Tiffany Peterson (@TiffanyAndLupus), empowered Lupus patient, in interview with pharmaphorum (@pharmaphorum) as part of their patient perspectives series observes:
'[Pharma needs to serve] the strong need for vital information and / or webinars, programs and support groups [among patients]. It’s really important for this content to be online because Lupus is a disease that can be really debilitating for the people living with it. So many patients can’t physically come to informational seminars, programs and support groups but they can log in from their computers. A lot of these programmes would help assist them with daily coping and positive living.
Pharma could also help assist by funding unbiased programming and informational seminars to increase patients literacy on their illness and it also would be nice to know what future drugs are in development.
A huge deficit in pharma is the lack of patient involvement. I speak to so many patient advocates that have these amazing ideas and it’s always great to crowd source ideas whenever you’re facing an issue. You never know what can come out of it. There’s no reason for pharma to fear patient engagement. For most engaged patient thought leaders there are no hidden agenda, we truly wish to provide better outcomes for overall patient safety. Our bottom line is saving patient lives.'