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New Recommendations for Preventing and Managing Neuropathy, Fatigue, Depression, and Anxiety

New Recommendations for Preventing and Managing Neuropathy, Fatigue, Depression, and Anxiety | Journeying Beyond Breast Cancer | Scoop.it
Peripheral neuropathy, fatigue, depression, and anxiety affect many people both during and after cancer treatment. ASCO recently published guidelines outlining the best ways to prevent and manage these side effects based on current research.
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10 Ways to Talk With Your Child About Cancer

10 Ways to Talk With Your Child About Cancer | Journeying Beyond Breast Cancer | Scoop.it
Having to tell others about your cancer diagnosis can be very challenging and uncomfortable. Sharing the news with a young child or teenager can be even more difficult. Many patients I talk with are hesitant to tell their children about their diagnosis...
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Doctor Priorities vs. Patient Priorities

Doctor Priorities vs. Patient Priorities | Journeying Beyond Breast Cancer | Scoop.it
For my patient, his wide-angle lens took in the whole of his life, of which diabetes was one small part. For me, in the 20 minutes allotted, my lens was narrowly focused on the disease that posed the gravest and most immediate risk to his health.
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Decision-making input linked to more satisfied cancer patients

NEW YORK (Reuters Health) - Regardless of whether cancer patients sought to be involved in decisions about their treatment, those who were ended up more satisfied with their care, according to a recent
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How Cancer Changed My Career

How Cancer Changed My Career | Journeying Beyond Breast Cancer | Scoop.it
The date: September 29 2004.The venue: Cancer ClinicThe outcome: A massive career curve ballA decade ago I was starting my career as a public relations officer working in the public affairs
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Beyond the platitudes: Thorny challenges in delivering patient-centered care.

Beyond the platitudes:  Thorny challenges in delivering patient-centered care. | Journeying Beyond Breast Cancer | Scoop.it
Blog post by Dr. Michael Fisch The phrase “patient-centered care” is ubiquitous in discussions of healthcare delivery. There are innumerable conceptual models for patient-centered care and even a r...
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Mother's Day and Birthdays: A Wish for Young Women

Mother's Day and Birthdays: A Wish for Young Women | Journeying Beyond Breast Cancer | Scoop.it
I am concerned that, when it comes to sharing what we know with our daughters, we face a challenge we did not anticipate....
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ASCO Releases Adapted Guideline on Screening, Assessment, and Management of Fatigue in Adult Survivors of Cancer

ASCO Releases Adapted Guideline on Screening, Assessment, and Management of Fatigue in Adult Survivors of Cancer | Journeying Beyond Breast Cancer | Scoop.it

A majority of cancer patients experience some level of fatigue during their course of treatment, and approximately 30% contend with persistent fatigue for years after treatment. Fatigue is among the most common and distressing long-term effects of cancer treatment and significantly affects patient quality of life. ASCO has adapted a pan-Canadian guideline on screening, assessment, and care of cancer-related fatigue in adults with cancer, the National Comprehensive Cancer Network (NCCN) Guideline for Cancer-Related Fatigue, and the NCCN Guidelines for Survivorship for use in the screening, assessment, and management of fatigue in adult survivors of cancer.

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Teresa Levitch's curator insight, April 15, 1:38 PM

 Fatigue is among the most common and distressing long-term effects of cancer treatment and significantly affects patient quality of life.

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Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges

Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges | Journeying Beyond Breast Cancer | Scoop.it

The involvement of patients in the design and conduct of research is increasingly promoted by policy and research bodies. The experiences of individuals who become involved in research in this way are not well understood. This study aims to describe the experiences of people's participation in patient and public involvement (PPI) in supportive and palliative care research, specifically with respect to the benefits and challenges of participation for the individuals and the broader research support structures.

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How to (Respectfully) Disagree With Your Physician

How to (Respectfully) Disagree With Your Physician | Journeying Beyond Breast Cancer | Scoop.it

When we aren’t feeling well or sense something is wrong with us, we head to the doctor to get professional insight. But what happens if we don’t agree with our doctor’s expert opinion?

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Shared-Decision Making — A Method to Creating Positive Outcomes

Shared-Decision Making — A Method to Creating Positive Outcomes | Journeying Beyond Breast Cancer | Scoop.it
“No Decision About Me, Without Me” is a directive for patient care that is taking hold around the globe. The vision is for patients and clinicians to reach decisions about treatment together, with a shared understanding of the condition, the options available, and the risks and benefits of each of those. While this is the  Read more
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Fertility drugs may not increase breast cancer risk, say researchers

Fertility drugs may not increase breast cancer risk, say researchers | Journeying Beyond Breast Cancer | Scoop.it
New research suggests that using fertility medication - such as clomiphene citrate (Clomid) or gonadotropins - does not increase a woman's risk of developing breast cancer.
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3 Reasons Doctors Need to Understand Patients Health Beliefs

3 Reasons Doctors Need to Understand Patients Health Beliefs | Journeying Beyond Breast Cancer | Scoop.it
3 Reasons Doctors Need to Understand Patients Health Beliefs is described with examples of patients' stories to illustrate the importance.
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Reading Health Care News

Reading Health Care News | Journeying Beyond Breast Cancer | Scoop.it

From April 16, 2006, through May 30, 2013, a team of reviewers from HealthNewsReview.org, many of whom were physicians, evaluated the reporting by US news organizations on new medical treatments, tests, products, and procedures. After reviewing 1889 stories (approximately 43% newspaper articles, 30% wire or news services stories, 15% online pieces [including those by broadcast and magazine companies], and 12% network television stories), the reviewers graded most stories unsatisfactory on 5 of 10 review criteria: costs, benefits, harms, quality of the evidence, and comparison of the new approach with alternatives. Drugs, medical devices, and other interventions were usually portrayed positively; potential harms were minimized, and costs were ignored. Our findings can help journalists improve their news stories and help physicians and the public better understand the strengths and weaknesses of news media coverage of medical and health topics.

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It Takes All Kinds - Cancer Today

It Takes All Kinds - Cancer Today | Journeying Beyond Breast Cancer | Scoop.it

On any given day, you can find news stories touting the next big cancer-fighting food. But despite catchy headlines that promise miracles and cures, epidemiologist Maki Inoue-Choi from the University of Minnesota, Twin Cities, in Minneapolis, suggests that efforts to reduce cancer risk shouldn’t center on one nutritional line of defense. 

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National Fertility Preservation Register: datatabase to help cancer patients with fertility issues

National Fertility Preservation Register: datatabase to help cancer patients with fertility issues | Journeying Beyond Breast Cancer | Scoop.it
DISCOVERING they have cancer is a big enough blow for a young person, but only half are getting access to services to preserve their fertility from the treatment.
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Patients need support to self manage their long term conditions | BMJ

Patients need support to self manage their long term conditions | BMJ | Journeying Beyond Breast Cancer | Scoop.it

People may benefit from developing the skills that enable self management, writes Anya de Iongh, and this can benefit health systems too

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Trends in cancer care The power of the epatient

Trends in cancer care The power of the epatient | Journeying Beyond Breast Cancer | Scoop.it
Not all epatients are Internet savvy, but they are engaged, educated, equipped, and enabled to be experts and equal partners in their care.
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What Are The Issues Facing Younger Women With Breast Cancer?

What Are The Issues Facing Younger Women With Breast Cancer? | Journeying Beyond Breast Cancer | Scoop.it
Being diagnosed with breast cancer at any age is an overwhelming and frightening experience, but being diagnosed with breast cancer when you are a younger woman brings its own unique challenges. Fa...
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ASCO Issues Adapted Guideline on Screening, Assessment, and Care of Anxiety and Depressive Symptoms in Adults With Cancer

ASCO Issues Adapted Guideline on Screening, Assessment, and Care of Anxiety and Depressive Symptoms in Adults With Cancer | Journeying Beyond Breast Cancer | Scoop.it

ASCO has adapted the Pan-Canadian Practice Guideline on Screening, Assessment, and Care of Psychosocial Distress (Depression, Anxiety) in Adults With Cancer for use in the screening, assessment, and care of anxiety and depressive symptoms in adults with cancer. The adapted guideline, reported in the Journal of Clinical Oncology by Andersen et al, applies to patients aged ≥ 18 years at any phase of the cancer continuum and regardless of cancer type, disease stage, or treatment modality, and is targeted to professional health-care providers including medical, surgical, and radiation oncologists, psychiatrists, psychologists, primary care providers, nurses, and others involved in care, as well as to patients, family members, and caregivers.

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Teresa Levitch's curator insight, April 15, 1:37 PM

It is recommended that patients be screened for depression and anxiety before diagnosis, at regular intervals thereafter, and as needed.

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ASCO Releases Guideline on Prevention and Management of Chemotherapy-Induced Peripheral Neuropathy in Survivors of Adult Cancers

ASCO Releases Guideline on Prevention and Management of Chemotherapy-Induced Peripheral Neuropathy in Survivors of Adult Cancers | Journeying Beyond Breast Cancer | Scoop.it

The American Society of Clinical Oncology has released a clinical practice guideline on prevention and treatment of chemotherapy-induced peripheral neuropathy in adult cancer patients, published in the Journal of Clinical Oncology. The overall incidence of chemotherapy-induced peripheral neuropathy is estimated at close to 40% in patients treated with multiple agents, with reported rates varying according to chemotherapy regimens, duration of exposure, and assessment methods; regimens associated with higher risk are those including platinum drugs, vinca alkaloids, bortezomib (Velcade), and taxanes.

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Teresa Levitch's curator insight, April 15, 1:41 PM

The guidelines resulted from the efforts of an expert panel with representation from the fields of medical oncology, community oncology, nursing, pain research, genetics, neurology, pharmacology, patient representation, and guideline methodology.

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Driving Patient Centered Medicine

Driving Patient Centered Medicine | Journeying Beyond Breast Cancer | Scoop.it

Today's guest post is written by Byran Litton, Senior Director, U.S. Oncology Business Unit at Eli Lilly and Company. He shares his thoughts on the recent Eye for Pharma Oncology USA Summit in Cambridge, Massachusetts.

Marie Ennis-O'Connor's insight:

Each person with cancer has a unique experience, and  every perspective provides valuable insight into how we can make our health system more patient-centered.

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Deborah Fenlon's curator insight, April 16, 5:25 PM

Patient centred care is the new buzz word, but let's make sure we all know what we mean by patient centred care!

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Initiatives open up patient access to their health info

Initiatives open up patient access to their health info | Journeying Beyond Breast Cancer | Scoop.it

A number of buzz phrases in health care today describe a new focus on patients taking an active role in their health: “personal health records,” “participatory medicine,” “shared decision making,” and “patient engagement,” to name a few. Patients are demanding transparency and access to their health information, and recent initiatives from the government and private insurers are addressing these demands.

In 2014, there remain significant barriers to a broad, connected patient community, not the least of which is patients’ access to their own health information. In this article, I will address some recent developments that show these barriers are starting to come down.

 

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ASCO Turns Attention to Community Researchers With Community Research Forum

ASCO Turns Attention to Community Researchers With Community Research Forum | Journeying Beyond Breast Cancer | Scoop.it

The implementation of clinical trials and quality research programs by community-based investigators and research staff is one of the most effective weapons available in the fight against cancer. The ASCO Community Research Forum was designed in support of this mission and to aid these professionals in navigating and overcoming the challenges that are unique to community-based research.

 

“The Community Research Forum is a group that has been established to think critically about the problems and challenges to doing clinical cancer research in the community setting, identify those problems, and, with the support of ASCO staff, help to solve those problems,” said Nicholas J. Robert, MD, Chair of the Community Research Forum subcommittee and a medical oncologist with Virginia Cancer Specialists, Fairfax, Virginia.

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Why The Sun newspaper breast check campaign may actually harm women

Why The Sun newspaper breast check campaign may actually harm women | Journeying Beyond Breast Cancer | Scoop.it
A breast check campaign by The Sun newspaper may actually harm women, warns Glasgow GP Margaret McCartney on bmj.com.
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