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Using Your Personal DNA Test - 23andMe

Using Your Personal DNA Test - 23andMe | patient engaged | Scoop.it
We provide genetic testing for over 100 traits and diseases as well as DNA ancestry. Order your kit from 23andMe, submit your sample to our CLIA-certified lab and read your results on your secure web-based account.
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Amazing Service!Our Technology and Standards

23andMe is a DNA analysis service providing information and tools for individuals to learn about and explore their DNA. We use the Illumina OmniExpress Plus Genotyping BeadChip (shown here). In addition to the variants already included on the chip by Illumina, we've included our own, customized set of variants relating to conditions and traits that are interesting. Technical information on the performance of the chip can be found on Illumina's website.

 

All of the laboratory testing for 23andMe is done in a CLIA-certified laboratory.

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Consumer Reports becomes a resource for doctor-shopping | Health Populi

Consumer Reports becomes a resource for doctor-shopping | Health Populi | patient engaged | Scoop.it

There’s a long-held belief among us long-time health industry analysts that Americans spend more time shopping around for cars and washing machines than for health plans and doctors. Consumer Reports is betting that’s going to change, now that Consumers Union has decided to lend its valuable, trusted brand to developing report cards on physicians, having already rated hospitals and heart surgeons.

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Here’s how long you’ll wait for a doctor’s appointment in 15 U.S. cities, by specialty

Here’s how long you’ll wait for a doctor’s appointment in 15 U.S. cities, by specialty | patient engaged | Scoop.it
Boston is once again the worst place to try to make a first-time appointment. Dallas is the best
Ginny Dillon's insight:

These are wait times for first appointments not followup.

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Digital health and its role in the changing health care landscape

Digital health and its role in the changing health care landscape | patient engaged | Scoop.it
We must embrace change and utilize the digital tools that are now available to provide care to those who so badly need it.
Ginny Dillon's insight:

Embrace change ...

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Patients Lose When Doctors Can't Do Good Physical Exams - Kaiser Health News

Patients Lose When Doctors Can't Do Good Physical Exams - Kaiser Health News | patient engaged | Scoop.it
Ginny Dillon's insight:

The price we pay for relying too much on technology...

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Unfitbit: When fitness tracking goes wrong

Unfitbit: When fitness tracking goes wrong | patient engaged | Scoop.it
From quantified smug to quantified mug, here is a cautionary tale of when fitness gadgets compete with chips, stress and cider. By Stuart Dredge
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Interesting perspective. Your thoughts?

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Entrepreneur combines design + coding skills to help stroke patients communicate with nurses

Entrepreneur combines design + coding skills to help stroke patients communicate with nurses | patient engaged | Scoop.it
A software engineer has built VerbalCare to help stroke patients who can't speak explain what they need to nurses and other caregivers.
Ginny Dillon's insight:

Patient-centered, peron-centered or human-centered design or whatever you call it, here's a great story of the development of the VerbalCare an app that helps aphasic patients communicate with hospital staff.

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Caught between patient satisfaction and prescription drug abuse

Caught between patient satisfaction and prescription drug abuse | patient engaged | Scoop.it
Physicians are caught in the vise between patient satisfaction surveys and the epidemic of prescription drug abuse and overdose.
Ginny Dillon's insight:

Not a good place: doctors caught in the middle between writing an Rx requested by a patient and patient satisfaction surveys?

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Do patients care about how much money their doctors make?

Do patients care about how much money their doctors make? | patient engaged | Scoop.it
Until there's real transparency in things that really matter to patients, it's hard to declare a consumer victory.
Ginny Dillon's insight:

Interesting dicussion follows ...

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Shaming and Blaming | COPD Foundation Blog

Shaming and Blaming | COPD Foundation Blog | patient engaged | Scoop.it
The dreaded question for individuals living with COPD is Did you smoke? So much is insinuated in three simple words, and so many in our community have to
Ginny Dillon's insight:

Do you feel stigma? Cope with the "Shaming and Blaming"?

COPD Foundation Blog has tips for you.

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Pharma Marketing Blog: Sovaldi - A Cure for the One to Ten Percenters

Pharma Marketing Blog: Sovaldi - A Cure for the One to Ten Percenters | patient engaged | Scoop.it
Ginny Dillon's insight:

Read it and weep!

Off the charts price of some medications.

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Hospital Infection Rates Down, But Patients Still Dying Of Preventable Causes - Kaiser Health News

Hospitals and nursing homes have been trying to cut facility-acquired infection rates, which has worked better for some conditions than others.
Ginny Dillon's insight:

Still a lot of work to be done on inpatient safety.

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Alzheimer's Disease Research Centers are a Useful Tool for Alzheimer's Caregivers | Alzheimer's Reading Room

Alzheimer's Disease Research Centers are a Useful Tool for Alzheimer's Caregivers | Alzheimer's Reading Room | patient engaged | Scoop.it
The Alzheimer's Disease Research Centers around the country are an important source of information and help for Alzheimer's caregivers and their families.
Ginny Dillon's insight:

The Alzheimer's Reading Room shares important information for those challenged with Alzheimer's. Here's a map of ADRC's (Alzheimer's Disease Research Centers) in the USA.

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Patient Centered Innovation with Michele Longabaugh RN (aka @CrazyAssCancer) - Thurs Mar 27 2014 @7:30pm ET (GMT-5)

Patient Centered Innovation with Michele Longabaugh RN (aka @CrazyAssCancer) - Thurs Mar 27 2014 @7:30pm ET (GMT-5) | patient engaged | Scoop.it
Introduction by Lisa Fields Twitter can be an amazing tool for making our wildest dreams and hopes come true. I believe these Tweets help tell our story for Patient Centered Innovation with our Hea...
Ginny Dillon's insight:

Patients, Physicians, Clinicians and Innovators talking on Twitter and solving problems in healthcare. Follow #hcldr  #meded #s4pm

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The Revolving Door Syndrome: Patients Returning to Hospital Within Days of Being Released

The Revolving Door Syndrome: Patients Returning to Hospital Within Days of Being Released | patient engaged | Scoop.it
A report from the Robert Wood Johnson Foundation shows that hospitals and their community allies made little progress from 2008 to 2010 at reducing hospital readmissions for elderly patients.
Ginny Dillon's insight:

It's a SLOW ROAD to improvement.

Read this a little over a year ago.

Reducing the hospital "revolving door" phenomenon is a journey. #patientsafety

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90% of its Wikipedia's medical entries are inaccurate, say experts

90% of its Wikipedia's medical entries are inaccurate, say experts | patient engaged | Scoop.it
Researchers say the problem is caused because the website allows ordinary users to create, delete and edit entries, increasing the risk of mistakes.
Ginny Dillon's insight:

Take note when you are researching a medical condition.

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15-Minute Visits Take A Toll On The Doctor-Patient Relationship - Kaiser Health News

15-Minute Visits Take A Toll On The Doctor-Patient Relationship - Kaiser Health News | patient engaged | Scoop.it

"One eye on the patient, one eye on the clock"

Ginny Dillon's insight:

Doctors have one eye on the patient, one eye on the clock" ...

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The Mask Your Doctor Hides Behind

The Mask Your Doctor Hides Behind | patient engaged | Scoop.it
Some of the country’s best doctors have the worst patient satisfaction scores. Here’s why.
Ginny Dillon's insight:

Huge Problem! Physicians as chameleons _ feeling the need to satisfy YOU the patient to avoid negative online reviews. #hcldr #hcsm #epatient #in

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Patients Lose When Doctors Can't Do Good Physical Exams - Kaiser Health News

Patients Lose When Doctors Can't Do Good Physical Exams - Kaiser Health News | patient engaged | Scoop.it
Ginny Dillon's insight:

"The Physical Exam" is an ART. Let's not make it a "Lost Art". Don't llet technology technology replace the "Art of Medicine".

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Exclusive: Costs to public of $84,000 hep C drug ‘outrageous' - Kaiser

Exclusive: Costs to public of $84,000 hep C drug ‘outrageous' - Kaiser | patient engaged | Scoop.it
LOS ANGELES (Reuters) - Kaiser Permanente, the biggest U.S. health maintenance organization, said it is using Gilead Sciences' new hepatitis C drug, Sovaldi, even though its $84,000 treatment price is
Ginny Dillon's insight:

What? Really!

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GeriTech: Why Patients Should Care About Doctors & Money

GeriTech: Why Patients Should Care About Doctors & Money | patient engaged | Scoop.it
Ginny Dillon's insight:

We spend way more on Lab and ambulance visits than doctor office visits.

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Sliver of Medicare Doctors Get Big Share of Payouts

Sliver of Medicare Doctors Get Big Share of Payouts | patient engaged | Scoop.it
Some doctors who take Medicare received millions of dollars each in a single year, according to newly released data that provides an unprecedented look at the practice of medicine in the United States.
Ginny Dillon's insight:

Data on where Meidcare dollars go.

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Twitter is your new migraine doctor!

Twitter is your new migraine doctor! | patient engaged | Scoop.it

Deciphering 21,741 tweets, researchers have found that 74% women shared a real-time migraine attack on twitter, followed by 17% men.

 

The higher global peak of migraine tweets occurred Mondays at 14:00 GMT or 10 a.m. Eastern Daylight Saving Time, the study said.

 

It indicates a growing trend toward the cathartic sharing of physical pain as well as emotional pain on social media.

 

"As technology and language evolve, so does the way we share our suffering. It is the first known study to show the instant and broad impact of migraine attacks on modern patients' lives by decoding manually each one of their individual attack-related tweets," explained Alexandre DaSilva, an assistant professor at University of Michigan's school of dentistry.

 

During the study, DaSilva's team eliminated advertising, metaphor and nonrelated migraine tweets.

 

Further, they analysed the meaning of each individual migraine tweet.

 

"We sought to evaluate the instant expression of actual self-reported migraine attacks in social media," DaSilva noted.

 

The US accounted for 58% of migraine tweets followed by Europe at 20%.

Roughly 44% of tweets reported that migraine attacks immediately impacted mood.

 

The most common migraine descriptors were "worst" at nearly 15% and "massive" at 8%.

 

Results generated unique information about who suffers from migraines and what, how, where and when they use social media to describe their pain.

 

Read at: http://www.dnaindia.com/scitech/report-twitter-is-your-new-migraine-doctor-1975095


Via Parag Vora
Ginny Dillon's insight:

Are we trusting in Social Media more to share our health related conditions??

 

"There's a growing trend of cathartic sharing of physical pain as well as emotional pain on social media."

 

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Tweet from @my_health_apps

Tweet from @my_health_apps | patient engaged | Scoop.it
Nice picture on #mhealth: all the ways #health apps help public and #patients - http://t.co/lU06eD9m2b via @my_health_apps

Via Emmanuel Capitaine
Ginny Dillon's insight:

So much is happening in mobile health. Here's a great visual that highlights key segments of innovation. #mhealth

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Burnt Out Primary Care Docs Are Voting With Their Feet - Kaiser Health News

Burnt Out Primary Care Docs Are Voting With Their Feet - Kaiser Health News | patient engaged | Scoop.it
Ginny Dillon's insight:

A dose of reality ...

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Biggest Star of March Madness Is an 8-Year-Old Girl Fighting Cancer

Biggest Star of March Madness Is an 8-Year-Old Girl Fighting Cancer | patient engaged | Scoop.it
Forget Aaron Gordon. Forget DeAndre Kane. And forget Shabazz Napier. All three will take the spotlight in this week's Sweet 16, but the biggest star of March Madness is Lacey Ho...
Ginny Dillon's insight:

Not so March Madness: Little Lacey has nerve cancer. Hats off to Michigan State's BBall Team.

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Today's Social Fabric of Health Means the End of HIPAA

Today's Social Fabric of Health Means the End of HIPAA | patient engaged | Scoop.it
Regardless of what cause came first -- be it the rising of a sharing culture or the innovation in the technology -- there is a monumental shift taking place in wellness and healthcare approaches. What was once meant to protect has become not only obs...
Ginny Dillon's insight:

"Set the data free!" Are we there yet?

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