Lou Gehrigs Disease
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Rescooped by Eleanorlauzon from ALS Lou Gehrig's Disease
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Ex-player, ALS patient Gleason pushes awareness

Ex-player, ALS patient Gleason pushes awareness | Lou Gehrigs Disease | Scoop.it

Former New Orleans Saints special teams standout and current ALS patient Steve Gleason can't help but wonder whether his football career contributed to his debilitating and ultimately fatal neuromuscular disease. Yet Gleason still loves the game and has found the NFL and its players to be willing partners in his effort to improve the lives of those with amyotrophic lateral sclerosis, commonly known as Lou Gehrig's disease. The Super Bowl is the site of one of the first events held by his foundation, Team Gleason. The 34-year-old Gleason, famous for blocking a punt on the night the Superdome reopened for the first time since Hurricane Katrina, is joining two other ALS patients at the game. They also planned to attend related events, such as the NFL Players Association party over the weekend. Cleveland Browns linebacker Scott Fujita, a former Saints teammate of Gleason, helped organize the event. Many thousands of people who have ALS never had concussions and never played contact sports, so Team Gleason is less about investigating whether football is linked to ALS than it is about helping people who have to live with the disease," said Fujita, who had an uncle who died from ALS. "It's really about promoting technologies that help ALS patients feel valuable, survive and thrive in the process."


Via ALS Research News
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ALS is the new normal for this Hinesburg family

ALS is the new normal for this Hinesburg family | Lou Gehrigs Disease | Scoop.it

The human body doesn’t normally bend in the directions Frank Provost’s body was bending Friday morning.In the sunlit living room of his rural Hinesburg home, Provost worked with Michele Denault-Reynolds, a licensed nursing assistant with the Visiting Nurse Association of Chittenden and Grand Isle Counties, to loosen his muscles that seize up as a result of his amyotrophic lateral sclerosis, or Lou Gehrig’s disease. Provost sat in his motorized wheelchair as the nurse bent his arm over his head. She took his left leg and held it in position for several seconds over the right side of his body to improve his flexibility and reduce the muscular spasticity that makes it hard for Provost to fend for himself. “Trying to make him a pretzel,” his wife, Kim Provost, joked. The Burlington Free Press profiled Frank and Kim Provost a year ago on the eve of a fundraiser their family helped organize to benefit the ALS Therapy Development Institute, a Massachusetts-based nonprofit that’s trying to find a cure for the fatal disease that attacks the brain and spinal cord. A year later, just before the second annual fundraiser tonight in Colchester, that declining muscular flexibility represents the biggest change in Frank Provost’s physical condition.


Via ALS Research News
Eleanorlauzon's insight:

My Uncle is my hero! <3

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Rescooped by Eleanorlauzon from ALS Lou Gehrig's Disease
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Coming Home: The Steve Gleason Story

Coming Home: The Steve Gleason Story | Lou Gehrigs Disease | Scoop.it

It is an incredible story of courage and home. Cougar football great and Gonzaga Prep grad Steve Gleason is battling ALS - Lou Gehrig's Disease - which has no known cure. But, he's not waiting around for the disease to kill him. He's living life and helping others diagnosed with the same disease.


Via ALS Research News
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