Primary Immunodeficiency
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A Day in the Life: John Pennington Cupples - Canton Repository

A Day in the Life: John Pennington Cupples - Canton Repository | Primary Immunodeficiency | Scoop.it
A Day in the Life: John Pennington CupplesCanton RepositoryJohn Pennington Cupples was diagnosed with primary immunodeficiency disease shortly after birth. Although the 8-year-old Bowers Elementary School student ...
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Primary Immunodeficiency
Genetic disorders of the immune system
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What is Primary Immune Deficiency? 10 warning signs you should know. Featured by Allergy Associates and Asthma, Ltd. Treating asthma and allergy in Phoenix at our offices in Chandler, Mesa and Temp...

What is Primary Immune Deficiency? 10 warning signs you should know. Featured by Allergy Associates and Asthma, Ltd. Treating asthma and allergy in Phoenix at our offices in Chandler, Mesa and Temp... | Primary Immunodeficiency | Scoop.it
What is Primary Immune Deficiency? 10 warning signs you should know. Information provided by Crescent Healthcare, Inc.
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7th Global Patients Congress: How to boost your reach and impact | International Alliance of Patients' Organizations

7th Global Patients Congress: How to boost your reach and impact | International Alliance of Patients' Organizations | Primary Immunodeficiency | Scoop.it
7th Global Patients Congress: How to boost your reach and impact
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Patient involvement in health policy | International Alliance of Patients' Organizations

Patient involvement in health policy | International Alliance of Patients' Organizations | Primary Immunodeficiency | Scoop.it
Patient involvement in all aspects of healthcare decision-making Patients need to be involved in decisions about their care and in health policy decision-making.
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Addie and IGI: "Partners in Crime"

Addie was diagnosed with primary immunodeficiency (PI) when she was very young, and IGI came to her just in time for her first infusion. To help her understand ...
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Current treatment options with immunoglobulin G for the individualization of care in patients with primary immunodeficiency disease - Jolles - 2015 - Clinical & Experimental Immunology - Wiley Onli...

Current treatment options with immunoglobulin G for the individualization of care in patients with primary immunodeficiency disease - Jolles - 2015 - Clinical & Experimental Immunology - Wiley Onli... | Primary Immunodeficiency | Scoop.it
RT @britsocimm: "Individualization of care in patients with primary immunodeficiency disease" Read more: http://t.co/eDMPYvG6MM http://t.co
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Working Together to Find Cures for Immunological Diseases

The inspiring story behind the Jeffrey Modell Foundation and the exciting research collaboration with Pfizer's Centers for Therapeutic Innovation.
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Our son has a rare, life-threatening genetic disorder. Help us find a cure - The Guardian

Our son has a rare, life-threatening genetic disorder. Help us find a cure - The Guardian | Primary Immunodeficiency | Scoop.it
Hyper IgM keeps Idan’s three-year-old immune system from working, but we hope that finding other sufferers will generate momentum to save him
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About the Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF) is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with ...
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New gene therapy era will change the lives of children who inherit severe immune conditions

New gene therapy era will change the lives of children who inherit severe immune conditions | Primary Immunodeficiency | Scoop.it
New gene therapy era will change the lives of children who inherit severe immune conditions
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Stanford Alliance for Primary Immunodeficiency Week Balloon Release

S.A.P.I. Event Balloon Release Today Stanford Medical Center Stanford Alliance for Primary Immunodeficiency World Primary Immunodeficiency Week ...
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Hyper IgM syndrome (Medical Condition)

Symptoms, risk factors and treatments of Hyper IgM syndrome (Medical Condition) Hyper IgM syndrome is a family of genetic disorders in which the level of ...
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IPOPI - What are PIDs

IPOPI - What are PIDs | Primary Immunodeficiency | Scoop.it
RT @ipopi_info: #IPOPI is very proud of its members participation on #WPIW Getting the word out is crucial, every day http://t.co/l3hDGAA6Fq
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Hyper IgM Syndromes: Definitions & Information

Hyper IgM Syndromes: Definitions & Information | Primary Immunodeficiency | Scoop.it
Information regarding the types of Hyper IgM Syndrome including diagnosing and treatment methods
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Patient information and health literacy | International Alliance of Patients' Organizations

Patient information and health literacy | International Alliance of Patients' Organizations | Primary Immunodeficiency | Scoop.it
Providing the right information at the right time to empower patients It is essential that patients are empowered with the information they need to make informed decisions about healthcare treatments and living with their condition.
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SCID - A Family's Journey through Isolation

Severe Combined Immune Deficiency (SCID), also known as the bubble boy disease, is a rare, serious disorder where a child lacks the ability to fight off ...
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Inheritance | Immune Deficiency Foundation

Inheritance | Immune Deficiency Foundation | Primary Immunodeficiency | Scoop.it
RT @IDFCommunity: Most primary immunodeficiency diseases are inherited in one of three different ways. Read more: http://t.co/ndhceWUE1m #…
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Immuno Deficiency Community Thanks Plasma Donors

On behalf of the Primary immuno Deficiency Community and Immune Deficiency Foundation, I want to thank you for all that you do. People like me rely on a ...
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Publications | Immune Deficiency Foundation

Publications | Immune Deficiency Foundation | Primary Immunodeficiency | Scoop.it
Read Clinical Update in Immunoglobulin Therapy for Primary Immunodeficiency Diseases http://t.co/ni4BRAa6Ya #primaryimmune #Igtherapy
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Bryan dances in celebration of life

Bryan shares his life story about growing up with Hyper-IgM Syndrome – a rare genetic immunodeficiency disorder which require a bone marrow transplant to ...
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SCIg Therapy (Subcutaneous Immunoglobulin Replacement Therapy) - John Hunter Children's Hospital

SCIg Therapy involves receiving subcutaneous immunoglobulin through a subcutaneous (beneath the skin) infusion. SCIg infusions are given by slowly ...
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Genomics & the Psychology of the Rare Disease 'Diagnostic Odyssey'

Genomics & the Psychology of the Rare Disease 'Diagnostic Odyssey' | Primary Immunodeficiency | Scoop.it
I wept openly in the offices of two physicians - the occasions being when each of my Rare Disease diagnoses were presented to me. The first occasion was in 2006 when told I had CVID, a 1 in 25-50,000...
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New SCID website page

New SCID website page | Primary Immunodeficiency | Scoop.it
#IPOPI has a page with #SCID Newborn Screening updates! See how SCID newborn screening is evolving in your region http://t.co/csQhIuivIC
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Zebra Day At Elsberry Middle School

We were honored and privileged to be invited to participate in the 2015 Jeffery Modell Annual Global Balloons and Bubble launch. We couldn't think of anything ...
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