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Getting upset about Social Media Anxiety Disorder (SMAD)

Getting upset about Social Media Anxiety Disorder (SMAD) | Patient | Scoop.it

'Some of you reading this will say… well for crying out loud, just shut the damn Twitter (or whatever) off. That’s fine if you don’t have a boss who’s telling you to use it or a career that depends on building your online brand.'

 

[AS: If this describes your workplace: change jobs. The potential of social media should reside in its capacity to liberate, not to enslave.]

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The empowered patient is a symptom of change in healthcare
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Healthcare is getting better. Let's talk about what you can do to make it even better, faster.

Healthcare is getting better. Let's talk about what you can do to make it even better, faster. | Patient | Scoop.it

Healthcare is getting better. Let's talk about what you can do to make it even better, faster.

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Social media for patients, platform by platform: a visual guide

Social media for patients, platform by platform: a visual guide | Patient | Scoop.it
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Michael Seres's curator insight, September 30, 5:08 AM

A really great visual guide to using #SoMe as a patient #nhssm #medx

PatientView's curator insight, September 30, 6:00 AM

And I can do all this on my mobile 

Helen Adams's curator insight, September 30, 6:22 AM

How patients interact with social media

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The rise of the digital patient

The rise of the digital patient | Patient | Scoop.it
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Helen Adams's curator insight, September 30, 6:26 AM

Fabulous infographic on how patients use and interact with social media and digital tools.  Its not new data but put together in a very engaging way.

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Unnoticed and untreated: the experience of living with rare diseases in China

Unnoticed and untreated: the experience of living with rare diseases in China | Patient | Scoop.it
Stars have caused a stir on the Net, but treatment, insurance coverage and research of motor neuron diseases falling short in China
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Share the glow

Conference tweets are a little like brunch pics on social media. Sometimes I want to reach out and say, "Shhh, it's OK. I'm so happy that you're happy with your eggs, but you don't need to show the...
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Helping patients transition from 'informed consent' to 'informed choice' outlook improves outcomes, cuts costs

Helping patients transition from 'informed consent' to 'informed choice' outlook improves outcomes, cuts costs | Patient | Scoop.it

Four examples of the benefits that can be derived from supporting patients in becoming active participants in improving their own health and the care systems they use

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Passive sensing with smartphones

Passive sensing with smartphones | Patient | Scoop.it

The opportunities, pitfalls, and ethical challenges associated with the increasing amount of passive data collection that is possible through the many different sensors we're already carrying around in our pockets.

Andrew Spong's insight:

I'm thinking 'health' when reviewing this summary of course, and you will be too, I'm sure.

 

These questions will become increasingly important as more sensors are added to the devices we carry with us, but more significantly those static sensors in our lived environments that gather data about us -- overtly, and covertly.

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Walking to better health: the anatomy of ambulation

Walking to better health: the anatomy of ambulation | Patient | Scoop.it
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Five engagements defining the future of health

Five engagements defining the future of health | Patient | Scoop.it

Engaging the whole patient.

Engaging social supports.

Engaging economics and anthropology. 

Engaging federal, state, and local governments.

Doctor-patient engagement

Andrew Spong's insight:

The first, second, and fifth of these you'll be more than familiar with.

 

It's the third one that gets less attention, namely economics and anthropology. There's something of a tension between the two definitions as they appear in the article as I read it, with the former wishing to incentivise a positive, self-responsible individualism in health, and the latter (also the fourth item on the list) promoting the importance of institutions in supporting such an attitude, which could be said to contradict one another.

 

However, for all of its indeterminacy I'd argue that there are progressive ways to align these positions directly and indirectly; the theme merits more discussion.

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Self-disclosing conversations in patient communities

Self-disclosing conversations in patient communities | Patient | Scoop.it

Self-disclosing conversations in #patient communities http://sco.lt/... | CYHealthComms (HT @Colleen_Young) #hcsmeu

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What's eating health wearables? Ambient technology

What's eating health wearables? Ambient technology | Patient | Scoop.it

Wearables seem to have taken the world by storm. Yet, is there a storm brewing for wearables? Marc Andreessen said "software is eating the world." What is eating wearables? Ambient technology. We are moving quickly to a time where instead of wearing a new device - the sensors are in the spaces around us. The trend has already begun.

Andrew Spong's insight:

<Tick>

 

One more time: the future of health self-management will be run by #NIAP: non-invasive, all pervasive sensors

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Eleven truths of digital health -

Eleven truths of digital health - | Patient | Scoop.it

Here are the first five:

 

“The single most broken thing in healthcare is communication.

Vocera CMO Dr. Bridget Duffy, MD on The Future of Delivery


“The healthcare industry missed the PC revolution, it missed the internet revolution, and it can’t afford to miss the mobility and cloud revolution.

Former Apple CEO John Sculley at HISUM 2013 Keynote


“As healthcare innovators in this room, we know that changing the system is a slog. We’re fighting an uphill battle sometimes. But we will all face healthcare crises in our lives. And when we do, I would encourage everyone to harness those opportunities to remind us why we’re in healthcare innovationto begin with.”

Wildflower Co-founder and CEO Leah Sparks on How My Healthcare Experience Inspired My Company

 

“Machine learning makes a much better doctor than Dr. House.”

Khosla Ventures founder Vinod Khosla at HISUM 2012 Keynote

 

“Healthcare’s a fascinating market. It’s the only area where you wake up every day and you feel like you’re doing something for millions of people.”

Castlight Health Founder & CEO Giovanni Colella on Beyond the First Adopters: Digital Health at Scale

Andrew Spong's insight:

I normally spare you thinly-veiled advertorials by default, but will make an exception for this well-chosen batch of provocative one-liners.

 

OK, one and two-liners ;)

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rob halkes's curator insight, July 24, 7:57 AM

In line with  Andrew Spong's  note: some great statements that bring a smile to health innovators.

But why the is the sloggy health system still the one industry that is so reluctant to their own need for change ..?


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75% of patients want to use digital health; poor quality services bigger barrier to adoption

75% of patients want to use digital health; poor quality services bigger barrier to adoption | Patient | Scoop.it

A recent poll finds patients want to use digital health services and, if they aren’t, it’s because of the poor quality of ones offered to them.


A recent survey by McKinsey Health asked 1,000 residents of Germany, Singapore, and the United Kingdom about their digital health preferences. MobiHealth Newsreports that 75 percent of those surveyed wanted to use digital health services in one form or another.

 

McKinsey analysts Stefan Biesdorf and Florian Niedermann write in a blog postthat patients often wanted digital services for “mundane” tasks. “Surprisingly, across the globe, most people want the same thing: assistance with routine tasks and navigating the often-complex healthcare system.

 
Andrew Spong's insight:

The analysis featured here is particularly revealing about our attitude to digital health.

 

Effective health management *is* mundane. We do it every day. It's another chose. And it also happens to be vital to our well-being.

 

Where digital health has the opportunity to succeed is to automate this processes and make them invisible (consider Withings wifi enabled scales and blood pressure monitor as a means of effortlessly tracking weight change and hypertension risk, for example).

 

The abandon the idea that there's something glamorous, exciting, or aspirational about digital health, the better.

 

It is at its most useful when for the most part we're not even conscious of it being there.

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Ali's comment, July 31, 8:29 AM
have you seen Babylon? I went to TEDMed in London this year and saw a guy speak about it. very interesting. I have it downloaded tho not used it much... mainly because I have good access to my specialist. I did suggest he get on there tho!
Michael Seres's comment, August 1, 4:12 AM
Thanks Ali, will definitely check it out now
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The ethical implications of health research involving social media

The ethical implications of health research involving social media | Patient | Scoop.it

A strong reminder for everyone who researches or uses social media data to always be respectful and mindful of privacy – whether it’s the privacy of an individual or of an entire community

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Apple iOS 8 arrives and the HealthKit app already has a bug

Apple iOS 8 arrives and the HealthKit app already has a bug | Patient | Scoop.it
Even before the iOS 8 release has been downloaded by all users, there's a bug and this one is related to the HealthKit app.
Andrew Spong's insight:

Here's a suggestion. Switch off your dodgy iPhone, and put it down. Leave your house or office. Go for an hour-long walk. Resume your day.

 

You'll have burned about 400 calories, reduced a number of health-related risk factors, and not have had to worry about your smartphone's flaky OS.

 

Digital health can be a complicating factor in what is really a series of simple, moment-to-moment micro-choices.

 

Don't devolve responsibility for your own health to a chunk of metal, glass, plastic, silicon and rare earths.

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FDA clearance for 3D printed patient-specific facial device

FDA clearance for 3D printed patient-specific facial device | Patient | Scoop.it
Oxford Performance Materials receives first and only FDA cleared 3D printed polymeric implant to revolutionize facial reconstruction
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Flow: Sarah Kucharski at #MedX

Flow: Sarah Kucharski at #MedX | Patient | Scoop.it
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Supporting live tweet chats in multiple languages: a simple, effective proposa

Supporting live tweet chats in multiple languages: a simple, effective proposa | Patient | Scoop.it

Using hashtags to overcome tweet chat language barriers.

Andrew Spong's insight:

 A simple but highly effective suggestion from Matthew Katz , MD (@subatomicdoc).

 

Matthew is so good at coming up with these sort of creative uses of existing protocols in order to make user experience better and information sharing more effective -- well done!

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Apple HealthKit: watches, health sensors and more

Apple HealthKit: watches, health sensors and more | Patient | Scoop.it
Apple has filed for HealthKit trademarks in the U.S. and Europe, with mention of watches, fitness sensors and more
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Sandy Williams Spencer's curator insight, August 6, 11:02 AM

I would love to have this little item. With COPD, I'm monitoring 02 and Heart Rate quite often. On the treadmill, it's constant monitoring. 


And when taking a walk or working around the house, if I'm not wearing 02-- I'm monitoring the need for it. 


When you have an illness of any sort, monitoring vitals is definitely important.  And the ability to send a quick message to friend or family member for help when trouble arises-- is imperative. http:///ginghamcountry.com/living

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Patient engagement: a defence against harm in health care

The number of preventable deaths in Canada has not changed in the last ten years.

 

"We have made progress, but we haven't achieved what we hoped we would, which is to substantially reduce risk," says Ross Baker, the author of the 2004 research and Lead Researcher on CFHI-funded Patient Engagement Research Projects. "We need to invest much more in designing health care as a complete experience."

 

"Until we engage patients and families in conversation, we will miss the true extent of the harm that's happening across the health care system," adds Jim Conway, former COO, Dana Farber Cancer Centre and an adjunct lecturer at the Harvard School of Public Health in Boston, and a foremost authority on patient safety

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Pact app pays cash for living healthily, provided by members who don't

Pact app pays cash for living healthily, provided by members who don't | Patient | Scoop.it

Pact uses cash incentives to help successful users achieve health goals, paid for by members who fail to observe their commitments.

Andrew Spong's insight:

I can't decide whether Pact's proposition is akin to a pyramid selling scheme in a health setting, or whether its stimulation of the most primitive of instincts (for example greed, or the fear of losing face) can be drivers of health behaviour change.

 

I'd suspect that it will merely reward those who already observe good health habits, and penalise those willing to pay to discover that willpower cannot be outsourced.

 

It'd be interesting to see the emergence evidence around its health impact, however, particularly with reference to the ability to change health behaviours rather than merely reinforce existing ones.

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Wikipedia, Twitter, facebook, and YouTube: uses in health

Wikipedia, Twitter, facebook, and YouTube: uses in health | Patient | Scoop.it
Wikipedia, Twitter, facebook, and YouTube: uses in health
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ChemaCepeda's curator insight, July 31, 9:09 AM

¿Qué usos podemos dar a cada red social aplicados a la salud? Interesante gráfico con las ventajas y desventajas de cada una

rob halkes's curator insight, August 1, 3:35 AM

Great overview !

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The app will see you now: smartphones as diagnostic devices

The app will see you now: smartphones as diagnostic devices | Patient | Scoop.it
The market for healthrelated smartphone applications apps is rapidly expanding, with an estimated 100,000 healthrelated apps currently available on app marketplaces.
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Security, privacy, and patient use of social media in hospital settings

Security, privacy, and patient use of social media in hospital settings | Patient | Scoop.it

As a non-profit organisation, the NHS should follow the same principles behind open-source: sharing knowledge and standardising procedures to help all patients. And in the same way that the software industry benefits from sharing source code with the public – fostering a community of users and developers, recruiting free testers – the NHS and private medical companies could also benefit from sharing their knowledge.

Andrew Spong's insight:

Interesting article, but I'm not sure bespoke open source software described is likely to supplant the existing networks that patients participate in, nor does it address other issues the piece raises such as the unauthorised sharing of images taken in a clinical setting.

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Sandy Williams Spencer's curator insight, July 24, 9:12 PM

I think this will gradually be much more important than it is even today.

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21st century patient-centred care: a digital citizenship contribution

21st century patient-centred care: a digital citizenship contribution | Patient | Scoop.it

Before we embark on this new era of healthcare, are we clear about our shared purpose: the end goal of co-creating 21st Century Patient Centred Care?

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Better-informed patients have higher expectations of doctors and are making more complaints

Better-informed patients have higher expectations of doctors and are making more complaints | Patient | Scoop.it

A report published by the UK GMC said patients are now better informed about their health, have higher expectations of doctors and tend to treat them with less deference than they used to.

 

It said social media also had a role to play in the rise in complaints because it encouraged people to discuss their experiences of the medical profession in public forums and allowed information to be more easily accessed and shared.

 

Negative press coverage could be "chipping away" at the medical profession's reputation, the report said, resulting in more people making "me too" complaints to the GMC.

Andrew Spong's insight:

It has been estimated that there are between 840 and 40,000 preventable deaths in the UK every year (http://bit.ly/Mlx9De), so patients have every right to demand better, safer care.

 

However, patients have responsibilities as well as rights.

 

A commitment to the life-long self-management of one's health and the maintaining of a healthy lifestyle with a view to optimal disease prevention in the long term is a good place to begin this pact.

 

Also, no-one wants the hegemony of dictated medicine to be replaced by the dictatorship of the patient within the participatory medicine paradigm.

 

Co-created care has to be undertaken on an equal basis between patients and their care team.

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