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Using social media to empower people with arthritis

Using social media to empower people with arthritis | Research | Scoop.it

Online social networking sites such as Facebook are used for individuals and organizations to connect with others, share photos and videos, as well as provide status updates by posting to a profile page. Can they also be used as a tool to implement a health care education program?

A group of researchers, including Dr. Lucie Brosseau, School of Rehabilitation Sciences, University of Ottawa, and Dr. Sydney Brooks, Director of Research, The Arthritis Society, Ontario Division, completed a study to answer this very question.

The study, entitled: People getting a grip on arthritis II: An innovative strategy to implement clinical practice guidelines for rheumatoid arthritis and osteoarthritis patients through Facebook, set out to determine if an updated online evidence-based educational program delivered through Facebook was effective in improving the knowledge, skills, and self-efficacy of patients with arthritis (osteoarthritis – OA – and rheumatoid arthritis – RA) in relation to evidence-based self-management rehabilitation strategies.

The study included 110 participants over 18 with self-reported OA or RA. Eleven participants were part of a focus group that would choose effective self-management strategies for OA and RA for posting on Facebook. The other 99 were part of the online Facebook study, which featured case-based video clips on the self-management strategies and how to apply them.

“Since this was a new approach to patient education, I wasn’t sure what to expect, but I was hopeful we might reach a new group of people who were comfortable using technology to participate in arthritis research and education,” says Dr. Brooks.It turns out many arthritis sufferers were interested in participating in the study.

“Our biggest surprise was the ease in recruitment,” adds Dr. Brooks. “Once the study was advertised on The Arthritis Society website, we reached our required sample size quickly.”

Over a three-month period, all participants were asked to complete three online questionnaires regarding their previous knowledge, intention to actually use the self-management strategies and confidence level in the self-management of their arthritis. Ultimately, a goal of the research team was to discover after the study that using Facebook would be an effective, low-cost solution to providing people with arthritis across the country with information about self-management strategies.

The first focus group’s watched a two-hour presentation describing the self-management strategies. The group then engaged in discussions and ranked each strategy according to the relevance and practicality.

The online study participants received a brief tutorial on how to use the Facebook page to complete the online questionnaires.They logged in to the Facebook group pages to view the uploaded YouTube videos describing the arthritis self-management strategies. The videos were only posted after participants had completed the first questionnaire regarding previous knowledge. Once the videos were viewed, participants could communicate with one another via the ‘wall’ and ‘comment’ tools available and complete the other two online questionnaires (intention to use strategies and confidence level).

In the end, the research team was happy with the results. Immediately after the online study, 41 participants with OA had improved knowledge on the topic of arthritis self-management strategies, while 22 participants with RA had improved knowledge. Eighty-three per cent of participants with OA and 74 per cent of participants with RA intended to use at least one of the arthritis self-management strategies following the study. Some of these strategies included aquatic therapy, strengthening exercises of the hand and weight management.

“Our positive results support the use of social media as a knowledge transfer and education tool, even among an older population,” says Dr. Brooks. “Facebook was a successful tool for recruiting research participants and disseminating evidence-based self-management strategies to people living with arthritis. This low-cost intervention allowed people with arthritis from across Canada to learn about evidence-based self-management strategies in the privacy and comfort of their own home,” she adds.

Not only can the participants continue to use the videos on Facebook as a learning tool, they can share this information with others who suffer from arthritis.For more information about The Arthritis Society’s research activities, visit www.arthritis.ca/research.


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Customer Experience Matrix: I've Discovered a New Class of System: the Customer Data Platform.

Customer Experience Matrix: I've Discovered a New Class of System: the Customer Data Platform. | Research | Scoop.it

Excerpt...

 

Similarly, there have long been specialized systems for real-time interaction management (such as Infor Interaction Advisor and Oracle Real Time Decisions) and for predictive modeling (SAS, IBM SPSS, KXEN). Some interaction managers do create predictive models, and the really big vendors (IBM, SAS, Oracle) have all three key components (CDI, real-time decisions, and predictive models) somewhere in their stables. But systems that closely couple just those features with the goal of feeding data as well as recommendations to execution systems? Those are something new.

By now, you’re probably wondering if I’ll ever get around to actually naming the vendors I have in mind. I’ve recently written about some of them, including Reachforce/SetLogik and Lattice Engines.  I also include RedPoint in the mix, because it has all the key capabilities (database development, predictive models, and real time decisions) even though it also offers conventional campaign management. Others I haven’t yet written about include Mintigo and Gainsight. Of course, each has a different mix of features and its own market position.  Indeed, several have specifically told me they do not compete with the others. Fair enough, but I still see enough similarity to group them together.

All this is a very long-winded introduction to Causata, yet another member of this new class. By now, you can probably guess Causata’s main functions: assemble customer data from multiple sources, consolidate it by customer, place it in an analytics-friendly format, run predictive models against it, and respond in real time to recommendation requests from other systems including Web sites, email, banner ads, and call centers. And you’d be right.


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marketingIO's curator insight, April 26, 2013 9:55 AM

We're not certain of the category name, and those category names are usually established by the Forresters and Gartners of this world. However, these are Big Data tools (to some degree). We're unsure, however, that these tools can take unstructured data. Sidebar: this is the second scoop today where RedPoint is mentioned.


So when will these tools be incorporated into SFDC?


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Love song survey

Dear music fan,
This survey is part of my ongoing research into songwriting and creativity. It aims to investigate how music fans understand emotional meaning in songs.
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Specifying a Random Intercept or Random Slope Model in SPSS ...

Specifying a Random Intercept or Random Slope Model in SPSS ... | Research | Scoop.it
One of the things I love about MIXED in SPSS is that the syntax is very similar to GLM. So anyone who is used to the GLM syntax has just a short jump to learn writing MIXED. Which is a.
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Introducing SurveyMonkey, the World's Largest Survey Company

From big brands, to startups, educators, HR directors, and more, find out why 12 million+ choose SurveyMonkey online surveys to get the answers—and results—t...
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[INFOGRAPHIC] 26 Digital Marketing Statistics You Shouldn't Miss - Optimind | #TheMarketingAutomationAlert

[INFOGRAPHIC] 26 Digital Marketing Statistics You Shouldn't Miss - Optimind | #TheMarketingAutomationAlert | Research | Scoop.it
26 Digital Marketing statistics you shouldn't miss with downloadable quick reference infographic.

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marketingIO's curator insight, August 23, 2013 7:59 AM

More stats 'n facts to support your 2014 budgeting.


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Mark H. Cohen's curator insight, April 6, 2015 11:47 AM

Excellent stats. 

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DOJ Still Can't Do Math: Terrorist Statistics Inflated, Double Counted And ... - Techdirt

DOJ Still Can't Do Math: Terrorist Statistics Inflated, Double Counted And ... - Techdirt | Research | Scoop.it
DOJ Still Can't Do Math: Terrorist Statistics Inflated, Double Counted And ...
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New Survey

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates. (Doing secondary market research @ #swtucson. And it's not too late to answer our startup's survey....
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