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A Day in the Life: John Pennington Cupples - Canton Repository

A Day in the Life: John Pennington Cupples - Canton Repository | Primary Immunodeficiency | Scoop.it
A Day in the Life: John Pennington CupplesCanton RepositoryJohn Pennington Cupples was diagnosed with primary immunodeficiency disease shortly after birth. Although the 8-year-old Bowers Elementary School student ...
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Primary Immunodeficiency
Genetic disorders of the immune system
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Zebra Day At Elsberry Middle School

We were honored and privileged to be invited to participate in the 2015 Jeffery Modell Annual Global Balloons and Bubble launch. We couldn't think of anything ...
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GSK readies 'bubble boy' drug as big pharma bets on gene therapy - Reuters

GSK readies 'bubble boy' drug as big pharma bets on gene therapy - Reuters | Primary Immunodeficiency | Scoop.it
LONDON (Reuters) - GlaxoSmithKline is close to seeking European approval for a gene therapy drug to fight adenosine deaminase severe combined immune deficiency (ADA-SCID) in the latest sign of a renaissance...
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'Bubble Boy's' mother speaks: Improving life for children with primary immunodeficiency diseases

'Bubble Boy's' mother speaks: Improving life for children with primary immunodeficiency diseases | Primary Immunodeficiency | Scoop.it
Today, thanks to medical advances made possible by studies of David's disease, children with SCID often live normal and healthy lives. ...read more
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Stefan Nordeman, Sweden, CVID patient, juggling family life, work life and treatment.

Burden of Treatment of PID conditions.
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Hyper IgM talk

Maria De La Morena, MD – University of Texas Southwestern Medical Center and Daniel Suez, MD – Allergy, Asthma & Immunology Clinic, P. A. IDF meeting in Irving TX 2014.
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Brave Brodie Cherry awaits a life-saving bone marrow transplant - Herald Sun

Brave Brodie Cherry awaits a life-saving bone marrow transplant - Herald Sun | Primary Immunodeficiency | Scoop.it
EVERY week Brodie Cherry has his ‘superman juice’ that helps him grow big and strong.
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'Bubble Boy' with rare disorder asks world to wear yellow for 1 day - WGN-TV

'Bubble Boy' with rare disorder asks world to wear yellow for 1 day - WGN-TV | Primary Immunodeficiency | Scoop.it
NORTHAMPTONSHIRE, England -- A young English boy suffering from a debilitating disorder is asking people to wear yellow as he prepares to undergo another operation. According to Mashable, 5-year-ol...
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ADVOCATE - Teen Volunteer Inspires Primary Immunodeficiency Community

Maddie, a teen vounteer for the Immune Deficiency Foundation (IDF), created this inspiring, short video based on her experiences advocating for patients with primary immunodeficiency on Capitol...
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Primary immunodeficiency Symptoms - Mayo Clinic

Primary immunodeficiency Symptoms - Mayo Clinic | Primary Immunodeficiency | Scoop.it
Primary immunodeficiency — Comprehensive overview covers symptoms, treatment.
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INGID on Twitter

INGID on Twitter | Primary Immunodeficiency | Scoop.it
@ipopi_info @INGID_Tweets @AmenaWarner @DML101 pic.twitter.com/Rucq1jAYQP
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Immune Deficiency Foundation Launches New Website Dedicated to Those Living with Chronic Granulomatous Disease

Immune Deficiency Foundation Launches New Website Dedicated to Those Living with Chronic Granulomatous Disease | Primary Immunodeficiency | Scoop.it
From BioPortfolio:  The Immune Deficiency Foundation (IDF) announces the launch of LivingwithCGD.org, a new website dedicated to those living with Chronic...
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Bob LeBien Award 2014 attributed to Bianca Pizzera (presented in absentia to Andrea Gressani)

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IPOPI - What are PIDs

IPOPI - What are PIDs | Primary Immunodeficiency | Scoop.it
RT @ipopi_info: #IPOPI is very proud of its members participation on #WPIW Getting the word out is crucial, every day http://t.co/l3hDGAA6Fq
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IPIC 2015 – Focus on clinical care and diagnosis

IPIC 2015 – Focus on clinical care and diagnosis | Primary Immunodeficiency | Scoop.it
IPOPI is hosting the second edition of the International Primary Immunodeficiencies Congress, IPIC 2015, in the beautiful city of Budapest, Hungary, on 5-6 November 2015.
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Study: Gene Therapy Superior to Half-Matched Transplant for Children with “Bubble Boy Disease”

Study: Gene Therapy Superior to Half-Matched Transplant for Children with “Bubble Boy Disease” | Primary Immunodeficiency | Scoop.it
New research published online today in Blood, the Journal of the American Society of Hematology, reports that children with “bubble boy disease” who undergo gene therapy have fewer infections and hospitalizations than those receiving stem cells...
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PID patients are faced with many health decisions. Anton Emelin, Russia, shares his brother's story.

Burden of Treatment of PID conditions.
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Sick All Winter? Could It Be Immune Deficiency?

Sick All Winter? Could It Be Immune Deficiency? | Primary Immunodeficiency | Scoop.it
Primary Immunodeficiency Disease - a relatively new field for medical study. Advances continue to be made thanks to the commitment of doctors & researchers.

Via Dallas Allergy Immunology
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Dallas Allergy Immunology's curator insight, March 29, 9:02 PM

Did you or a family member struggle through winter with one illness after another such as an ear or sinus infection, pneumonia or a skin condition that would not heal? You took antibiotics but saw little or no improvement? If so, you could have a Primary Immunodeficiency Disease (PIDD).

PIDD causes children and adults to have infections that come back frequently or the conditions are unusually hard to cure. 1:500 persons are affected by one of the known PIDDs.

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Psychiatrist coping with immune deficiency counsels others with chronic disease

Psychiatrist coping with immune deficiency counsels others with chronic disease | Primary Immunodeficiency | Scoop.it
Every three weeks, Dr. Jennifer Pate, 47, receives life-saving intravenous immunoglobulin infusions.
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April is Primary Immune Deficiency... - Special Needs Book Review | Facebook

April is Primary Immune Deficiency Awareness month. This is a great FREE resource for talking to your children or their classmates about PI!
#cadenstale...
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PID Patient testimonial - Jose Drabwell, CVID patient, IPOPI President

Benefits of early diagnosis and treatment in Primary Immunodeficiencies.
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Gaby Rosario, South Africa, Hypogammaglobulinemia patient on the need for individualized treatment

Importance of individualized treatment for PID patients.
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PiNSA

PiNSA | Primary Immunodeficiency | Scoop.it
Primary Immunodeficiency Network of South Africa
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Special siblings sign up with Panthers lacrosse teams - Florida Today

Special siblings sign up with Panthers lacrosse teams - Florida Today | Primary Immunodeficiency | Scoop.it
Signing day was extra special for the men's and women's lacrosse programs at Florida Tech.
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Publication: Primary Immunodeficiencies Principles of care

Publication: Primary Immunodeficiencies Principles of care | Primary Immunodeficiency | Scoop.it
Thank you @eupatientsforum for the great article http://t.co/JjYbmZ3pX9 #PID Principles of Care @ipopi_info
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