Journeying Beyond...
Follow
Find
2.9K views | +0 today
 
Scooped by Marie Ennis-O'Connor
onto Journeying Beyond Breast Cancer
Scoop.it!

NEW FIGURES SHOW INEQUALITIES IN BREAST SCREENING UPTAKE IN SCOTLAND | Breakthrough Breast Cancer

NEW FIGURES SHOW INEQUALITIES IN BREAST SCREENING UPTAKE IN SCOTLAND | Breakthrough Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it
New statistics published today show that around a quarter of women in Scotland do not attend breast screening.
more...
No comment yet.
Journeying Beyond Breast Cancer
Your new post is loading...
Your new post is loading...
Scooped by Marie Ennis-O'Connor
Scoop.it!

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer | Journeying Beyond Breast Cancer | Scoop.it

My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.  

 

more...
Janne M. Rodsten's curator insight, March 3, 8:04 AM

....I am interested in interviewing women who were pregnant when diagnosed with breast cancer for my doctoral study....

 

Want to know more?  Contact me at janne3.rodsten@uwe.ac.uk 

#pregnantwithcancer

Scooped by Marie Ennis-O'Connor
Scoop.it!

Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App

Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App | Journeying Beyond Breast Cancer | Scoop.it
Supporting Cancer Patients in Illness Management: Usability Evaluation of a Mobile App
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Survivors demand a fair deal from financial services

Survivors demand a fair deal from financial services | Journeying Beyond Breast Cancer | Scoop.it
Companies should no longer be allowed to deny mortgage or insurance services to cancer survivors without explanation or a transparent risk assessment, say patient advocates.
more...
No comment yet.
Rescooped by Marie Ennis-O'Connor from Social Business in Health
Scoop.it!

Co-Creation in Health Care

Co-Creation in Health Care | Journeying Beyond Breast Cancer | Scoop.it

Experience co-creation in health care is an effective method to innovate value to patients in a personalized way, in collaboration with all relevant stakeholders.
It is intended to benefit patients in coping with their health conditions and to arrive at a satisfying state of quality of life, given their specific personal health conditions.

 

Working together is conditional to health care. But "Co-Creation" and "Experience Co-Creation" are not like “working together” in a traditional way. The concept of the method of co-creation is rather based on acknowledging the difficulties in health care to work together. “Experience co-creation in care” enables personalization of health care tailored to the patient conditions and preferences. It drives the effectiveness of the total process: efficacy of medical interventions, therapy, rehabilitation and lifestyle.


Via rob halkes
more...
rob halkes's curator insight, May 28, 11:26 AM

I just wanted to create a quick overview of what Co-creation in Care looks like.

Scooped by Marie Ennis-O'Connor
Scoop.it!

Patient Engagement Takes a Community and More

Patient Engagement Takes a Community and More | Journeying Beyond Breast Cancer | Scoop.it
Patient engagement extends beyond a clinical setting into our daily activities and interactions. This is where patient engagement converts into health leadership.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

What to Say (and What Not to Say) to Someone Facing Cancer

What to Say (and What Not to Say) to Someone Facing Cancer | Journeying Beyond Breast Cancer | Scoop.it

It can be hard to find the right words to say to comfort someone coping with cancer. At times, we might even avoid contact completely because we fear saying the wrong thing. Here are some suggestions for what to say – and what not to say – to a loved one, friend, or coworker facing cancer.

more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children

Parental cancer: Health-related quality of life and current psychosocial support needs of cancer survivors and their children | Journeying Beyond Breast Cancer | Scoop.it

The presence of cancer and additional parental responsibilities can increase strain for individual patients as well as for their children. The construct of health-related quality of life (HRQL) is appropriate to measure a combination of physical, mental and social consequences as a result of disease. However, previous research has merely focused on symptom checklists. This study addresses the following questions: (i) does HRQL in children and their parents with cancer differ compared to the general population? (ii) Are there any variables that are associated with HRQL in children? (iii) What are current psychosocial support needs? A population-based survey of 976 survivors (<6 years post diagnosis) with minor children between 6 and 18 years (n = 1,449) was conducted with two German cancer registries. HRQL was assessed using SF-8 (survivors) and Kidscreen (children). The results were compared to normative populations, and predictors associated with HRQL in children were evaluated within a multilevel model. We found that the HRQL in children was better compared to the norm. Only children with support needs had worse HRQL. Older age, having a mother with cancer, having a parent not living together with a partner, and worse parental physical and mental health influenced HRQL in children. Illness characteristics were irrelevant. Even with a mean of 3.5 years after diagnosis, survivors had lower physical and mental health compared to the norm. Our findings reinforce the need for health professionals to pay attention to younger patients and their children. Even years after diagnosis, life might not have returned to normal.

more...
Deborah Fenlon's curator insight, May 24, 6:07 AM

Should we pay more attention to the impact of cancer on the families and children?

Scooped by Marie Ennis-O'Connor
Scoop.it!

Distress during breast cancer treatment reduced by cognitive behavioral or relaxation training

Distress during breast cancer treatment reduced by cognitive behavioral or relaxation training | Journeying Beyond Breast Cancer | Scoop.it
Can psychological intervention help women adapt to the stresses of breast cancer?
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Record a Doctor’s Visit to Remember Details (but Ask First)

Record a Doctor’s Visit to Remember Details (but Ask First) | Journeying Beyond Breast Cancer | Scoop.it
A visit to a doctor can sometimes be an overwhelming stream of information all at once. Taking notes and listening to the doctor at the same time is hard. You can solve this problem by recording your visits--with the doctor's permission, of course
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Lymphedema Lingers Long After Sentinel Lymph Node Dissection for Early Breast Cancer

Lymphedema Lingers Long After Sentinel Lymph Node Dissection for Early Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it

Patients with early-stage breast cancer who underwent sentinel lymph node dissection experienced lymphedema with increasing incidence over time, according to a presentation at the 2014 Society of Surgical Oncology (SSO) Cancer Symposium in Phoenix.

more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Studies Show Cancer Survivors’ Physical and Emotional Problems Often Go Untreated

Studies Show Cancer Survivors’ Physical and Emotional Problems Often Go Untreated | Journeying Beyond Breast Cancer | Scoop.it
Cancer survivors don’t have to suffer through many of the physical and emotional side effects that often linger after treatment ends, researchers say.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Breast Cancer Basics - Definition, Types, Survival Statistics

Breast Cancer Basics - Definition, Types, Survival Statistics | Journeying Beyond Breast Cancer | Scoop.it
An introductory guide to breast cancer with articles and resources about the definition, types of breast cancer, and survival statistics. Learn your risk factors for breast cancer.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

For Some Women, Breast Cancer Isn't So Pink

For Some Women, Breast Cancer Isn't So Pink | Journeying Beyond Breast Cancer | Scoop.it
The Count Us, Know Us, Join Us survey of Stage 4 breast cancer patients finds that they feel more blue than pink.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

5 Fertility-Saving Options for Women Facing Cancer Treatment - The Breast Doc

5 Fertility-Saving Options for Women Facing Cancer Treatment - The Breast Doc | Journeying Beyond Breast Cancer | Scoop.it
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Physical and Mental Health Among Cancer Survivors: Considerations for Long-Term Care and Quality of Life

more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

The Stories We Tell: Women, Cancer, and Social Media

The Stories We Tell: Women, Cancer, and Social Media | Journeying Beyond Breast Cancer | Scoop.it

In this age of online communication, social media plays a bigger role in many women’s journeys.

By Mia James

more...
No comment yet.
Rescooped by Marie Ennis-O'Connor from Doctor
Scoop.it!

How the patient portal is changing medical practice

How the patient portal is changing medical practice | Journeying Beyond Breast Cancer | Scoop.it

"Medical practice has begun its inevitable journey toward this transformation when, unless an exam or a procedure is required, most medical questions and answers, as well as virtually all medication refills and renewals, appointment requests, interpretation and discussion of the implications of lab and imaging results will be conducted online rather than in the office.

 

The reimbursement system in the health care of the future will simply have to take this into account, as we slowly transition to a fee-for-service to a care management."


Via Andrew Spong
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Giving patients access to their health data: pilot results

Giving patients access to their health data: pilot results | Journeying Beyond Breast Cancer | Scoop.it
Since 2012, eleven regions from across the European Union have been participating in the EU-funded SUSTAINS project: a joint learning initiative giving patients access to their personal health records
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Protecting patients' nervous systems: Are we getting the care-cure balance right?

Protecting patients' nervous systems: Are we getting the care-cure balance right? | Journeying Beyond Breast Cancer | Scoop.it
The debilitating impact neurotoxic drugs can have on patients� long-term quality of life has been systematically underestimated. Can oncologists do more to pick up potential symptoms before they becom
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Conquer fear: protocol of a randomised controlled trial of a psychological intervention to reduce fear of cancer recurrence

Conquer fear: protocol of a randomised controlled trial of a psychological intervention to reduce fear of cancer recurrence | Journeying Beyond Breast Cancer | Scoop.it
Up to 70% of cancer survivors report clinically significant levels of fear of cancer recurrence (FCR). Despite the known negative impact of FCR on psychological wellbeing and quality of life, little research has investigated interventions for high FCR. Our team has developed and piloted a novel intervention (Conquer Fear) based on the Self-Regulatory Executive Function Model and Relational Frame Theory and is evaluating Conquer Fear in a randomised controlled trial (RCT). We aim to compare the efficacy and cost-efficacy of the Conquer Fear Intervention and relaxation training in reducing the impact of FCR.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

"Flipping Health Care"

Maureen Bisognano, President and CEO, Institute for Healthcare Improvement (IHI), is a prominent authority on improving health care systems, whose expertise ...
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

“Cancer – Educate to Prevent” – High-School Teachers, the New Promoters of Cancer Prevention Education Campaigns

“Cancer – Educate to Prevent” – High-School Teachers, the New Promoters of Cancer Prevention Education Campaigns | Journeying Beyond Breast Cancer | Scoop.it
PLOS ONE: an inclusive, peer-reviewed, open-access resource from the PUBLIC LIBRARY OF SCIENCE. Reports of well-performed scientific studies from all disciplines freely available to the whole world.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Patient Blogging Could Offer Host of Benefits

Patient Blogging Could Offer Host of Benefits | Journeying Beyond Breast Cancer | Scoop.it
There is growing evidence that blogging about illness and treatment can be beneficial for patients. Large medical institutions have taken note and are incorporating blogging into their treatment offerings.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Metastatic Breast Cancer - Breast Cancer Statistics - Breast Cancer Treatments

Metastatic Breast Cancer -  Breast Cancer Statistics - Breast Cancer Treatments | Journeying Beyond Breast Cancer | Scoop.it
Metastatic breast cancer is diagnosed when cells from the original breast tumor have spread beyond your breast to other parts of your body. Dr. William Gradishar, an oncologist at Feinberg School Medicine at Northwestern University in Chicago, gives some statistics and treatment options for metastatic breast cancer.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Emotional Stages During Breast Cancer Diagnosis

Emotional Stages During Breast Cancer Diagnosis | Journeying Beyond Breast Cancer | Scoop.it
If you have been diagnosed with breast cancer, you and your family will be experiencing waves of emotion. Knowing what other survivors have experienced and getting help early in the process is very helpful. Read about the normal stages of emotion that come with breast cancer diagnosis.
more...
No comment yet.
Scooped by Marie Ennis-O'Connor
Scoop.it!

Lee Schwartzberg,MD: Targeted Therapies and Clinical Trials in the Community Setting

Lee Schwartzberg,MD: Targeted Therapies and Clinical Trials in the Community Setting | Journeying Beyond Breast Cancer | Scoop.it
Dr. Lee Schwartzberg is the Medical Director of The West Clinic in Memphis, Tennessee. In this video, Dr. Schwartzberg discusses the revolution of personalized medicine and targeted therapies in cancer care, clinical trials in the community oncology setting and how important it is to treat the whole patient.
more...
No comment yet.