Patient Centered Healthcare
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Patient Centered Healthcare
Articles and discussions on patient centered healthcare, patient education, patient awareness, patient engagement... Relevant to Hospitals, Physicians, Healthcare Organizations, Pharma, Insurance
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BCS urges patient role for NHS information sharing

BCS urges patient role for NHS information sharing | Patient Centered Healthcare | Scoop.it

 

BCS, The Chartered Institute for IT has called for a greater role for patients in information governance.

While welcoming the recommendations made in the recent Caldicott 2 Review report, BCS Health says several issues need to be addressed.

In its response to the review, BCS is calling for a greater role for patients in information governance, and a move to the widespread use of "privacy enhancing technologies" to avoid the need for duplicating identifiable data outside the care providers that create it.

 

Also, where such data is stored centrally, the BCS wants tighter governance and more transparency from the "safe havens" holding it.

Dame Fiona Caldicott led an independent panel of experts reviewing patient information governance practice in the NHS, and the final report, referred to as Caldicott 2, was published at the end of April 2013.

The panel’s “overarching aim has been to ensure that there is an appropriate balance between the protection of the patient or user’s information, and the use and sharing of such information to improve care", said Caldicott.

Dr Justin Whatling, chair of BCS Health, said: "Patient information governance is an increasingly important topic because of the urgent need to share and integrate patient data to improve care and care commissioning, power research and to empower individual patients.

 

"However, we believe there is still more that could be done in ensuring that patients play a role in the governance of their information, and to this end we have made our own recommendations to supplement those in the report.”

Ian Herbert, vice chair of BCS Health, said: "De-identifying data before it leaves its origin will greatly reduce patient concerns about unconsented secondary uses of their data, and have an insignificant impact on the ability to link data from different sources and its utility for secondary uses."

For the "relatively small number of patients who are still concerned", he said, allowing patients to opt out of their data being used for secondary purposes was appropriate. "However given the importance of patient data in care and research, we should aspire to provide more granular opt outs," said Herbert.

Patients should be able to opt out of use for research, risk stratification or service audits, rather than out of all data sharing, Herbert said.

 

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Patient Engagement: How To Do It Right -- InformationWeek

Patient Engagement: How To Do It Right -- InformationWeek | Patient Centered Healthcare | Scoop.it

Every truism has a flip side. Take the Dunning-Kruger effect, for instance: "The truly incompetent can't even recognize their own incompetence," an observation that well describes today's dysfunctional Congress. The opposite of those words of wisdom might be: "The truly exceptional usually recognize their exceptional gifts."

 

In the latter category belong several healthcare organizations that are not just giving lip service to patient engagement but realize they are leading the charge with some disruptive, innovative IT-dependent tools.

 

The Cleveland Clinic, for instance, has done some impressive work in this arena. Many providers are offering patients the ability to make appointments on their websites, but Cleveland Clinic's family health centers now put their clinician's entire schedule up so that patients can make their own appointments. That's customer service.

 

They are also opening up their medical records in ways that most providers have been reluctant to do. They're putting lab results and medical imaging results online and eventually plan to post physicians' notes after each patient's visit. They also have a pilot project in the works that allows patients to enter data into their own records, which may help clinicians monitor patients' progress in controlling blood pressure, blood glucose and other measurable parameters.


Mayo Clinic, not wanting to be left behind in the race to get patients more involved in their own care, has developed a popular app that originally started as a mobile map to help patients find their way around its huge campus. It has evolved to include appointment calendars, access to radiology and lab reports, even suggestions on where to eat when they come to the Rochester, Minn., facility. Patients can also see a portion of their electronic medical record, their medication lists and patient summaries.

 

Mayo is hoping to eventually include more interactive features in the mobile app. "Let's say you were using the symptom checker and found something you have a question about. You'd just push a button on your device and be connected to a care provider," says Mark D. Henderson, IT director at the Mayo Clinic's Center for Connected Care.

 

Patient engagement may have started as a Meaningful Use rule that providers had to follow to obtain electronic health record (EHR) financial incentives, but it has taken on a life of its own in several forward-thinking health systems. There's even a patient engagement index (PEI) available now that ranks U.S. hospitals in this area, state by state.

 

Provider organizations are ranked through an evaluation of their personal health management strategies, patient satisfaction scores and social media engagement, and each organization is given a overall score between 0 and 100. In the recent New York State competition, New York Presbyterian Hospital/Weill Cornell Medical Center and Mount Sinai Medical Center tied for first place with a score of 72.

 

The National eHealth Collaborative has also taken a position on this issue, creating a Patient Engagement Framework that can serve as a model to help provider organizations improve their use of electronic health tools and resources.

 

The original Meaningful Use regulation on patient engagement requires that more than 50% of patients seen by clinicians receive timely, online access to their health information, and more than half of a provider's patients are supposed to receive a clinical summary of their visit. But Meaningful Use really only mandates Minimal Use; it's a jumping off point. If you want patient engagement done right, you have to start offering patients a lot more.

 

 

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When A Patient Asks, ‘Why Won’t Anybody Just Talk To Me?’

When A Patient Asks, ‘Why Won’t Anybody Just Talk To Me?’ | Patient Centered Healthcare | Scoop.it

Lessons from a long medical saga: The trouble in doctor-patient communication goes both ways; patients and doctors alike clam up when facing hard conversations.

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Why Your Doctor Can't Be Your Online Friend

Why Your Doctor Can't Be Your Online Friend | Patient Centered Healthcare | Scoop.it

The boundaries between the physician - patient relationship have always been difficult as the relationship is based on trust, intimacy and the ability to share information from both sides of the desk.  This relationship has grown more complex due to the rise of social media engagement.  Physicians are being friend-ed, followed and reviewed across the digital channel like crazy, placing the doctors that care for them in difficult positions regarding the confidentiality of their patients who often don't think about the impact of their digital-buddy request.

 

Similarly, due to the ease of digital communications, the commonly time-stretched doctor also faces temptation to use quick communication methods to reach their audience, in lieu of a more professional path.  No-one really wants their test results Tweeted to them! These examples of digital doctoring to be avoided are covered in the guidance.  Protecting patient privacy and confidentiality is stressed as the main area for focus when using social media.

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UK NHS launches 12 patient decision support apps

UK NHS launches 12 patient decision support apps | Patient Centered Healthcare | Scoop.it
The UK NHS has launched a series of patient decision support apps for a range of common diseases to help improve patient education and understanding
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Pharmacies — A New Patient Education Opportunity

Pharmacies — A New Patient Education Opportunity | Patient Centered Healthcare | Scoop.it
Kenneth Getz of the Tufts Center for the Study of Drug Development looks at leveraging pharmacists as a channel to raise clinical research literacy among patient communities.
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EMR on your Android phone with Patient Records Doctor ON GO

EMR on your Android phone with Patient Records Doctor ON GO | Patient Centered Healthcare | Scoop.it
A mobile attempt to solve the Electronic Medical Records situation for Android, called Patient Records Doctor ON GO is reviewed.

Via Valeria Duflot
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Are You (Health) Literate?

Are You (Health) Literate? | Patient Centered Healthcare | Scoop.it
How’s your health literacy? Literacy, in this instance, doesn’t only mean can you read and write—are you literate. It means can you read instructions on a bottle of medicine, can you listen to a he...
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Why doesn't your health information follow you?

Why doesn't your health information follow you? | Patient Centered Healthcare | Scoop.it
Our paper-based approach to health care delivery is fraught with potential errors and inefficiencies. A handwritten prescription can result in an accidental overdose. If the patient is referred to ...
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mHealth Applications Must Foster Patient Engagement

mHealth Applications Must Foster Patient Engagement | Patient Centered Healthcare | Scoop.it

“Patient engagement” is one of the biggest buzz phrases in mobile healthcare (mHealth). Dr. Fastad Mostashari, who serves as National Coordinator for IT the National eHealth Collaborative (NeHC), has said that “patient engagement is the blockbuster drug of the century.”

 

To help providers increase patient engagement through mHealth, the NeHC has developed a five-step patient engagement framework.

 

The most basic function of mHealth is to provide basic information for the patient. “Inform Me,” the first step in the framework, includes functions like maps, health encyclopedias, printable forms and care plans.  

 

LifeApps, for example, has signed a letter of agreement to produce mHealth apps for a company called MediSwipe, Inc. The “GetRx” app will unite patients with geographic areas that can dispense medical marijuana.

 

The geographic locator will connect patients with pharmacies, caregivers and dispensaries. Patients will be able to leave ratings and comments for each location through the app.

 

To “Inform Me,” mHealth apps should add “Engage Me.” Engagement steps up the interaction by providing symptom checkers, delivering tracking tools for fitness or pregnancy, sending out reminders for medications or appointments, and giving access to interactive patient forms or electronic health records (EHR).

 

Another LifeApps product, created in conjunction with 800 Commerce, provides an example of engagement features. In addition to geographical search of medical providers, the proposed “My800Doctor” app will enable mobile appointment setting and prescription alerts.

 

The third component of the NeCH framework is “Empower Me.” This portion includes potential mHealth app features like messaging with an online nurse, keeping self-management diaries that a doctor could review and coordinating EHR updates between labs, radiology and pharmacies.

 

“Partner with Me” covers features like home monitoring and patient-generated advance directives about end-of-life treatment. The final component, “Support My e-Community,” allows patients to set privacy controls and sharing permissions.

 

Support also means coordinating between multiple caregivers and setting up forums in which all caregivers and family members can discuss the care of the patient.

 

By following the NeHC framework, medical providers can leverage mHealth to care for patients both in and out of medical facilities. Breaking down barriers to interoperability to foster patient engagement could enable mHealth to change healthcare as we know it.

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Going from Patient to E-Patient | HealthWorks Collective

Going from Patient to E-Patient | HealthWorks Collective | Patient Centered Healthcare | Scoop.it
Engaged patients – those who actively seek to know more about and manage their own health – are more likely than others to participate in preventive and healthy practices, self-manage their conditions and achieve better outcomes.
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Infographic: Rising Popularity of Mobile Health Apps

Infographic: Rising Popularity of Mobile Health Apps | Patient Centered Healthcare | Scoop.it
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Gardening, Housework May Help Boost Your Heart Health

Gardening, Housework May Help Boost Your Heart Health | Patient Centered Healthcare | Scoop.it

Activities such as gardening, do-it-yourself projects and housework may be as good as formal exercise when it comes to reducing the risk for heart attack and stroke, Swedish researchers say.

For people 60 and older, just keeping busy with daily activities can reduce the risk of cardiovascular problems by nearly 30 percent and even prolong life, they added.

Being on your feet and active cuts the time spent sitting around, pointed out lead researcher Elin Ekblom-Bak, of the Swedish School of Sport and Health Sciences and the Karolinska Institute, in Stockholm.

 

"Sitting is mainly replacing time you spend in daily activity and vice versa," Ekblom-Bak said. A recent study found long periods of sitting actually increased the risk for diabetes, cardiovascular disease and death, she noted.

"The results of this study showed that activities of daily life are as important as regular intentional exercise for older adults for cardiovascular health and longevity," she said.

But that doesn't mean formal exercise isn't important. "We saw that those who exercised regularly and that also had a daily physically active life had the lowest risk of all," Ekblom-Bak explained.

The time people spend exercising, however, is only a small part of the day, which leaves a lot of time for daily activities or sitting, she added.

 

For the new study, researchers collected data on more than 3,800 men and women in Sweden who were born in 1937 and 1938. Participants were asked about their lifestyle, which included information on their diet, whether they smoked or drank alcohol, and how physically active they were.

The participants were also asked how often they took part in activities, such as gardening, do-it-yourself projects, car maintenance and blackberry picking over the past year. They were also asked about any exercise they did.

 

To see how heart-healthy they were, the researchers examined the participants and took blood samples to assess levels of fat and sugar. They also checked for high levels of blood-clotting factor, which is linked to a raised heart attack and stroke risk.

During more than 12 years of follow-up, 476 of the participants died from or experienced a first heart attack or stroke, and 383 died from other various causes.

People whose daily activities kept them moving reduced their risk of a heart attack or stroke by 27 percent and the risk of dying from any cause by 30 percent, compared to people who spent the least amount of time on their feet.

 

"Promoting daily life activities is as important as recommending regular exercise for older adults for cardiovascular health and longevity," Ekblom-Bak said.

"This is particularly important for older adults as they tend to spend a greater portion of their active day performing non-exercise physical activity, as they often find it difficult to achieve recommended exercise intensity levels," she said.

The report was published online Oct. 28 in the British Journal of Sports Medicine.

Traditional notions of retirement often don't support continued physical activity at this stage of life, a U.S. expert said.

 

"It is almost expected that as we age, we move less," said Samantha Heller, a senior clinical nutritionist and exercise physiologist at NYU Langone Medical Center, in New York City.

"Retirement, a patient told me, is for sitting around, resting and watching TV," she said. "Unfortunately, sedentary lifestyles now range across all ages with the same unhealthy results: increased risk for diseases such as cardiovascular disease, metabolic syndrome and certain cancers."

The human body is designed to be moving a good portion of the day, Heller said. "The less one physically moves, the less they are able to move," she said.

 

Regular physical activities such as house cleaning, gardening, lawn care and climbing stairs help keep the body mobile and strong, Heller said.

"You can burn up to six times as much energy per minute when house cleaning as you do when you are sitting still. People of all ages need to be encouraged to get up off the couch and turn off the computer and TV and move," she said.

Heller said there are simple ways to add more physical activity into the day, such as the following:

Standing up when talking on the phone.Marching in place when watching TV -- at least during the commercials.Getting up from your desk every hour and doing jumping jacks, knee lifts or knee bends for three to five minutes.Climbing a flight of stairs every few hours.Vacuuming the house.Mopping the floor.

 

Another expert described the physical fallout of being sedentary.

Dr. Gregg Fonarow, a professor of cardiology at the University of California, Los Angeles, said sitting for too long may have adverse effects including burning fewer calories, and increasing insulin resistance and fats in the blood.

"Greater time spent in non-exercise physical activities can potentially counter these effects," Fonarow said. "These findings further emphasize the importance of decreasing sedentary time and encouraging everyday regular non-exercise physical activity to improve cardiovascular health."

Although the study found an association between being active around the house and reduced heart risk, it did not establish a cause-and-effect relationship.

 

 

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8 Elements of Total Patient Engagement

8 Elements of Total Patient Engagement | Patient Centered Healthcare | Scoop.it
A major trend in healthcare today is the shift to patient engagement. As part of this trend, I did a video interview with Dr. Nick recently where we discussed some of the shifts towards patient eng...
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Study shows YouTube favored among healthcare social media marketers

A new report shows that healthcare communications professionals prefer YouTube over Twitter, Facebook and LinkedIn.

 

According to the study, conducted by Ideahaus and published in the current issue of the Journal of Communication in Healthcare, professionals within the healthcare space are rapidly shaping best practices for marketing communications, despite the lack of FDA guidance in the use of social media in healthcare.

 

The study measured the attitude of 107 healthcare, pharmaceutical and life sciences executives on the use of social media, according to a May 15 news release. Survey respondents hold positions from CEO to CIO, from marketing director to brand manager, are active in their positions and serve primarily in the United States. “The results are surprising, especially given the historically conservative nature of the healthcare marketing community,” the news release said.

 

The survey focused on those who are tasked with the development, creation and delivery of brand and product information to target audiences. When asked about whether marketers should be permitted to use social media to promote their products and services to the public, most were positive. The mix of media (i.e. YouTube, Flickr, Twitter etc.) appears to be as important as the message.

 

The data indicates healthcare communications professionals are most reticent to adopt Twitter, a mainstream corporate communications tool. YouTube's acceptability was pervasive, in fact twice that of Flickr or Twitter. The study also flushed out a number of perceived risks of embracing social media marketing in healthcare communications.

 

Intuitively, Twitter would have seemed to be the most likely adopted marketing tool based on its 140-character limit: no photos, few words, simple messages and clean delivery. But this is not the case for surveyed healthcare communications professionals, researchers said.

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What's e-health and what does it mean for you?

What's e-health and what does it mean for you? | Patient Centered Healthcare | Scoop.it

If you visit a doctor’s office or hospital and you usually see stacks of manila folders with labels on them and loads of paper inside When a doctor wants to research more about a patient, it can take a while to sort through the file and decipher handwritten notes.  Electronic health records are fast becoming the new normal for record keeping in the health field.  But what does e-health mean and who has access to your information once it is uploaded?

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How consumers search for health information online

How consumers search for health information online | Patient Centered Healthcare | Scoop.it
There is a lot of data on the numbers of people who search for online health information but what seems to be missing is a clearer picture of how many websites people go to for health information a...
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How the World Gets Sick and Dies

How the World Gets Sick and Dies | Patient Centered Healthcare | Scoop.it

The results of a project to quantify and understand how human illness is changing on a global scale

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Sanford App Gives Patients Convenience

Sanford App Gives Patients Convenience | Patient Centered Healthcare | Scoop.it
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John King's curator insight, June 2, 2013 9:03 PM

Mobile technology and social media are creating powerful new ways to drive engagement with people involved in the care delivery process. 

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7 tips for evaluating healthcare websites from a doctor

7 tips for evaluating healthcare websites from a doctor | Patient Centered Healthcare | Scoop.it
The internet has fundamentally transformed the way I practice medicine, challenging the doctor-patient relationship.  I see examples of this every … Read More
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Patient education – A weapon in the fight against chronic healthcare conditions » Fed UC

Patient education – A weapon in the fight against chronic healthcare conditions » Fed UC | Patient Centered Healthcare | Scoop.it
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Survey: Healthcare Consumers Following Providers on Social Media

Survey: Healthcare Consumers Following Providers on Social Media | Patient Centered Healthcare | Scoop.it
A marketer's examination of new survey data about adults who follow a healthcare provider via social media.

Via Marie Ennis-O'Connor
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Marie Ennis-O'Connor's curator insight, February 18, 2013 6:28 AM

The biggest followers of clinics and hospitals on social media are young adults, specifically those from ages 18–24.

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When to Break Up With Your Doctor?

When to Break Up With Your Doctor? | Patient Centered Healthcare | Scoop.it
WebMD explains what to do when your doctor doesn’t listen to your concerns and how to find a new doctor for you and your family.
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