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Journeying Beyond Breast Cancer
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You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer

You’re not alone, 21 inspirational cancer survivors share tips for life beyond breast cancer | Journeying Beyond Breast Cancer | Scoop.it

My friend, fellow breast cancer survivor Gai Comans, has just released a new guide called “Survivor Secrets – Empower Your Life”. And, alongside some other names which will be familiar to you, I am honored to be one of the 21 inspirational survivors interviewed.  

 

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Janne M. Rodsten's curator insight, March 3, 8:04 AM

....I am interested in interviewing women who were pregnant when diagnosed with breast cancer for my doctoral study....

 

Want to know more?  Contact me at janne3.rodsten@uwe.ac.uk 

#pregnantwithcancer

Kathleen D. Hoffman, PhD's curator insight, November 2, 9:52 AM

Congratulations Marie and Gai!

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A Conversation with Kathleen Swiger about LBBC’s Survey of Women With Triple-Negative Breast Cancer

A Conversation with Kathleen Swiger about LBBC’s Survey of Women With Triple-Negative Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it
By Chris Wilson, Triple Negative Breast Cancer Foundation Trustee Kathleen Swiger stands by her poster in the “Psychosocial and Behavioral” section of the vast hall at the San Antonio Breast Cancer...
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Increased Risk for Depression After Breast Cancer: A Nationwide Population-Based Cohort Study of Associated Factors in Denmark, 1998-2011

To investigate the risk for first depression, assessed as incident hospital contacts for depression and incident use of antidepressants, among women with breast cancer.

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Breast Cancer In Younger Women Conference #BCY (with images, tweets) · JBBC

European School Of Oncology, BCY2 - 2nd Breast Cancer in Young Women Conference, Dublin.
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Psychological, social, and behavioral issues for young adults with cancer - Zebrack - 2011 - Cancer - Wiley Online Library

Psychological, social, and behavioral issues for young adults with cancer - Zebrack - 2011 - Cancer - Wiley Online Library | Journeying Beyond Breast Cancer | Scoop.it

Theories of human development suggest that, although all cancer patients experience a common set of life disruptions, they experience them differently, focus on different issues, and attach different levels of importance to different aspects of the experience depending on the time in life at which they were diagnosed. During the critical developmental transition from childhood to adulthood, older adolescents and young adults in particular have typical concerns with establishing identity, developing a positive body image and sexual identity, separating from parents, increasing involvement with peers and dating, and beginning to make decisions about careers or employment, higher education, and/or family. Accordingly, cancer-related issues such as premature confrontation with mortality, changes in physical appearance, increased dependence on parents, disruptions in social life and school/employment because of treatment, loss of reproductive capacity, and health-related concerns about the future may be particularly distressing for adolescents and young adults. Psychosocial and behavioral interventions for young adult cancer patients and survivors often involve assisting these individuals in retaining or returning to function in significant social roles, such as spouse, parent, student, worker, or friend. Successful interventions will enable these young people to overcome the detrimental impact of a health crisis and strengthen the internal and external coping resources available to them. Cancer 2011;117(10 suppl):2289–94. © 2011 American Cancer Society.

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Doctors boost fitness of cancer patients using novel 'prehab' programme

Doctors boost fitness of cancer patients using novel 'prehab' programme | Journeying Beyond Breast Cancer | Scoop.it
Doctors in Southampton can return cancer patients to pre-treatment fitness levels within six weeks using a novel 'prehabilitation' programme.
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Depression and cancer

Depression and cancer | Journeying Beyond Breast Cancer | Scoop.it
Kirsten Lawson on the prevalence of depression and cancer, and the efficacy of the 'Depression Care for People with Cancer' programme.
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Weekly Round Up: It’s the End of October but NOT the End of Breast Cancer!

Weekly Round Up: It’s the End of October but NOT the End of Breast Cancer! | Journeying Beyond Breast Cancer | Scoop.it
Time for this week’s round-up of the best of the blog posts which I’ve read over the past week. These are the posts that have moved me, taught me something, inspired me, and which I’ve wanted to sh...
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The effectiveness of counseling cancer patients by phone still unknown

The effectiveness of counseling cancer patients by phone still unknown | Journeying Beyond Breast Cancer | Scoop.it
Increasingly, cancer care respects the fact that a patient's body is only part of the system that requires treatment.
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An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS)

An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS) | Journeying Beyond Breast Cancer | Scoop.it
Recently, the American Society of Clinical Oncology (ASCO) released an updated cancer survivorship care planning (SCP) template—news that was captured by several medical online news outlets including Healio, Medscape, and Cancer.net.
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Heather Swift's curator insight, November 1, 11:48 PM

An Updated Survivorship Care Planning Template and Identifying Barriers to Implementation - National Coalition for Cancer Survivorship (NCCS)

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Tweet from @chris1mcb

Tweet from @chris1mcb | Journeying Beyond Breast Cancer | Scoop.it
Screening for both physical & psychological impairments needs to be an integral part of cancer care. #StriveForBetter pic.twitter.com/QSdFHQGk5t
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BMJ Blogs: The BMJ » Blog Archive » Amy Price: Patients doing research for themselves

BMJ Blogs: The BMJ » Blog Archive » Amy Price: Patients doing research for themselves | Journeying Beyond Breast Cancer | Scoop.it
Patient rights and empowerment movements have grown exponentially over the last decade. Shared data movements and clinical decision making may employ slogans like having a voice, nothing about me, without me, and give me my damn data, all these expressions share the language of loss and blame.
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Breast-Cancer-Survivors-2014-Report.pdf


Via Deborah Fenlon
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Deborah Fenlon's curator insight, October 16, 5:00 AM

Report reveals possible links between weight and physical activity in surviving breast cancer.

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Why do oncology outpatients who report emotional distress decline help? - PubMed - NCBI

Psychooncology. 2014 Dec 11. doi: 10.1002/pon.3729. [Epub ahead of print]
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Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances

Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances | Journeying Beyond Breast Cancer | Scoop.it
Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.
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Heather Swift's curator insight, December 1, 10:34 PM
[FINANCIAL TOXICITY] Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.
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First Cancer Health Literacy Tool Introduced

First Cancer Health Literacy Tool Introduced | Journeying Beyond Breast Cancer | Scoop.it
Virginia Commonwealth University (VCU) Massey Cancer Center researchers have developed a new tool that can accurately measure cancer health literacy...
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Responsibilities as a Cancer Patient | HealthWorks Collective

Responsibilities as a Cancer Patient | HealthWorks Collective | Journeying Beyond Breast Cancer | Scoop.it
I would argue that today the passive patient, or at least the passive patient and his/her care support team, is likely to get the short end of the stick. So whose responsibility is it to make you active rather than passive, to be sort of an “impatient” rather than a “patient?” Yours!
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Cancer Patients Speak Up | HealthWorks Collective

Cancer Patients Speak Up | HealthWorks Collective | Journeying Beyond Breast Cancer | Scoop.it
Results of a recent survey show how the Internet, along with credible social media sites where patients connect with experts and patients, is changing the cancer doctor-patient relationship.
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OpenNotes: The results are in. GREAT news for patient engagement. | e-Patients.net

OpenNotes: The results are in. GREAT news for patient engagement. | e-Patients.net | Journeying Beyond Breast Cancer | Scoop.it
Regular readers know that we've long anticipated the result of the OpenNotes project. Our first post about it was in June 2010: “OpenNotes” project begins:
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Knit your way to health

Knit your way to health | Journeying Beyond Breast Cancer | Scoop.it
Knitting has had a make--over. It's no longer associated with old ladies; it's become a trendy thing to own up to, with countless blogs, websites and YouTube videos devoted to the art of knit.  I r...
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Writing to Heal

Writing to Heal | Journeying Beyond Breast Cancer | Scoop.it
"Simply speaking the truth heals" ~ Dr Rachel Naomi Remen For nearly 20 years, Dr. James W. Pennebaker has been giving people an assignment: write down your deepest feelings about an emotional uphe...
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Patient information-one approach fits all?

Cancer treatment is complex and often requires management with a combination of surgery, radiotherapy, and chemotherapy all with potentially significant acute and late side toxicities. As a consequence the information received by patients following diagnosis can be overwhelming.  It is standard practice to provide patients with written information related to their cancer treatment however in an increasingly electronic age is electronic exchange and access to information more appropriate

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Posters 22nd October - 2014 - Psycho-Oncology - Wiley Online Library

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eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals

eUpdate Article for Cancer Survivors, Cancer Caregivers and Cancer Medical Professionals | Journeying Beyond Breast Cancer | Scoop.it
Coping with Cancer provides resources for cancer survivors, cancer caregivers, and cancer medical professionals. Articles and stories are presented in a warm and friendly, easy-to-use format, and provides information by specific cancer type, general knowledge about living with cancer, and wellness and inspirational topics. The resource guides are the most complete listings found anywhere. The Coping media team is constantly adding relevant articles and trustworthy resources.
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Post-treatment health education program improves quality of life for breast cancer patients, Australia

Post-treatment health education program improves quality of life for breast cancer patients, Australia | Journeying Beyond Breast Cancer | Scoop.it
A study by Queensland University of Technology (QUT) health researchers in collaboration with The Wesley Hospital Kim Walters Choices Program has found that women treated for breast cancer...
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WSJ: “Researchers are asking patients to help design clinical trials.” | e-Patients.net

WSJ: “Researchers are asking patients to help design clinical trials.” | e-Patients.net | Journeying Beyond Breast Cancer | Scoop.it
I could smack myself for not noticing this earlier, but it happened while I was at the ESMO conference (the "European ASCO" cancer conference) in Madrid last
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