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YSC's Research Think Tank Remembers Randi Rosenberg (1965-2010)

YSC's Research Think Tank Remembers Randi Rosenberg (1965-2010) | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Diagnosed with breast cancer at the age of 32 in 1998, Randi Rosenberg was one of the original founding members of Young Survival Coalition (YSC) and its third board president.
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Last week we remembered Randi Rosenberg, at YSC’s Research Think Tank where trained advocates, met with medical and research prof’s to keep the needle moving ahead.
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Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners
Need assistance finding resources pertinent to your cancer diagnosis, or care? Find helpful information here!
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I will include my Twitter handle on residency applications. You should, too.

I will include my Twitter handle on residency applications. You should, too. | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
It is important for medical students to start developing their social media identity and I believe medical schools could be doing more to support them.

Via Marie Ennis-O'Connor
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20th annual edition of NCCN Guidelines for Breast Cancer published

20th annual edition of NCCN Guidelines for Breast Cancer published | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it

Breast cancer is the most frequently diagnosed cancer globally and the leading cause of cancer-related death in women. However, the incidence of breast cancer has somewhat stabilized over the past few decades, and breast cancer mortality appears to be declining, suggesting a benefit from the combination of early detection and more effective treatment

From a surgical standpoint, said Dr. Gradishar, axillary lymph node dissection was the standard of care in 1996. Today, the less invasive sentinel lymph node (SLN) biopsy is the standard of care for patients with early-stage breast cancer to determine spread of the disease, which has removed the risk of unnecessary extensive lymph node removal, as well as decreased the risks of post-surgical complications.

"How we thought about adjuvant therapy has changed," said Dr. Gradishar. "Physicians used to look at the number of nodes as a determinant of whether a patient was a candidate for chemotherapy, as well as what kind of chemotherapy was appropriate. Now we use genomic profiling to influence our decision-making. Additionally, the chemotherapy regimens have changed and endocrine therapy options have expanded, as has the duration of therapy."

Indeed, genomic testing and targeted therapies have changed the course of breast cancer treatment. In particular, according to Dr. Gradishar, 20 years ago human epidermal growth factor receptor (HER2)-positive disease was not listed in the guidelines, and today the NCCN Guidelines recommendations include a cadre of successful neoadjuvant and adjuvant chemotherapies for people with HER2-positive disease.


Via Susan Zager
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To see these new guidelines go to: http://www.nccn.org/patients/guidelines/cancers.aspx#breast

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Social Media And Its Impact on Medical Research

Social Media And Its Impact on Medical Research | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
A social media campaign may have little (if any) effect on article readership, a recent study reports.

Via Marie Ennis-O'Connor
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Patient Opinion Leaders Are the New Healthcare Influencers

Patient Opinion Leaders Are the New Healthcare Influencers | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
The pharmaceutical industry has historically invested enormous amounts of money into identifying and engaging with those medical influencers who can potentially make or break its new therapies. These ‘super influencer’ doctors, known as Key Opinion Leaders are the ones other prescribers look to for guidance.

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Deborah A. Boyle - Current Options for Educating Our Cancer Patients | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams

Deborah A. Boyle - Current Options for Educating Our Cancer Patients | TheONC | A Gated Community for Oncology Nurses and Cancer Care Teams | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Deborah Boyle shares some resources so that we can offer cancer patients various options for education.
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Current Options for Educating Our Cancer Patients 
Deborah Boyle shares some resources so that we can offer cancer patients various options for education.

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How to find the best health info online

How to find the best health info online | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
From finding reliable sources to finding health buddies, here are six rules to follow to get the best health information online.
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We Can Help

We Can Help | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
We Can Help
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[LIVESTRONG]

We Can Help

Face cancer with our support. We give you the information and guidance you need to learn your options, what to expect and what to ask.

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National Lymphedema Network | National Lymphedema Network

National Lymphedema Network | National Lymphedema Network | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
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Male Breast Cancer Treatment (PDQ®)

Male Breast Cancer Treatment (PDQ®) | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Expert-reviewed information summary about the treatment of male breast cancer.
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[MALE BREAST CANCER: GET THE INFO]

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Journey Forward

Journey Forward | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Cancer changes a person’s healthcare needs forever, and NCCS believes every person with cancer should receive written care plans and summaries that follows them from the time they are diagnosed through all their years of their survivorship.
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Recent Drug Approvals | Cure Magazine

Recent Drug Approvals | Cure Magazine | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Recent drug approvals for metastatic cancers.
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New Cancer Therapy Comes of Age, But Cost Can Be a "Toxic" Side Effect

A raft of new cancer drugs promise better, longer-lasting treatments with fewer adverse side effects—but their high cost is a growing concern. Drugs that help the body's own immune cells fight tumors are expected to be used in multi-drug cocktails, pushing the price of therapies costing more than $100,000 a year even higher. At the same time, other expensive medicines are being combined to produce impressive results fighting diseases including breast and skin cancer.

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Surviving Caregiving | Cure Magazine

Surviving Caregiving | Cure Magazine | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it

Surviving Caregiving
As the cancer survivor population has grown and cancer treatment has become increasingly outpatient, caregivers have assumed more responsibility not only for the diagnostic and treatment phases of cancer, but also for the medical and psychosocial issues of survivorship, often forgoing their own health and well-being.Surviving Caregiving
As the cancer survivor population has grown and cancer treatment has become increasingly outpatient, caregivers have assumed more responsibility not only for the diagnostic and treatment phases of cancer, but also for the medical and psychosocial issues of survivorship, often forgoing their own health and well-being.Even after treatment ends, cancer impacts caregivers as well as patients.

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Surviving Caregiving
As the cancer survivor population has grown and cancer treatment has become increasingly outpatient, caregivers have assumed more responsibility not only for the diagnostic and treatment phases of cancer, but also for the medical and psychosocial issues of survivorship, often forgoing their own health and well-being.

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Register | CancerConnect

A social network for patients, providers, and caregivers
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[RESOURCES]

CancerConnect Patients, caregivers, family and friends are welcome to join the CancerConnect safe and secure online support groups. Register and join the conversation now.

 

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Black women less likely to take breast cancer hormone therapy

Black women less likely to take breast cancer hormone therapy | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
(Reuters Health) – Among early-stage breast cancer patients in the U.S., black women are less likely than white women to take their prescribed hormone medications, according to a new study that partly - but not entirely - blames economic disparities between races.

Via Susan Zager
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To see the study in the Journal of Oncology go to: http://jco.ascopubs.org/content/early/2015/02/17/JCO.2014.58.3062

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Susan Zager's curator insight, February 20, 2:52 PM

To see the study in the Journal of Oncology go to: http://jco.ascopubs.org/content/early/2015/02/17/JCO.2014.58.3062


Green Hill Tea's comment, February 27, 5:09 AM
Very Nice Article
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Social media use among patients and caregivers: a scoping review - BMJ Open

Conclusions There is an extensive body of literature examining the use of social media in patient and caregiver populations. Much of this work is descriptive; however, with such widespread use, evaluations of effectiveness are required. In studies that have examined effectiveness, positive conclusions are often reported, despite non-significant findings.


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Social Media toolkit for patient association


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Fighting for patients by battling their bad, inaccurate hospital bills

Fighting for patients by battling their bad, inaccurate hospital bills | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Just about anyone who’s seen a healthcare bill knows that the process is, at a minimum, confusing. With the seemingly endless back-and-fourth between insurance and the provider on arbitrary pricing,...
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Breast Cancer Assessment: Dealing With Breast Cancer?

Take this WebMD assessment to find out about your breast cancer treatment options. Get tips for dealing with your diagnosis and managing your care.
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Doctor, Shut Up and Listen

Doctor, Shut Up and Listen | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Doctors are evaluated for technical skills, but not for having empathy.
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The LIVESTRONG Foundation

The LIVESTRONG Foundation | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
The LIVESTRONG Foundation unites, inspires and empowers people affected by cancer. We provide free support services to anyone fighting cancer today.
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[RESOURCES]

The LIVESTRONG Foundation fights to improve the lives of people affected by cancer now. Created in 1997, the Foundation is known for providing free cancer support services and advocating for policies that improve access to care and quality of life. Known for its powerful brand – LIVESTRONG – the Foundation has become a symbol of hope and inspiration around the world. Since its inception, the Foundation has served 2.8 million people affected by the disease and raised more than $580 million to support cancer survivors. One of America's top non-profit organizations, the Foundation has been recognized by industry leaders including Charity Navigator, the National Health Council and the Better Business Bureau for its excellent governance, high standards and transparency. For more information, visit LIVESTRONG.org.

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Long Radiation Treatments Called Unnecessary in Many Breast Cancer Cases

Long Radiation Treatments Called Unnecessary in Many Breast Cancer Cases | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Two-thirds of women who have lumpectomies for breast cancer are receiving radiation treatment that lasts nearly twice as long as necessary, a new study reports.
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The ASCO Post

The ASCO Post | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
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[CA & DEPRESSION]

 

These plans can help survivors and their loved ones understand their cancer treatment and follow-up needs. They put survivors in a better position to advocate for themselves, monitor their health, and participate in decisions about their future care – not just their cancer treatment and its side effects, but also their social and emotional needs. Cancer care plans are an essential component of quality cancer care.

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The "Know Yourself" Worksheet

The Know Yourself Worksheet helps patients prepare for a visit to their doctor and discuss their preferences with their family and health care team.
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[RESOURCES]

Take Charge of Your CareIt starts with a conversation...

In 2013, the Institute of Medicine (IOM) released a report on the quality of cancer care. The report emphasized the importance of engaged patients and shared decision-making. NCCS has echoed this call by creating two simple tools to help patients advocate for their care and communicate with their doctor -- the Know Yourself Questionnaire and Essential Questions to Ask Your Doctor. 

Good communication is important for patients who want to work with their doctors to decide on a treatment plan and make their needs and wishes known.

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The Silver Lining Companion Guide - Direct Relief

The Silver Lining Companion Guide - Direct Relief | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
Spanish eBook version now available! The Silver Lining Companion Guide: A Supportive and Insightful Guide to Breast Cancer is available free, thanks to the generosity of Allstate. The Silver Lining Companion Guide is a practical and supportive resource to help everyone impacted by a breast cancer diagnosis. Author Hollye Jacobs, a nurse and breast cancer survivor, offers practical, realistic and hopeful advice that …
Heather Swift's insight:

[RESOURCES]

Hollye and Allstate Insurance Company are partnering to provide 250,000 copies of The Silver Lining Companion Guide free of charge to anyone facing a diagnosis of breast cancer. This guide was specially created to provide important information, practical tips and inspiration for those navigating through every stage of treatment and recovery.

The guide will be available for download in English and Spanish on any e-reader. Additionally, print copies will be available at Cancer Support Community affiliate locations and other distribution centers.

 

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Study Suggests Breast Cancer Overdiagnosed

Study Suggests Breast Cancer Overdiagnosed | Resources For People Living With A Cancer Diagnosis & Their Families & Care-Partners | Scoop.it
As a result of mammographic screening programs, as many 1.3 million women over age 40 were overdiagnosed with breast cancer over three decades, researchers reported.
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