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Patient Centered Healthcare
Articles and discussions on patient centered healthcare, patient education, patient awareness, patient engagement... Relevant to Hospitals, Physicians, Healthcare Organizations, Pharma, Insurance
Curated by Parag Vora
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Social networks improve research, help patients with regimen adherence

Social networks devoted to specific health conditions offer the potential to improve participants' treatment and adherence to their health regimen, according to two recent studies.

 

The Veterans Health Administration and University of California-Berkeley have been studying how epilepsy patients use PatientsLikeMe, a network of patients with chronic illnesses. On the site, patient records are de-identified and available to every participant, including researchers and companies focused on improving products, services, and care. Patients using the site can see what works--and what doesn't--for others in the same boat, according to a blog post at Health Affairs.

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Patient, Heal Thyself - Because "Patient Engagement" is Unlikely

Patient, Heal Thyself - Because "Patient Engagement" is Unlikely | Patient Centered Healthcare | Scoop.it

“Patient activation” is the new buzzword threatening to replace “patient engagement” – long before many patients have actually been, you know, engaged. 

 

Apparently, we no longer bother to to wait for our terminology to take on meaning before we feel compelled to replace it. 

 

As it stands, neither term has much meaning or basis in reality. The basic idea, however, is that shared decision-making between doctors and their patients yields better treatment compliance and results. This requires a level of health literacy that’s sorely missing today. 

 

It’s a noble goal, but will remain elusive as long as payment schemes fail to incorporate measures of patient engagement that impact how much doctors and hospitals are paid. 

 

Many Americans are still uncomfortable with the idea that their doctors are often more interested in making money than helping their patients. The idea that some are even willing to imperil their patients’ safety by needlessly putting them in dangerous hospitals to protect themselves from potential lawsuits is abhorrent to a public that continues to have a high degree of trust in the medical profession. 

 

This high level of trust is often misplaced, however, as I’ve described in Our Healthcare Sucks and in previous posts (see here, here and here). These posts address hospital billing practices that pad the bills that many patients will have to pay themselves (i.e., they’re not covered by Medicare or private insurers). They also address scurrilous practices by physician oncologists treating cancer patients more aggressively with toxic chemotherapy drugs to fatten their incomes. 

 

Is this really trustworthy behavior? Or are we truly a nation of suckers? 

 

And will patient engagement or patient activation make any difference in this grand disconnect between our healthcare perceptions and reality?

 

Read on..

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Jessie Cunnett on what a hospital would be like if patient engagement was hard-wired

Jessie Cunnett, Patient and Public Involvement on: what it means to hard-wire patient engagement; the need to feed real patient experiences into the process;...
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How Facebook Is Transforming Science and Public Health

How Facebook Is Transforming Science and Public Health | Patient Centered Healthcare | Scoop.it
Facebook has encompassed many things in its nine-year run. From a subtler version of a dating site to a gaming platform and a messaging hub.

Via Valeria Duflot
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How to engage patients from multicultural backgrounds

How to engage patients from multicultural backgrounds | Patient Centered Healthcare | Scoop.it
It is estimated that by 2050, racial and minority groups may account for almost half the US population.   Race, ethnicity, and ability to speak English too often determine the quality of care patie...
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Physician tweet thyself: A guide for integrating social media into medical practice

Physician tweet thyself: A guide for integrating social media into medical practice | Patient Centered Healthcare | Scoop.it
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✿ Planetnurse ✿'s curator insight, March 7, 2013 7:33 AM

eSanté via les médias sociaux et les médecins: Un portrait !

dossier à suivre...

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Mobile health won't replace need for doctors, mHealth champion says

Mobile health won't replace need for doctors, mHealth champion says | Patient Centered Healthcare | Scoop.it

Some fear mobile healthcare could replace the need for doctors, in some cases, but according to Patricia Mechael, executive director of the mHealth Alliance, mHealth will only help doctors make better decisions. It won't replace them.

 

"A lot of the time, doctors fear mobile healthcare will make their care redundant, but this won't be the case," Mechael says. "Their role will change and be much more systematically refined. They will be dealing more with acute cases than with the routine types."  

 

Mobile healthcare devices will be able to do preventative work and diagnostics, she says. The provision of human support for treatment will focus on moments where it's absolutely needed from a skilled health worker.

 

Within the near future, Mechael says, "we will all likely be interacting with the health system through a mobile device of some sort, whether from a positive perspective -- such as fitness and well-being -- or to manage some sort of chronic health condition."

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Doctor/Patient Relationship: 7 Ways to Maintain Patient Interaction in the Age of the EHR

1. Position your computer between you and the patient: No brainer here.  Face the patient during interactions.  Take the time to plan where your equipment will go so that this is possible. 

 

2. Invest in mobility: Whether it’s a small rolling desk, small tablets or other lightweight tools, choose equipment that helps you move around.  A laptop may cost an extra buck but can be worth the investment. 

 

3. Delegate as much as possible: The objective is to interact with the patient as much as possible.  Have staff members enter the medical history, medications, prior procedures, etc. prior to the patient’s visit so you don’t have to during the appointment. 

 

4. Dictate as much as possible: Talk with the patient while scribes enter the information or use dictation software.  These allow you to focus more on the patient. 

 

5. Ignore the computer when you first enter the room: Chat with your patient for a few minutes before you start recording information in the digital record. 

 

6. Ask about previous complaints: If the patient information is pre-loaded, look over it  before entering the room.  If they have open complaints, ask them about the issues to close them out in the emr.  This reaffirms to the patient that you care. 

 

7. Finish the chart in the room: This can help to answer any other questions that might come up so patients feel like they have been listened to.

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The importance and the challenges of patient education: The #socialortho tweetchat

The importance and the challenges of patient education: The #socialortho tweetchat | Patient Centered Healthcare | Scoop.it
During the February #socialortho tweetchat, healthcare providers from around the country and world shared their experiences and opinions on a variety of issues related to patient education.
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Health and environment: patient power

Health and environment: patient power | Patient Centered Healthcare | Scoop.it
Bupa aims to help millions of people worldwide to become better informed and more engaged in managing their health Sponsor's feature (informed patients bring benefits both for themselves and the healthcare system http://t.co/enUx9zha...

Via Lionel Reichardt / le Pharmageek
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Patient Education Helps Prevent Overuse of Antibiotics for Cough, Study Finds - Drugs.com MedNews

Patient Education Helps Prevent Overuse of Antibiotics for Cough, Study Finds - Drugs.com MedNews | Patient Centered Healthcare | Scoop.it
Patient education in the form of brochures and posters helps reduce the overuse of antibiotics to treat bronchitis in teens and adults, according to a new study
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The New York Times killed my patient- Dr. George V. Lombardi, MD

The New York Times killed my patient- Dr. George V. Lombardi, MD | Patient Centered Healthcare | Scoop.it
I went to the funeral of a 73 year old man who died of metastatic prostate cancer. He was one of my first patients and we had developed a friendship over the years.
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Engaging Health Care Users

Engaging Health Care Users | Patient Centered Healthcare | Scoop.it

The American Hospital Association’s framework for health reform, Health for Life, embraces the need to engage patients and families and contemplates the role of hospitals and health care systems in improving the overall health of the population and communities they are serving. Within this context, in 2012 the AHA Committee on Research focused on actively engaging health care users to improve outcomes and reduce health care costs.

 

The committee developed the report, Engaging Health Care Users: A Framework for Healthy Individuals and Communities,advocating hospitals to become more “activist” in their orientation and move “upstream”—that is, to do more to engage patients and intervene earlier in the disease states. Because achieving “Health for Life” requires action from key players within the health care system to create a culture that supports health care user engagement, this report introduces a continuum for engagement from information sharing to partnerships. It recommends entry points for user engagement occurring at four different levels of the health care system.

 

Individual: The aim is to increase the skills, knowledge and understanding of patients and families about what to expect when receiving care.Health Care Team: The focus is to promote shared understanding of expectations among patients and providers when seeking care.Organization: The objective is to encourage partnerships and integrate the patient and family perspective into all aspects of hospital operations.Community: The emphasis is to expand the focus beyond the hospital setting and find opportunities to improve overall community health.

 

The remaining sections of the report include case studies highlighting strategies that hospitals and health care systems have already deployed to engage health care users as active participants in their care. In addition, topic areas that are likely to have significance in the future of health care user engagement are addressed including:

 

Consideration and integration of behavioral health and mental health as they relate to engagement at all four levelsRole of health plans as significant stakeholders in the engagement processRole of employers as drivers for creating a culture of healthEmergence of new technologies that will facilitate patient, family and provider interactions; health education; treatments and overall engagementRole of social media as a means to enhance communication and networking with individuals and communities
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How a 15-Year-Old Googled His Way to Revolutionizing Cancer Detection

How a 15-Year-Old Googled His Way to Revolutionizing Cancer Detection | Patient Centered Healthcare | Scoop.it

The press has recently gone wild celebrating what seems like a fantasy wunderkind tale, that of a teenager from Maryland who on his own initiative developed a non-invasive, five minute test for pancreatic, ovarian, and lung cancer that is 168 times faster, 26,000 times less expensive, and over 400 times more sensitive than current diagnostic assays.

 

Before you call BS on this seemingly unbelievable story, check out Mr. Jack Andraka’s TED Talk. In his own words you’ll discover how Jack was deeply moved by the passing of a close family friend from pancreatic cancer, a personal tragedy that motivated him to find a way to simplify and improve diagnostics for the devastating disease. Using his “go-to” source for information, Google, Jack keyword searched his way into medical history.

 

What makes this story even timelier and poignant is how it represents the perfect storm of digital health

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ONC Working To Align Patient Engagement With Health IT

ONC Working To Align Patient Engagement With Health IT | Patient Centered Healthcare | Scoop.it
In a Health Affairs perspective piece, leaders from the Office of the National Coordinator for Health IT describe their goals for aligning the patient engagement movement with health IT.
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I’m an e-patient: equipped, enabled, empowered, engaged

I’m an e-patient: equipped, enabled, empowered, engaged | Patient Centered Healthcare | Scoop.it
Dave deBronkart, writes "There may be other industries where so much has changed at once, but I don’t know of them. I myself lived through dramatic restructuring of my industry thirty years ago – t...
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India - Greenfield Opportunity for Social Media in HealthCare and Pharma

India - Greenfield Opportunity for Social Media in HealthCare and Pharma | Patient Centered Healthcare | Scoop.it
The other day while looking at an RFP from a potential client, I was struck by this almost damning statement – “Currently there are no formal regulatory or legal obligations specific to social medi...
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Are you health literate?

Are you health literate? | Patient Centered Healthcare | Scoop.it

Dr Paul Zollinger-Read explains what health literacy is, why it’s so important and why it desperately needs a heavier focus.

 

To be able to lead a long, healthy life, you need to choose to live a healthy lifestyle. And to know how to live a healthy lifestyle requires an understanding of health information, a knowledge of how and when to seek medical attention, and what you can do to prevent illness. This ability to obtain, process and understand health information in order to make informed decisions about your health is known as health literacy, something we should all have, but a good percentage of people struggle with.

 

The ideas you generate about health, whether consciously or subconsciously, and how to stay healthy are shaped by information that you interact with every day, whether it be advice from your doctor, websites, a brochure or leaflet, or on the TV. Health literacy is not just simply about your ability to read – it also requires listening, analytical and decision-making skills, and the ability to apply these skills to your health. To list a few examples, it includes your ability to understand instructions on prescription medicine, health information brochures you’re given, your doctor's advice and directions, and your ability to understand healthcare systems.

 

The impact of poor health literacy Health literacy has become a key area of research in recent years and we now have a good understanding of the relationship between levels of literacy and health status. For example, research from the US has shown that people with low levels of health literacy have less understanding about their health, and consequently, poorer health and higher mortality than those with good health literacy. Further, data from many developed nations have shown a relationship between low health literacy levels and a decline in the use of available health information and services.

 

In Australia, research has shown that levels of health literacy are seriously lacking – a staggering 59 percent of the Australian population aged between 15 and 74 did not achieve a health literacy skill level of three or above (out of five) – this is the minimum level needed for people to effectively engage with the health system and manage their own healthcare. And the UK isn’t far behind – the Skills for Life Survey showed that 46 percent of participants (equivalent to 17.8 million people in England) scored a literacy level below that required to achieve their full potential.

 

 

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Two reasons to make patient engagement a priority: better clinical outcomes, lower costs

Two reasons to make patient engagement a priority: better clinical outcomes, lower costs | Patient Centered Healthcare | Scoop.it

Patients who are engaged in their own healthcare not only have better clinical outcomes but have also lower costs of healthcare, according to new studies published in HealthAffairs.

 

By analyzing more than 30,000 patients, researchers at Fairview Health Services, a Minnesota health system, found that patients who were “least activated” — less involved in managing their health — had 8 percent higher costs than those who were actively engaged. While average costs were 8 percent higher in the first year, that figure shot up to 21 percent in the second year.

 

A separate study also found that patients who received help from their providers such that they could share in decision making saw 12.5 percent fewer hospital admissions and lower healthcare costs.

 

“The evidence assembled in this issue of Health Affairs is a wake-up call for healthcare providers, who must recognize patient and family engagement as a top priority,” said George Bo-Linn, chief program officer of the Gordon and Betty Moore Foundation, which funded the studies, in a statement. “This collective research clearly demonstrates that we must do a better of job of helping patients and families to play an active role in their care, and we must redesign the healthcare system in ways that makes this possible.”

 

That makes the redesign of healthcare to make patients more involved in managing their health a priority. One area that appears to hold promise is providing healthcare online through sites that offer diagnosis and treatment for common ailments that otherwise would have required a trip to the doctors — two sites that offer these options to today’s healthcare consumer are HealthPartners’ Virtuwell and Zipnosis.

 

But getting patients engaged requires a fundamental cultural shift at the provider level.


“Further involving patients in decision making will mean some changes to how healthcare providers deliver care,” said Dominick Frosch, a Moore Foundation fellow, whose research is appearing in the February issue of Health Affairs. “Additional training, changes to team-based care models and incentives for adopting this new approach can go a long way toward enabling these changes in the current healthcare system.”
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When it comes to patient education, providers are slow to adopt new technologies

When it comes to patient education, providers are slow to adopt new technologies | Patient Centered Healthcare | Scoop.it

In the shift toward team-based healthcare, nurse practitioners and other non-MD healthcare professionals are taking on more responsibilities, and companies are responding with new resources and technologies to help them do their jobs.

 

But how much of this new technology is being used with patients? HealthEd Academy asked 155 “health extenders” — that means nurses, nurse practitioners, health educators, social workers and registered dietitians — how they are using technology to educate patients. Their responses reinforced a few of the trends we’ve noticed.

Most interaction with patients is still done offline. All but 5 percent of HealthEd Academy’s respondents said they used printed handouts for patient education.But, online is definitely starting to play more of a role. More than half of the survey’s respondents said they print out information from the Web to give to patients, and more than 80 percent in private practice said they referred patients to online sources. Only 3 percent said technology causes distractions or obstaclesTablets are changing work flow in healthcare. Only three in 10 extenders said they had tablets, but twice as many wish they did.Video is an important component of patient education and engagement. 44 percent of professionals surveyed said they used YouTube videos for patient education. Companies like healthe360 and Clear.MD have jumped on that opportunity and created ways for patients to connect and learn through video.
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Skype Doctor: Delivering services to connected patients in Thailand

Skype Doctor: Delivering services to connected patients in Thailand | Patient Centered Healthcare | Scoop.it

Connectivity between patients requiring medical advice and the hospital is practical and effectively provides crucial medical support. BNH Hospital in Bangkok, Thailand, believes in investing in communication technology fundamentals to connect health anywhere, and anytime. Contributed by Dr. Rueangkit Ratanayanont, Dr. Santi Subpinyo and Dr. Titi Eiampaisal.

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TEDMED innovation panel: We're on the verge of a patient engagement explosion

TEDMED innovation panel: We're on the verge of a patient engagement explosion | Patient Centered Healthcare | Scoop.it

A TEDMED panel discussion debated how to strike a balance between innovation and cost from clinical needs, patient engagement to healthcare delivery.

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