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It's time to stop being obsessed about the dangers of knowing what's in your genome

It's time to stop being obsessed about the dangers of knowing what's in your genome | leapmind | Scoop.it

There are lots of popular articles I could point to, but let’s start with a recent series in Time that included eight online features and the Dec. 13 cover story, ominously titled “The DNA Dilemma.”

 

The series, written by Bonnie Rochman, is thoroughly reported, balanced, and full of fascinating personal stories about children whose genomes have been sequenced. It’s also timely: The primary question Rochman raises—how much information is too much information?—has been dominating commentaries about genetic testing in the medical literature.

 

But this is the wrong question, or at least one that’s becoming increasingly irrelevant. The personal genomics horse has bolted, and yet many paternalistic members of the medical community are still trying to shut the barn door. In doing so, they’re fostering a culture of DNA fear when what we really need is a realistic and nuanced genetics education.

 

There are many kinds of genetic tests, but most of the hoopla revolves around whole-genome sequences—the impossibly long, letter-by-letter readouts of the DNA inside the nucleus of each of your cells. In 2003, the first human genome was fully sequenced for just shy of $3 billion. Today a doctor can order yours for around $10,000.

 

Though dropping every day, the cost is still prohibitive enough that most people who get their genome sequenced are part of a medical research study. But the technology is beginning to seep into everyday clinical settings, especially for children with rare diseases. In either situation, the doctor or researcher might inadvertently discover genomic information—known as “incidental findings” in the scientific literature and “dark DNA secrets” in one of the Timearticles—that has nothing to do with the child’s sickness or the study at hand. Hence the big dilemma: How much do patients want to know? How much do they need to know?


Via Dr. Stefan Gruenwald
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Nanopixel displays with 150 times higher resolution – and they’re flexible, too | ExtremeTech

Nanopixel displays with 150 times higher resolution – and they’re flexible, too | ExtremeTech | leapmind | Scoop.it
Researchers at Oxford University in England have created nanopixels that measure just 300-by-300 nanometers. Compare this to a modern smartphone with a 400 ppi display, where each pixel is about 150 times larger (about 50 microns across).
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shardcore » @bffbot1

shardcore » @bffbot1 | leapmind | Scoop.it
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Sugar-powered biobattery has 10 times the energy storage of lithium: Your smartphone might soon run on enzymes | ExtremeTech

Sugar-powered biobattery has 10 times the energy storage of lithium: Your smartphone might soon run on enzymes | ExtremeTech | leapmind | Scoop.it
As you probably know, from sucking down cans of Coke and masticating on candy, sugar -- glucose, fructose, sucrose, dextrose -- is an excellent source of energy.
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Scientists Take First Pictures of Photosynthesis in Action

Scientists Take First Pictures of Photosynthesis in Action | leapmind | Scoop.it
Scientists have managed to take the first pictures of photosynthesis in action as it splits water into electrons, oxygen, and protons.
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A Brain-Computer Interface for Speech | MIT Technology Review

A Brain-Computer Interface for Speech | MIT Technology Review | leapmind | Scoop.it
Recordings from the brain’s surface are giving scientists unprecedented views into how the brain controls speech.
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Facebook's algorithm -- why our assumptions are wrong, and our concerns are right

Facebook's algorithm -- why our assumptions are wrong, and our concerns are right | leapmind | Scoop.it
Many of us who study new media, whether we do so experimentally or qualitatively, our data big or small, are tracking the unfolding debate about the Facebook "emotional contagion" study, published ...
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Step Aside Google Image Search, Here's an Algorithm that Knows What's in a Picture

Step Aside Google Image Search, Here's an Algorithm that Knows What's in a Picture | leapmind | Scoop.it
The internet is a wealth of information. But you have to know what you’re looking for. If you only know a basic category—like that weird
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Sixty years after birth, it's time for solar cells to get serious

Sixty years after birth, it's time for solar cells to get serious | leapmind | Scoop.it
Happy birthday, old man solar. It’s time for you to shine now.
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33rd Square | Developing Robotic Brains Capable of Thoughtful Communication

33rd Square | Developing Robotic Brains Capable of Thoughtful Communication | leapmind | Scoop.it
Masafumi Hagiwara and his students at Keio University are attempting to develop a robotic brain that can carry on a conversation, or in other words, a robotic brain that can understand images and words and can carry on thoughtful communication with...
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Stop complaining about the Facebook study. It's a golden age for research

Stop complaining about the Facebook study. It's a golden age for research | leapmind | Scoop.it
Duncan J Watts: We should insist that Facebook do experiments on the decisions it's already making for us. Anything else would be unethical
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Apple and Google move computing forward in identical-yet-incompatible ways

Apple and Google move computing forward in identical-yet-incompatible ways | leapmind | Scoop.it
Op-ed: If you think ecosystem lock-in is bad now, just wait until the fall.
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New way found by which metabolism is linked to the regulation of DNA

New way found by which metabolism is linked to the regulation of DNA | leapmind | Scoop.it
A research team at the Faculty of Medicine & Dentistry at the University of Alberta have discovered a new way by which metabolism is linked to the regulation of DNA, the basis of our genetic code.
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Larry Page and Sergey Brin on what's next for Google

Larry Page and Sergey Brin on what's next for Google | leapmind | Scoop.it
Google co-founders Larry Page and Sergey Brin recently sat down with billionaire venture capitalist Vinod Khosla for a lengthy interview. During the relaxed and informal discussion, the co-founders...
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The App That Lets You Spy on Yourself and Sell Your Own Data | Enterprise | WIRED

The App That Lets You Spy on Yourself and Sell Your Own Data | Enterprise | WIRED | leapmind | Scoop.it
Citizenme is trying to help users make money from their own data. The company hopes to eventually enable you to sell that data directly to advertisers and others of your choosing.
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Games and the Internet: Fertile Ground for Cultural Change - OpenMind

Games and the Internet: Fertile Ground for Cultural Change - OpenMind | leapmind | Scoop.it
When millions and millions of people make small things on the Internet, one of them eventually blows up and makes a difference.
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RocketSkates bring motors to your feet

RocketSkates bring motors to your feet | leapmind | Scoop.it
Skateboards, bicycles, even scooters — all valid ways to get around, but none quite as eye-catching as the RocketSkates, a Kickstarter effort that ...
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In Less Than a Decade Your Computer Could Be Just One Atom Wide

In Less Than a Decade Your Computer Could Be Just One Atom Wide | leapmind | Scoop.it
Canadian researchers announced huge advances in quantum dot technology.
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DeepMind, MetaMed and Existential Risk and the Intelligence Explosion

DeepMind, MetaMed and Existential Risk and the Intelligence Explosion | leapmind | Scoop.it
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Robot economy: 20 percent of the world’s robots are in China - People's Daily Online

Robot economy: 20 percent of the world’s robots are in China - People's Daily Online | leapmind | Scoop.it
Atapriceofnotmuchmorethan10thousandyuan,withatleastfiveyears’workexpectancy,nosalary,nosocialwelfare
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Experimenting With Drugs In The Cloud | TechCrunch

Experimenting With Drugs In The Cloud  | TechCrunch | leapmind | Scoop.it
A science lab in Mountain View, CA is creating faster and cheaper drug experiments by putting them in the cloud. Starting today, they're letting other..
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Toyota develops high-efficiency ‘free piston’ no-crankshaft combustion engine… to power an EV | ExtremeTech

Toyota develops high-efficiency ‘free piston’ no-crankshaft combustion engine… to power an EV | ExtremeTech | leapmind | Scoop.it
A new design for a piston-free linear engine generator has just been released by Toyota. With remarkable efficiency, the device might be scaled up to compete with electric power plants used in cars today.
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China approves DNA-sequencing devices to detect genetic defects in unborn babies

China approves DNA-sequencing devices to detect genetic defects in unborn babies | leapmind | Scoop.it
Controversial testing products for prenatal detection of birth defects get the green light
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Solar has won. Even if coal were free to burn, power stations couldn't compete

Solar has won. Even if coal were free to burn, power stations couldn't compete | leapmind | Scoop.it
Giles Parkinson: As early as 2018, solar could be economically viable to power big cities. By 2040 over half of all electricity may be generated in the same place it's used.
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36-Year-Old NASA Probe's Engines Successfully Fired Up by Private Team

36-Year-Old NASA Probe's Engines Successfully Fired Up by Private Team | leapmind | Scoop.it
The team intends to rescue the International Sun-Earth Explorer 3 and then focus on what to use the spacecraft for
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Evolution of life's operating system revealed in detail

Evolution of life's operating system revealed in detail | leapmind | Scoop.it
The evolution of the ribosome, a large molecular structure found in the cells of all species, has been revealed in unprecedented detail in a new study.
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