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Feasibility of a Wiki as a Participatory Tool for Patients in Clinical Guideline Development

Feasibility of a Wiki as a Participatory Tool for Patients in Clinical Guideline Development | Quality of Healthcare | Scoop.it

Patient participation is essential in developing high-quality guidelines but faces practical challenges. Evidence on timing, methods, evaluations, and outcomes of methodologies for patient participation in guideline development is lacking.

 

Objective: To assess the feasibility of a wiki as a participatory tool for patients in the development of a guideline on infertility determined by (1) use of the wiki (number of page views and visitors), (2) benefits of the wiki (ie, number, content, and eligibility of the recommendations to be integrated into the guideline), and (3) patients’ facilitators of and barriers to adoption, and the potential challenges to be overcome in improving this wiki.

 

Results: The wiki attracted 298 unique visitors, yielding 289 recommendations. We assessed the 21 recommendations ranked as the top 5 or top 3 for their eligibility for being integrated into the clinical practice guideline. The evaluation identified some challenges needed to be met to improve the wiki tool, concerning its ease of use, website content and layout, and characteristics of the wiki tool.


Conclusions: The wiki is a promising and feasible participatory tool for patients in guideline development. A modified version of this tool including new modalities (eg, automatically limiting the number and length of recommendations, using a fixed format for recommendations, including a motivation page, and adding a continuous prioritization system) should be developed and evaluated in a patient-centered design.

 


Via nrip, Giovanna Marsico, COUHET Eric
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Wikifiquemos, que algo queda

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Institute for Healthcare Improvement: Do You Have a Line of Sight to Your Organization's Mission?

IHI President and CEO Derek Feeley believes it’s a leader’s responsibility to ensure their staff members have a "line of sight," a direct connection from each person’s job to their organization’s mission and strategy. This, he asserts, is essential for effective decision making, to enhance staff satisfaction, and to minimize waste and procrastinati
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Institute for Healthcare Improvement: Lean and IHI’s Approach to QI: Do You Have to Choose?

In this interview, IHI Senior Scientist Gareth Parry addresses some of the misconceptions about Lean and the IHI approach to quality improvement, including whether or not the approaches are compatible.
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"you need an organizational and leadership strategy that guides how to introduce these methods and apply them in practice."
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The good news about quality measures

The good news about quality measures | Quality of Healthcare | Scoop.it
The government is determined to measure quality. But does that turn quality into a quantity? And should we rejoice in doing absurd things more efficiently?
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Communication is key in health care. But what exactly is it?

Communication is key in health care. But what exactly is it? | Quality of Healthcare | Scoop.it
“How is it medical science can transplant half our organs, but can’t fax my test results across town?”
Dr. Luis Ramos Neira's insight:
“How is it medical science can transplant half our organs, but can’t fax my test results across town?”
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Quality is another word for absolute control

Quality is another word for absolute control | Quality of Healthcare | Scoop.it
Quality will control the future of health care.
Dr. Luis Ramos Neira's insight:
"For too long, quality meant, “work hard, do a good job, care about the patient.” Every provider was a quality provider. Have you ever met a doctor who did not believe they practiced high-quality medicine?"
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Physicians and patients must retake control of how health care is delivered

Physicians and patients must retake control of how health care is delivered | Quality of Healthcare | Scoop.it
If the politicians and bureaucrats want data, they can hire someone else, get each patient’s permission and collect it for themselves. 
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You can't compare health care to the airline industry. Here's why.

You can't compare health care to the airline industry. Here's why. | Quality of Healthcare | Scoop.it
It’s highly doubtful that aviation holds all, or even most, of the answers as we strive to make hospitals safer.
Dr. Luis Ramos Neira's insight:
"Medicine is by nature, a much riskier practice than flying"
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Engage patients to improve outcomes and reduce risks

Engage patients to improve outcomes and reduce risks | Quality of Healthcare | Scoop.it
To achieve engagement, physicians should be aware of the patient experience within their practices. 
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English Developments In Value-Based Care: The Beginnings Of A Revolution?

English Developments In Value-Based Care: The Beginnings Of A Revolution? | Quality of Healthcare | Scoop.it
English Developments In Value-Based Care: The Beginnings Of A Revolution? | At the intersection of health, health care, and policy.
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Let's fix performance measurement for physicians

Let's fix performance measurement for physicians | Quality of Healthcare | Scoop.it
It was supposed to be that if we provided high-quality care to our patients, the measurements would reflect that. 
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Does simulated based training bring better value healthcare? An interview with Prof Sir Muir Gray, Former Chief Knowledge Officer of the NHS

Does simulated based training bring better value healthcare? An interview with Prof Sir Muir Gray, Former Chief Knowledge Officer of the NHS | Quality of Healthcare | Scoop.it
We have to think of the world that we are leaving, the world we are moving into. The last fifty years in healthcare, have seen the advent of hip replacement, cardiac bypass, systematic reviews. But at the end of fifty years, every country is facing five problems.
Dr. Luis Ramos Neira's insight:
“We're reaching the end of a quality era. But ...see examples of things that are high quality but low value.”
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What does quality mean in the eyes of a patient?

What does quality mean in the eyes of a patient? | Quality of Healthcare | Scoop.it
When you are the patient, there is nothing ordinary about the experience.
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The duel between documentation and doctoring is being won by the wrong side

The duel between documentation and doctoring is being won by the wrong side | Quality of Healthcare | Scoop.it
Throughout the medical profession, I witness the duel between documentation and doctoring. Guess who’s winning.
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A Systems Approach Is The Only Way To Address The Opioid Crisis

A Systems Approach Is The Only Way To Address The Opioid Crisis | Quality of Healthcare | Scoop.it
A Systems Approach Is The Only Way To Address The Opioid Crisis | At the intersection of health, health care, and policy.
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Making Transparency Work: Why We Need New Efforts to Make Data Usable | THCB

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Beyond CQI: How Patient-Centered Care and Efficiency Go Hand-in-Hand | THCB

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Maybe the key to patient care is a little love

Maybe the key to patient care is a little love | Quality of Healthcare | Scoop.it
If love and generosity can connect people, rudeness and other disruptive behavior can break those bonds.
Dr. Luis Ramos Neira's insight:
"The secret sauce of improvement and patient-centered care — and life in general — is not some technical solution or a checklist."
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Adding A Spending Metric To Medicare’s Value-Based Purchasing Program Rewarded Low-Quality Hospitals

Adding A Spending Metric To Medicare’s Value-Based Purchasing Program Rewarded Low-Quality Hospitals | Quality of Healthcare | Scoop.it
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Most of the care you're receiving isn't patient-centered. Here's why.

Most of the care you're receiving isn't patient-centered. Here's why. | Quality of Healthcare | Scoop.it
There is no excuse for the lousy service people get from our system.  
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Institute for Healthcare Improvement: Dear IHI: How Do I Give an Elevator Pitch on QI in Health Care?

Institute for Healthcare Improvement: Dear IHI: How Do I Give an Elevator Pitch on QI in Health Care? | Quality of Healthcare | Scoop.it
DEAR IHI —I’m new in the quality department of my hospital, and when I see people in the cafeteria or the elevator, they often ask me to explain what I do or to ask if my team can help them with a clinical problem. I need an elevator pitch for QI and what my department does. What would you say to someone who’s only giving you two minutes of their
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BMJ Blogs: The BMJ » Blog Archive » Richard Smith: Turning round failing hospitals

BMJ Blogs: The BMJ » Blog Archive » Richard Smith: Turning round failing hospitals | Quality of Healthcare | Scoop.it
The Care Quality Commission has placed 27 health institutions, most of them hospitals, into “special measures,” and so far 11 have emerged. Few jobs can be tougher or lonelier than taking over the leadership of a failing hospital.
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The Economics Of Paying For Value

The Economics Of Paying For Value | Quality of Healthcare | Scoop.it
The Economics Of Paying For Value | At the intersection of health, health care, and policy.
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5 Lessons for Creating Health Care Performance Dashboards

5 Lessons for Creating Health Care Performance Dashboards | Quality of Healthcare | Scoop.it
Matt Austin reflects on the challenges of setting up patient safety and quality dashboards at Johns Hopkins Medicine.
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