Cancer Survivorship
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Living With Cancer: Living Without Hair

Living With Cancer: Living Without Hair | Cancer Survivorship | Scoop.it
Losing your hair to cancer treatment — on your head and the rest of your body — is one of the many emotional challenges that patients must face, writes Susan Gubar.
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Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey

Journal of Medical Internet Research - International Scientific Journal for Medical Research, Information and Communication on the Internet
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Tumblr: An Unexpected Cancer Support Group

Tumblr: An Unexpected Cancer Support Group | Cancer Survivorship | Scoop.it
Bloggers using Tumblr to write about their cancer experiences find the community to be an unconventional source of support and genuine interaction.
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Top Takeaways from ASCO: Survivorship

Top Takeaways from ASCO: Survivorship | Cancer Survivorship | Scoop.it
CHICAGO — In forums including a data-driven plenary and a special educational session, attendees of ASCO 2015 gathered to discuss Top Takeaways on survivorship in pediatric and adult cancer.Results from a late-breaking abstract offered clinicians evidence on the improvements, both in quantity and quality of life, that childhood cancer survivors stand to gain through careful monitoring and
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Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey

Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey | Cancer Survivorship | Scoop.it

Background: Despite reported benefits, many women do not attend breast cancer support groups. 

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The New Cancer Survivors

The New Cancer Survivors | Cancer Survivorship | Scoop.it
Extraordinary advances have turned cancer from an apparent death sentence into a manageable chronic illness for many. But what does it mean to live with a terminal disease...interminably?
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Brat Perry's comment, March 5, 7:31 AM
Hope for the best .
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Cancer Survivorship: A New Way of Living | Cure Magazine

Cancer Survivorship: A New Way of Living | Cure Magazine | Cancer Survivorship | Scoop.it
Being diagnosed with cancer changes everything about your life. Yes, there are those few who have a simple diagnosis, breeze through treatment and then actually get back to some form of "normal" — the life they lived before they heard the words, It's cancer.
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Living with Cancer: What I Wish They’d Told Me

Living with Cancer: What I Wish They’d Told Me | Cancer Survivorship | Scoop.it
We asked several people who are living with cancer to tell us what they wish someone had told them before they started to receive treatment.
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Extending Cancer Care Past Remission: The Importance of Cardiac Toxicity Monitoring and Awareness

Extending Cancer Care Past Remission: The Importance of Cardiac Toxicity Monitoring and Awareness | Cancer Survivorship | Scoop.it
Medical monitoring and counseling can help us track and contain many harmful effects of cancer drug-induced cardiotoxicity. Patient engagement from the very beginning, along with medically advanced testing methods, can help us surmount cardiotoxicity and better ensure that patients receive only the benefits of essential cancer treatment.
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Cancer survivors have evolving information needs

Cancer survivors have evolving information needs | Cancer Survivorship | Scoop.it
Judging by the nature and topics of their information seeking, cancer patients' information needs appear to differ depending on the type of cancer they have and where they are in their...
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Living Beyond Breast Cancer Presents Results of First Survey of Psychosocial Needs of Women with Triple-Negative Breast Cancer

Living Beyond Breast Cancer Presents Results of First Survey of Psychosocial Needs of Women with Triple-Negative Breast Cancer | Cancer Survivorship | Scoop.it
Living Beyond Breast Cancer -- LBBC connects people with trusted breast cancer information and a community of support.
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A Conversation with Kathleen Swiger about LBBC’s Survey of Women With Triple-Negative Breast Cancer

A Conversation with Kathleen Swiger about LBBC’s Survey of Women With Triple-Negative Breast Cancer | Cancer Survivorship | Scoop.it
By Chris Wilson, Triple Negative Breast Cancer Foundation Trustee Kathleen Swiger stands by her poster in the “Psychosocial and Behavioral” section of the vast hall at the San Antonio Breast Cancer...
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Increased Risk for Depression After Breast Cancer: A Nationwide Population-Based Cohort Study of Associated Factors in Denmark, 1998-2011

To investigate the risk for first depression, assessed as incident hospital contacts for depression and incident use of antidepressants, among women with breast cancer.

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Breast Cancer In Younger Women Conference #BCY (with images, tweets) · JBBC

European School Of Oncology, BCY2 - 2nd Breast Cancer in Young Women Conference, Dublin.
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5 Things You Should Know About Oncofertility

5 Things You Should Know About Oncofertility | Cancer Survivorship | Scoop.it
Not all surgeries, chemotherapies and radiation treatment options affect fertility and in some cases people assume that they are infertile, only to be surprised by an unplanned pregnancy after
unprotected sex.
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Standard versus prosocial online support groups for distressed breast cancer survivors: a randomized controlled trial

The Internet can increase access to psychosocial care for breast cancer survivors through online support groups. This study will test a novel prosocial online group that emphasizes both opportunities for getting and giving help. Based on the helper therapy principle, it is hypothesized that the addition of structured helping opportunities and coaching on how to help others online will increase the psychological benefits of a standard online group.

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Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains

Cancer survivors in the first year after treatment: the prevalence and correlates of unmet needs in different domains | Cancer Survivorship | Scoop.it

To explore cancer survivors' unmet needs in the first year after primary treatment, and to investigate the relationship between demographic, disease-related, and psychosocial characteristics and the number of unmet needs in different domains.

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Cancer Patient's Health Affected by Spouse's Mood

Cancer Patient's Health Affected by Spouse's Mood | Cancer Survivorship | Scoop.it

The emotional health of cancer caregivers may affect the mental health of the loved ones they are caring for, a new study suggests.

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The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions | Cancer Survivorship | Scoop.it
ABSTRACT

 

The perspective of the patient, also called the “patient voice”, is an essential element in materials created for cancer supportive care. Identifying that voice, however, can be a challenge for researchers and developers. A multidisciplinary team at a health information company tasked with addressing this issue created a representational model they call the “cancer experience map”. This map, designed as a tool for content developers, offers a window into the complex perspectives inside the cancer experience. Informed by actual patient quotes, the map shows common overall themes for cancer patients, concerns at key treatment points, strategies for patient engagement, and targeted behavioral goals. In this article, the team members share the process by which they created the map as well as its first use as a resource for cancer support videos. The article also addresses the broader policy implications of including the patient voice in supportive cancer content, particularly with regard to mHealth apps.

 

J Med Internet Res 2015;17(5):e132)

doi:10.2196/jmir.3652

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Living with Cancer: Am I a Warrior?

Living with Cancer: Am I a Warrior? | Cancer Survivorship | Scoop.it
June 7 is National Cancer Survivors Day. We asked people living with cancer how they felt when they heard themselves described as “warriors” and “survivors.”
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Deborah Fenlon's curator insight, May 24, 5:06 PM
We need to challenge the language of cancer that uses metaphors of war!
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Unlocking the emotions of cancer

Unlocking the emotions of cancer | Cancer Survivorship | Scoop.it
A new mandate requires cancer centers to screen oncology patients for distress.
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Why do oncology outpatients who report emotional distress decline help? - PubMed - NCBI

Psychooncology. 2014 Dec 11. doi: 10.1002/pon.3729. [Epub ahead of print]
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Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances

Collateral Damage: How A Cancer Diagnosis Hurts Employment And Finances | Cancer Survivorship | Scoop.it
Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.
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Heather Swift's curator insight, December 1, 2014 10:34 PM
[FINANCIAL TOXICITY] Employment and money concerns haunt many people with all kinds of cancer, nation-wide, during and after treatment.
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First Cancer Health Literacy Tool Introduced

First Cancer Health Literacy Tool Introduced | Cancer Survivorship | Scoop.it
Virginia Commonwealth University (VCU) Massey Cancer Center researchers have developed a new tool that can accurately measure cancer health literacy...
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