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Five phases of patient engagement

Five phases of patient engagement | Pharma | Scoop.it

In July of 2012, National eHealth Collaborative (NeHC) convened a meeting of the Consumer Consortium on eHealth. The Consortium was created in early 2011 and has since developed into a diverse group of over 300 individuals and organizations, united in the common goal to use health IT to engage patients in their care. During the 2012 Consumer Engagement Summit, it became clear that something had changed in the way people were talking about patient engagement. In 2011, there had been a persistent question: “Why patient engagement?” By this past summer, the questions were: “How do we do it?” and “Where do we start?”

 

It was with that zeal and enthusiasm that NeHC, led by Board member and Senior Vice President for Policy at Healthwise Leslie Kelly Hall, embarked on an effort to help organizations identify that starting point and give them a finish line to strive toward. This year NeHC, with the participation and contribution of over 150 collaborators, pointed out the path to the finish line with the Patient Engagement Framework.

 

The Framework provides a guide for healthcare organizations to think about patient engagement using eHealth tools and resources.  It encompasses five phases of development to strengthen organizations’ patient engagement strategies:   Inform Me, Engage Me, Empower Me, Partner With Me, and Support My e-Community.  The characteristics of some of these phases include information and way finding, e-tools, patient-specific education, and the build-up to patient access to records, patient generated data, interoperable records, collaborative care, and community support.

 
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Jarek Kucia's curator insight, March 4, 2013 5:06 AM
"A blockbuster drug of the Century" was to the point! "E-Patient" report published by R.W. Johnsson Foundation could be suplementary lecture.
Bill Palladino - MLUI's comment, March 4, 2013 10:29 AM
Thanks for this. The framework could easily be applied to any nonprofit organization too.
rob halkes's comment, March 4, 2013 10:36 AM
Jarek Kucia, Thx for your comment, it would be nice though to see an url/link to your refered publicaiton of "A blogbuster..." Thx!
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Healthcare is getting better. Let's talk about what you can do to make it even better, faster.

Healthcare is getting better. Let's talk about what you can do to make it even better, faster. | Pharma | Scoop.it

Click on the link above to contact Andrew Spong, Managing Director, STweM Ltd.

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Thingful: a search engine for the Internet of Things

Thingful: a search engine for the Internet of Things | Pharma | Scoop.it
Thingful is a search engine for the Internet of Things, providing a geographical index of where things are, who owns them, and how and why they are used.
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3D printed meds to be made by pharma and hospitals within five years, and by the public within 10

3D printed meds to be made by pharma and hospitals within five years, and by the public within 10 | Pharma | Scoop.it

UCLan project predicts 3D printed medicine techniques will be used by pharmaceutical firms and hospitals within five years and by the public within a decade.

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On pharma, authenticity, and the expectations of health consumers

On pharma, authenticity, and the expectations of health consumers | Pharma | Scoop.it

Today, consumers of healthcare want authenticity when researching health information, but that means a lot of things to different people.

Andrew Spong's insight:

Rich Meyer makes five compelling points in this concise and useful article. Take a couple of minutes to review it, and reflect on his suggestions (NB one is only relevant to DTC)

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Pharma companies have many apps, relatively few downloads

Pharma companies have many apps, relatively few downloads | Pharma | Scoop.it
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Involving people with lived experience: time to choose, because you can't support this, *and* still attend digital pharma conferences

Involving people with lived experience: time to choose, because you can't support this, *and* still attend digital pharma conferences | Pharma | Scoop.it

"A patient and carer viewpoint [will be] represented in every single session and workshop throughout the day, [and] we will be involving people with lived experience in other areas across the conference, including as speakers, chairs and mentors."

Andrew Spong's insight:

There are many reasons to want to attend healthcare conferences.

 

However, when there are options like this available, it's verging on reprehensible for anyone in the pharmaceutical industry to continue to support the lame duck, 'Usual Suspect' digital pharma conferences that reiterate themselves year after year, celebrating their repetition as though having done the same thing for eight years were an achievement rather than an embarrassment.

 

If you're serious about putting the patient at the centre of what you do, you *have* to go to conferences that put the patient at the centre of their programme -- not ones that pay lip service to 'patient engagement' in the absence of their eponymous subjects, and brazenly focus on patients as 'targets' and 'opportunities' rather than as people.


It's time to choose.


Do the right thing.

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Mobile: transcending borders, rendering regulatory frameworks impotent

Mobile: transcending borders, rendering regulatory frameworks impotent | Pharma | Scoop.it

By 2017, 85% of the world’s population is expected to be covered by a commercial mobile signal.

 

Transcending state borders, mobile apps bring about a lot interesting questions for anyone studying regulatory frameworks and state-based policy....

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Six finalists announced in the 'Digital pharmaceutical company of the year' category of the PM Society Digital Media Awards 2014

Six finalists announced in the 'Digital pharmaceutical company of the year' category of the PM Society Digital Media Awards 2014 | Pharma | Scoop.it

Bayer, Boehringer Ingelheim, Genentech (Roche), GSK, Novartis and Sanofi have been shortlisted as finalists in the 'Digital pharmaceutical company of the year' category of this year's PM Society Digital Media Awards

Andrew Spong's insight:

I was pleased that STweM was able to work with our partners Symplur to compile the data behind this year's 'Digital pharmaceutical company of the year' category.

 

Results were derived by collating all tweets published in 2013 using the top ten hashtags in Symplur's Healthcare Hashtag Project associated with ten leading causes of mortality.

 

The top pharma companies within each disease area were identified according to the frequency with which they were mentioned.

 

The final results were determined by subsequently identifying those companies which featured most often in each category, weighting by rank, and ordering accordingly.


The winner will be announced on 25 September. I was kindly asked to present the award by the PM Society, but will be out of the country. PM Society co-chair Carwyn Jones has graciously offered to do the honours in my absence.

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Patients, pharma, conferences, and the thorny question of 'Return On Investment' in the social age

Patients, pharma, conferences, and the thorny question of 'Return On Investment' in the social age | Pharma | Scoop.it

The evergreen question of what constitutes 'ROI' for pharma in being seen to actively participate in the healthcare conversation on the social web around conference is addressed from many angles in this @CancerGeek article, which reflects on Thomas Lee of Symplur's recent MedX presentation.

 

Do also be sure to read the productive exchanges in the comments.

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It's time for socially-competent US pharma companies to stop DTC advertising

It's time for socially-competent US pharma companies to stop DTC advertising | Pharma | Scoop.it

Why might socially-competent US pharma companies wish to withdraw from DTC marketing?

 

And which of them are ready to do so?

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What happened when Sanofi US put patients, not products, at the centre of their social strategy

What happened when Sanofi US put patients, not products, at the centre of their social strategy | Pharma | Scoop.it

Sanofi US decided to make the centre of their social strategy their patients, not their products.

 

"We're publishing content by the people, for the people," says Director of Patients Insights Laura Kolodjeski (@lkolodjeski).

 

"It's not to market our products, but to enhance our overall value to our customers"

 

Ms. Kolodjeski explains the approach Sanofi tool to designing "The DX: The Diabetes Experience" (http://diabetes.sanofi.us/), Sanofi US's  content hub for people living with diabetes:

 

"We created The DX to offer a place for the community to engage around life and the aspect of that life with diabetes. We did not want it to be about diabetes, and we certainly did not want it to be about diabetes treatments"

Andrew Spong's insight:

As anyone who follows the content I share will know, I've been a long-time admirer of Sanofi's iterative approach to connecting with communities of interest on the social web.

 

This is just another example.

 

It is important that pharma companies situate their activities in a broader healthcare ecosystem in this manner rather than bringing isolated 'first in class' activities to digital environments which appear to be more about the organisers' desire to place themselves at the centre of a healthcare egosystem.

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Thierry Le Magny's curator insight, August 7, 2:34 AM

Great initiative!

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Tablets vs. paper: how the Philippines halved the cost of healthcare delivery

Tablets vs. paper: how the Philippines halved the cost of healthcare delivery | Pharma | Scoop.it

A project in the Philippines has reduced the cost of collecting healthcare information and delivering public health messages to the poorest families by almost half over five years, a university study has found.

 

ACCESS, a non-profit think tank, has trained the government’s community health teams to collect health information on families using tablets, replacing paper forms which they had been using since 2011.

 

The health workers can now use a mobile and web app to summarise the data collected and automatically generate reports. The City Health Office can also directly access the reports online and share them with other government agencies.

Andrew Spong's insight:

A lesson in how effective technology can be in delivering great results from an HEOR perspective when legacy EHR vendors don't get in the way.

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Five new year's resolutions for digital health

Five new year's resolutions for digital health | Pharma | Scoop.it

Reforming the perverse and inhuman world of digital health

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XPert Patient's comment, December 22, 1:52 PM
A very thought provoking article! I am of the view that 2015 will be the "Year of the Patient" on the social web. Patients are able to tune out of the hype and the "money-driven digital health orthodoxies." However, I do want to tune into news about genetic and genomic technologies which are revolutionising prognosis and treatment.

Regardless of digital health, we must always remember that medicine is a vocation. My late uncle who passed away this year, was a general surgeon working at the height of the Troubles in Northern Ireland. He saved countless lives in the operating theatres as staff attempted to hold the line under extraordinary strain. He frequently worked through day and night to aid victims of the latest shooting or bomb blast. He retired early from Gaelic Football to protect his "hands" - a surgeon of the highest rank, he was renowned for skill and speed. The local press in a tribute to him said " John O'Neill always led the field in things that really matter."

Let's hope that we all too can "hold the line" by standing up for what is right on the social web & just like my late uncle - lead the field in things that really matter in 2015.
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Patient engagement: the core of effective population health management

Engaging patients is not simply about providing them with basic health information, but going beyond this to provide information that is truly relevant and of use to them.

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The mobile health entrepreneur: an endangered species?

The mobile health entrepreneur: an endangered species? | Pharma | Scoop.it

What can we learn about the future of mobile health applications by considering the evolution of the website over the last two decades?

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Art Jones's curator insight, November 12, 12:37 PM

This is a thought provoking question. When you look at the history of website design and how easy it is to design a modern website, it is reasonable to expect mHealth APS will take the same accelerated path.


One day APS may develop themselves to meet each of our unique mHealth requirements.


 Does The Future = Personalized mhealth APS ?

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Millennials want to know how companies are solving social problems

Millennials want to know how companies are solving social problems | Pharma | Scoop.it
The millennial generation care less about corporate philanthropy and big cash donations, and more about how corporations are solving social problems.
Andrew Spong's insight:

It's so disappointing to see this important issue addressed within the context of 'corporate social responsibility'.

 

CSR is a PR-driven locked box within which social good is permitted to be pursued in limited contexts whilst the rest of an organisation maintains destructive practices unchecked.

 

Companies committed to reforming themselves should begin by dissolving their CSR units.

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Five steps to building successful digital health interventions

Five steps to building successful digital health interventions | Pharma | Scoop.it

Context. Interoperability. Physician (and patient, presumably) 'engagement'. Evidence. Scale.

Andrew Spong's insight:

All factors worth bearing in mind, certainly, but in a sense this article is simply a reminder that every potential intervention needs to be considered on its merits, and that potentially successful solutions reside in the middle of a complex set of interrelations.

 

Overlooking any one of them is likely to consign your efforts to failure.

 

Oh, and good luck with 'interoperability'.

 

Who can really be said to have 'cracked' this yet, beyond marketing spin?

 

A 'Gordian Knot' solution that addresses the difficulties of legacy providers' EHR interoperability by severing ties with them altogether, and taking a consumer-led view by using the patient's own healthcare records seems only a generation or two of devices away at this point.

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Six ways social media affects your clinical trial - whether you like it, or not

Six ways social media affects your clinical trial - whether you like it, or not | Pharma | Scoop.it

Transparency; recruitment; information sharing; advocacy; learning; support.

 

In short, pretty much everything has changed -- and there's both good and bad, from multiple, and often highly challenging perspectives.

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XPert Patient's curator insight, December 22, 2:55 AM

I agree that sponsors should consider implementing a formal feedback loop for patients/caregivers to share insights on a clinical trial  in addition to encouraging informal conversations between the investigators and trial enrollees to discuss such issues.


 I was on AML Clinical Trial 15 for treatment for a rare disease called acute promyelocytic leukaemia in 2004/2005. This disease affects one in a million people in Europe. Ten years later I have managed to find three people on twitter who are in remission from this disease. None of them were on AML Clinical Trial 15.


Remember it is not always possible for people with rare diseases to actually find other people who have faced similar challenges. As such, having a formal feedback loop would be an excellent idea for patients/caregivers both during the trial and in the longer long term so that a  network is created from the outset. 

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"Social media and real-time support can be done by pharma, and it’s being done right before your eyes"

"Social media and real-time support can be done by pharma, and it’s being done right before your eyes" | Pharma | Scoop.it
Andrew Spong's insight:

Kai Gait, Global Digital Director, GSK, keeping it real, as usual.

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Astellas hosts an app-focused Innovation Challenge in association with New Scientist

Astellas hosts an app-focused Innovation Challenge in association with New Scientist | Pharma | Scoop.it

Astellas invites participants to 'Come up with an innovative app for healthy living that impresses [their] judges and your idea could become a reality!'

Andrew Spong's insight:

A positive, progressive idea. Great to see Astellas teaming up with New Scientist for this initiative, too

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An overview of pharma's health accelerator initiatives and startup support

An overview of pharma's health accelerator initiatives and startup support | Pharma | Scoop.it

Merck, Bayer, GSK, Novartis, Janssen and more are all running digital health accelerator support programmes for startups

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Jim Murphy's curator insight, September 12, 8:53 AM

Incubating only works if the seeds get planted.  When these companies actually bring these solutions to market then it will be more than a branding gimmick.  

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Apple needs healthcare and medical tech companies to help create reasons to wear their devices

Apple needs healthcare and medical tech companies to help create reasons to wear their devices | Pharma | Scoop.it

Apple is trying create 'an iPod experience' in healthcare driven by its wearables, but Apple's wearables need to do things significant enough to persuade health consumers to carry their products around with them.

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Life-Printer "X" can create human tissue and medicines

Life-Printer "X" can create human tissue and medicines | Pharma | Scoop.it

A Singapore startup creates history today with the unveiling of a three-dimensional bio-printer which can produce human tissue, bacterial colonies, dietary supplements and medicine for biomedical and life sciences research.

Andrew Spong's insight:

Now imagine the genome-hacking, file-sharing bedroom coders of five years hence when there's consumer bio-printers are available...

 

 

 

 

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PMCPA commissions The EarthWorks to develop an app to simplify the APBI Code of Practice

PMCPA commissions The EarthWorks to develop an app to simplify the APBI Code of Practice | Pharma | Scoop.it

The UK's Code of Practice regulator is turning to digital technology for a strategic communications programme that will see it launch a new app to simplify the ABPI Code next year. 

 

The PMCPA, which administers the Code, will work with Marlow-based agency The Earthworks to create a strategic communications programme that will also include content marketing on the PMCPA's website and through social media channels.  

 

Vicky Bewer, head of communications at the PMCPA, said: “We are excited about the PMCPA becoming more active in the digital space, with The EarthWorks helping us maximise social media and the quality content we already have.”  

 

The PMCPA has often struggled with its online presence, so anything that can raise its digital game will likely be welcomed by its stakeholders.

 

Through the new partnership The Earthworks will be promoting a strong and positive profile for the PMCPA's work in relation to the Code and helping build awareness of, and promote, the benefits of self-regulation to the industry, health professionals, patients and the public.

Andrew Spong's insight:

I'm pleased to see the PMCPA partnering with a trusted and capable service provider to get this important work done.

 

Good news for all stakeholders.

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Deal between Google and Novartis will see the development of non-invasive smart lenses

Deal between Google and Novartis will see the development of non-invasive smart lenses | Pharma | Scoop.it

Google[x] and Novartis' eye care division Alcon will create smart lenses that feature "non-invasive sensors, microchips and other miniaturized electronics" and focus on two main areas.

 

The first will provide a way for diabetic patients to keep on top of their glucose levels by measuring the sugar levels in their tear fluid, feeding the data back to a smartphone or tablet. The second solution aims to help restore the eye's natural focus on near objects, restoring clear vision to those who are only farsighted (presbyopia).

 

Andrew Spong's insight:

Non-invasive, all-pervasive sensors in health: #NIAP begins here

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rob halkes's curator insight, July 16, 10:11 AM

This certainly is a logical follow up of earlier policy intentions by Mac and Samsung : the health world is changing indeed.

See here and here and here