My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.
Experience co-creation in health care is an effective method to innovate value to patients in a personalized way, in collaboration with all relevant stakeholders. It is intended to benefit patients in coping with their health conditions and to arrive at a satisfying state of quality of life, given their specific personal health conditions.
Working together is conditional to health care. But "Co-Creation" and "Experience Co-Creation" are not like “working together” in a traditional way. The concept of the method of co-creation is rather based on acknowledging the difficulties in health care to work together. “Experience co-creation in care” enables personalization of health care tailored to the patient conditions and preferences. It drives the effectiveness of the total process: efficacy of medical interventions, therapy, rehabilitation and lifestyle.
It can be hard to find the right words to say to comfort someone coping with cancer. At times, we might even avoid contact completely because we fear saying the wrong thing. Here are some suggestions for what to say – and what not to say – to a loved one, friend, or coworker facing cancer.
The presence of cancer and additional parental responsibilities can increase strain for individual patients as well as for their children. The construct of health-related quality of life (HRQL) is appropriate to measure a combination of physical, mental and social consequences as a result of disease. However, previous research has merely focused on symptom checklists. This study addresses the following questions: (i) does HRQL in children and their parents with cancer differ compared to the general population? (ii) Are there any variables that are associated with HRQL in children? (iii) What are current psychosocial support needs? A population-based survey of 976 survivors (<6 years post diagnosis) with minor children between 6 and 18 years (n = 1,449) was conducted with two German cancer registries. HRQL was assessed using SF-8 (survivors) and Kidscreen (children). The results were compared to normative populations, and predictors associated with HRQL in children were evaluated within a multilevel model. We found that the HRQL in children was better compared to the norm. Only children with support needs had worse HRQL. Older age, having a mother with cancer, having a parent not living together with a partner, and worse parental physical and mental health influenced HRQL in children. Illness characteristics were irrelevant. Even with a mean of 3.5 years after diagnosis, survivors had lower physical and mental health compared to the norm. Our findings reinforce the need for health professionals to pay attention to younger patients and their children. Even years after diagnosis, life might not have returned to normal.
A visit to a doctor can sometimes be an overwhelming stream of information all at once. Taking notes and listening to the doctor at the same time is hard. You can solve this problem by recording your visits--with the doctor's permission, of course
Patients with early-stage breast cancer who underwent sentinel lymph node dissection experienced lymphedema with increasing incidence over time, according to a presentation at the 2014 Society of Surgical Oncology (SSO) Cancer Symposium in Phoenix.
The Committee on Social Affairs, Health and Sustainable Development, meeting today in Nicosia, urged member States to reduce inequalities in diagnosis, screening and treatment of breast cancer, and ensure that patients have the level of care that they are entitled to.
Marie Ennis-O'Connor's insight:
This is a big step forward in improving breast cancer services and care across all European countries. Congratulations to Stella Kyriakides, ED Cyprus President and MP and her whole team for all their efforts in bringing this to fruition.
"Medical practice has begun its inevitable journey toward this transformation when, unless an exam or a procedure is required, most medical questions and answers, as well as virtually all medication refills and renewals, appointment requests, interpretation and discussion of the implications of lab and imaging results will be conducted online rather than in the office.
The reimbursement system in the health care of the future will simply have to take this into account, as we slowly transition to a fee-for-service to a care management."
Up to 70% of cancer survivors report clinically significant levels of fear of cancer recurrence (FCR). Despite the known negative impact of FCR on psychological wellbeing and quality of life, little research has investigated interventions for high FCR. Our team has developed and piloted a novel intervention (Conquer Fear) based on the Self-Regulatory Executive Function Model and Relational Frame Theory and is evaluating Conquer Fear in a randomised controlled trial (RCT). We aim to compare the efficacy and cost-efficacy of the Conquer Fear Intervention and relaxation training in reducing the impact of FCR.
There is growing evidence that blogging about illness and treatment can be beneficial for patients. Large medical institutions have taken note and are incorporating blogging into their treatment offerings.
Metastatic breast cancer is diagnosed when cells from the original breast tumor have spread beyond your breast to other parts of your body. Dr. William Gradishar, an oncologist at Feinberg School Medicine at Northwestern University in Chicago, gives some statistics and treatment options for metastatic breast cancer.
If you have been diagnosed with breast cancer, you and your family will be experiencing waves of emotion. Knowing what other survivors have experienced and getting help early in the process is very helpful. Read about the normal stages of emotion that come with breast cancer diagnosis.
Dr. Lee Schwartzberg is the Medical Director of The West Clinic in Memphis, Tennessee. In this video, Dr. Schwartzberg discusses the revolution of personalized medicine and targeted therapies in cancer care, clinical trials in the community oncology setting and how important it is to treat the whole patient.
Doctors at the World Congress on the Menopause in Cancun, Mexico, have called for any decision to participate in mammography to be a based on an informed choice and consideration of all factors, rather than just be an automatic process.