multiple system atrophy
9.4K views | +0 today
Follow
multiple system atrophy
multiple system atrophy is a rare and fatal neurodegenerative disorder affecting about 13,000 Americans at any given time.
Curated by MSA Coalition
Your new post is loading...
Your new post is loading...
Scooped by MSA Coalition
Scoop.it!

Remembering Don Summers - An Extraordinary Multiple System Atrophy Advocate

Remembering Don Summers - An Extraordinary Multiple System Atrophy Advocate | multiple system atrophy | Scoop.it
MSA Coalition's insight:

Thank you Don and Sylvia Summers for all of your positive contributions and energy that you gave to the multiple system atrophy community.

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

1tqDLDR

MSA Coalition's insight:

Very important news for those with neurogenic orthostatic hypotension and Parkinson's disease, multiple system atrophy or pure autonomic failure.  

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Retired Microsoft, NeXT and Oracle Executive Becomes First-Ever Patient ... - DigitalJournal.com

Retired Microsoft, NeXT and Oracle Executive Becomes First-Ever Patient ...
DigitalJournal.com
In addition to resembling Parkinson's disease, MSA has additional symptoms involving impairment of the cerebellum and/or the autonomic nervous system.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Symptoms Causes Amp Types of Multiple System Atrophy › SocialbookmarkNow.info : Promote website to get higher rank in dofollow blog directory, forum and article sites | Store favorite sites using s...

Symptoms Causes Amp Types of Multiple System Atrophy › SocialbookmarkNow.info : Promote website to get higher rank in dofollow blog directory, forum and article sites | Store favorite sites using s... | multiple system atrophy | Scoop.it
Symptoms & causes of MSA vary depending on the form of MSA. MSA-P produces symptoms such as shuffling gait, rigid muscles & MSA-C is characterized ...
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Dr. Larry Kellerman, PhD Appointed to Multiple System Atrophy Coalition Board of Directors

Dr. Larry Kellerman, PhD Appointed to Multiple System Atrophy Coalition Board of Directors | multiple system atrophy | Scoop.it
From BioPortfolio: In his new role, Dr. Kellerman will be representing the needs of current caregivers as well as focusing on educating healthcare professionals unfamiliar with th... (Dr.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

stella herbert is fundraising on JustGiving for Multiple System Atrophy Trust

stella herbert is fundraising on JustGiving for Multiple System Atrophy Trust | multiple system atrophy | Scoop.it
Help stella raise money for this great cause.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

The Multiple System Atrophy Coalition Appoints Five New Members to Board of ... - Insurance News Net

The Multiple System Atrophy Coalition Appoints Five New Members to Board of ... - Insurance News Net | multiple system atrophy | Scoop.it
The Multiple System Atrophy Coalition Appoints Five New Members to Board of ...
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

The Woman Who Kept Falling Down 2014

This is the story of NDRF's (ndrf.org) founder, Linda J. Smith and her struggles to find an accurate diagnosis. Dysautonomia is a general term used to describe a breakdown, or failure of the...
MSA Coalition's insight:

Linda Smith (the founder of NDRF) and her struggle for an accurate diagnosis.  Her story resonates for all with various dysautonomias, including multiple system atrophy..

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Tweet from @_noblekatie

Tweet from @_noblekatie | multiple system atrophy | Scoop.it
RT @_noblekatie: @Dysautonomia #DysConf How to be Your Own Best Advocate with Elyse Schwartz, MSW http://t.co/5MhcuyoxxK
MSA Coalition's insight:

Being your own best advocate is very important for those with multiple system atrophy

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Resistance Training with Instability in Multiple System Atrophy: A Case Report

Resistance Training with Instability in Multiple System Atrophy: A Case Report | multiple system atrophy | Scoop.it
Journal of Sports Science and Medicine (JSSM) is a non-profit scientific electronic journal, publishing research ,review articles case studies fields exercise sciences.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Cyclists Start Ride from Chicago to Washington, D.C. Today to Raise Awareness for MSA and Funds for The Multiple System Atrophy Coalition - InsurerNews.Com

Cyclists Start Ride from Chicago to Washington, D.C. Today to Raise Awareness for MSA and Funds for The Multiple System Atrophy Coalition - InsurerNews.Com | multiple system atrophy | Scoop.it
Chicago, IL (PRWEB) July 04, 2014 Two cyclists begin their ride of more than 850 miles today, the 4th of July, to raise awareness of multiple system atroph (Cyclists Start Ride From Chicago to Washington, D.C.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Cyclists Start Ride From Chicago To Washington, D.C. Today To ...

The 'Make Their Mark' MSA Awareness Tour salutes Mark Versel, who died from Multiple System Atrophy, a rare and terminal neurodegenerative disease. Two cyclists begin their ride of more than 850 miles today, the 4th of ...
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Cyclists Start Ride from Chicago to Washington, D.C. Today to Raise Awareness ... - Insurance News Net

Cyclists Start Ride from Chicago to Washington, D.C. Today to Raise Awareness ... - Insurance News Net | multiple system atrophy | Scoop.it
Cyclists Start Ride from Chicago to Washington, D.C. Today to Raise Awareness ...
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

How can patients obtain Northera (droxidopa)? - MSA

How can patients obtain Northera (droxidopa)? - MSA | multiple system atrophy | Scoop.it
Northera (droxidopa) is now available in the USA for MSA patients surfing from symptomatic neurogenic orthostatic hypotension
MSA Coalition's insight:

Important information about Northera (droxidopa) 

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

The MSA Purple Rain Challenge | Multiple System Atrophy

The MSA Purple Rain Challenge | Multiple System Atrophy | multiple system atrophy | Scoop.it
The MSA Purple Rain Challenge is intended to create awareness for multiple system atrophy, a rare brain disorder
MSA Coalition's insight:

#MSAPurpleRain - Help create awareness for multiple system atrophy

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Second consensus statement on the diagnosis of multiple system atrophy

Second consensus statement on the diagnosis of multiple system atrophy | multiple system atrophy | Scoop.it
Second consensus statement on the diagnosis of multiple system atrophy http://t.co/jdieLqiszF
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

MSA Volunteerism | The Multiple System Atrophy Coalition's Fundraiser on CrowdRise

MSA Volunteerism | The Multiple System Atrophy Coalition's Fundraiser on CrowdRise | multiple system atrophy | Scoop.it
Over the next 6 weeks the Crouse family plans to increase their volunteer efforts for Thhe Multiple System Atrophy Coalition and to document those hours for this contest. Please show your support by donating to this effort.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Dr. Larry Kellerman, PhD Appointed to Multiple System Atrophy…

In his new role, Dr. Kellerman will be representing the needs of current caregivers as well as focusing on educating healthcare professionals unfamiliar with (RMG: Dr.
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

The Multiple System Atrophy Coalition Appoints Five New Members to Board of Directors

The Multiple System Atrophy Coalition Appoints Five New Members to Board of Directors | multiple system atrophy | Scoop.it
Charlotte (PRWEB) July 29, 2014 -- The MSA Coalition is poised to continue its strong growth as a national nonprofit focused on education, support, advocacy, and research grant funding as it pursues its primary mission of finding a cure for...
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Family hopes to raise awareness of disease that killed Rockville man - Gazette.Net: Maryland Community News Online

Family hopes to raise awareness of disease that killed Rockville man Gazette.Net: Maryland Community News Online For much of the ride, it was just he and his uncle, although they did have some other riders on the first and last day and met up in...
MSA Coalition's insight:

Congratulations Mark an Malcolm Versel.  Your ride for multiple system atrophy awareness has been an incredible tribute to your father - ark Versel.

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Making Hope When the Medical System Can't - Huffington Post (blog)

Making Hope When the Medical System Can't - Huffington Post (blog) | multiple system atrophy | Scoop.it
Making Hope When the Medical System Can't Huffington Post (blog) Lauren Stiles, Esq., co-founder and president of Dysautonomia International (a nonprofit organization focused on sharing research and treatment developments with patients), says that...
MSA Coalition's insight:

A great blog post from Lauren Stiles of Dysautonomia Internaional

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Sphincter electromyography in diabetes mellitus and multiple system atrophy - Jian - 2014 - Neurourology and Urodynamics - Wiley Online Library

Sphincter electromyography in diabetes mellitus and multiple system atrophy - Jian - 2014 - Neurourology and Urodynamics - Wiley Online Library | multiple system atrophy | Scoop.it
Sphincter electromyography in diabetes mellitus and multiple system atrophy: ConclusionsCompared with MSA, DPN... http://t.co/xOIigtsTsl
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

α-Synuclein impairs oligodendrocyte progenitor maturation in multiple system atrophy | Neuro Science

α-Synuclein impairs oligodendrocyte progenitor maturation in multiple system atroph http://t.co/xsHfC4PqHF
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Make Your Mark: MSA Awareness Tour

Make Your Mark: MSA Awareness Tour | multiple system atrophy | Scoop.it
Make Your Mark: MSA Awareness Tour 2014 for multiple system atrophy research and support. (@KokomoTribune Two hero cyclists hit Kokomo on July 5, raising awareness of Multiple System Atrophy on the way to DC!
more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

From bombs to tatties: Writer was evacuated from war-ravaged London to ... - Evening Telegraph

From bombs to tatties: Writer was evacuated from war-ravaged London to ... - Evening Telegraph | multiple system atrophy | Scoop.it
Evening Telegraph
From bombs to tatties: Writer was evacuated from war-ravaged London to ...
MSA Coalition's insight:

Book proceeds go to the Multiple System Atrophy Trust #UK #DefeatMSA

more...
No comment yet.
Scooped by MSA Coalition
Scoop.it!

Lakeview Man Launches Bike Fundraiser after Dad Dies of Rare Disorder - Lakeview - DNAinfo.com Chicago

Lakeview Man Launches Bike Fundraiser after Dad Dies of Rare Disorder - Lakeview - DNAinfo.com Chicago | multiple system atrophy | Scoop.it
Neil Versel will fundraise for MSA research by biking to Washington D.C. this month. (Neil Versel is kicking of an 850 mile bike tour this week, riding from Chicago to DC to raise awareness about...
more...
No comment yet.