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3 Reasons Doctors Need to Understand Patients Health Beliefs

3 Reasons Doctors Need to Understand Patients Health Beliefs | Journeying Beyond Breast Cancer | Scoop.it
3 Reasons Doctors Need to Understand Patients Health Beliefs is described with examples of patients' stories to illustrate the importance.
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Routes From Diagnosis Cancer Survivorship Report

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Teresa Levitch's curator insight, April 4, 3:03 AM

Wonderful charts, in depth information about survivorship issues. It can be downloaded for reading offline.

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More psychological support needed for breast cancer patients

More psychological support needed for breast cancer patients | Journeying Beyond Breast Cancer | Scoop.it

For women who are have  breast cancer, concern for their children is the greatest source of worry.

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Katz: ‘Participatory Medicine’ encourages partnership between patient and provider

Katz: ‘Participatory Medicine’ encourages partnership between patient and provider | Journeying Beyond Breast Cancer | Scoop.it
For hundreds of years, the physician-patient relationship has seen the physician as the authoritative, sometimes dictatorial, healer — the unquestioned expert on care, protocols and medical regimens. The patient assumed the role of a passive receiver of information, taking orders and instruction from the doctor.
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Prospective Study of Fertility Concerns and Preservation Strategies in Young Women With Breast Cancer

Most research regarding fertility in young women with breast cancer has focused on long-term survivors. Little is known about how fertility concerns affect treatment decisions or fertility preservation strategies at the time of initial cancer diagnosis.

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Results 

 

Among the first 620 eligible respondents included in this analysis, median age was 37 years (range, 17 to 40 years); 425 women (68%) discussed fertility issues with their physicians before starting therapy, and 319 (51%) were concerned about becoming infertile after treatment. Because of concerns about fertility, four women (1%) chose not to receive chemotherapy, 12 (2%) chose one chemotherapy regimen over another, six (1%) considered not receiving endocrine therapy, 19 (3%) decided not to receive endocrine therapy, and 71 (11%) considered receiving endocrine therapy for < 5 years; 65 (10%) used fertility preservation strategies. Greater concern about fertility was associated with younger age, nonwhite race, not having children, and receipt of chemotherapy.

 

Conclusion 

 

Many young women with newly diagnosed breast cancer have concerns about fertility, and for some, these substantially affect their treatment decisions. Only a minority of women currently pursue available fertility preservation strategies in this setting.

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A Proposal: Seven Steps to Eliminating the “War” Analogy in Cancer Care | ASCO Connection

A Proposal: Seven Steps to Eliminating the “War” Analogy in Cancer Care | ASCO Connection | Journeying Beyond Breast Cancer | Scoop.it

From a philosophical standpoint, one of the things I hate most about cancer is the use of “war” analogies. The “battle” may mobilize patients and families, but it may also interfere with education and informed decision making. And both patients and clinicians often take recurrence or disease progression personally as a failure. Even when everything is done perfectly, the outcomes aren’t. Why compound grief with the unnecessary stigma of “losing the war”?

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Teresa Levitch's curator insight, March 6, 4:12 AM

The "war on cancer" an outdated term? Yes and this article tells us why.

Heather Swift's curator insight, March 16, 5:42 PM

A Proposal: Seven Steps to Eliminating the “War” Analogy in Cancer Care

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I am not a disease, I am not a checklist

I am not a disease, I am not a checklist | Journeying Beyond Breast Cancer | Scoop.it
Lift your eyes from your tired misconceptions, your white washed guidelines, and your market-driven economies. And look at me.
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Cancer rehab dramatically improves cancer care

Cancer rehab dramatically improves cancer care | Journeying Beyond Breast Cancer | Scoop.it
Who would be content living with the debilitating physical and emotional conditions caused by toxic treatments?
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Teresa Levitch's curator insight, March 5, 4:18 PM

Heart patients get Rehab, Joint replacement gets Rehab. Why don't Cancer survivors?

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You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer | Journeying Beyond Breast Cancer | Scoop.it

My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.  

 

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Janne M. Rodsten's curator insight, March 3, 5:04 AM

....I am interested in interviewing women who were pregnant when diagnosed with breast cancer for my doctoral study....

 

Want to know more?  Contact me at janne3.rodsten@uwe.ac.uk 

#pregnantwithcancer

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The Effectiveness of an Internet Support Forum for Carers of People With Dementia

The Effectiveness of an Internet Support Forum for Carers of People With Dementia | Journeying Beyond Breast Cancer | Scoop.it

The well-being of informal carers of people with dementia is an important public health issue. Caring for an elderly relative with dementia may be burdensome and stressful, and can negatively affect the carer’s social, family, and professional life. The combination of loss, the physical demands of caregiving, prolonged distress, and biological vulnerabilities of older carers may compromise their physical health, increase social isolation, and increase the risk of anxiety and depressive disorders. Caregiver stress is also linked to negative outcomes for the recipient of care and costs to society, including increased nursing home and hospital admissions. Consequently, carer support interventions are an important component of dementia care. Computer-mediated carer support offers a range of potential advantages compared to traditional face-to-face support groups, including accessibility and the possibility of tailoring to meet individual needs, but there has been little research on its effectiveness so far.

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Cognitive behavioral therapy plus hypnosis reduces fatigue in radiotherapy breast cancer patients

Cognitive behavioral therapy plus hypnosis reduces fatigue in radiotherapy breast cancer patients | Journeying Beyond Breast Cancer | Scoop.it

Breast cancer patients receiving radiotherapy showed decreased fatigue as a result of cognitive behavioral therapy plus hypnosis (CBTH), according to a study recently published in the Journal of Clinical Oncology.

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Interesting study

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Le cancer n'est pas une guerre

Le cancer n'est pas une guerre | Journeying Beyond Breast Cancer | Scoop.it
Does it make sense to use a concept based on the deliberate slaughter of man as a synonym for healing? Is it fair to demand of patients that they be both soldier and victim, good and bad?

Via Giovanna Marsico
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Study Compares Survival Rates of Women After Lumpectomy, Mastectomy

Living Beyond Breast Cancer - LBBC empowers all women affected by breast cancer to live as long as possible with the best quality of life.
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European Cancer Patient’s Bill of Rights

European Cancer Patient’s Bill of Rights | Journeying Beyond Breast Cancer | Scoop.it

The European Cancer Patient's Bill of Rights is the result of two years of work by  the European Cancer Concord (ECC), an equal partnership between European oncology leaders and patients and their representatives  who have come together to address the significant disparities that exist for European cancer patients. ECC is a patient-centered initiative, born out of the need to deliver an optimal standard of cancer care and research for Europe's citizens.  Strengthening and upholding the rights of the individual cancer patient/cancer survivor are the guiding principles of this initiative. 

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Are tumour boards defunct? Cancer World - Shaping the future of cancer care

Are tumour boards defunct?  Cancer World - Shaping the future of cancer care | Journeying Beyond Breast Cancer | Scoop.it
The complexity of cancer, the risks and benefits associated with alternative treatment options, the care needs of patients, all point to the need for input from specialists in many disciplines.
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Patient advocacy influential in drug development, says panel

Patient advocacy influential in drug development, says panel | Journeying Beyond Breast Cancer | Scoop.it
Patient advocacy groups are an increasingly valuable resource for pharma manufacturers and FDA throughout the drug development process, since they provide, among other things, a crucial perspective, according to a New York Pharma Forum panel last...

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PV Reporter's curator insight, March 23, 7:53 AM

Patient advocacy influential in drug development - http://bit.ly/OKGM02 #patient #cancer #drug

Tambre Leighn's curator insight, March 23, 8:13 AM

Advocacy DOES make a difference.  Through advocacy, we raise awareness, educate and empower.  Who better than those directly using pharma solutions to address an illness than the patients.  

 

As a coach, I've seen over and over the healing value of patients taking an advocacy role - be it by taking part in a Relay for Life, speaking out to lawmakers or starting non-profits to raise funds for a cause near and dear to them.

 

We must speak up to create the changes we believe will improve the quality of life for survivors, caregivers and their healthcare practitioners.  How will you raise your voice?  

Tambre Leighn's curator insight, March 23, 8:14 AM

Advocacy DOES make a difference.  Through advocacy, we raise awareness, educate and empower.  Who better than those directly using pharma solutions to address an illness than the patients.  

 

As a coach, I've seen over and over the healing value of patients taking an advocacy role - be it by taking part in a Relay for Life, speaking out to lawmakers or starting non-profits to raise funds for a cause near and dear to them.

 

We must speak up to create the changes we believe will improve the quality of life for survivors, caregivers and their healthcare practitioners.  How will you raise your voice?  

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Breast Self-Exam Debate Finally Settled

Breast Self-Exam Debate Finally Settled | Journeying Beyond Breast Cancer | Scoop.it
Remember when your doctor told you to “feel your boobies” at least once a month in the shower (or wherever you prefer to grope yourself) to check for any changes? If you haven't heard this medical
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Oncology Rehabilitation Outcomes Over Time: A Mixed-Methods Approach -

Oncology Rehabilitation Outcomes Over Time: A Mixed-Methods Approach - | Journeying Beyond Breast Cancer | Scoop.it
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Deborah Fenlon's curator insight, March 7, 2:20 PM

Rehabilitation programme improves cancer patient outcomes

Teresa Levitch's curator insight, March 8, 5:00 AM

Program motivators were effective in helping cancer survivors maintain some increased activity and retain positive perceptions well after the completion of the program.

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The experiences of participants in an innovative online resource designed to increase regular walking among rural cancer survivors: a qualitative pilot feasibility study - Online First - Springer

The experiences of participants in an innovative online resource designed to increase regular walking among rural cancer survivors: a qualitative pilot feasibility study - Online First - Springer | Journeying Beyond Breast Cancer | Scoop.it
Purpose

Physical activity has been associated with improved outcomes for cancer survivors. Compared to their urban counterparts, rural Australians experience a health disadvantage, including poorer survival rates after diagnosis of cancer. The aim of this pilot feasibility study was to gain insight into the experiences of rural cancer survivors engaging in an online resource designed to increase regular walking.

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Conclusions

This online pedometer-based walking intervention is feasible and effectively increases motivation for walking and enhances health-related quality of life in South Australian rural cancer survivors. A randomized controlled trial of this intervention is warranted.

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Exercise Program Reduces Aromatase Inhibitor–Associated Joint Pain

Exercise Program Reduces Aromatase Inhibitor–Associated Joint Pain | Journeying Beyond Breast Cancer | Scoop.it

Amid studies of novel targeted therapies, genetic analyses of tumors, and new ways to approach the treatment of breast cancer, a low-tech study presented at the 2013 San Antonio Breast Cancer Symposium found that a yearlong exercise program reduced joint pain associated with aromatase inhibitors in breast cancer survivors.1 This is the first study to examine the impact of exercise vs usual care on the side effects of aromatase inhibitors.

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Survivorship Is Not a Passive Sport | Cancer Network

Survivorship Is Not a Passive Sport | Cancer Network | Journeying Beyond Breast Cancer | Scoop.it

Patients often have astonishing drive and determination while on active treatment. But the new focus on survivorship is tricky.

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Julie Marker's curator insight, March 6, 2:26 AM

'Over to you'.  What to do, how to do it, who is there to advise and monitor?

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Cancer patients should not feel pressure to bounce back to normal immediately

Cancer patients should not feel pressure to bounce back to normal immediately | Journeying Beyond Breast Cancer | Scoop.it
Those who have been through treatment need time and understanding from family, friends and healthcare professionals, says Justin Stebbing
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Mobile Apps for Chronic Cancer Patients

Mobile Apps for Chronic Cancer Patients | Journeying Beyond Breast Cancer | Scoop.it
Which apps can be used by chronic cancer patients to help them with their illness and overall health?
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Deborah Fenlon's curator insight, March 1, 2:24 AM

journal article pointing out a number of apps available 

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Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial

Surviving and Thriving With Cancer Using a Web-Based Health Behavior Change Intervention: Randomized Controlled Trial | Journeying Beyond Breast Cancer | Scoop.it
The purpose of this study was to test the effectiveness of a six-week Web-based multiple health behavior change program for adult survivors.
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Deborah Fenlon's curator insight, February 26, 4:45 PM

We based intervention can improve sleep and exercise in cancer survivors, but may not affect dietary behaviour.

 

Teresa Levitch's curator insight, February 27, 3:17 PM

Results: In total, 303 survivors completed the follow-up survey (six months after completion of the baseline survey) and participants in the Web-based intervention condition had significantly greater reductions in insomnia and greater increases in minutes per week of vigorous exercise and stretching compared to controls. There were no significant changes in fruit and vegetable consumption or other outcomes.

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Preparing Our Patients for Survivorship With Prehab

Preparing Our Patients for Survivorship With Prehab | Journeying Beyond Breast Cancer | Scoop.it
Debi Boyle explains the emerging discipline of prehab and how it may improve a cancer patient's quality of life.
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Deborah Fenlon's curator insight, February 23, 6:05 AM

Prehab: we need some research in this area.