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The objective of patient and family centered care is to meliorate the quality of care provided in healthcare. This task is challenging, since resources available for quality care is always...
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ecancermedicalscience is the peer-reviewed open access cancer journal founded by the European Institute of Oncology in Milan.
Online CRC communities provide patients with convenient and valuable emotional support and disease information. CRC and treatments may have profound impacts beyond efficacy and toxicity. Systematic information and decision tools may help to minimise uncertainties and help patients manage expectations and emotional distress
Meaningful use stage 2 is rapidly approaching and this time patient engagement is key. Yes, earlier stages of meaningful use required physicians to provide Patient Health Records (PHRs) to patients…but not to persuade patients to make use of it. Stage 2 requires eligible professionals (physicians) to provide patients with online access to their health-related information within 4 business days. Also, at least 5% of the patients must have viewed, downloaded, or transmitted their information to a 3rd party during the reporting period. There is no doubt patient engagement is the key for success in this stage. As you can see, patients will be going through many changes in the way healthcare is provided and their adjustment to these changes must be supported and guided by their physicians. Even with all the changes made by healthcare providers, success will not be reached without patient buy in. Physicians must encourage and engage patients to use the new technologies, developing them into “patients 2.0”.But the physicians are not the only responsible parties here; the design of PHRs provided to patients will have a significant impact on patient engagement. PHR developers must always have in mind that patients need to be provided with easy-to-use tools that not only makes health-related information available, but that triggers them to become engaged in their health. Let’s be honest, no one would like to use a PHR where the patient needs to do all the work, these tools need to be developed so that they are easy enough to be used and smart and persuasive enough to capture the attention of every patient. Physicians need to be careful in the selection of the PHR they would be providing for patients. Providing PHRs will no longer meet the requirement; now patients must actually use them. In order to achieve this, PHRs must provide some value to patients.Clearly, the rate at which the patient will become engaged in their wellness will depend on the effectiveness of the PHRs available and recommended by physicians, as well as the education and encouragement patients will receive from their healthcare providers. We have known for quite awhile that patient engagement is vital for the improvement of healthcare services and the success of Health IT. Naturally, many challenges await us, but many efforts are also underway to surpass these challenges. Patient engagement has been OVERDUE and now it’s time to develop patients 2.0.
Quite a lot, it appears!
Here are Chris Collison's top ten favourite "Einstein on KM" quotes, which he has roughly curated into a journey from information to knowledge, through to learning and simplicity, experimentation, failure, curiosity and imagination…
La gestion des connaissances vue à travers des citations d'Einstein !
La réaction du médecin face à cette attitude du patient renforce ou au contraire affaiblit la relation de confiance médecin-patient (5) : les médecins qui réagissent positivement en rebondissant aux propos du patient va le ...
Université d'été Alzheimer 2013: des idées reçues aux idées vécues Le Huffington Post L'efficience et la cohérence du parcours de soin tiennent à la qualité de l'attention portée à ce que vit la personne au quotidien dans le contexte du domicile ou...
Un nouveau programme d'éducation thérapeutique autorisé à l'Institut Curie, c'est une reconnaissance du travail des équipes soignantes et l'assurance pour les patients de bénéficier d'un meilleur accompagnement.
Some healthcare providers have figured out the best set of IT tools to get patients more involved in their own care.
Patient engagement may have started as a Meaningful Use rule that providers had to follow to obtain electronic health record (EHR) financial incentives, but it has taken on a life of its own in several forward-thinking health systems.
The Cleveland Clinic, for instance, has done some impressive work in this arena. Many providers are offering patients the ability to make appointments on their websites, but Cleveland Clinic's family health centers now put their clinician's entireschedule up so that patients can make their own appointments. That's customer service.
They are also opening up their medical records in ways that most providers have been reluctant to do. They're putting lab results and medical imaging results online and eventually plan to post physicians' notes after each patient's visit. They also have a pilot project in the works that allows patients to enter data into their own records, which may help clinicians monitor patients' progress in controlling blood pressure, blood glucose and other measurable parameters.
Mayo Clinic, not wanting to be left behind in the race to get patients more involved in their own care, has developed a popular app that originally started as a mobile map to help patients find their way around its huge campus. It has evolved to include appointment calendars, access to radiology and lab reports, even suggestions on where to eat when they come to the Rochester, Minn., facility. Patients can also see a portion of their electronic medical record, their medication lists and patient summaries.
Anti-gay legislation has inadvertently caused a public health crisis, writes scientist.
Health engagement online deepening at a time when consumers are expected to take a greater role in their care
“We’ve hit an inflection point in the way consumers use the internet for health,” said Rory Stanton, Consumer Insights Analyst at Manhattan Research. “They are going beyond seeking-information to using tools and services to manage the day-to-day aspects of care. That’s good news in this post–healthcare reform environment, in which digital engagement of consumers for example via patient portals and telehealth will be a key to success.”
This number acually suprises me. I would think that the number of people who say the internet is essential would be higher.
Personalized medcreate ano Conneted Health should make people with chronic illnesses more reliant; it is a tool made for them
Using Focus Groups and Feedback Sessions to Develop an Interactive, Web-Based Self-Management Intervention for Chronic Pain
Marie Ennis-O'Connor added in her scoopit:
The results of this study suggest the potential value of self-management for chronic pain patients and the potential acceptability of web-based delivery of intervention content. Focus group and feedback methodologies highlight the usefulness of including potential program users in intervention development.
Great insights into potential of (more) self management by patients. Remember these are results regarding desirability and need for more self management supporting activities from a medical perspective.
How to develop such support is a different thing. See here my take on how the concept of "Experience Co-Creation"leads to active collaboration of patients in the development their support.
Scope Santé : le site public d’information sur la qualité et la sécurité des soins dans les hôpitaux et cliniques
L’objectif du site est d’offrir au grand public une information fiable, actualisée, accessible, pédagogique et contextualisée afin que l’usager soit acteur de sa démarche de soins et qu’il puisse échanger avec un professionnel de santé.
Le site rassemble les résultats des indicateurs de qualité et de sécurité des soins, mais aussi les résultats de la certification v2010 dela HASainsi que des données d’activité.
Scope Santé permet de consulter des données de qualité de prise en charge et des informations sur l’activité détaillée par établissement de santé (5 500 au total).
These are the slides from my talk at the 4th Annual Putting Patients First Conference in Mumbai.
If god were to manifest the world using technology, he would first create something like social media. Conceptually provide technology with the ability to understand the thoughts of a population
SocMed leaves behind the old model of 1-to-1 communication – “talking to someone over the phone” Enables one-to-many communication (via blogs or microblogging) or many-to-many communication (discussion forums, social walls). Now anyone can setup an online community site/portal to represent a small or big offline community.
Further, anyone can setup an online site related to a treatment, a disease, a doctor, a drug , a concept or anything and see it grow into a popular site which in effect is simply the manifestation of a community which exists/ed but which no one ever knew of.
Thanks so much for sharing your slides - i am looking forward to reading them.
We have figures on the scale of soical media intreaction by patient advocates. In countries where the impact of the finanical crisis is at its worst, patient advocates have turned to social media to interact with one another and raise awareness of the predicaments of their country's healthcare system to place pressure on government when undertaking reforms.
Surveiller la circulation de la grippe par Twitter, recruter les participants aux études par Facebook, les réseaux sociaux commencent à démontrer leur utilité en épidémiologie.
Accenture chart assesses the public’s attitudes toward their medical providers’ electronic capabilities, as well as the capabilities of their current providers.
Patients are way ahead of their doctors.
If a patient does not have a solid understanding, they cannot be engaged. Patient engagement must begin with education. When attempting to educate a patient, many factors will come into play. The level of health literacy, the learning style of the patient, the ability of the physician to explain and the quality of patient handout materials are all factors in how thorough of an understanding the patient will have when they leave.Health literacy is an issue that spans across all demographics and intelligence levels. It is the ability to read and understand information about your health and make decisions about it. Health literacy is critical in engaging patients and motivating them to practice self-management of chronic diseases, medication adherence and care transition. Because of time constraints, it is common for physicians to provide printed handouts to patients in lieu of offering an extensive explanation. This leaves a substantial amount of patients without a conclusive understanding of their responsibility to manage their health.People have different learning styles. Some individuals learn best when being spoken to, others will need to be shown and some just have to do it themselves. Educating patients with their preferred learning style helps ensure their engagement and understanding of the material. A physician who struggles with communicating information in terms the patient can understand can even turn off patients with auditory learning styles. Providing materials for the patient to take home is crucial in ensuring they have a comprehensive understanding of their responsibilities.Many patients will nod in assurance they understand, but leave without any knowledge of even a simple required task such as when to take their medication. Many patients are too anxious and confused to ask valuable questions at the physician’s office. This often leads to a preventable readmission into the hospital. Providing materials for the patient to view at home can lead to a dramatic reduction in readmission rates, but they must be in an engaging format.Ideally, physicians should offer a variety of materials that address multiple learning styles, various levels of health literacy and can evoke emotion. Printed health education materials will be ideal for many, but videos will help bridge educational and language barriers, especially with complex situations. Having a variety of tools that work to both engage and educate the patient, allows them to make better decisions regarding their health.
The CEAT-VIH is designed to help you easily discover your state of overall adherence to HIV treatment.
4 languages available.
A lire - La relation soignant/soigné au fil des pages Infirmiers.com Il aborde de façon claire la plupart des situations de soins, courantes ou plus exceptionnelles, dans un esprit humaniste, pour améliorer la qualité des actes accomplis.
Il s'agit d'une nouvelle édition d'une brochure qui explique au personnel soignant et aux patients leurs droits et devoirs. Pour Michel Thentz, ministre de la Santé et président de la CLASS , il s'agit « d'un outil important de ...
Voilà une utilisation pour le moins étonnante de ses dessous qui réjouira sans doute les adeptes du réseau social twitter. Une société grecque, Ogilvy Athens en partenariat avec Nestlé Fitness a en...
Cette année, le thème de la journée sera : « Sommes-nous prêts pour l’empowerment du patient et sa famille ?
Les communautés e-patients sont nombreuses et très actives aujourd'hui sur internet, et apportent énormément au système de santé. Voyons leurs atouts.
Les réseaux sociaux sont-ils devenus l'outil de communication santé idéal pour améliorer la relation médecin-patient?