Polycystic Ovarian Syndrome
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Rescooped by Rosa Silveira from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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Thank You Major League Baseball | History Channel for Supporting ALS Awareness & Research - YouTube

This minute-long public service announcement (PSA) is slated to air on Jumbotrons in Major League Baseball parks across the U.S. in recognition of the 75th A...

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HOPE for Steve Film Premiere | Tickets Now On Sale

HOPE for Steve Film Premiere | Tickets Now On Sale | Polycystic Ovarian Syndrome | Scoop.it
This is the premiere of the documentary "HOPE for Steve", a film about the John's Creek couple, Hope and Steve Dezember, as they battle against ALS (Lou Gehrig's disease), a terminal disease with no known cure. The film follows them from diagnosis through their first two years as they travel the country, raise awareness and refuse to let ALS bring them down.

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“Climb For Kevin” Mt. Kilimanjaro Expedition Nets $80,000 For ALS/Concussion Research

“Climb For Kevin” Mt. Kilimanjaro Expedition Nets $80,000 For ALS/Concussion Research | Polycystic Ovarian Syndrome | Scoop.it
www.rymeaux.com | Nashville, TN FOR IMMEDIATE RELEASE The Kevin Turner Foundation Contact: Tamara Alan – KTF – (615) 400-4332 – tamara@kevinturnerfoundation.org Media Contact: Ryan Moore – Rymeaux PR – (615) 210-0509 – ryan@rymeaux.com “Climb For Kevin” Mt. Kilimanjaro Expedition Nets More Than $80,000 For ALS/Concussion Research Fundraising efforts surpass $500,000 mark since The Kevin Turner Foundation was founded in 2010 (Nashville, Tenn. – April 8, 2014) The Kevin Turner Foundation has raised more than $80,000 with its Climb For Kevin campaign, a fundraising expedition to the summit of Africa’s Mt. Kilimanjaro. The two-week trip took place March 18 – April 4 to help boost awareness and funding for The Kevin Turner Foundation, a non-profit organization created to advance ongoing research efforts regarding the connection between ALS and repetitive brain injury. Seven members representing the Climb For Kevin team traveled to Tanzania to summit the 19,341-foot mountain, including Atlanta-based SiriusXM radio host and ACC Network television broadcaster Rachel Baribeau. Filmmaker Jon Johnnidis of Brooklyn-based Axios Productions also accompanied the group to film the entire expedition for an upcoming documentary project, slated for release later this year. “I consider these men and women heroes,” Turner says. “They have made a monumental and

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The Noble Spirit: Say Goodbye to Fred Noble at April 9 movie premiere

The Noble Spirit: Say Goodbye to Fred Noble at April 9 movie premiere | Polycystic Ovarian Syndrome | Scoop.it
Few people embody a true zest for life quite like Fred Noble, and even as he struggles with a disease that means an unrelenting and painful decline to death, he is reaching out to inspire others in the eternal quest to find meaning, purpose and happiness

 

Follow The Noble Spirit-Fred Noble on Facebook: https://www.facebook.com/frednoblespirit ;



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Chuck Hummer's curator insight, April 10, 2014 12:00 AM

Fred is telling the story of all living with this horrible disease. I also have ALS and am walking in Fred's footsteps.

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Get LOCO for ALS in One Month at the FIESTA 5k/15k Challenge

Get LOCO for ALS in One Month at the FIESTA 5k/15k Challenge | Polycystic Ovarian Syndrome | Scoop.it

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Cure for ALS's curator insight, April 3, 2014 10:42 AM

FIESTA 5k/15k Challenge is May 3, 2014

FiestaRunGA.com

 

 

On May 3, 2014 we will get LOCO at the 8th annual FIESTA 5k/15k Challenge! Fees increase in two weeks though so make sure you register by April 17. REGISTER AT https://runsignup.com/Race/GA/Cumming/FIESTA5k15kChallenge .

 

Race day is Saturday, May 3, 2014 at the Forsyth Conference Center in Cumming, GA. Important details are below and on our website, www.FiestaRunGA.com .

 

THINGS TO REMEMBER:

-Entry fees increase for the 15k and 5k on April 18.

-You must be registered by April 17 to guarantee a race t-shirt. Last year’s shirt was so popular that we are ordering the same brand – different color and updated design. Don’t miss your chance to get one!

T-shirts are comfy drifit in adult sizes S, M, L, XL 2XL (additional $2.00 for 2XL). Youth Large shirts available in 100% cotton.

-Chip timing for the 15k and 5k races.

-The FIESTA 5Kk course is a certified Peachtree Road Race qualifying course.

 

-START TIMES: FIESTA 15K starts at 7:45am. FIESTA 5K starts at 8:05am. **Ronald Reagan Blvd. will close by 7:30am so make sure to arrive for all races before road closure**

-Awards in the 15k and 5k races presented to Overall Male/Female, Overall Masters Male/Female, Top 3 in Age Groups in 5 yr increments.

-Medals to all FIESTA 15k finishers.

-Lots of parking, great post-race party, music, refreshments, and FUN!

-100% of the proceeds benefit the Emory ALS Center. www.als.emory.edu

 

PACKET PICK UP TIMES and Carb Up Party at Mellow Mushroom:

-Friday, May 2 from 11am to 7pm at Totally Running in Cumming. Registration also available.

-Mellow Mushroom at The Collection Forsyth is ready to help you load up on carbs for race day! Visit them for lunch or dinner on Friday, May 2 and a portion of your meal cost will be donated to the Emory ALS Center. Make sure to tell your server you are with the FIESTA 5k/15k Challenge.

-Saturday, May 3 beginning at 6:45am at the Forsyth Conference Center. Race day registration available.

 

CAN’T RACE WITH US THIS YEAR? MAKE A DONATION!

If you are unable to join us this year you can still make a difference in the lives of those living with ALS. To make a donation at http://www.crowdrise.com/fiesta5k15kchallengeforals2014 .

 

Cure for ALS

42 Lakecrest Circle, Suwanee, GA 30024

678-491-0639

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3rd Annual TEAM Mike Lopez Ski to Defeat ALS- Oregon

3rd Annual TEAM Mike Lopez Ski to Defeat ALS- Oregon | Polycystic Ovarian Syndrome | Scoop.it

* Join the 3rd Annual #TEAMMikeLopez Ski to Defeat ALS TEAM*


Mt. Hood Meadows, Oregon | April 12, 2014


*Sponsor*Donate*Join the TEAM!*


Visit: http://webor.alsa.org/site/TR/Events/OregonandSWWashington?team_id=269697&pg=team&fr_id=9900


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Introducing: ALS Young Advocates Task Force

Introducing: ALS Young Advocates Task Force | Polycystic Ovarian Syndrome | Scoop.it

It is my pleasure to take this opportunity to formally introduce the ALS Young Advocates Task Force.  We have spent the better part of the last year working with ALS Association staff to develop and formalize the effort and appreciate everyone who.........


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WTAE Presents Chronicle: Living Like Lou | Pittsburghers & their couragous journeys of Strength

WTAE Presents Chronicle: Living Like Lou | Pittsburghers & their couragous journeys of Strength | Polycystic Ovarian Syndrome | Scoop.it

WTAE Channel 4 focuses on Pittsburghers and their courageous journeys of strength within a fatal disease. A person diagnosed with amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig's disease, will receive essentially the same prognosis as the New York Yankee; an average life expectancy of two to five years.

 

Now on the 75th anniversary of the Yankee slugger's chilling farewell speech, Chronicle: Living Like Lou reveals Pittsburgh’s story of hope and highlight the remarkable character of local residents and their families who are suffering with ALS.





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Rescooped by Rosa Silveira from #ALS AWARENESS #LouGehrigsDisease #PARKINSONS
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An open letter from Steve Gleason to all Louisiana Senators and Congressman| S.948 and HR942

An open letter from Steve Gleason to all Louisiana Senators and Congressman| S.948 and HR942 | Polycystic Ovarian Syndrome | Scoop.it

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Rescooped by Rosa Silveira from ALS Awareness
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Cook & Duffy: Emory ALS Center & Cure for ALS

1/31/14 Sports Journalist, Karon Cook hosts Legacy Leaders Radio with guests Karen Duffy (Cure for ALS) and Steve King (Community Health Foundation). Karen talks…

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ALS is on the rise and it's targeting people who are younger

ALS is on the rise and it's targeting people who are younger | Polycystic Ovarian Syndrome | Scoop.it
Doctors still don't understand the devastating disease, but they are making some real progress

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Patient Provider Communication - Communication Is The Joint Establishment Of Meaning

Patient Provider Communication - Communication Is The Joint Establishment Of Meaning | Polycystic Ovarian Syndrome | Scoop.it
This site puts information about patient-provider communication in one place and invites healthcare providers, family members, patients, researchers, educators and policy makers to access and use existing research, opinion pieces, policies,...
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Steve Gleason named finalist for Vine of the Year 

Steve Gleason named finalist for Vine of the Year  | Polycystic Ovarian Syndrome | Scoop.it
The winner will be announced on April 7 

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ALS Assoc.- Gehrig PSA Campaign| TIME Magazine Issued Release: 4.21.2014

ALS Assoc.- Gehrig PSA Campaign| TIME Magazine Issued Release: 4.21.2014 | Polycystic Ovarian Syndrome | Scoop.it

A PSA campaign developed by Red Deluxe Brand Development for the national ALS Association has its first pickup: the April 21 issue of TIME magazine. The new campaign recognizes 2014 as the 75-year anniversary of Lou Gehrig’s retirement from baseball due to ALS, and it calls attention to the ongoing fight against the disease that is often called simply “Lou Gehrig’s Disease.”

The national campaign remembers Gehrig’s emotional farewell speech in 1939 when he declared himself the “luckiest man on the face of the earth.”

In additional to PSA placements in.................

 
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Chuck Hummer's curator insight, April 23, 2014 7:32 PM

I welcome this proactive approach by the ALS Association.

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Beach Wheelchairs – Wheelchairs made for the beach at Gulf Shores/Orange Beach, AL | For Sale

Beach Wheelchairs – Wheelchairs made for the beach at Gulf Shores/Orange Beach, AL | For Sale | Polycystic Ovarian Syndrome | Scoop.it
Beach Power Rentals rents motorized beach wheelchairs at Gulf Shores,Orange Beach AL, Our beach wheelchairs provide easy mobility and accessibility to the beach for vacationers with limited mobility.

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ALS Clinical Trial locator | The Northeast ALS Consortium (NEALS)

ALS Clinical Trial locator | The Northeast ALS Consortium (NEALS) | Polycystic Ovarian Syndrome | Scoop.it

With help from the ALS Association, NEALS provides up-to-date information for finding both federally and privately funded clinical studies focusing on ALS and motor neuron diseases. You can locate both interventional trials, which examine if treatments are effective and safe under controlled environments, and observation trials, which examine people in more natural environments.


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University High coach Jim Tracy succumbs to ALS

University High coach Jim Tracy succumbs to ALS | Polycystic Ovarian Syndrome | Scoop.it
Sure enough, the state's winningest cross-country coach delivered a rousing speech to inspire the boys' basketball team to victory against rival Lick-Wilmerding in their annual game at Oracle Arena. According to Ketcham, he died peacefully in his sleep. Tracy's fight and dedication to a sport and his runners gained national and worldwide attention after his top runner in the 2010 state finals, Holland Reynolds, fell 10 yards from the finish line, stricken with dehydration and hypothermia. The story reached the New York Times and ESPN, head coach Tom Coughlin used it to inspire the New York Giants to a 2012 Super Bowl win and Reynolds' mother, Robin Hauser Reynolds, a filmmaker, co-directed an award-winning documentary entitled "Running for Jim." Midvale arrived for its consolation Bishop Gorman Desert Classic Tournament game in Las Vegas 10 minutes before the opening pitch; otherwise Lowell coach John Donohue would have recorded his 700th win with an unceremonious forfeit. Heritage-Brentwood senior Frank Kurtz recorded the state's top 400 meters this season, winning in 47.58, Dublin sophomore Mecca McGlaston won the 100-meter hurdles in 14.03, third best in the state, and Tamalpais-Mill Valley pole-vaulter August Kiles (15-11 3/4) and Menlo 400 runner Madeline Price (55.22) recorded the state's fourth-best marks. Cal-bound Mitty shortstop Jazmyn Jackson was named the most valuable player of the 20th Livermore Stampede softball tournament Saturday after the Monarchs (13-0) defeated Elk Grove-Pleasant Grove 6-0 in the title game. Pleasant Grove defeated Livermore 1-0 in the other semifinal on an RBI single from Marissa Maligad. Johanna Grauer earned MVP honors and extended her streak to 86 1/3 innings without giving up an earned run as Amador Valley, ranked third nationally, defeated Los Alamitos 2-1 in the title game of the Michelle Carew Classic in Anaheim.

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ALSUntangled recommends PALS have their vitamin D levels checked

ALSUntangled recommends PALS have their vitamin D levels checked | Polycystic Ovarian Syndrome | Scoop.it
There has recently been growing interest in the roleof vitamin D in neurological disorders, includingALS (1–9). Physicians on internet blogs (10) and inchat rooms (11) have even begun suggesting thatPALS (PALS) take vitamin D. In this paper, onbehalf of patients with ALS (PALS) who are askingabout it (11), we review vitamin D in general, andits potential role in ALS.  READ MORE: PDF Link: http://informahealthcare.com/doi/pdfplus/10.3109/21678421.2014.888871
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Glenda Schroeder's curator insight, April 3, 2014 9:12 PM

One of the 15 or so pills &David gets daily or 2x daily.

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WTAE Presents Chronicle: Living Like Lou | Pittsburghers & their couragous journeys of Strength

WTAE Presents Chronicle: Living Like Lou | Pittsburghers & their couragous journeys of Strength | Polycystic Ovarian Syndrome | Scoop.it

WTAE Channel 4 focuses on Pittsburghers and their courageous journeys of strength within a fatal disease. A person diagnosed with amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig's disease, will receive essentially the same prognosis as the New York Yankee; an average life expectancy of two to five years.

 

Now on the 75th anniversary of the Yankee slugger's chilling farewell speech, Chronicle: Living Like Lou reveals Pittsburgh’s story of hope and highlight the remarkable character of local residents and their families who are suffering with ALS.





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Gulf War Veteran Mike White Faces His Toughest Battle Yet: ALS

Gulf War Veteran Mike White Faces His Toughest Battle Yet: ALS | Polycystic Ovarian Syndrome | Scoop.it
A Gulf War veteran, Mike White is battling amyotrophic lateral sclerosis, a fatal motor-neuron disease.

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Mike Oyer, original member of SEAL Team 6, loses battle with ALS

Mike Oyer, original member of SEAL Team 6, loses battle with ALS | Polycystic Ovarian Syndrome | Scoop.it
NewsChannel 3 has been following Oyer and his family's efforts to raise money for ALS research for several years.

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Open Letter to the ALS Community in Georgia

Open Letter to the ALS Community in Georgia | Polycystic Ovarian Syndrome | Scoop.it

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Cure for ALS's curator insight, March 21, 2014 2:10 PM

Dear Friends,

In 43 days, our family (affectionately known as “Team Duffy”) will go into team mode and host our 8th annual road race for ALS. The FIESTA 5k/15k Challenge is Saturday, May 3, 2014 in Cumming, GA on the campus of Lanier Technical College. Since our first race in 2007, we have donated 100% of the proceeds from this event to the Emory ALS Center, a place where many of you or your loved ones have been cared for and possibly participated in a clinical trial for ALS.

 

When we began planning our first event, we made a conscious choice to have it in the spring instead of the fall so supporters of ALS would not have to choose between the Walk to Defeat ALS in Atlanta, the Night of Hope Gala, or our event. Since May is ALS Awareness Month we hold the FIESTA 5k/15k Challenge on the first Saturday in May each year to kick off the month-long campaign of awareness and advocacy.

 

The team at the Emory ALS Center has 400+ active patients whom they are caring for and working with in the various trials and studies. The needs to continue the work of this amazing group of people are large and the success of this event is critical to help them.

 

WE NEED YOUR HELP! The ALS community in Georgia is a close-knit group and I am asking for your help in one (or more!) of the following areas:

Tell someone you know about the FIESTA 5k/15k Challenge!Invite your friends or family members to register to run, walk, or come and cheer for our participants. You can link to registration at www.FiestaRunGA.com .Register for the first time and join us for a morning where we “Celebrate Life…Imagine a Cure.”Donate $5, $10, $20 to one of our fundraising teams or to the event itself. http://www.crowdrise.com/fiesta5k15kchallengeforals2014Create a fundraising team of your own.Make this the year that you support this event if you have not done so in the past.

 

I promise you will be uplifted by our generous sponsors who come back year after year, the distance runners in the 15k race who will ‘wow’ you with their perseverance, the 5k runners and walkers who push themselves to reach a new goal or who are out there in support of a beloved pALS. You will smile as the Fun Run participants race around campus and finish with a big grin, and the music and energy of the morning will be the best start to your day – and to ALS Awareness Month.

 

With your help, we will reach our fundraising goal, and this will be the biggest and best race in our eight year history.

 

On behalf of Team Duffy – thank you,

Karen Duffy

www.CureForALS.com

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Actor Kevin James- King of Queens joins Orlando Walk to Defeat ALS

Actor Kevin James- King of Queens joins Orlando Walk to Defeat ALS | Polycystic Ovarian Syndrome | Scoop.it
King of Queens actor and comedian Kevin James joined the Orlando Walk to Defeat ALS at Lake Eola Park in downtown Orlando, Florida

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Ed's Story | Be There

Ed's Story | Be There | Polycystic Ovarian Syndrome | Scoop.it

A film series about hope, featuring the real-life story of Dr. Ed Dobson. Brought to you by Flannel. http://edsstory.com/

 

Video Link: http://premiere.flannel.org/ ;


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Young couple struggling with ALS hopes documentary will teach life lessons

Young couple struggling with ALS hopes documentary will teach life lessons

 

"You don't leave them because something hard happens"..........Hope Dezember


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