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#BetterDoctor nets $2.6 million to expand company #startups

#BetterDoctor nets $2.6 million to expand company #startups | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
San Francisco-based patient education tool BetterDoctor raised a $2.6 million seed round to expand its staff. Jeff Clavier from SoftTechVC and Dirk Lammerts from Burrill & Co led the round. Incubator 500 Startups also contributed.
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4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK
Pharmageek considers the Patient as the pharmaceutical industry "missing link"
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PHARMA.....CONNAIS TU LES E-PATIENTS?

PHARMA.....CONNAIS TU LES E-PATIENTS? | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Mi septembre, la nouvelle tombe. "le Mycophénolate Mofétil (Cellcept) est exclu du dispositif "tiers payant contre générique"".
Résultat du travail de "Renaloo", association de patients qui a su mobiliser son réseau et négocier avec l'ANSM et la CNAMTS...
C'est une première....mais ce genre de situation va probablement devenir de plus en plus courante.


A l'occasion de la WebTV que j'ai eu l'honneur d'animer sur BEPATIENT.fr : "Carte blanche" donnée aux "E Patientes" ( http://sco.lt/8VRpi5 ), j'ai pris le temps de compiler un certain nombre d'informations sur ce qu'on appelle les "E Patients" et ce mouvement connu désormais dans la santé comme le "Patient Empowerment".


On sait que la santé est un sujet très présent sur le web.


Avec plus de 30% de la population mondiale connectée (plus de 71% dans les pays développés), le web 2.0 compte maintenant plus de 100 000 000 de sites et plus d'un milliard d'utilisateurs .


La santé 2.0 en chiffres c'est plus parlant. Cela représente :


- 1/3 des recherches faites sur Google
- 20% des discussion dans les réseaux sociaux


Ce qui fait de la santé le second sujet le plus recherché/discuté sur le net.


E PATIENT : UN PHENOMENE AMERICAIN?


On peut penser que ce mouvement des E Patients est un phénomène anglo-saxon pour ne pas dire américain.


Le plus connu d'entre eux, E Patient DAVE (Dave de Bronkart), sexagénaire américain, est devenu le "fer de lance" de ce mouvement.
Diagnostiqué avec un cancer du rein en 2006, les médecins le laissent sans espoir de traitement. Alors Dave s'adresse au web, échange avec d'autres patients et apprend qu'il y a un traitement envisageable mais proposé uniquement par certains médecins.
Rentré en rémission, il décide de s'appuyer sur son expérience pour promouvoir une approche nouvelle de la santé. (une interview intéressante de E Patient Dave http://www.myfoxmaine.com/story/19595242/e-patient-dave-health-activist)


Le Patient EMPOWERMENT est né avec les différente définitions que l'on peut donner aux E Patients (bien résumé et étayé sur wikipedia http://bit.ly/GShDVf ).


Parmi d'autres celle qui fait l'unanimité est la définition élaborée par Tom Ferguson qui identifie les e-patients comme des individus équipés, capables, responsables et impliqués (equipped, enabled, empowered, engaged) dans leur état de santé et dans les décisions qui lui afférent.


L'étude américaine de PEW INTERNET (Social life of health information ( http://bit.ly/SxW4PK ) résume bien l'ampleur de ce phénomène aux Etats Unis.


  • 80% des internautes ont cherché des informations santé sur le web
  • 1/3 s'en sert pour évaluer et choisir leur médecin
  • 60% reconnaissent que cela a affecté leur décision sur comment traiter leur pathologie
  • 50% demandent alors un second avis médical après ces recherches
  • 30% s'en servent pour décider d'aller consulter ou pas
  • 30% l'utilisent pour comparer les options de prescription de traitement


Aux Etats Unis ou les professionnels de santé sont équipés à 80% de smartphones et à 60% d'IPAD, 40% d'entre eux reconnaissent aller consulter de l'information on-line PENDANT la consultation et 50% recommandent à leurs patients des sites à consulter (Manhattan Research)


Le mouvement est encore plus évident à la lecture de l'étude conduite par l'université californienne DAVIS (UC DAVIS Mai 2012 http://bit.ly/SxW4PS ) "The prepared patient" qui met en avant les attentes des E Patients :


  • se tenir informé
  • jouer un rôle actif dans ses soins
  • franchir une étape difficile sur une question de santé


Cela pour autant qu'il soit question de défiance vis à vis des professionnels de santé
Par ailleurs, les patients reconnaissent qu'internet n'est pas la seule source d'information ; les amis, les émissions de télé, les ouvrages/revues/magazines.. sont aussi cités. D'ou l'importance de garder une présence sur les médias "off-line".


Dans cette étude, enfin, il est précisé que :


  • 70% des patients discutent avec leurs médecins de l'information collectée.
  • 40% l'impriment afin d'en parler avec leur médecin
  • 50% déclarent suite à cette recherche avoir au moins une question à poser à leur médecin.


ET EN EUROPE ?


En Europe, les études et la prise de conscience se développent.


Dans son étude "Citizen Health Europe", Manhattan Research dresse en 2010 un état des lieux précis de la situation.


Premier constat, il y aurait 76 millions de E Patients en Europe !!


Parmi les motivations qui induisent à s'adresser au web les 3000 patients interrogés dans les 5 plus gros pays européens, on retrouve :


  • discuter/rechercher les informations obtenues lors de la consultation
  • utiliser internet pour rechercher des symptômes/diagnostic (le fameux phénomène "Dr Google")
  • challenger le diagnostic
  • demander un changement de traitement


L'étude conduite en 2010 par IMR international "Europe Social Media in healthcare" quant à elle précise les motivations des internautes pour discuter de la santé sur les réseaux sociaux.


  • 32% veulent trouver une expérience sur le traitement qu'ils prennent
  • 31% pour trouver de l'expérience sur la maladie qu'ils ont
  • 16% pour partager de l'expérience/maladie
  • 13% pour partager de l'expérience/traitement


EN FRANCE ?


C'est ainsi qu'en France l'étude IPSOS "Public affair 2010" nous révèle que que la santé est la 7ème raison de consulter le web (en France).


Et lorsque l'on regarde les sites consultés/moyens utilisés (Etude GFK 2010 http://bit.ly/PxRc0c ) :


  • 81% passent par les moteurs de recherche
  • 68% par des sites spécialisés type "Doctissimo" ou "AZ Santé"
  • 40% vont sur les forums de discussion
  • 38% sur les encyclopédies libres (Wikipédia, ..)


Par contre :


  • seuls 12% vont sur les sites de labo
  • 11% sur des blogs médecins
  • 10% sur des blogs de patients
  • 10% sur les sites d'associations de patients
  • 8% sur les réseaux sociaux


Quant on sait qu'un site comme Doctissimo génère environ 8 à 10 millions de visiteurs uniques par mois, le Ministère de la santé a décidé face à ce phénomène de conduire une étude avec des sociologues en 2010.


La conclusion est sans appel sur le sujet :


Les auteurs précisent qu'il s'agit là de la "CONSTRUCTION D'UN SAVOIR PROFANE PRATIQUE, COMPLEMENTAIRE DU SAVOIR EXPERT DES MEDECINS".


Le phénomène est tel que le CNOM (Conseil National de l'Ordre des médecins) a réagit en conduisant cette enquête avec IPSOS ( http://bit.ly/PjIRtd ) qui nous donne les chiffres pour la France :


  • 71% des internautes français recherchent des informations santé sur le web
  • 7 internautes sur 10 qui font ces recherches ne font pas la différence entre sites certifiés ou non
  • 62% des français consulteraient le site/blog de leur médecins si celui-ci en avait un
  • 34% des internautes qui cherchent sur le net disent en parler avec leur médecin (le deux tiers des patients ne discutent pas avec leur médecins des informations repérées en ligne)


Cela a d'ailleurs conduit le CNOM a inciter sur son site les médecins à se pencher sur ce phénomène pour :


  • Développer le conseil du médecin dans la recherche d’information santé.
  • Faire d’Internet un outil au service de la relation médecins-patients
  • Créer un label ordinal pour les sites publiés par des médecins.


ET ALORS ?


And so what??
Comment prendre en compte cette évolution parmi les acteurs du système de santé?

Et oui.. pas facile quand notre culture et notre cadre réglementaire ne nous permettent pas d'avoir un échange directe avec les patients.
Pas facile de passer d'une cible de 200 000 médecins (grosso modo) à près de 45 millions d'individus (juste pour la France)
Pas facile de passer d'un mix promo ou la visite médicale est omniprésente (près de 60% du budget) et le digital quasi absent (moins de 1%)


C'est le "business model" en entier qu'il faut repenser et les organisations qui vont avec....


L'orientation client ne doit plus être une intention... mais devenir une réalité du quotidien...avec la difficulté, certes majeure, de définir ce CLIENT.


Prescripteurs? Dispensateurs? Payeur? Patient?...Lequel choisir? Y en a t il qu'un? ou plusieurs? quel poids donner à chacun?


J'entends souvent, et à juste titre, dire par les acteurs (laboratoires, grossistes, pharmaciens,..) que le Patient est "AU COEUR DE NOS DÉMARCHES"...


Pour les marketeurs (futurs "chef de clients"?? :-)), cela doit se traduire par une cartographie du parcours client...peut être effectivement tournée autour de ce parcours.

Prenons le pari qu'à chaque étape du parcours patient (prévention, symptôme diagnostique annonce,analyses, prescription, dispensation, observance, suivi...que sais je?? selon les pathologies) nous repensons nos démarches marketing en mettent au coeur le patient et la notion de service client et de valeur ajoutée...


Et pourquoi ne pas considérer désormais nos clients historiques ou les nouveaux acteurs comme des partenaires ayant eux aussi pour client le Patient?


Peut être faudrait il dans un premier temps accompagner ce changement dans la relation médecin/patient?


Pour conclure je reprendrais un post récent d'Alex Butler, PDG de "The social Moon", gourou du digital pharma et ancien de J&J, qui s'interrogeait sur la pertinence de continuer à utiliser le terme de E-Patient.
En effet, à partir du moment ou tous les patients ou presque, vont sur le net peut être faut il juste les appeler PATIENTS...au même titre qu'on ne précise plus le terme 'numérique" quant on parle d'appareil photo...


Ça y est Pharma... tu en sais un peu plus sur les E Patients.
J'espère que cela t'aura intéressé.



Pour finir, je citerais Len Starnes, autre gourou du digital pharma et ex Bayer...qui écrivait dans une présentation destinée à la pharma:

"Fish where the fishes are"
(Peches là ou sont les poissons)


A bon entendeur

Lionel REICHARDT
Le Pharmageek

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Christophe Deshayes's comment, May 6, 2013 12:20 PM
Vos articles sont vraiment captivants !
Je suis très intéressé car je fais aussi un topic "santé et numérique".
A bientôt par lecture !
Michel Mazuez's comment, May 9, 2013 2:53 PM
J'ai passé 1 mois à colliger ces statistiques... Merci de m'avoir confirmé le chiffres... Et maintenant à nous (soignants) de jouer.
Astelos_Sante's curator insight, May 28, 2013 3:17 AM

Premier constat, il y aurait 76 millions de E Patients en Europe !!

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How Ben Munoz built online rare disease patient community Ben's Friends

How Ben Munoz built online rare disease patient community Ben's Friends | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Ben Munoz launched Ben’s Friends in 2007. The site, which partners with Crowdtilt Open, offers over 30 community forums dedicated to rare diseases.

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Patient Education DVDs now available at an online store

Patient Education DVDs now available at an online store | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Diabetes Patient Education Simplified!

 

P.E.A.S™  - India's first exhaustive patient education DVD library now available at our online store. 

 

Medically Accurate, High Definition Animated Videos related to Diabetes available in Indian regional languages viz. Hindi, Gujarati, Marathi, Tamil, Telugu, Kannada, Malayalam, Bengali.

 


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nrip's curator insight, July 10, 8:40 AM

Excellent use of technology (eCommerce) to bring Patient Education and Awareness into the limelight. I checked out this link and found something for each specialization.  Hope to see more and more of such examples in the coming months.

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Patient Engagement Platform Sees Explosive Growth

Patient Engagement Platform Sees Explosive Growth | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Patient Engagement Platform Sees Explosive Growth
Health Data Management
HDM: Historically, the way people end up choosing a doctor or a hospital has often defied conventional marketing methods.

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La santé entame une troisième phase de développement tournée vers le patient

La santé entame une troisième phase de développement tournée vers le patient | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

L'utilisation des nouvelles technologies en médecine a commencé dans les années 1950 pour gérer les tâches administratives et statistiques... puis s'est poursuivie vingt ans plus tard avec la naissance des cartes électroniques de santé. Aujourd'hui, McKinsey parle d'une troisième étape que le domaine de la santé s'apprête à franchir : orienter les nouvelles technologies au service du patient. Mais certains problèmes comme la régulation, la confidentialité des données et la grande quantité de parties prenantes, semblent impacter particulièrement la santé et menacent de retarder cette troisième vague d'évolution technologique. Par où commencer pour intégrer complètement le digital dans les stratégies des acteurs du monde de la santé ? Les analystes de McKinsey relèvent que dans les autres secteurs, cette troisième vague s'est fondée sur l'étude des attentes des utilisateurs et c'est ce qui doit être fait dans la santé. Dans la manière de restituer les résultats de leur enquête, les analystes ont voulu briser certains préjugés, le premier étant la réticence des patients à avoir recours au digital dans un domaine aussi sensible que la santé.


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Patient insight essential for digital marketing

Patient insight essential for digital marketing | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
POST SUMMARY: It’s essential for pharma digital marketers to have and in depth understanding of patients including, why they chose our product, what barriers are needed to overcome to stay on therapy and how can we provide them with help and...

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Trois millions de personnes vivent avec un cancer en France dont 65 % depuis 10 ans | Le Quotidien du Medecin


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Patient Opinion Leaders as the New Healthcare Influencers

Patient Opinion Leaders as the New Healthcare Influencers | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

While the notion of online influence, with accompanying tools such as Klout, may be a new concept within the digital world, finding those individuals that hold most sway with their peers was already critical in every business sector way before the internet sprang to life.

The pharmaceutical industry, for example, has historically invested enormous amounts of money into identifying and engaging with those medical influencers who can potentially make or break its new therapies. These ‘super influencer’ doctors, known as Key Opinion Leaders (KOLs) are the ones other prescribers look to for guidance when treating their patients; the ones who are the most prolific authors and speakers within medical journals and at congresses.

But as the virtual world took hold, a new breed of KOLs has emerged – the Digital Opinion Leaders (DOLs). These new, tech-savvy doctors are taking short cuts to greatness, using online engagement channels such as Twitter, LinkedIn, Facebook, medical forums and even personal blogs to bolster their credibility in timescales that the old KOLs could only dream of. Everyone in pharma started turning their gaze to these new influencers.

The trouble is that, while everyone was looking over there, a new breed of influencers has used the internet to rise to prominence. They’re not doctors at all and they are potentially much more powerful than any KOL or DOL. They are patients.

These new Patient Opinion Leaders (POLs) – a phrase I coined when speaking with one of them (a highly energised and intelligent cancer survivor called Andrew Schorr) recently – are the most empowered and educated of all patients. They are the ones taking a thorough and deeply scientific interest in their own illness and using the power of social media to amplify their voice so they can help others.

Traditional healthcare systems, which revolved around the pharma-to-doctor and doctor-to-patient relationships, are therefore being blown out of the water by this new dynamic. While the cynics may claim that the noise created by POLs has little real impact on healthcare decisions, research with experts in this space suggests otherwise.

Right now POLs are:

Having informed discussions with their doctors about medical intervention, often leading to changes in treatment.Inspiring other patients to have similar conversations, plus raising greater awareness of their disease in general.Working closely with traditional patient advocacy organisations on driving policy change.Exploiting and amplifying the impact of non-pharmacological interventions, including self-management via new technology.And now we are coming full circle. These new POLs are finding a seat at the table at medical congresses, being invited to sit alongside traditional KOLs to share their views. If ever there was an argument that virtual influence is of limited value in the real world, then POLs are the ones showing just how wrong this can be.

For the pharmaceutical industry, and all other players in the healthcare space, this signals a new dynamic in the market that they have to embrace; one which is taking them closer to the world of B2C than B2B. It’s yet another argument that this sector must really get to grips with the technology that POLs are using to disseminate their message and push for much closer engagement with them if it is itself to remain an influential player.

So in the world of healthcare, social media isn’t just connecting people, it’s changing the fundamental stakeholder dynamics of how we manage and treat disease, with POLs being at the very core of this change.


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Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données

Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Fondation reconnue d’utilité publique, l’Institut Curie associe l'un des plus grands centres de recherche européens en cancérologie et deux établissements hospitaliers de pointe.


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Google and Ogilvy research finds word of mouth had biggest impact on purchase decisions (not media)

Google and Ogilvy research finds word of mouth had biggest impact on purchase decisions (not media) | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Consumers are more influenced by word of mouth in buying decisions than by print media, TV and movies, brand websites and even social media. That is the

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Laurent FLOURET's curator insight, July 3, 6:06 AM

Sounds obvious to me... Nevertheless, interesting to see how much YouTube is important...

Bettina Gifford's curator insight, July 5, 7:00 PM

We all need to be reminded sometimes..

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The digital behaviours of patients: an infographic

The digital behaviours of patients: an infographic | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Patient digital behaviours

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"Les patients collaborent avec les chercheurs pour le progrès de la médecine", dans Votre santé m'intéresse – 28/06

"Les patients collaborent avec les chercheurs pour le progrès de la médecine", dans Votre santé m'intéresse – 28/06 | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Le 28 juin, Alain Ducardonnet a reçu Dominique Donnet-Kamel, responsable de la mission associations de malades à l'Inserm, dans Votre santé m'intéresse, sur BFM Business.
Tous les samedis, Alain Ducardonnet et ses invités vous éclairent sur les grandes thématiques du monde de la santé. BFM Business, première chaîne d'informations économiques en France. Retrouvez toute l'actualité économique et financière sur BFMBusiness.com. Pour ne rien manquer de nos vidéos, rendez-vous sur : http://www.bfmtv.com/video/bfmbusiness/

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How The Internet Helps Rare Disease Patients

How The Internet Helps Rare Disease Patients | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Searching online for a travel destination or a recipe is simple enough. But what if you wanted to diagnose a medical condition? 35 percent of US adults say they’ve used search tools to find a diagnosis.

Perhaps not surprising to physicians, of these “online diagnosers” less than half (41 percent) got their diagnosis right.

Rare Diseases and Online Community

For rare disease patients, finding others with the same unusual set of symptoms can be a lifeline. With a confirmed diagnosis, patients can connect digitally in a way that is often impossible in real life.

Rare disease is defined in the US as having less than 200,000 patients; in the EU it is one in every 2,000 people. Inherently, patients are sparse for the7,000+ known rare diseases. Only about 50 percent have advocacy groups or organizations fighting on their behalf.

Rare Disease Patients Are Power Internet Users

The Pew Research Internet Project found rare disease patients use the internet to connect with others in far greater numbers than other patients. Overall, only five percent of patients say they have interacted online with a fellow patient, but 50 percent of rare disease patients say they have connected with others sharing their condition.

The mother of a patient in the study noted,

“When a disease is so rare, and there are no folks in your town, and few in your state who are going through what you are going through, you need a support group that encompasses people from all over the world. Getting to know people through the disorder has been an amazing experience and has created incredibly wonderful friendships and ties.”

Where Does the Online Search Begin?

Seventy-seven percent of online health-seekers start with major search engines such as Google or Bing. No matter how their searches begin, physicians wish their clicks would lead them away from social media and toward more technical information sites.

In a recent survey, we asked Sermo member physicians, “Where should rare disease patients search online for information?”

  • 69 percent preferred medical literature sites such as the Journal of the American Medical Association or the New England Journal of Medicine.
  • 54 percent approved of research hospital sites such as Massachusetts General Hospital or Stanford Medical.
  • 32 percent gave a nod to patient communities such as Patients Like Me.
  • 11 percent approved of social media sites such as Facebook or Twitter.

Registries Can Be Life Saving

Rare disease patients like to connect for emotional support and information as their issues progress. For researchers and physicians, online registries are a boon. Clinical trials can find participants quickly and speed the path of a drug to market, potentially saving lives and easing symptoms.

In an NPR article, Sue Byrnes, a patient and founder of a rare lung disease registry said,

“the internet actually facilitates research. Researchers can search that database or ask the foundation to survey its members online for information about symptoms and treatment. Scientists don’t have the time to do these sorts of things, so we do it for them.”

Overall, rare disease patients use online resources to connect, for support in their diagnoses, to compare treatment notes and to participate in research studies. Physicians and researchers use online connections to find patients and collaborate on treatment plans.

As a physician, have you directed a rare disease patient to an online resource? Have you found patients have better outcomes if they have an emotional connection? Has a rare disease patient ever questioned your treatment plan based on information they received online?



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Esperity : réseau social pour trouver son jumeau médical

Esperity : réseau social pour trouver son jumeau médical | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Une start up belge lance un nouveau réseau social mondial pour les patients souffrant de cancer : Esperity. Découverte.


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Drug Companies' Patient-Assistance Programs — Helping Patients or Profits? — NEJM

Drug Companies' Patient-Assistance Programs — Helping Patients or Profits? — NEJM | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Perspective from The New England Journal of Medicine — Drug Companies' Patient-Assistance Programs — Helping Patients or Profits?

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EVELYNE PIERRON's curator insight, July 10, 12:04 PM

Implementing patient cost sharing in the form of copayments, coinsurance, and deductibles is one of the more reliable methods for reducing health care costs. But imposing cost sharing reduces patients' demand for medical care, which sets the interests of insurers at odds with the interests of health care providers and drug and device manufacturers, who generally benefit when patients use more services.

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Exploring patient engagement through communities, advocacy groups, registries and more

Exploring patient engagement through communities, advocacy groups, registries and more | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Jerry Matczak reflects on what he learned about what patient engagement really means at the 50th Annual Drug Information Association (DIA) Annual Meeting.


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Andrew Spong's curator insight, July 10, 10:26 AM

I couldn't be more pleased to see this on the Lilly Clinical Innovation blog, particularly as it features Regina Holliday's Walking Gallery, which I am very proud to be a part of.

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What Does Social Media Participation Mean for Patients’ Privacy?

What Does Social Media Participation Mean for Patients’ Privacy? | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

The doctor-patient relationship is confidential by nature. Although we encourage you to participate intelligently in social media, at times, this advice can complicate things. A single violation of the Health Insurance Portability and Accountability Act (HIPAA) may cost tens of thousands of dollars in fines, not to mention the criminal charges you could face. Is the use of social media worth it? The short answer is yes—as long as you do it right.

IF YOU WOULD NOT SAY IT IN YOUR WAITING ROOM, DO NOT SAY IT ONLINE

This is an extension of the “think before you post” rule. Before you post anything on a social media site, pause and read it out loud. Imagine you just said what you read in your waiting room in your normal speaking voice. If you feel comfortable with that, then what you have typed is probably fine to post on Facebook or Twitter. If you feel even the least bit uncomfortable with the notion of saying in a waiting room full of people what you are about to post however, do not post it.

DO NOT MIX PERSONAL AND PROFESSIONAL MESSAGES

If you have personal accounts on social media sites, do not use them for professional purposes. Do not “friend” your patients on Facebook: if you want to use Facebook professionally, create a page that people can like. A professional presence can include a personal touch without being overly personal. Pictures from your marathon last week work perfectly, but those from your date last night do not.


MAKE SURE YOUR STAFF UNDERSTANDS YOUR SOCIAL MEDIA POLICY

Although you cannot monitor everything your staff members do when they are not at work, you can outline a social media policy that extends to all of your employees. It does not have to ban social media. After all, odds are that at least one member of your office staff began personally posting Tweets or using Facebook long before your practice had a professional presence on these sites. You can, however, create a policy and ensure that your entire office understands it. At the very least, ban discussing patients online, no matter how vague the details.

DEVELOP A RELEASE FORM FOR PATIENTS’ TESTIMONIALS

For some subspecialties, patients’ photographs and testimonials can really enhance the credibility of a business. Develop a standard release form for these situations, and make sure patients understand exactly how and where their photographs or words will be used. Crop or disguise identifying details to ensure patients’ anonymity.



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Doc, the Internet says I have cancer

Doc, the Internet says I have cancer | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

The Internet is creating new-age hypochondriacs, an all-India doctors’ survey reveals

 

A recent survey, conducted across 27 cities including Mumbai, Pune, Delhi, Kolkata, Chennai, Bangalore, Hyderabad and Ahmedabad revealed that doctors have been struggling to deal with patients who use the internet to find out what ails them.

Making matters worse are hundreds of thousands of online forums where people discuss their ailments and symptoms, which often result in patients indulging in self-medication, and also end up arguing with doctors upon being told that their ailmentisnotevenclosetotheworsediseasestheyhad imagined, said majority of the 650 doctors who participated in the survey.

The doctors, including specialists and super specialists, termed people's increasing dependence on the internet to find medical cures and search for symptoms as a "major strain on the doctor-patient relationship".

Overloaded with information 
Forty-four per cent of the 650 doctors surveyed said that most of their patients were "overloaded with information", while 37 per cent doctors were of the opinion that their patients considered themselves "medical experts" after reading about the ailments on the internet.

As many as 38 per cent of the doctors surveyed said that majority of their patients who participated in online forums to discuss their ailments were "grossly misinformed" about the symptoms.

Dr Pratit Samdani, a general physician at the Breach Candy Hospital said he often comes across patients who imagine the worst after an online search of the ailments.

"One of my patients, a woman in her 30s, was convinced she was suffering from lung cancer. She had been coughing incessantly, and obviously the internet search said it was the most basic symptom of lung cancer. She assumed the worst, but it turned out to be a very minor infection," he said.

Dr Bharat Shivdasani, a cardiologist at Jaslok Hospital, said that it becomes difficult to convince patients who are loaded with "internet information". He said,"A few weeks ago,a man in his 40s visited me for consultation. He was convinced that he suffered from a heart ailment only because he was experiencing pain in left arm. When I told him that was not the case, he ended up arguing with me."

Samdani termed the internet a "medical menace", saying the woman who had assumed she was suffering from cancer insisted on undergoing a series of tests. "I spent an hour trying to convince her that she didn't need to undergo the tests. Internet cannot diagnose ailments or treat anyone," he said.

The survey, conducted by Ipsos Healthcare and Ruder Finn, an international public relations firm, aims to educate people on the dangers of 'over-information' when it comes to ailments. One such victim of medical overload, Dahisar resident Vikas Vyas, said he recently spent sleepless nights assuming the worst of diseases after searching the causes of throat pain on the internet.

The curse of internet 
Out of the 650 doctors surveyed, 44% said their patients were "overloaded with medical info gathered online". Thirty-seven per cent doctors said that many of their patients think of themselves as medical experts.

Fifty per cent of the doctors surveyed said internet has made their interaction with patients "difficult".

 

more at http://timesofindia.indiatimes.com/life-style/health-fitness/health/Doc-the-internet-says-I-have-cancer/articleshow/33815433.cms

 


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How to Treat Patient Wait-Time Woes IndustryView | 2013

How to Treat Patient Wait-Time Woes IndustryView | 2013 | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
We surveyed 5,003 patients to determine how they feel about wait times and what might alleviate their frustration.

[...]

Key Findings:

  1. 80 percent of patients would be less frustrated if they knew how long the wait would be.
  2. A personal apology from the doctor would minimize frustration for 70 percent of patients.
  3. 41 percent of patients would be willing to see another doctor in the practice to reduce their wait.
[...]
Conclusions

Patients are nearly unanimous in their dislike of waiting at their doctors’ offices, but there are steps you can take to help alleviate their frustration. Simply notifying patients how long they’ll have to wait can ease the frustration of most patients, as will a personal apology from their doctor when they’ve had to wait.


See download of report


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rob halkes's curator insight, July 8, 4:48 AM

Waiting without being informed about why so, and how long will it take, is most annoying - a certainty that is now demonstrated in health care. Lots can be done to resolve this irritation, but the online and ehealth technology will be the fundamental changes to overcome these ;-)

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Wolters Kluwer | Press | News | Survey: Americans Want Greater Control Over Their Own Healthcare

Wolters Kluwer | Press | News | Survey: Americans Want Greater Control Over Their Own Healthcare | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Wolters Kluwer is a market-leading global information services and publishing company focused on professionals.

(December 12, 2012)  — 

Philadelphia, PA (December 12, 2012) – According to a new Wolters Kluwer Health survey, 80 percent of consumers believe the greater “consumerization” of healthcare – or the trend of individuals taking a greater and more active role in their own healthcare – is positive for Americans. Survey data suggests many Americans feel that a greater role in their care is not only good, but necessary, with 86 percent of consumers reporting that they feel they have to take a more proactive role in managing their own healthcare in order to ensure better quality of care.

 

Most consumers also say they feel prepared to take on a greater role in managing their own healthcare, with 76 percent reporting that they have the information and tools to take a more proactive role in healthcare decisions ranging from choosing healthcare providers to researching treatment options. Despite feeling prepared, only 19 percent report that they have their own electronic Personal Health Record (PHR).

[..]

“With greater responsibility placed on patients to take a role in their own care, it’s essential that consumers have access to evidence-based tools and resources to make informed decisions about their care in partnership with their healthcare providers,” said Dr. Linda Peitzman, Chief Medical Officer, Wolters Kluwer Health. “Access to research-based medical information not only can positively impact quality of care, but it also can lead to improved doctor-patient communication and relationships.”

Survey findings showed that the notion of the “patient experience” is also gaining significance for many Americans. Three in ten adults (30 percent) want their patient experience to be the same as any other customer experience they have – such as shopping, hotel and travel experiences – complete with choices and control.

[..]


See report here



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rob halkes's curator insight, July 8, 6:19 AM

Already at the end of 2012 this survey was completed about the consumerization of health care. See the report here .

Now, in 2014, we can state that the trend is persevering.

Ehealth is now no more option, it is a must tp adapt to patients' wishes!

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RARE Toolkits: ACCESS TO UNAPPROVED MEDICINE: IS THIS AN OPTION FOR ME? (USA)

RARE Toolkits: ACCESS TO UNAPPROVED MEDICINE: IS THIS AN OPTION FOR ME? (USA) | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

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Patients Want Digital from Pharma | PM360

Patients Want Digital from Pharma | PM360 | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Patients Want Digital from Pharma
by Sam Welch on June 9th, 2014


 

New survey data released by Accenture found that more than 75% of consumers expect drug companies to provide additional services that complement their medical products.

Digital platforms are frequently mentioned as the preferred method of contact. Sixty-nine percent of respondents said they’d prefer information from pharma companies via email, followed by printed materials (66%), websites (48%), mobile apps (44%) and social media (38%). Print media made the list, though patients have made it clear that they are seeking resources through digital channels.

Of interest to marketers, the data show that 64% of patients are willing to trade personal information to get free, relevant content. Not only should we engage around this opportunity, this indicates that marketers can achieve access to more customer data in order to personalize information to each patient’s needs. And digital expands opportunities to track outcomes and tailor content to the individual.

Consumers want more tools to manage their healthcare. If we’re really moving into an age where “an app a day can keep the doctor away,” then we must address this need to make valuable tools available to patients.

Read the full Accenture report here.



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Laurent FLOURET's curator insight, July 2, 6:30 AM

At this stage, it is beyond the wake up call...

Bettina Gifford's curator insight, July 2, 6:55 PM
Are you meeting patient needs with digital support?
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For portals, speak patients' language

For portals, speak patients' language | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it

Serving a multi-ethnic patient population that speaks six different languages – with five different alphabets! – is just one of the Stage 2 meaningful use challenges for New York Hospital Queens.


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Healthcare consumers actively sharing health information on social networks

Healthcare consumers actively sharing health information on social networks | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
A new survey conducted in May 2014 in the US shows that 85 percent of respondents would publicly share their health experience on social media to support others with the same disease.

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Données de santé sur le web, quelles conséquences ?

Données de santé sur le web, quelles conséquences ? | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
Avec la multiplication des objets connectés et applications mobiles, les questions autour de la gestion des données de santé font régulièrement la Une. L’enquête “Parler de santé sur web, quelle(s)...

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What do patients want in healthcare? |

What do patients want in healthcare? | | 4- PATIENT EMPOWERMENT & E-PATIENT by PHARMAGEEK | Scoop.it
It's a changing health care world, but to bring the standard of care up in the US we need to listen more to patients and less to administrators.

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Barrie C Fitz-Gerald Phd's curator insight, June 29, 4:31 PM

Definitely a trend to bring "patients" into the dialogue...after all it's their medical record isn't it?