U.S. Institute of Medicine white paper: Social Networking Sites and the Continuously Learning Health System: A Survey
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Sven Awege's insight:
KEY FINDINGS FROM THE SURVEYS
Sharing for care improvement: 94 percent of American social media users agree with sharing their health data to help doctors improve care.
· With appropriate anonymity, 94 percent of American social media users with a medical condition would be willing to share their health data to help doctors improve care. The same proportion (94 percent) would be willing to do this to help other patients like them.
Sharing for better evidence: 92 percent of American social media users with a medical condition agree with sharing their health data to help research.
· 92 percent of American social media users with a medical condition would be willing to anonymously share health data for researchers to learn more about their disease. 84 percent would be willing to share such information with drug companies to help them make safer products, and 78 percent would do so to let drug companies learn more about their disease.
Sharing to help others: 94 percent of American social media users agree with sharing their health data to help patients like themselves.
· 94 percent of American social media users believe that their health data should be used to improve the care of future patients who may have the same or similar condition.
Desire to share outweighs open questions: 76 percent of American social media users worry that health data they share may be used in detrimental ways.
· 76 percent of American social media users with a medical condition believe that data from their personal health records potentially could be used without their knowledge. 72 percent believe their data could be used to deny them health care benefits, and 66 percent believe it could be used to deny them job opportunities.
Prodeep Bose (who I can't find on Twitter, but anyway...) writes:
"The central crux of the FDA's ruling suggests that a company’s responsibility is for content posted and not the entirety of the social context. And the intent, if I were to derive one, is to enable—if not empower—pharma to engage in social marketing.
In fact, I would suggest that it is the responsibility of pharma to engage and dispel inaccuracies regarding its products with a genuine intent in doing just so, in a responsible manner. And I imagine that the positive thinker on either side of the regulatory fence, whether at FDA or pharma, would see eye to eye on furthering the goal of legitimate information dissemination through the most powerful means of communications in our time—social engagement."
Attitude and a real wish to make a difference - regulation is just an excuse. But... I would also challenge that perhaps social media is not always the channel to provide the biggest bang! Upstream clear thinking is critical, while panning for measurement will also ensure that we can build perenniality by demonstrating true engagement that matters on a scale that has impact.
The Digital age is forcing Healthcare Professionals to think beyond the traditional marketing ploys and to bridge the gap between patients, doctors and pharma companies by integrating Digital & Social Media. Experts from the industry have shared their views on how digital is going to be the next big thing in the Pharma Industry. This is a 2nd video from the series of videos taken from DigiSights 2013- India's 1st Digital Marketing Conference for Pharma & Healthcare organized by MediaMedic Communications.
Digital Health will transform the business models of the Pharmaceutical industry. Although many companies have not yet formulated a concise Digital Health strategy, industry executives expect that by 2020, Digital Health will enable Pharmaceutical companies to activate new business segments as well as to significantly improve their competitive advantage.
This is the result of a global survey conducted in the Pharmaceutical industry by Arthur D. Little and the Karlsruher Institute of Technology (KIT) to capture the current thinking and the expectations regarding the transformative impact of Digital Health.
As health care in America goes increasingly consumer-directed and value-based, organizations that lag behind and can’t prove their economic or social value will further lag. The brand equity calculus today requires social engagement. As consumers are asked to pay more out-of-pocket for care and health products, they/we will want health industry stakeholders (read: marketers) to show up in social media, which now, for people and patients, isn’t really social media anymore.
Rockville, MD (PRWEB) January 14, 2014 -- Agreement combines data from GRS’ patient-centered digital technologies with the Center for Drug Evaluation and Research’s (CDER’s) clinical research guidance to create the Electronic Health Data Initiative...
Sven Awege's insight:
Players such as Microsoft and Google were playing in this arena a few years ago (MS is still theoretically in the game). They were just a bit ahead of the curve. Not surprising. The race is back on though with multiple players looking to capture this market, even if no financial business models are very clear yet.
GlaxoSmithKline (GSK) has launched a Facebook campaign that will provide free support to people looking to live a healthier lifestyle in the New Year. The pharma company will utilise the social media platform to provide daily tips and supportive messages via its page for alli, GSK's over-the-counter drug to help support weight loss in people with obesity when used in combination with a healthy diet. Timed to capitalise on the traditional New Year diet period, the campaign will offer a range of services, including two months of motivational tips, access to registered dietician Betty Kovacs, a social forum for programme users and a range of recipes linked to the alli diet plan. "GSK is passionate about helping people achieve a healthier lifestyle so they can see enjoy their successes,” said Deborah Larsen, marketing director of the alli brand “That's why we're excited to offer a convenient way to make the journey more manageable and enjoyable, right from the start".
As a healthtech startup, you can't help but get excited when Bob Kocher (Venrock) or Esther Dyson speak about the opportunities in healthcare given their impressive track records. Both spoke during this past week's StartUp Health Summit. One of Bob's main points was that the opportunity in healthcare is so big [...]
Health care is very much „in transition”. Have a quick look at the trends in health care 2014 . Now, try to predict what the outcomes will be of all these well intended developments? Due to changes in structure of processes, organizations, patients’ journeys, devices, drugs, apps, telemonitoring – health care will run the risk of becoming highly fragmented, maybe even chaotic. Let’s hope that professionals and their patients still do know their way around.
Can this be prevented? As costs will drive change for the coming years, I guess not. Health care is fundamentally being transformed. Why? Because it has been righteously disrupted and it will take time before a new satisfactory system has emerged. Do we need to wait for that? No! We have to see how we can construe things in a more informed perspective. ..
..there is a sure direction to give that constitutes the basic principle for moving forward: both because it is immanent to all needed developments to better care, and because it creates the opportunity to developments in oversee-able steps of change. Every party can draw its own choice on this to design a proper blue print to their process of change.
This principle directive is: Integrate, integrate, integrate.
Integration in care is about the unification of both parties and activities, aided by technology, devices, information and medications, to create better care for health and its outcomes. Integration will lead to better connections of different partners who are needed for a specific path or process of care. It will stimulate collaboration and coordination of activities between them. They will aim for better outcomes and higher effectiveness of care. It will lead to opportunities for more efficient arrangements of expertise and allocation of capacity of care givers. With the compound of the interests of the key players in care (and I mean of course, patients included), costs can be more rationally arranged and may lead to lowering prices of care per patient per year. Also, it will inspire higher transparency of processes and clarity to patients about details of the caring activities themselves.
There are three different kinds of integration. Each, open to start with. So, any party may pick and start its own game changer. Even any couple of parties as intended partners, may do so too. Choose the most easiest entry to your future development together and enjoy the ride!
1. Integration by Co-Operation 2. Integration by Co-Creation. 3. Integration by “Experience Co-Creation”.
The reputation of pharma companies remained at a low ebb last year, with performance ratings down across the board compared to 2011, according to a survey of patient groups.
All told, 35 per cent of respondents to the PatientView poll indicated that multinational pharma companies had an "excellent" or "good reputation", around the same as in 2012 but down from 41 per cent in 2011.
Once again, the drug industry ranked second bottom among healthcare industries just ahead of for-profit health insurers, while biotech companies also slipped down the rankings a little.
"Pharma should worry about patients' views of its corporate reputation," said Alex Wyke, PatientView's chief executive.
Good behavior is just the start of the corrective steps. Now we need to demonstrate our true commitment through providing real solutions to real problems, not just shiny bells! This is going to be hard for many Pharma marketers who still have a 6 month vision until the next big idea needs to be executed in panic mode!
ccording to the latest IMS report on social media Wikipedia is the leading single source of healthcare information for patients and healthcare professionals. Wikipedia is used throughout the entire patient journey, not just at the point of treatment initiation or change in therapy and the correlation between Wikipedia use and medicine use
can be identified for a large number of disease areas. Facebook who?
Nice to see these confirmed in a neat table. We type of know these after some years in the industry.
Lilltle comment that I heard recently that resonated, our constant use of the word 'restrictive' when talking about regulations - lets get over thinking about this negatively - Nearly all issues raised are either the law, or simply good ethical behavior. We should understand where the limits are, and for what reason, then get to work on what we can do. From my perspective much of Pharma still has to get a solid grip on doing the easy stuff first, and doing it well.
Social media has become an essential part of our daily lives, but, with so many networks out there fighting for our attention which networks are we really using? Overall, 72% of adults over the age of 18 used a social network in 2012. Currently Facebook is still the most popular site with 62% of adult global Internet users actively logging in, with nearly half of these users active on Twitter too...
The pharmaceutical industry has done the most to increase mobile ad spending as of Q3 2013, according to data from Millennial Media based on campaigns run on its mobile network. But growth across industries was well over 100% as mobile ad spending overall grew substantially, according to eMarketer estimates. Millennial Media reported the pharma industry upped mobile ad spending by 744% in Q3 2013 compared to the same period a year earlier. Meanwhile, the news industry more than sextupled spending, while sports advertisers increased campaign spend by 411%.