salud Publica | Scoop.it
Hoy voy a escribir una entrada personal fruto de la experiencia de llevar en redes sociales desde hace unos cuantos años. Aunque tengo una verdadera pasión por estar conectado creo que no he sido capaz en mi entorno profesional cercano de transmitir esta necesidad y por ello me pregunto ¿viviré en un mundo paralelo en…

Via ChemaCepeda
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ChemaCepeda's curator insight, February 4, 10:47 AM

Diez grandes razones que justifican el uso de redes sociales por los profesionales de salud

jose antonio gabelas's curator insight, February 4, 11:20 AM

añada su visión ...

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Determinar el riesgo de muerte por un simple examen de la saliva | Por: @rigotordoc

Las personas con un aumento de las tasas de secreción de Inmunoglobulina A se asociaron con una disminución del riesgo de muerte por cáncer, específicamente
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