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The experiences of participants in an innovative online resource designed to increase regular walking among rural cancer survivors: a qualitative pilot feasibility study - Online First - Springer

The experiences of participants in an innovative online resource designed to increase regular walking among rural cancer survivors: a qualitative pilot feasibility study - Online First - Springer | Cancer Survivorship | Scoop.it
Purpose

Physical activity has been associated with improved outcomes for cancer survivors. Compared to their urban counterparts, rural Australians experience a health disadvantage, including poorer survival rates after diagnosis of cancer. The aim of this pilot feasibility study was to gain insight into the experiences of rural cancer survivors engaging in an online resource designed to increase regular walking.

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Conclusions

This online pedometer-based walking intervention is feasible and effectively increases motivation for walking and enhances health-related quality of life in South Australian rural cancer survivors. A randomized controlled trial of this intervention is warranted.

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Exercise Program Reduces Aromatase Inhibitor–Associated Joint Pain

Exercise Program Reduces Aromatase Inhibitor–Associated Joint Pain | Cancer Survivorship | Scoop.it

Amid studies of novel targeted therapies, genetic analyses of tumors, and new ways to approach the treatment of breast cancer, a low-tech study presented at the 2013 San Antonio Breast Cancer Symposium found that a yearlong exercise program reduced joint pain associated with aromatase inhibitors in breast cancer survivors.1 This is the first study to examine the impact of exercise vs usual care on the side effects of aromatase inhibitors.

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Survivorship Is Not a Passive Sport | Cancer Network

Survivorship Is Not a Passive Sport | Cancer Network | Cancer Survivorship | Scoop.it

Patients often have astonishing drive and determination while on active treatment. But the new focus on survivorship is tricky.

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Julie Marker's curator insight, March 6, 2014 5:26 AM

'Over to you'.  What to do, how to do it, who is there to advise and monitor?

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Cancer patients should not feel pressure to bounce back to normal immediately

Cancer patients should not feel pressure to bounce back to normal immediately | Cancer Survivorship | Scoop.it
Those who have been through treatment need time and understanding from family, friends and healthcare professionals, says Justin Stebbing
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Mobile Apps for Chronic Cancer Patients

Mobile Apps for Chronic Cancer Patients | Cancer Survivorship | Scoop.it
Which apps can be used by chronic cancer patients to help them with their illness and overall health?
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Deborah Fenlon's curator insight, March 1, 2014 5:24 AM

journal article pointing out a number of apps available 

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Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial

Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial | Cancer Survivorship | Scoop.it
The purpose of this study was to test the effectiveness of a six-week Web-based multiple health behavior change program for adult survivors.
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Deborah Fenlon's curator insight, February 26, 2014 7:45 PM

We based intervention can improve sleep and exercise in cancer survivors, but may not affect dietary behaviour.

 

Teresa Levitch's curator insight, February 27, 2014 6:17 PM

Results: In total, 303 survivors completed the follow-up survey (six months after completion of the baseline survey) and participants in the Web-based intervention condition had significantly greater reductions in insomnia and greater increases in minutes per week of vigorous exercise and stretching compared to controls. There were no significant changes in fruit and vegetable consumption or other outcomes.

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Preparing Our Patients for Survivorship With Prehab

Preparing Our Patients for Survivorship With Prehab | Cancer Survivorship | Scoop.it
Debi Boyle explains the emerging discipline of prehab and how it may improve a cancer patient's quality of life.
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Deborah Fenlon's curator insight, February 23, 2014 9:05 AM

Prehab: we need some research in this area.

 

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Knowledge on Breast Cancer and Its Prevention Among Women Household Heads in Northern Ethiopia.

Knowledge on Breast Cancer and Its Prevention Among Women Household Heads in Northern Ethiopia. | Cancer Survivorship | Scoop.it
Knowledge on Breast Cancer and Its Prevention Among Women Household Heads in Northern Ethiopia.
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OpenNotes Helps Keep Patients Informed and Engaged - US News

OpenNotes Helps Keep Patients Informed and Engaged  - US News | Cancer Survivorship | Scoop.it
Trials found patients
are happier and have better medical outcomes when theycan see
everything in their own medical records
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CDC - Concept - HRQOL

CDC - Concept - HRQOL | Cancer Survivorship | Scoop.it

Although the World Health Organization (WHO) defined health very broadly as long as a half century ago, health in the United States has traditionally been measured narrowly and from a deficit perspective, often using measures of morbidity or mortality. But, health is seen by the public health community as a multidimensional construct1 that includes physical, mental, and social domains.

As medical and public health advances have led to cures and better treatments of existing diseases and delayed mortality, it was logical that those who measure health outcomes would begin to assess the population’s health not only on the basis of saving lives, but also in terms of improving the quality of them.

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Quality of life and health related quality of life – is there a difference?

Quality of life and health related quality of life – is there a difference? | Cancer Survivorship | Scoop.it

What does evidence tell us about the difference between quality of life (QoL) and health related quality of life (HRQoL) and is it easy to differentiate between these two concepts? This is a question I have been exploring recently as I prepare to carry out a research study which will investigate how quality of life changes in patients managed without dialysis once they make the decision not to embark on dialysis. Some patients will die during the course of the study due to advanced age, frailty and associated co morbidity other than renal disease and there is likelt to be changes in QoL.  At three-monthly intervals patients will complete tools with the aim of measuring changes in their QoL longitudinally.

Marie Ennis-O'Connor's insight:

QoL and HRQoL are different but both aim to capture subjective perception and assessment of a patient’s health and well-being. These perception and assessments cannot be identified through laboratory tests, x-ray or other objective testing. Patients’ must carry out this assessment themselves and tools to collect this data must be selected carefully.

 

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A 3-stage model of patient-centered communication for addressing cancer patients’ emotional distress

A 3-stage model of patient-centered communication for addressing cancer patients’ emotional distress | Cancer Survivorship | Scoop.it

Results

A three-stage, conceptual model for assisting clinicians to more effectively address the challenges of recognizing, exploring, and managing cancer patients’ emotional distress in the clinical encounter was developed. To enhance and enact recognition of patients’ emotions, clinicians can engage in mindfulness, self-situational awareness, active listening, and facilitative communication. To enact exploration, clinicians can acknowledge and validate emotions and provide empathy. Finally, clinicians can provide information empathetically, identify therapeutic resources, and give referrals and interventions as needed to help lessen patients’ emotional distress.

Conclusion

This model serves as a framework for future research examining pathways that link clinicians’ emotional cue recognition to patient-centered responses exploring a patient's emotional distress to therapeutic actions that contribute to improved psychological and emotional health.

Practical implications

Specific communicative and cognitive strategies are presented that can help clinicians better recognize a patient's emotional distress and respond in ways that have therapeutic value.


Via rob halkes
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rob halkes's curator insight, January 23, 2014 10:54 AM

Guideline for physicians, great!

(just a pity that the full publication needs to be heavily paid..)

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The Angelina Jolie Effect: What Difference Did It Make?

The Angelina  Jolie Effect: What Difference Did It Make? | Cancer Survivorship | Scoop.it
Seems I missed this study published late last year in Genetics In Medicine, a scientific analysis of the Angelina Jolie effect. You will recall that back in May 2013, Angelina Jolie revealed in a N...
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The results of the study are interesting. While three of four Americans were aware of Angelina Jolie’s double mastectomy, fewer than 10% of respondents had the information necessary to accurately interpret Ms Jolie’s risk of developing cancer relative to a woman unaffected by the BRCA gene mutation.

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I am not a disease, I am not a checklist

I am not a disease, I am not a checklist | Cancer Survivorship | Scoop.it
Lift your eyes from your tired misconceptions, your white washed guidelines, and your market-driven economies. And look at me.
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Cancer rehab dramatically improves cancer care

Cancer rehab dramatically improves cancer care | Cancer Survivorship | Scoop.it
Who would be content living with the debilitating physical and emotional conditions caused by toxic treatments?
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Teresa Levitch's curator insight, March 5, 2014 7:18 PM

Heart patients get Rehab, Joint replacement gets Rehab. Why don't Cancer survivors?

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You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer | Cancer Survivorship | Scoop.it

My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.  

 

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Janne M. Rodsten's curator insight, March 3, 2014 8:04 AM

....I am interested in interviewing women who were pregnant when diagnosed with breast cancer for my doctoral study....

 

Want to know more?  Contact me at janne3.rodsten@uwe.ac.uk 

#pregnantwithcancer

Kathleen D. Hoffman, PhD's curator insight, November 2, 2014 9:52 AM

Congratulations Marie and Gai!

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The Effectiveness of an Internet Support Forum for Carers of People With Dementia

The Effectiveness of an Internet Support Forum for Carers of People With Dementia | Cancer Survivorship | Scoop.it

The well-being of informal carers of people with dementia is an important public health issue. Caring for an elderly relative with dementia may be burdensome and stressful, and can negatively affect the carer’s social, family, and professional life. The combination of loss, the physical demands of caregiving, prolonged distress, and biological vulnerabilities of older carers may compromise their physical health, increase social isolation, and increase the risk of anxiety and depressive disorders. Caregiver stress is also linked to negative outcomes for the recipient of care and costs to society, including increased nursing home and hospital admissions. Consequently, carer support interventions are an important component of dementia care. Computer-mediated carer support offers a range of potential advantages compared to traditional face-to-face support groups, including accessibility and the possibility of tailoring to meet individual needs, but there has been little research on its effectiveness so far.

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Cognitive behavioral therapy plus hypnosis reduces fatigue in radiotherapy breast cancer patients

Cognitive behavioral therapy plus hypnosis reduces fatigue in radiotherapy breast cancer patients | Cancer Survivorship | Scoop.it

Breast cancer patients receiving radiotherapy showed decreased fatigue as a result of cognitive behavioral therapy plus hypnosis (CBTH), according to a study recently published in the Journal of Clinical Oncology.

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Interesting study

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Le cancer n'est pas une guerre

Le cancer n'est pas une guerre | Cancer Survivorship | Scoop.it
Does it make sense to use a concept based on the deliberate slaughter of man as a synonym for healing? Is it fair to demand of patients that they be both soldier and victim, good and bad?

Via Giovanna Marsico
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Study Compares Survival Rates of Women After Lumpectomy, Mastectomy

Living Beyond Breast Cancer - LBBC empowers all women affected by breast cancer to live as long as possible with the best quality of life.
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Rural Breast Cancer Patients and Survivor’s Perspectives using Online Health Resources

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Deborah Fenlon's curator insight, March 9, 2014 7:51 PM

Health care workers should take time to advise people about best web resources.

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Your Guide to the Latest Cancer Research and Treatments: Highlights from the 2013 Annual Meeting of the American Society of Clinical Oncology - Connect Booklet | CancerCare

Your Guide to the Latest Cancer Research and Treatments: Highlights from the 2013 Annual Meeting of the American Society of Clinical Oncology - Connect Booklet | CancerCare | Cancer Survivorship | Scoop.it
CancerCare is a national nonprofit organization providing free, professional support services for anyone affected by cancer.
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Heather Swift's curator insight, February 12, 2014 3:03 PM
Your Guide to the Latest Cancer Research and Treatments: Highlights from the 2013 Annual Meeting of the American Society of Clinical Oncology
Heather Swift's curator insight, March 16, 2014 8:53 PM

Your Guide to the Latest Cancer Research and Treatments: Highlights from the 2013 Annual Meeting of the American Society of Clinical Oncology - Connect Booklet | CancerCare

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PoCoG - Quality of Life

PoCoG - Quality of Life | Cancer Survivorship | Scoop.it

Cancer can affect a person in many ways. The diagnosis may cause fear, anxiety and depression. Psychological distress, the symptoms of cancer and side effects from its treatment can all impact negatively on well-being and affect everyday roles and activities. On the other hand, a person may feel that the experience of cancer strengthens their relationships and gives them new and rewarding perspectives on life.

The need to balance the benefits and disadvantages of cancer treatments provides a compelling reason for incorporating HRQoL into the testing of new treatments. PoCoG is committed to developing collaboration between psycho-social researchers and clinical trials groups to more effectively take patients’ perceptions into account.

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Practising in partnership with Dr Google - Focus - November-December-2013 Issue 57 - Cancer World - Shaping the future of cancer care

Practising in partnership with Dr Google - Focus - November-December-2013 Issue 57 - Cancer World - Shaping the future of cancer care | Cancer Survivorship | Scoop.it
Online communities can help patients learn about and weigh up the options open to them.
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add your insight...

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Trailblazers

Trailblazers | Cancer Survivorship | Scoop.it
I have met brave women who are exploring the outer edge of human possibility with no history to guide them, and with a courage to make themselves vulnerable that I find moving beyond words - Gloria...
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