PATIENT EMPOWERMENT & E-PATIENT
86.8K views | +5 today
Follow
 
Scooped by Lionel Reichardt / le Pharmageek
onto PATIENT EMPOWERMENT & E-PATIENT
Scoop.it!

7 reasons patients choose Mayo Clinic: a case in ePatient branding

7 reasons patients choose Mayo Clinic: a case in ePatient branding | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
And you'll appreciate it even more when you hear that the total cost of Mayo Clinic e-marketing was $0. It's been about three years since Mayo created its "social media pyramid (ie, right number of servings per day).
more...
No comment yet.
PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
Your new post is loading...
Scooped by Lionel Reichardt / le Pharmageek
Scoop.it!

PHARMA.....CONNAIS TU LES E-PATIENTS?

PHARMA.....CONNAIS TU LES E-PATIENTS? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Mi septembre, la nouvelle tombe. "le Mycophénolate Mofétil (Cellcept) est exclu du dispositif "tiers payant contre générique"".
Résultat du travail de "Renaloo", association de patients qui a su mobiliser son réseau et négocier avec l'ANSM et la CNAMTS...
C'est une première....mais ce genre de situation va probablement devenir de plus en plus courante.


A l'occasion de la WebTV que j'ai eu l'honneur d'animer sur BEPATIENT.fr : "Carte blanche" donnée aux "E Patientes" ( http://sco.lt/8VRpi5 ), j'ai pris le temps de compiler un certain nombre d'informations sur ce qu'on appelle les "E Patients" et ce mouvement connu désormais dans la santé comme le "Patient Empowerment".


On sait que la santé est un sujet très présent sur le web.


Avec plus de 30% de la population mondiale connectée (plus de 71% dans les pays développés), le web 2.0 compte maintenant plus de 100 000 000 de sites et plus d'un milliard d'utilisateurs .


La santé 2.0 en chiffres c'est plus parlant. Cela représente :


- 1/3 des recherches faites sur Google
- 20% des discussion dans les réseaux sociaux


Ce qui fait de la santé le second sujet le plus recherché/discuté sur le net.


E PATIENT : UN PHENOMENE AMERICAIN?


On peut penser que ce mouvement des E Patients est un phénomène anglo-saxon pour ne pas dire américain.


Le plus connu d'entre eux, E Patient DAVE (Dave de Bronkart), sexagénaire américain, est devenu le "fer de lance" de ce mouvement.
Diagnostiqué avec un cancer du rein en 2006, les médecins le laissent sans espoir de traitement. Alors Dave s'adresse au web, échange avec d'autres patients et apprend qu'il y a un traitement envisageable mais proposé uniquement par certains médecins.
Rentré en rémission, il décide de s'appuyer sur son expérience pour promouvoir une approche nouvelle de la santé. (une interview intéressante de E Patient Dave http://www.myfoxmaine.com/story/19595242/e-patient-dave-health-activist)


Le Patient EMPOWERMENT est né avec les différente définitions que l'on peut donner aux E Patients (bien résumé et étayé sur wikipedia http://bit.ly/GShDVf ).


Parmi d'autres celle qui fait l'unanimité est la définition élaborée par Tom Ferguson qui identifie les e-patients comme des individus équipés, capables, responsables et impliqués (equipped, enabled, empowered, engaged) dans leur état de santé et dans les décisions qui lui afférent.


L'étude américaine de PEW INTERNET (Social life of health information ( http://bit.ly/SxW4PK ) résume bien l'ampleur de ce phénomène aux Etats Unis.


  • 80% des internautes ont cherché des informations santé sur le web
  • 1/3 s'en sert pour évaluer et choisir leur médecin
  • 60% reconnaissent que cela a affecté leur décision sur comment traiter leur pathologie
  • 50% demandent alors un second avis médical après ces recherches
  • 30% s'en servent pour décider d'aller consulter ou pas
  • 30% l'utilisent pour comparer les options de prescription de traitement


Aux Etats Unis ou les professionnels de santé sont équipés à 80% de smartphones et à 60% d'IPAD, 40% d'entre eux reconnaissent aller consulter de l'information on-line PENDANT la consultation et 50% recommandent à leurs patients des sites à consulter (Manhattan Research)


Le mouvement est encore plus évident à la lecture de l'étude conduite par l'université californienne DAVIS (UC DAVIS Mai 2012 http://bit.ly/SxW4PS ) "The prepared patient" qui met en avant les attentes des E Patients :


  • se tenir informé
  • jouer un rôle actif dans ses soins
  • franchir une étape difficile sur une question de santé


Cela pour autant qu'il soit question de défiance vis à vis des professionnels de santé
Par ailleurs, les patients reconnaissent qu'internet n'est pas la seule source d'information ; les amis, les émissions de télé, les ouvrages/revues/magazines.. sont aussi cités. D'ou l'importance de garder une présence sur les médias "off-line".


Dans cette étude, enfin, il est précisé que :


  • 70% des patients discutent avec leurs médecins de l'information collectée.
  • 40% l'impriment afin d'en parler avec leur médecin
  • 50% déclarent suite à cette recherche avoir au moins une question à poser à leur médecin.


ET EN EUROPE ?


En Europe, les études et la prise de conscience se développent.


Dans son étude "Citizen Health Europe", Manhattan Research dresse en 2010 un état des lieux précis de la situation.


Premier constat, il y aurait 76 millions de E Patients en Europe !!


Parmi les motivations qui induisent à s'adresser au web les 3000 patients interrogés dans les 5 plus gros pays européens, on retrouve :


  • discuter/rechercher les informations obtenues lors de la consultation
  • utiliser internet pour rechercher des symptômes/diagnostic (le fameux phénomène "Dr Google")
  • challenger le diagnostic
  • demander un changement de traitement


L'étude conduite en 2010 par IMR international "Europe Social Media in healthcare" quant à elle précise les motivations des internautes pour discuter de la santé sur les réseaux sociaux.


  • 32% veulent trouver une expérience sur le traitement qu'ils prennent
  • 31% pour trouver de l'expérience sur la maladie qu'ils ont
  • 16% pour partager de l'expérience/maladie
  • 13% pour partager de l'expérience/traitement


EN FRANCE ?


C'est ainsi qu'en France l'étude IPSOS "Public affair 2010" nous révèle que que la santé est la 7ème raison de consulter le web (en France).


Et lorsque l'on regarde les sites consultés/moyens utilisés (Etude GFK 2010 http://bit.ly/PxRc0c ) :


  • 81% passent par les moteurs de recherche
  • 68% par des sites spécialisés type "Doctissimo" ou "AZ Santé"
  • 40% vont sur les forums de discussion
  • 38% sur les encyclopédies libres (Wikipédia, ..)


Par contre :


  • seuls 12% vont sur les sites de labo
  • 11% sur des blogs médecins
  • 10% sur des blogs de patients
  • 10% sur les sites d'associations de patients
  • 8% sur les réseaux sociaux


Quant on sait qu'un site comme Doctissimo génère environ 8 à 10 millions de visiteurs uniques par mois, le Ministère de la santé a décidé face à ce phénomène de conduire une étude avec des sociologues en 2010.


La conclusion est sans appel sur le sujet :


Les auteurs précisent qu'il s'agit là de la "CONSTRUCTION D'UN SAVOIR PROFANE PRATIQUE, COMPLEMENTAIRE DU SAVOIR EXPERT DES MEDECINS".


Le phénomène est tel que le CNOM (Conseil National de l'Ordre des médecins) a réagit en conduisant cette enquête avec IPSOS ( http://bit.ly/PjIRtd ) qui nous donne les chiffres pour la France :


  • 71% des internautes français recherchent des informations santé sur le web
  • 7 internautes sur 10 qui font ces recherches ne font pas la différence entre sites certifiés ou non
  • 62% des français consulteraient le site/blog de leur médecins si celui-ci en avait un
  • 34% des internautes qui cherchent sur le net disent en parler avec leur médecin (le deux tiers des patients ne discutent pas avec leur médecins des informations repérées en ligne)


Cela a d'ailleurs conduit le CNOM a inciter sur son site les médecins à se pencher sur ce phénomène pour :


  • Développer le conseil du médecin dans la recherche d’information santé.
  • Faire d’Internet un outil au service de la relation médecins-patients
  • Créer un label ordinal pour les sites publiés par des médecins.


ET ALORS ?


And so what??
Comment prendre en compte cette évolution parmi les acteurs du système de santé?

Et oui.. pas facile quand notre culture et notre cadre réglementaire ne nous permettent pas d'avoir un échange directe avec les patients.
Pas facile de passer d'une cible de 200 000 médecins (grosso modo) à près de 45 millions d'individus (juste pour la France)
Pas facile de passer d'un mix promo ou la visite médicale est omniprésente (près de 60% du budget) et le digital quasi absent (moins de 1%)


C'est le "business model" en entier qu'il faut repenser et les organisations qui vont avec....


L'orientation client ne doit plus être une intention... mais devenir une réalité du quotidien...avec la difficulté, certes majeure, de définir ce CLIENT.


Prescripteurs? Dispensateurs? Payeur? Patient?...Lequel choisir? Y en a t il qu'un? ou plusieurs? quel poids donner à chacun?


J'entends souvent, et à juste titre, dire par les acteurs (laboratoires, grossistes, pharmaciens,..) que le Patient est "AU COEUR DE NOS DÉMARCHES"...


Pour les marketeurs (futurs "chef de clients"?? :-)), cela doit se traduire par une cartographie du parcours client...peut être effectivement tournée autour de ce parcours.

Prenons le pari qu'à chaque étape du parcours patient (prévention, symptôme diagnostique annonce,analyses, prescription, dispensation, observance, suivi...que sais je?? selon les pathologies) nous repensons nos démarches marketing en mettent au coeur le patient et la notion de service client et de valeur ajoutée...


Et pourquoi ne pas considérer désormais nos clients historiques ou les nouveaux acteurs comme des partenaires ayant eux aussi pour client le Patient?


Peut être faudrait il dans un premier temps accompagner ce changement dans la relation médecin/patient?


Pour conclure je reprendrais un post récent d'Alex Butler, PDG de "The social Moon", gourou du digital pharma et ancien de J&J, qui s'interrogeait sur la pertinence de continuer à utiliser le terme de E-Patient.
En effet, à partir du moment ou tous les patients ou presque, vont sur le net peut être faut il juste les appeler PATIENTS...au même titre qu'on ne précise plus le terme 'numérique" quant on parle d'appareil photo...


Ça y est Pharma... tu en sais un peu plus sur les E Patients.
J'espère que cela t'aura intéressé.



Pour finir, je citerais Len Starnes, autre gourou du digital pharma et ex Bayer...qui écrivait dans une présentation destinée à la pharma:

"Fish where the fishes are"
(Peches là ou sont les poissons)


A bon entendeur

Lionel REICHARDT
Le Pharmageek

more...
Anne Sophie Llanas's curator insight, March 2, 6:40 PM
Qui sont les e patients ? 
Anthony's comment, March 18, 10:07 AM
Merci pour cette analyse !
Anthony's comment, March 18, 10:07 AM
Merci pour cette analyse !
Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

Médicament : Renaloo fait désormais partie du Comité d’interface entre l’ANSM et les associations de patients

Depuis 2013, les comités d’interface avec les parties prenantes intervenant dans le champ des produits de santé mis en place par l’Agence nationale de sécurité du médicament et des produits de santé (ANSM) se réunissent régulièrement pour participer de façon constructive aux débats en matière de sécurité du médicament et des dispositifs médicaux. L’un de ces comités est composé de façon paritaire de représentants de l’ANSM et d’associations d’usagers du système de santé et a été renouvelé suite au lancement d’un appel à candidatures en avril 2016.

 


Via Renaloo
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Digital marketing pharma
Scoop.it!

Study: Consumers' adoption of digital tools for healthcare shopping increasing, but health literacy still lags

Study: Consumers' adoption of digital tools for healthcare shopping increasing, but health literacy still lags | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Even though more people than ever are using digital tools to manage their healthcare – from comparison shopping medical service to purchasing insurance – that doesn’t mean they like it, or even fully understand it.
Via Olivier Delannoy
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Pharma: Trends and Uses Of Mobile Apps and Digital Marketing
Scoop.it!

The New, Patient-Centric FDA

The New, Patient-Centric FDA | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

A report published by PricewaterhouseCoopers’s Health Research Institute reveals that the FDA, which developed the Patient-Focused Drug Development program in 2012 to better engage with patients, has held 21 disease-specific meetings to gain insight from them.

 

So far the meetings have focused both on well-known diseases such as breast cancer and HIV, and not so well-understood maladies such as female sexual dysfunction and Chagas disease. But what questions is FDA asking of patients and how often do they recur in the 21 meetings held? (See chart here).

 

Here are some FDA actions that should warm the cockles of the heart of patient engagement advocates in the future, according to the report. These are based on FDA’s PDUFA (Prescription Drug User Fee Act) reauthorization proposal:

 

  • Between 2017 and 2021, the agency expects to hire additional staff focused on engaging with patients and facilitating the development as well as use of patient-focused drug development methods.
  • In 2018, FDA is expected to provide draft guidance describing approaches to collecting patient and caregiver input.
  • In 2019, the agency plans to issue draft guidance describing how companies can collect information from patients, and how that information can be used in the drug development and regulatory decision-making process.
  • Another draft guidance describing how meaningful patient perspectives and information can be collected in clinical trials is expected in 2020.
  • And finally, a draft guidance on patient-reported outcome measures to replace the one released in 2009 is set to be available come 2021.

 

Draft guidance aside, FDA is also home to a treasure trove of data. And now the agency is opening up access so that third parties can turn that information into insight. For instance, through the openFDA database, companies like Iodine and Advera Health Analytics are turning adverse event information on drugs into a searchable format, the report found.

 

While FDA is dabbling with patient engagement strategies, on the flip side, patient advocacy groups are also getting involved in the regulatory space (read, for example, “How a #pharma Funded ‘Grassroots’ Patient Advocacy Campaign Changed FDA's Approval Process”; http://sco.lt/4tqlbF). The report mentions one — Parent Project Muscular Dystrophy — that developed a guidance document so that companies could use it to develop drugs for Duchenne Muscular Dystrophy. That guidance document ended up being modified and adopted by the FDA for use by companies developing drugs for the disease.

 

“While patient input is unlikely to improve the approval chances of a drug lacking solid efficacy and safety data, regulators may be more willing to work with companies that are developing a product in close concert with engaged or especially ill patient populations,” it advised.


Via Pharma Guy, Giuseppe Fattori, eMedToday
more...
Jeff French's curator insight, September 12, 6:16 AM
Another example of citizen centric policy development
Pharma Guy's curator insight, September 12, 6:50 AM

Meanwhile, “Patient Advocates - and Docs with Ties to Pharma - Turn Up the Heat on FDA”; http://sco.lt/8koMLZ 

Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

Les patients, ces experts

Les patients, ces experts | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Des groupes de malades, comme les entendeurs de voix et des personnes atteintes de la maladie de Huntington, militent pour la prise en compte, par le milieu médical, d’un savoir fondé sur le vécu. Ils brouillent les frontières entre normal et pathologique.

Via Renaloo
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Actus santé, médecine, innovations
Scoop.it!

« Les patients enseignants, une révolution dans la formation des médecins »

« Les patients enseignants, une révolution dans la formation des médecins » | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Pour Olivia Gross, Yannick Ruelle et Rémi Gagnayre, chercheurs et enseignants à la faculté de médecine de Bobigny, les patients ont un rôle à jouer dans la formation des futurs médecins.

Via Coralie Bouillot
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Tout et Rein by renaloo.com
Scoop.it!

Prendre soin de votre e-santé ! Les conseils du CISS

Prendre soin de votre e-santé ! Les conseils du CISS | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Via Renaloo
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Hospitals: Trends in Branding and Marketing
Scoop.it!

Can Online Articles Improve Patient Education, Engagement?

Can Online Articles Improve Patient Education, Engagement? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Research suggests that patients enjoy reading about healthcare in online blogs, and that it may help boost their patient education and engagement.

Informational blogs and research summaries can be useful in improving patient engagement and patient education, shows a recent study.

The study, led by researcher Anthony J. Levinson, MD, centered on the blog posts included in the McMaster Optimal Aging Portal. This portal, not to be confused with a more traditional patient portal, was developed at McMaster University in Ontario, Canada, and aims to provide older patients with the tools to help them age healthier and with higher quality of life.

Levinson and his team set out to determine how informational blog posts and published research summaries could improve care for aging patients who are not medical professionals.

Through qualitative interviews with 22 patients aged 50 and older, the research team determined four feedback themes: desirability and relevance to individual health, understandability, usability, and usefulness.

Overwhelmingly, study participants chose to read a specific article due to its pertinence to the individual’s own health concerns. Patients with heart conditions were more likely to read articles about heart conditions, for example.

When discussing their experiences with researchers, participants often related their reading material back to their own health, saying that it confirmed something they’d experienced or that it had raised concerns.

Patients also chose certain articles if the topics had an overall societal effect or if they had recently been featured in the news.


Via Marie Ennis-O'Connor, Giuseppe Fattori, eMedToday
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Virtual Patients, VR, Online Sims and Serious Games for Education and Care
Scoop.it!

Robert Wood Johnson Foundation, Kognito launch new website to simulate healthcare conversations

Robert Wood Johnson Foundation, Kognito launch new website to simulate healthcare conversations | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Kognito, the New York City-based patient engagement company that provides simulations with virtual humans, has partnered with the Robert Wood Johnson Foundation to launch a new series of conversation simulations aimed at getting people better at...
Via Nigel Wynne
more...
Nigel Wynne's curator insight, September 1, 9:32 AM
A key challenge for educators engaged in online virtual patient simulation development  is how to provide learners with opportunities to engage in realistic dialogue with virtual characters. Kognito and the Robert wood Foundation have partnered to bring a range of new scenarios to an already impressive repository previously developed by Kognito using their Conversation Platform. I've tried a demo of this technology recently, and although initially disappointed that it was limited to text based menu options was impressed by how nuanced the supported decision making became when based within a dialogic framework.
Rescooped by Lionel Reichardt / le Pharmageek from #eHealthPromotion, #web2salute
Scoop.it!

The Future of Patient Empowerment - The Medical Futurist

For thousands of years, medical information has been collected into books to understand diseases, treatments options or diagnostics even more. For thousands of years, medical information and devices have only been accessible in the so-called ivory tower of medicine. But due to the internet of things, social media communities, e-patients, cognitive computing or wearable devices this is going to change. And the ivory tower will not survive the waves of change

Via Giuseppe Fattori
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Veille pharmaceutique et médicale par Rubex (pour pharmacies d'officine et pharmaciens)
Scoop.it!

Les associations veulent la création d'un fonds pour toutes les victimes de médicaments

Les associations veulent la création d'un fonds pour toutes les victimes de médicaments | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Alors que le député Gérard Bapt réclame la mise en place d’une taxe pour financer le fonds d’indemnisation des victimes de la Dépakine, un
Via RUBEX SAS
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Digital marketing pharma
Scoop.it!

MM&M Infographic: How physicians share online info with patients and other docs #digitalhealth

MM&M Infographic: How physicians share online info with patients and other docs #digitalhealth | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
The availability of online medical information is changing the way doctors share and receive information — both among themselves and with their patients.

Via Olivier Delannoy
more...
rifa's curator insight, August 31, 8:04 AM

Digital marketing in pharma industry

Rescooped by Lionel Reichardt / le Pharmageek from Ressources d'autoformation dans tous les domaines du savoir : veille AddnB
Scoop.it!

Les mécanismes de la motivation en jeu dans l'apprentissage - Sydologie

Les mécanismes de la motivation en jeu dans l'apprentissage - Sydologie | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Avec ce nouveau livre blanc, nous inaugurons une nouvelle série centrée sur les apports des théories issues des neurosciences pour faciliter l’apprentissage.  Pour ce premier opus, nous avons choisi d’explorer les mécanismes de la motivation pour répondre à des questions qui intéresseront certainement les formateurs et les enseignants : En quoi la motivation est-elle nécessaire pour les... Voir l'article

Via veroni
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Health Care Social Media And Digital Health
Scoop.it!

Why do patients go to so many health websites?

Why do patients go to so many health websites? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
KEY TAKEAWAY: Online health seekers go to a variety of health websites to gain a better understanding of health conditions and treatment options.  The vast majority say that pharma websites “…

Via Marie Ennis-O'Connor
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Doctors 2.0 & You
Scoop.it!

Physicians Should Embrace Patients' Digital Inquisitiveness

Physicians Should Embrace Patients' Digital Inquisitiveness | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

Best of 4 editorials, says Denise Silber: For patients who feel a loss of autonomy, medical websites can help at a scary and sometimes helpless time. By Martin R. Weiser.


Via Denise Silber
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Médias et Santé
Scoop.it!

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal | e-Patients.net

e-Patients as journal authors: Sean Ahrens self-experiment published in a major journal | e-Patients.net | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
We'd love to start a list of other patient-authored papers and posters - let us know in the comments! We know of Dana M. Lewis & Scott Leibrand's poster about #OpenAPS in June - who else??
Via Delphine Eriau
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Hospi Hub
Scoop.it!

ClinicoBru : Shared Resources Center for patient recruitment in clinical trials

ClinicoBru : Shared Resources Center for patient recruitment in clinical trials | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
ClinicoBru is an integrated clinical site network including the the three academic hospitals of Brussels : Hôpital Erasme, Cliniques Universitaires Saint-Luc and Universitair Ziekenhuis Brussel

Via Philippe Marchal
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

Communication Crossroads: Managing Patient Interactions, Online Personas on Social Media

Communication Crossroads: Managing Patient Interactions, Online Personas on Social Media | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

It seems as though the negative stories always make the headlines: The humanitarian physician group sent to aid Haiti earthquake victims that posted not only patient photos on Facebook but also pictures of doctors drinking alcohol and brandishing soldiers’ firearms.1 Or there’s the story of the Redding, Calif.–based hospital accused of sharing a patient’s files with journalists and communicating via email about her treatment to hundreds of hospital workers.2

 

The pitfalls that can complicate the intersection of social media and patient privacy often come as no surprise when they arise, but digital communications, and social media sites in particular, also have made many positive contributions to the medical profession.

“Social media allows physicians to communicate with each other, to publicize items of interest, to solicit input from colleagues—even people that we don’t know—on a variety of topics,” says Brian Clay, MD, SFHM, interim chief medical informatics officer and associate program director of the internal medicine residency-training program at the University of California at San Diego.

But there is a dark side of social media, too, and some physicians have made significant missteps in social media use. Ryan Greysen, MD, MHS, FHM, assistant professor in the division of hospital medicine at theUniversity of California at San Francisco, has authored multiple studies on physician violations of online professionalism. In a report published in the March 2012 issue of JAMA, Dr. Greysen and co-authors note that 92% of the executive directors at state medical and osteopathic boards surveyed reported encountering at least one violation of online professionalism.3 Another report in the January 2013 issue of the Annals of Internal Medicine co-authored by Dr. Greysen notes that 71% of state medical boards have investigated physicians for violations of professionalism online.4 The consequences of these errors in judgment can be dire: Should your employer come across it or a colleague report it, you could lose your position and even lose your license.

Professional Guidelines

To avoid these significant and potentially career-ending blunders, the American College of Physicians(ACP)—in conjunction with the Federation of State Medical Boards (FSMB)—published recommendations offering ethical guidance in preserving the patient-physician relationship in context of social media.5 Similarly, the American Medical Association (AMA) published an opinion on professionalism in the use of social media.6 Their guidelines can be summarized in five succinct points.

  • Maintain standards of professional ethics in online communications, including respect for patient privacy.

Katherine Chretien, MD, associate professor of medicine at George Washington University in Washington, D.C., a clinical associate professor in medicine at the Uniformed Services University of the Health Sciences in Bethesda, Md., and chief of the hospitalist section at the Veterans Affairs Medical Center also in Washington, D.C., warns physicians to use the utmost caution to maintain patient anonymity when publishing case stories online. When publishing clinical vignettes, physician blogs, and other forms of online media, all details that can identify a patient must be completely removed, including all forms of the date (references to “yesterday” or “last week,” for example, can identify the date). Check anything you intend to publish against the HIPPA list of 18 identifiers.7 (See “HIPPA Identifiers” below)

“The safest way to proceed when publishing patient narratives online is to get consent,” Dr. Chretien says. “If consent is not possible, as in cases of incidents that occurred several years ago, change the personal details, such as location, and clearly disclose that you have. Or make the example very general.” For example, instead of discussing how frustrated you became with a patient with asthma who you saw at a particular hospital in a certain year (a clear violation of patient privacy), paint the illustration in broad strokes. Dr. Chretien suggests you might phrase your observations in this way: “One of the frustrations I find when treating asthma patients is …”

It would also be wise to seek advice from colleagues before posting patient information, she notes.

  • Do not blur the boundaries between your professional and social spheres.

In a 2011 study, Gabriel Bosslet, MD, assistant professor of clinical medicine and associate director of the fellowship in pulmonary and critical care medicine at Indiana University–Purdue University at Indianapolis, noted that 34% of participating physicians reported receiving a Facebook friend request from a patient or patient’s family member. As Dr. Chretien points out, this is less of a problem for hospitalists than private-practice physicians because the relationship with patients is transitory. The AMA, as well as the ACP and FSMB, note that physicians should not “friend” patients, accept friend requests, or contact patients through social media. Physicians are advised to keep their public and professional online personas separate, even to the point of creating distinct online identities for their personal and professional lives.

  • Maintain professionalism in your online persona, and continually monitor your online image to ensure it reflects positively on yourself and the medical profession.

Some physicians fall into the trap of placing questionable postings on their personal pages, including posting content that can be inappropriate for public consumption or venting about patients and employers. Stories or incidents that medical professionals find intriguing or exciting may be disturbing to those outside their community, and medical humor can be offensive.

“[Physicians] assume [their social media page] is their personal space, so they can post whatever they want,” adds Dr. Chretien. “Part of their error is that they believe they are addressing a small group of close friends, but they forget that postings go out to the larger, peripheral audience of all Facebook friends and can often be accessed by the general public.” An ill-considered anecdote can damage not only your own reputation but also the overall perception of the profession. Physicians are always viewed in their professional role, even in social interactions.

  • Use email and other forms of electronic communication only in cases of an established physician-patient relationship and only with informed patient consent. Documentation of these communications should be kept in the patient’s medical record.

Any request a physician receives for medical advice through a social media site or email must be handled with caution. The ACP and FSMB state that email and text communications with established patients can be beneficial but should occur only after both parties discuss privacy risks, the appropriate types of information that will be exchanged electronically, and how long patients should expect to wait for a physician response. Patient preference should guide the use of electronic communication with physicians, especially text messaging, says Dr. Greysen.

  • Be aware that any postings on the Internet, because of its significant and unprecedented reach, can have future career ramifications. Consequently, physicians are advised to frequently monitor their online presence to control their image.

Dr. Greysen points out that presenting a positive image of physicians in the media is not a new challenge. “Physicians have been publishing books about their experiences for decades. But posting online without oversight, or in the moment without reflection, can be devastating to a physician’s career because the reach of the Internet is exponentially vaster than that of any printed material,” Dr. Greysen says.

Deliver Better Healthcare through Social Media

Perhaps one of the most dramatic ways in which social media is positively impacting healthcare is the FOAM movement, or free open access medical education. Jeanne Farnan, MD, associate professor of medicine at the University of Chicago Department of Medicine and lead author of the ACP and FSMB social media position paper, points to the dynamic collection of resources and tools for ongoing medical education as well as the community that participates in openly sharing knowledge as examples. FOAM resources are predominantly social media based and include blogs, podcasts, tweets, online videos, graphics, web-based applications, text documents, and photographs, many of which are available by following the Twitter feed @FOAMed (see “FOAM Links” below). This FOAM community is dedicated to the belief that high-quality medical education resources and interactions should be free and accessible to all who care for patients and especially to those who educate future physicians.8

Social media also affords physicians the opportunity to be a force in public health policies. “There is an active group of physician and medical student social media users in the blogosphere and on Twitter who use their social media presence for activism, and this presence is intimately tied to how they see themselves as a medical professional,” Dr. Farnan says. “They blog and tweet about medical education issues and other public topics such as access to care and care disparity.”

Michelle Vangel, director of insight services with Cision, a Chicago-based public relations company specializing in social media communications, praises the power of social media for raising awareness of public health issues.

“In terms of public health, social media is valuable to better understand how health-related news resonates with the public,” Vangel says. “Two salient examples of major health crises reactions tracked on social media were the Ebola outbreak in Africa and the measles outbreak at Disneyland in California. At times, there was near hysteria over Ebola and vaccine debates, with misinformation spreading quickly. However, many hospitals and physicians tried to get ahead of the hysteria by providing concise, accurate information on different social media platforms, with Facebook often a popular channel to post information.”

Social media sites can also help by making emotional support available at disease-specific sites. These communities address the patient experience of the disease that goes beyond purely medical disease information. Vangel points to several online communities that “host pivotal conversations for patients,” she says. “There are Facebook community pages dedicated to a host of conditions, including diabetes, hypertension, and cystic fibrosis, where patients discuss the challenges of medication compliance, side effects, and even dissatisfaction with healthcare professionals. BabyCenter.com provides message boards about a wide array of topics for people trying to conceive, pregnant women with health conditions, and parents of babies with health issues. CancerForums.net and the health and wellness boards at DelphiForums.com provide support to specific disease populations.”

Vangel encourages physicians to monitor online patient-support sites to better understand the difficulties patients experience while under treatment. These sites can also help physicians recognize and address the gaps in patient understanding about various diseases and explore programs geared toward the populations suffering from a wide range of conditions. TH


Via Plus91
more...
AchhiKhabre's comment, August 27, 3:24 AM
Please visit us at www.achhikhabre.com
Rescooped by Lionel Reichardt / le Pharmageek from Health Care Social Media And Digital Health
Scoop.it!

How Social Media Support Groups Enhance Patient Experience

How Social Media Support Groups Enhance Patient Experience | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
New research shows that the internet can support patient experience and patient satisfaction by offering social support groups and information gathering.

Via Marie Ennis-O'Connor
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Digital marketing pharma
Scoop.it!

Frequent Surfing on Social Health Networks is Associated With Increased Knowledge and Patient Health Activation

Frequent Surfing on Social Health Networks is Associated With Increased Knowledge and Patient Health Activation | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet

Via Marie Ennis-O'Connor, Olivier Delannoy
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from E-santé, Objets connectés, Telemedecine, Msanté
Scoop.it!

Google Search s’occupera bientôt de nos symptômes - CRIP

Google Search s’occupera bientôt de nos symptômes - CRIP | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Google Search s’occupera bientôt de nos symptômes Alors qu’Internet devient l’une des principales sources d’information médicale pour les patients, Google

Via Bruno Demay
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Pharmaguy's Insights Into Drug Industry News
Scoop.it!

Mylan TV Spot for "FaceYourRisk.com": Doesn't Mention Risk of Not Being Able to Afford EpiPen!

Mylan TV Spot for "FaceYourRisk.com": Doesn't Mention Risk of Not Being Able to Afford EpiPen! | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it

When a girl begins to suffer a reaction to a food allergy, her friends frantically try to figure out what's happening. One girl asks the host of the party if there were peanuts in the brownies and sure enough, they were made with peanut butter. Mylan advises people with allergens to talk to their doctor about a prescription treatment for severe reactions, because every six minutes, someone with life-threatening food allergies is sent to the hospital.


Via Pharma Guy
more...
Pharma Guy's curator insight, August 24, 1:25 PM

Mylan and its CEO, Heather Bresch, who described EpiPen as her "baby," are now facing the risk it took when it raised the price of EpiPen by 400%. For more on that, read “Mylan CEO Bresch, aka "Pharma Sis," Defends Price Gouging, Tax Evasion as Job Savers”; http://sco.lt/7uKmLB 

Rescooped by Lionel Reichardt / le Pharmageek from Ma santé et le digital francophone
Scoop.it!

Cancers : l'application Fiches Info Patients

Cancers : l'application Fiches Info Patients | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Fiches Info Patients Votre application d'informations et conseils à propos des cancers L'application Fiches Info Patients a été développée pour vous aider à trouver facilement des informations et conseils,...
Via Emmanuel Capitaine
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from François MAGNAN Formateur Consultant
Scoop.it!

Moins d'un internaute sur deux fait la différence entre résultat naturel et résultat sponsorisé - Blog du Modérateur

Moins d'un internaute sur deux fait la différence entre résultat naturel et résultat sponsorisé - Blog du Modérateur | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
Plus les années passent et plus le caractère sponsorisé des publicités sur Google est discret. En 2007, elles étaient affichées sur fond jaune avec la ment

Via FrancoisMagnan
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Social Media and Healthcare
Scoop.it!

How to Empower Patients with Your Website

People are booking flights, reservations, and hotels online, and patients are coming to expect the same type of services from their physicians. Your website pl…

Via Plus91
more...
No comment yet.
Rescooped by Lionel Reichardt / le Pharmageek from Health Informatics
Scoop.it!

Future NHS: What if people controlled their own health data?

Future NHS: What if people controlled their own health data? | PATIENT EMPOWERMENT & E-PATIENT | Scoop.it
It’s 2021. There has been a steady trickle of stories about what happens to people’s health data. There’s no concrete evidence of harm in any of these stories, but a crisis of confidence has built up over time. One hospital has been the subject of a cyberattack, but it is not yet clear whether sensitive data has been stolen and deciphered.Controversy about the use of health data is nothing new. Five years earlier in 2016, 2.2% of patients had exercised their right to opt out of data being shared beyond the NHS information centre after a botched attempt to link up information from patients’ GP records and hospital activity records.
Via Alex Butler, Lionel Reichardt / le Pharmageek, Adrian Adewunmi Ph.D
more...
No comment yet.
Curated by Lionel Reichardt / le Pharmageek
Pharma Manager & Geek ... #hcsmeu #hcsmeufr #health20fr
http://www.scoop.it/t/pharma-geek
http://www.tikimee.com/lionel-reichardt
Other Topics
5- SUNSHINE ACT & LA LOI BERTRAND by PHARMAGEEK
Tout (ou presque) sur la Loi BERTRAND - Almost everything on Sunshine Act
6- HOSPITAL 2.0 by PHARMAGEEK
#hospital #hopital #clinic #socialmedia #healthcare #pharma #ehealth #mhealth
7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK
#survey #report #ebook #studies #ehealth #mhealth #healthcare
8- TELEMEDECINE & TELEHEALTH by PHARMAGEEK
#telemedecine #telehealth #ehealth #health #healthcare
BEST OF PHARMAGEEK
My review's fav ! Stuff I like
E-HEALTH - E-SANTE - PHARMAGEEK
Une veille unique sur le digital et l'innovation en santé A unique watch on digital and innovation in health #ehealth #mhealth #innovation #health #digitalhealth #hcsmeu #hcsmeufr #hcsm
GAFAMS, STARTUPS & INNOVATION IN HEALTHCARE by PHARMAGEEK
GAFAMS, GAFAM, E HEALTH, START UP, USA
GAMIFICATION & SERIOUS GAMES IN HEALTH by PHARMAGEEK
#Gamification in #Healthace.. #seriousgames #ehealth #mhealth
HEALTHCARE & SOCIAL MEDIA
BRINGING THE SOCIAL MEDIA REVOLUTION IN HEALTHCARE #hcsmeu #hcsm #hcsmeufr #socmed
M-HEALTH By PHARMAGEEK
M HEALTH...and Mobile marketing - Mobile, Ipad and Apps.. #mhealth #ehealth #healthapps
PATIENT EMPOWERMENT & E-PATIENT
Patients as the healthcare system "missing link" #digitalhealth #hcsmeu #hcsm #epatient
PHARMA NEWS, MULTICHANNEL & CROSSCHANNEL MAKETING
MULTI CHANNEL MARKETING IN PHARMA / MULTICANAL DANS LA PHARMA #digitalhealth #hcsmeufr #hcsm #hcsmeues #hcsmeu
PHARMACY, PHARMACIST, RETAIL - PHARMACIE, PHARMACIEN, DISTRIBUTION
#Pharmacy #pharmacist #pharmacie #pharmacien #hcsmeufr #hcsmeu #hcsm #digitalhealth
Public Health - Santé Publique
WEARABLES - INSIDABLES - IOT - CONNECTED DEVICES - QUANTIFIEDSELF
#objetsconnectés #iot #quantifiedself #innovation #modifiedself #internetofthings quantfiedself mhealth ehealth #hcsmeufr #hcsmeu #hcsm