Cancer Survivorship
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Helping breast cancer patients make choices about reconstruction

Helping breast cancer patients make choices about reconstruction | Cancer Survivorship | Scoop.it
Information plus patient preferences can help in sorting through reconstruction options, according to plastic and reconstructive surgeryDecision analysis techniques can help surgeons and...
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People with cancer need dedicated treatment to tackle depression

People with cancer need dedicated treatment to tackle depression | Cancer Survivorship | Scoop.it
Major depression is much more common among cancer sufferers – but trial shows a possible way forward.
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Do more for depressed cancer patients – study

Do more for depressed cancer patients – study | Cancer Survivorship | Scoop.it
Three-quarters do not get treatment, say researchers, as 'spectacular' results from new therapy hailed
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Clinical Oncology News - Second Cancer: For Many, It’s the Price of Survival

Clinical Oncology News - Second Cancer: For Many, It’s the Price of Survival | Cancer Survivorship | Scoop.it

It’s one of the cruel truths about cancer: The price of survival comes with an increased risk for a second cancer. Although this has been known for decades, what’s changed is that oncologists and primary care doctors are seeing a significant upsurge in patients with second cancers as survivors age—a “rising tide of second cancers,” according to one National Cancer Institute (NCI) investigator.

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STAR Program Survivor Video- Can Cancer Rehabilitation Help Me? - YouTube

Patient educational video about the STAR Program for cancer rehabilitation
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Cancer-Related Disclosure Among Adolescent and Young Adult Cancer Survivors: A Qualitative Study | Abstract

Cancer-Related Disclosure Among Adolescent and Young Adult Cancer Survivors: A Qualitative Study | Abstract | Cancer Survivorship | Scoop.it

Grounded theory and thematic content analysis guided analyses, with an inductive data-driven approach. Three themes and eight subthemes emerged: “it depends” decision-making processes (don't ask/don't tell, shared experience, relationship potential), perceptions of others' responses (perceived apprehension, positive responses), and methods of disclosure (verbal, written, behavioral). No thematic differences were found by gender or age, although females reported greater frequency of disclosures.

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Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App

Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App | Cancer Survivorship | Scoop.it
Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App
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Survivors demand a fair deal from financial services

Survivors demand a fair deal from financial services | Cancer Survivorship | Scoop.it
Companies should no longer be allowed to deny mortgage or insurance services to cancer survivors without explanation or a transparent risk assessment, say patient advocates.
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Co-Creation in Health Care

Co-Creation in Health Care | Cancer Survivorship | Scoop.it

Experience co-creation in health care is an effective method to innovate value to patients in a personalized way, in collaboration with all relevant stakeholders.
It is intended to benefit patients in coping with their health conditions and to arrive at a satisfying state of quality of life, given their specific personal health conditions.

 

Working together is conditional to health care. But "Co-Creation" and "Experience Co-Creation" are not like “working together” in a traditional way. The concept of the method of co-creation is rather based on acknowledging the difficulties in health care to work together. “Experience co-creation in care” enables personalization of health care tailored to the patient conditions and preferences. It drives the effectiveness of the total process: efficacy of medical interventions, therapy, rehabilitation and lifestyle.


Via rob halkes
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rob halkes's curator insight, May 28, 2014 11:26 AM

I just wanted to create a quick overview of what Co-creation in Care looks like.

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Patient Engagement Takes a Community and More

Patient Engagement Takes a Community and More | Cancer Survivorship | Scoop.it
Patient engagement extends beyond a clinical setting into our daily activities and interactions. This is where patient engagement converts into health leadership.
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What to Say (and What Not to Say) to Someone Facing Cancer

What to Say (and What Not to Say) to Someone Facing Cancer | Cancer Survivorship | Scoop.it

It can be hard to find the right words to say to comfort someone coping with cancer. At times, we might even avoid contact completely because we fear saying the wrong thing. Here are some suggestions for what to say – and what not to say – to a loved one, friend, or coworker facing cancer.

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Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children

Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children | Cancer Survivorship | Scoop.it

The presence of cancer and additional parental responsibilities can increase strain for individual patients as well as for their children. The construct of health-related quality of life (HRQL) is appropriate to measure a combination of physical, mental and social consequences as a result of disease. However, previous research has merely focused on symptom checklists. This study addresses the following questions: (i) does HRQL in children and their parents with cancer differ compared to the general population? (ii) Are there any variables that are associated with HRQL in children? (iii) What are current psychosocial support needs? A population-based survey of 976 survivors (<6 years post diagnosis) with minor children between 6 and 18 years (n = 1,449) was conducted with two German cancer registries. HRQL was assessed using SF-8 (survivors) and Kidscreen (children). The results were compared to normative populations, and predictors associated with HRQL in children were evaluated within a multilevel model. We found that the HRQL in children was better compared to the norm. Only children with support needs had worse HRQL. Older age, having a mother with cancer, having a parent not living together with a partner, and worse parental physical and mental health influenced HRQL in children. Illness characteristics were irrelevant. Even with a mean of 3.5 years after diagnosis, survivors had lower physical and mental health compared to the norm. Our findings reinforce the need for health professionals to pay attention to younger patients and their children. Even years after diagnosis, life might not have returned to normal.

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Deborah Fenlon's curator insight, May 24, 2014 6:07 AM

Should we pay more attention to the impact of cancer on the families and children?

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Distress during breast cancer treatment reduced by cognitive behavioral or relaxation training

Distress during breast cancer treatment reduced by cognitive behavioral or relaxation training | Cancer Survivorship | Scoop.it
Can psychological intervention help women adapt to the stresses of breast cancer?
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Oncology Massage: a valuable resource for patients | Oncology News Australia | Australia's Specialist Oncology News Portal

Oncology Massage: a valuable resource for patients | Oncology News Australia | Australia's Specialist Oncology News Portal | Cancer Survivorship | Scoop.it
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A novel way to get patients to eat their fruits and vegetables Have them grow their own

A novel way to get patients to eat their fruits and vegetables Have them grow their own | Cancer Survivorship | Scoop.it
A novel program helps patients with cancer eat better by helping them grow their own fruits and vegetables.
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What's Making Survivorship Care Planning So Difficult to Incorporate?

Despite the Institutes of Medicine having recommended in its 2005 From Cancer Patient to Cancer Survivor: Lost in Transition report that survivorship care plans be written for every cancer patient, and despite the Commission on Cancer (CoC) having decided in 2012 to require all accredited cancer centers to prepare survivorship care plans for all cancer patients at the completion of treatment, the latest data find that implementing survivorship care planning is not getting done.

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My Treatment Is Over: Now What? - Cancer Today

My Treatment Is Over: Now What? - Cancer Today | Cancer Survivorship | Scoop.it

Many people are shocked to discover that the days, weeks and even months after cancer treatment is over can be more challenging than the treatment itself. Of course, the physical insults lessen, and we gradually regain energy and, in cases where treatment involves some types of chemotherapy, hair. The emotional fallout, however, persists long after surgery, radiation or chemotherapy.

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Engagement with a Social Networking Intervention for Cancer-Related Distress

Engagement with a Social Networking Intervention for Cancer-Related Distress | Cancer Survivorship | Scoop.it

Understanding patterns and predictors of engagement could improve the efficacy of Internet interventions.

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5 Fertility-Saving Options for Women Facing Cancer Treatment - The Breast Doc

5 Fertility-Saving Options for Women Facing Cancer Treatment - The Breast Doc | Cancer Survivorship | Scoop.it
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Physical and Mental Health Among Cancer Survivors: Considerations for Long-Term Care and Quality of Life

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The Stories We Tell: Women, Cancer, and Social Media

The Stories We Tell: Women, Cancer, and Social Media | Cancer Survivorship | Scoop.it

In this age of online communication, social media plays a bigger role in many women’s journeys.

By Mia James

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How the patient portal is changing medical practice

How the patient portal is changing medical practice | Cancer Survivorship | Scoop.it

"Medical practice has begun its inevitable journey toward this transformation when, unless an exam or a procedure is required, most medical questions and answers, as well as virtually all medication refills and renewals, appointment requests, interpretation and discussion of the implications of lab and imaging results will be conducted online rather than in the office.

 

The reimbursement system in the health care of the future will simply have to take this into account, as we slowly transition to a fee-for-service to a care management."


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Giving patients access to their health data: pilot results

Giving patients access to their health data: pilot results | Cancer Survivorship | Scoop.it
Since 2012, eleven regions from across the European Union have been participating in the EU-funded SUSTAINS project: a joint learning initiative giving patients access to their personal health records
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Protecting patients' nervous systems: Are we getting the care-cure balance right?

Protecting patients' nervous systems: Are we getting the care-cure balance right? | Cancer Survivorship | Scoop.it
The debilitating impact neurotoxic drugs can have on patients� long-term quality of life has been systematically underestimated. Can oncologists do more to pick up potential symptoms before they becom
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Conquer fear: protocol of a randomised controlled trial of a psychological intervention to reduce fear of cancer recurrence

Conquer fear: protocol of a randomised controlled trial of a psychological intervention to reduce fear of cancer recurrence | Cancer Survivorship | Scoop.it
Up to 70% of cancer survivors report clinically significant levels of fear of cancer recurrence (FCR). Despite the known negative impact of FCR on psychological wellbeing and quality of life, little research has investigated interventions for high FCR. Our team has developed and piloted a novel intervention (Conquer Fear) based on the Self-Regulatory Executive Function Model and Relational Frame Theory and is evaluating Conquer Fear in a randomised controlled trial (RCT). We aim to compare the efficacy and cost-efficacy of the Conquer Fear Intervention and relaxation training in reducing the impact of FCR.
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