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La CPAM de la Somme propose du "coaching santé" à Amiens - France 3

La CPAM de la Somme propose du "coaching santé" à Amiens - France 3 | Doentes 2.0 | Scoop.it
France 3
La CPAM de la Somme propose du "coaching santé" à Amiens
France 3
La CPAM de la Somme propose du "coaching santé" à Amiens. Pour tenter de limiter les maladies chroniques, la CPAM de la Somme se lance dans le coaching santé.

Via Geraldine GOULINET, Lionel Reichardt / le Pharmageek
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"e-DENT" : une consultation à distance pour une...

"e-DENT" : une consultation à distance pour une... | Doentes 2.0 | Scoop.it
Pour que chacun puisse bénéficier de la même offre de soins dentaires sans distinction de son lieu d’hébergement, le Centre de Soins, d’Enseignement et de Recherche Dentaires du CHRU de Montpellier (Pôle Neurosciences Tête et Cou), en lien avec les...

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Les psys virtuels sont arrivés !

Les psys virtuels sont arrivés ! | Doentes 2.0 | Scoop.it
VIDÉO - Prévenir le burn-out, diagnostiquer une dépression cachée, décoder nos émotions Les avatars numérisés sont là.

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La e-santé, c'est quoi ? Ça sert à quoi ? - E-Health Centre

La e-santé, c'est quoi ? Ça sert à quoi ? - E-Health Centre | Doentes 2.0 | Scoop.it

La e-santé a pour objectifs :


- Amélioration de la qualité des soins
- Faciliter l’accès aux soins notamment en zones de désertification médicale
- Maintien à domicile et retour rapide à domicile dans des conditions de qualité et de sécurité optimales pour un suivi dans un environnement familier
- Meilleure coordination des professionnels
- Efficience du système de santé (maîtrise des coûts de santé)
- Formation des professionnels


Via Delphine Eriau, Giuseppe Fattori, catherine cerisey, FestivalCommunicationSanté
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Geraldine GOULINET's curator insight, January 31, 2013 8:39 AM

Toujours un plaisir de vous rescooper !

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E-Aidants : Le réseau social des aidants

E-Aidants : Le réseau social des aidants | Doentes 2.0 | Scoop.it
E-aidants est un réseau d’entraide qui permet à tout aidant ou aidé d’échanger et d’envoyer une alerte aux personnes de sa communauté virtuelle pour demander de l’aide à d’autres aidants.

Via Giuseppe Fattori
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Doc, the Internet says I have cancer

Doc, the Internet says I have cancer | Doentes 2.0 | Scoop.it

The Internet is creating new-age hypochondriacs, an all-India doctors’ survey reveals

 

A recent survey, conducted across 27 cities including Mumbai, Pune, Delhi, Kolkata, Chennai, Bangalore, Hyderabad and Ahmedabad revealed that doctors have been struggling to deal with patients who use the internet to find out what ails them.

Making matters worse are hundreds of thousands of online forums where people discuss their ailments and symptoms, which often result in patients indulging in self-medication, and also end up arguing with doctors upon being told that their ailmentisnotevenclosetotheworsediseasestheyhad imagined, said majority of the 650 doctors who participated in the survey.

The doctors, including specialists and super specialists, termed people's increasing dependence on the internet to find medical cures and search for symptoms as a "major strain on the doctor-patient relationship".

Overloaded with information 
Forty-four per cent of the 650 doctors surveyed said that most of their patients were "overloaded with information", while 37 per cent doctors were of the opinion that their patients considered themselves "medical experts" after reading about the ailments on the internet.

As many as 38 per cent of the doctors surveyed said that majority of their patients who participated in online forums to discuss their ailments were "grossly misinformed" about the symptoms.

Dr Pratit Samdani, a general physician at the Breach Candy Hospital said he often comes across patients who imagine the worst after an online search of the ailments.

"One of my patients, a woman in her 30s, was convinced she was suffering from lung cancer. She had been coughing incessantly, and obviously the internet search said it was the most basic symptom of lung cancer. She assumed the worst, but it turned out to be a very minor infection," he said.

Dr Bharat Shivdasani, a cardiologist at Jaslok Hospital, said that it becomes difficult to convince patients who are loaded with "internet information". He said,"A few weeks ago,a man in his 40s visited me for consultation. He was convinced that he suffered from a heart ailment only because he was experiencing pain in left arm. When I told him that was not the case, he ended up arguing with me."

Samdani termed the internet a "medical menace", saying the woman who had assumed she was suffering from cancer insisted on undergoing a series of tests. "I spent an hour trying to convince her that she didn't need to undergo the tests. Internet cannot diagnose ailments or treat anyone," he said.

The survey, conducted by Ipsos Healthcare and Ruder Finn, an international public relations firm, aims to educate people on the dangers of 'over-information' when it comes to ailments. One such victim of medical overload, Dahisar resident Vikas Vyas, said he recently spent sleepless nights assuming the worst of diseases after searching the causes of throat pain on the internet.

The curse of internet 
Out of the 650 doctors surveyed, 44% said their patients were "overloaded with medical info gathered online". Thirty-seven per cent doctors said that many of their patients think of themselves as medical experts.

Fifty per cent of the doctors surveyed said internet has made their interaction with patients "difficult".

 

more at http://timesofindia.indiatimes.com/life-style/health-fitness/health/Doc-the-internet-says-I-have-cancer/articleshow/33815433.cms

 


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Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données

Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données | Doentes 2.0 | Scoop.it

Fondation reconnue d’utilité publique, l’Institut Curie associe l'un des plus grands centres de recherche européens en cancérologie et deux établissements hospitaliers de pointe.


Via catherine cerisey
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Why the Internet cannot replace a doctor

Why the Internet cannot replace a doctor | Doentes 2.0 | Scoop.it

If you read some of the stories online you would thing that eventually patients won’t need health care professionals, they will be to do everything online with the help of the Internet and mobile apps.   Frankly that is a load of garbage and biopharma should not reach for the hyped golden carrot.

 

In this day and age of limited time with doctors coupled with ample opportunity to google anything, the temptation for people to reach their own conclusions about their illness is strong.   Spend enough time searching the internet for any given symptom and you’ll eventually end up with grave prognosis. Easy access to information does not negate the need for a professional opinion.


Read more: http://worldofdtcmarketing.com/why-the-internet-cannot-replace-a-doctor/health-information-online/


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Comment aider un proche qui vit un cancer

Comment aider un proche qui vit un cancer | Doentes 2.0 | Scoop.it

Via Giovanna Marsico, catherine cerisey
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Quelle sexualité quand on est malade ? - Femme actuelle mobile

Quelle sexualité quand on est malade ? - Femme actuelle mobile | Doentes 2.0 | Scoop.it

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A la recherche du ePatient, l'intégrale

A la recherche du ePatient, l'intégrale | Doentes 2.0 | Scoop.it

L'intégrale de l'étude "A la recherche du ePatient" est en ligne! Le 9 avril dernier, Lauma communication et Patients & Web ont eu le plaisir de dévoiler les résultats de l'étude "A la recherch...


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Your Scoop.it Daily Summary - Why are patients' using social media for health? | and 3 other Top Stories - sandpestana@gmail.com - Gmail

Your Scoop.it Daily Summary - Why are patients' using social media for health? | and 3 other Top Stories - sandpestana@gmail.com - Gmail | Doentes 2.0 | Scoop.it
Google's approach to email
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Why I tweet: A patient advocate view

Why I tweet: A patient advocate view | Doentes 2.0 | Scoop.it
Who would have thought that this tiny aperture -- a mere 140 characters -- could connect me with so many smart, feisty people?

...

Since 1992, I have advocated for all of us to have the information, support and guidance we need to act to improve our health and get the most from our health care. I believe — and there is evidence to back me up — that we do better when we participate in our care to the extent we are able with as much knowledge about what might work that we can absorb.

As someone who has been/is being treated for five different types of cancer, I am familiar with many of the challenges we face in getting the most out of our health care. We not only need to know about our specific diseases and treatments and what we can do about them, but we also need to know something about how our care is organized and about changes in general health knowledge and medical practice that affect how we make use of the resources and services available to us. Then we have to act on our own behalf or on behalf of our child, partner, spouse or parent. The organization I direct, the Center for Advancing Health, has mapped out the tasks that are now ours — the many actions we must take to find good health care and benefit from it.

Every weekday, I tweet a carefully chosen stream of new evidence, analysis and commentary that covers all the health and health care angles that we — sick or well — might need to know about. I tweet material from major news outlets, peer-reviewed literature, blogs and magazines in the belief that thoughtful consideration of emerging information and understandings about health and health care will serve us well.

Here’s why I tweet what I tweet:

It has never been more important for us to be well-informed about so many aspects of health care — not just our complaint of the moment. Otherwise, when we are passive recipients of care, we risk being on the receiving end of medical errors, spending money on unnecessary tests, receiving suboptimal care or simply not knowing how we can best help ourselves. I aim to tweet what we need to know.Evidence has never been more important. Especially considering media reports that much of the care we receive may not be consistent with evidence of what is currently deemed most effective. Combined with the rapid pace of new findings, understanding the facts relevant to your situation can be intimidating to patients and health professionals alike. Plus, it’s time-consuming for us to sort out solid information from broad assertions and slick advertisements, so I aim to tweet evidence worth noting, with the understanding that next week’s evidence may reverse what we know today.Finding high-quality analysis and commentary that is relevant to the decisions we must make about our health and care every day is a bear. I know. I wouldn’t be traipsing through 40+ different sites every day in search of the best pieces if they were located in one place. I aim to tweet links to useful, diverse analyses and findings.Understanding health and health care is not just a matter of digesting new facts. It also includes considering implications of those facts and different perspectives on policies so that the facts have context and meaning. I aim to include articles that tweak easy assumptions, shed light in dark corners and sometimes make me smile.Lastly, it’s funner than heck to do this. I have an insatiable taste for gossip, a fascination with trying to figure out what we really need to know to care for ourselves, a long memory for ineffective-but-nevertheless-repeated health care foibles and an impulse toward snarkiness that occasionally breaks through. Spending a couple of hours each day trawling online for new findings, blogs, articles and essays that I think you might find interesting is a great way to start the day. ...
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rob halkes's curator insight, February 11, 5:30 AM

Thanks Jessie for sharing this. The only thing I can prudently verb, is: I wished doctors would do so, like you do.. ;-)
But I guess they don't .. ...

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Sept idées reçues sur le cancer

Sept idées reçues sur le cancer | Doentes 2.0 | Scoop.it
Dans son livre « Quand une cellule déraille », le médecin Filip Lardon fait la chasse aux idées reçues sur le cancer. Voici une sélection des sept croyances qui reviennent le plus souvent.

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"e-DENT" : une consultation à distance pour une...

"e-DENT" : une consultation à distance pour une... | Doentes 2.0 | Scoop.it
Pour que chacun puisse bénéficier de la même offre de soins dentaires sans distinction de son lieu d’hébergement, le Centre de Soins, d’Enseignement et de Recherche Dentaires du CHRU de Montpellier (Pôle Neurosciences Tête et Cou), en lien avec les...

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E-santé : quel impact sur le service public ? - Weka Santé

E-santé : quel impact sur le service public ? - Weka Santé | Doentes 2.0 | Scoop.it
L’Université de la e-santé qui vient de s’achever au Technopole de Castres-Mazamet a mis en évidence le formidable potentiel de développement de ce domaine : télémédecine, objets connectés… pour lequel la France serait l’un des pays les plus innovants.

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E-Aidants : Le réseau social des aidants

E-Aidants : Le réseau social des aidants | Doentes 2.0 | Scoop.it
E-aidants est un réseau d’entraide qui permet à tout aidant ou aidé d’échanger et d’envoyer une alerte aux personnes de sa communauté virtuelle pour demander de l’aide à d’autres aidants.

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Why Communicating With Patients Using Social Media is a Good Idea

Why Communicating With Patients Using Social Media is a Good Idea | Doentes 2.0 | Scoop.it

Most companies have a Facebook or twitter page; medical practices should also communicate with their patients using social media. The medical field has been less proactive when it comes to maintaining a social media presence. It’s an effective way to make sure your practice is branded in your specific field of expertise. Don’t overlook social media as a great way to communicate with your patients. People are looking for doctors who care and take time to get know their patients, this is where social media can shine.

Communicating with patients using social media creates a personal connection without having an appointment. Create a discussion on your facebook page where people can go to get answers to common questions regarding scheduling or areas of expertise within your practice. The way you respond to questions or complaints can carry a lot of weight; if people see that you take concerns seriously and respond in a timely fashion to requests it shows you care.

Social media is an easy way to get a message out to your patients. Post reminders about flu shots or sports physicals, whatever your specialty might be. Show your support for the local charities and fund drives you participate in. Ask your followers to fill out a patient survey, introduce new staff, link to beneficial health articles. Utilize social media as a new way to get important information to your patients. It’s a fast and free way to get important information and news to your patients.

Having a good social media presence will draw new patients in. It makes you easier to find and many potential new clients do their research for medical recommendations online. The reputation of a medical practice can be influenced by social media which is a good reason to learn how to manage yours.


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Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données

Cancer du sein métastatique et qualité de vie : Unicancer et Roche lancent une base de données | Doentes 2.0 | Scoop.it

Fondation reconnue d’utilité publique, l’Institut Curie associe l'un des plus grands centres de recherche européens en cancérologie et deux établissements hospitaliers de pointe.


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The digital behaviours of patients: an infographic

The digital behaviours of patients: an infographic | Doentes 2.0 | Scoop.it
Patient digital behaviours

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In-Depth: Rise of the ePatient Movement

In-Depth: Rise of the ePatient Movement | Doentes 2.0 | Scoop.it

The technology is out there, and the patients are ready for it, but what about the providers? As we mentioned before, even the early stages of embracing early EHR implementation has led to provider frustration and hesitation. But there are professionals out there that think that the gap between patient need and product limitations can be filled adequately by the provider taking both into consideration upon clinical application. One such professional is Steven Beck, CMIO of Catholic Health Partners’ (CHP).


Beck’s organization, which is the largest health system in OH, has been recognized for successfully integrating a standardized EHR system developed by Epic throughout all of its hospitals and employed physician practices. The initiative was known as Care PATH (patient-centered access to team-based healthcare).


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Soins palliatifs : l’importance d’aider le patient et l’aidant pour ajouter de la vie.

Soins palliatifs : l’importance d’aider le patient et l’aidant pour ajouter de la vie. | Doentes 2.0 | Scoop.it

Contrairement à ce qu'on imagine, débuter précocement les soins palliatifs dans les cancers avancés allonge la vie


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Les e-patientes s'inquiètent des dérives des communautés commerciales de patients en ligne

Les e-patientes s'inquiètent des dérives des communautés commerciales de patients en ligne | Doentes 2.0 | Scoop.it

Tribune. Un groupe de responsables d'associations de malades s’inquiète du détournement mercantile de réseaux sociaux de patients dont les données sont revendues à l'industrie pharmaceutique, à des assurances ou à des mutuelles. Les questions posées sont multiples, éthiques et juridiques...


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Empowerment: aider le patient à devenir acteur de sa santé | PharmaSphere

Empowerment: aider le patient à devenir acteur de sa santé | PharmaSphere | Doentes 2.0 | Scoop.it

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Connecté, le patient devient un acteur engagé de sa santé #hcsmeufr #pharmageek

Connecté, le patient devient un acteur engagé de sa santé #hcsmeufr #pharmageek | Doentes 2.0 | Scoop.it
Le patient ne l'est plus ! Il prend en main sa santé grâce aux capteurs connectés. Il s'informe sur les traitements avec le web, partage les diagnostics des médecins sur le Net, maîtrise ses data physiologiques. Une révolution silencieuse à laquelle les laboratoires, les hôpitaux et les autorités de santé doivent s'adapter.

Via Lionel Reichardt / le Pharmageek
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Le Lab Marketing Digital's curator insight, June 17, 11:59 PM


Lionel Reichardt : « Le patient devient un des acteurs-clés du système de santé. On qualifie ce mouvement d'« empowerment ». Ce mot a plusieurs significations mais c'est un changement capital ; une prise de pouvoir du patient dans le bon sens du terme. De paternaliste, la relation médecin/patient devient potentiellement une relation de partenariat.


[...] Cette évolution s'inscrit dans la continuité de ce qui se passe avec le web. La santé est le deuxième sujet recherché dans Google. Tout le monde peut consulter des sites spécialisés pour se rassurer sur des symptômes ou s'informer sur une maladie. Et sur les réseaux sociaux, 20% des conversations portent sur des questions de santé. Comme le consommateur, le patient connecté devient un acteur engagé de sa santé. »

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Patient Engagement Approaches: Paternalist vs. Patient-Centered | HealthWorks Collective

Patient Engagement Approaches: Paternalist vs. Patient-Centered | HealthWorks Collective | Doentes 2.0 | Scoop.it
The evidence is clear that a patient-centered approach -- not a paternalistic, “we know best” approach -- is linked to increased patient engagement, better outcomes, more adherent patients, lower utilization and better patient experiences.

..

The setting was a presentation last week at HIMSS 2014. The presenter was Chanin Wendling, the Director of eHealth at Geisinger Health System. Channing was talking about Geisinger’s often cited HIT-driven patient engagement efforts which includes their patient portal, health apps and recent foray into “Open Notes.”

What struck me was Chanin’s description of philosophical approach and communication style employed by Geisinger in the course of developing the content for theses engagement tools...

Here’s what she said.

“We tend to think in a paternalistic way: this is what the patient needs, versus thinking ‘What will work best for the patient?’ and ‘How will the patient relate to whatever we’re prescribing?’ And that’s extremely important because at the end of the day, if you can’t get the patient to help, if they don’t take their meds, if they don’t lose the weight, if they don’t do their exercises, there’s nothing you as a clinician can do. You need the patient to help you.”

Here are two things that jumped out at me from Chanin’s comments;

1. Geinsinger’s patient communication style is paternalistic and physician-directed…meaning it is the direct opposite of a patient-centered philosophical approach and communication style.

A patient-centered style begins with an understanding of the very things Chanin says Geisinger ignores – what will work best for the patient and how patients will relate to a proposed intervention.

The evidence is clear that a patient-centered approach -- not a paternalistic, “we know best” approach -- is linked to increased patient engagement, better outcomes, more adherent patients, lower utilization and better patient experiences.

2. Geisinger’s attitude that patients are inherently unengaged, e.g., won’t help clinicians unless told by clinicians what they need to do, is why so many heath care providers are having difficulty engaging patients at all levels of the organization, including patient portals. Think about it: 82% of U.S. adults visit their doctor at least once a year because “they” think it’s the right thing to do…and Geisinger thinks they are “not willing to help”? Are you kidding me?

The problem today is not that patients are unengaged…but that many providers aren’t very engaging. Sure 50% of patient re non-adherent…but 20% of patient non-adherence has been attributed to poor communications on the physician’s part, e.g., paternalistic, physician-directed communications. Sure less than 10% of patients visit the average patient portal in a year…but when portal contents and functionality treat one like an uncooperative child why would one expect a higher level of adoption?


Via Chanfimao, Lionel Reichardt / le Pharmageek, rob halkes
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rob halkes's curator insight, March 6, 1:49 AM

Changing care for health isn't easy. Of course doctors will wrestle with on the one hand their "normative" medical evidence-based guidelines, and at the other a patient's understanding and need for guidance in their coping with both conditions and willingness to adhere to advice. A profession that knows how to bridge this dilemma is the teaching profession. Imagine.. Why not teach physicians as well.. ;-)