Journeying Beyond Breast Cancer
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A Guide To What Happens When Cancer Treatment Ends
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Grieving life’s losses and finding your new normal

Grieving life’s losses and finding your new normal | Journeying Beyond Breast Cancer | Scoop.it
Grief is a natural response to loss and although  we normally associate grief with the death of a loved one, the fact is that any loss can cause grief, including serious illness. I… Read Mo...
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What counts as a ‘successful’ outcome? - Patient Voice

What counts as a ‘successful’ outcome? - Patient Voice | Journeying Beyond Breast Cancer | Scoop.it
Every patient wants to be cured. But a culture that defines success as ‘cure’ condemns many patients and doctors to failure. .
Marie Ennis-O'Connor's insight:

This Patient Voice hears from four people who speak from personal experience. And it asks whether we need to adopt a more nuanced understanding of ‘success’, based on matching the patient’s
priorities to the best outcome that can be hoped for.

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Weekly Round Up - The Angelina Jolie Edition

Weekly Round Up - The Angelina Jolie Edition | Journeying Beyond Breast Cancer | Scoop.it

"We are all people and all individuals. We can make different decisions and still respect each other. It doesn’t matter whether we are in the “pink crowd” or not.  Breast cancer prevention and treatment options are still gray. I made my treatment choices. Time will tell whether I made the right decisions but to me, they seemed the best decisions I could make based on the information that was available at the time. We are individuals, we have brains, and we have the right to make decisions that we believe are best for us." ~ Elizabeth

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Life, Interrupted: Getting Away

Life, Interrupted: Getting Away | Journeying Beyond Breast Cancer | Scoop.it

One of the hardest parts about developing leukemia at age 22 was how restrictive it was: My treatments left me highly susceptible to infection and with limited mobility. Airplanes were strictly off limits. Even a trip to my neighborhood bodega required a protective face mask and plastic gloves to shield me from germs. Extended stays in the oncology ward were especially difficult, because travel was so closely tied to my identity.

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Mom's virtual cancer family helps daughter cope with loss

Mom's virtual cancer family helps daughter cope with loss | Journeying Beyond Breast Cancer | Scoop.it

When Gina Poe lost her mom to breast cancer, she was devastated. Michal Poe, a 68-year-old home hospice social worker, had been the rock of the family, carrying on with humor and strength even as her disease became more advanced.

After her death in February, though, Gina discovered her mother wasn’t just the rock of the Poe family; she was also a loved and celebrated member of a “virtual family” of advanced breast cancer patients from around the world who talked daily on the website, Inspire.com. Now Gina has embraced the family she didn’t even know existed. She even invited them to attend her mom’s celebration of life service on yesterday -- delayed, at her mother's request until spring, when the flowers would be out -- and livestreamed video for the online group members who couldn't come in person.

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The Airbrushing of Breast Cancer

The Airbrushing of Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it

I am a breast cancer survivor. I am well aware that October is the month to bring awareness to breast cancer, yet many survivors like me are disturbed to watch every year as the parade of positive of positive pink, not necessarily realistic, is marched across television screens and through magazines and newspapers.

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The public awareness campaign about breast cancer is disturbing to many who have been down in the trenches of this disease.

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More Younger Women Getting Breast Cancer

More Younger Women Getting Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it
A growing number of women in the UK are being diagnosed with breast cancer before they reach the age of fifty years, says Cancer Research UK.
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CureToday.com: Blogs - Guest - Young, a new mother and metastatic

CureToday.com: Blogs - Guest - Young, a new mother and metastatic | Journeying Beyond Breast Cancer | Scoop.it
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Pain and Symptom Management for Metastatic Breast Cancer

Pain and Symptom Management for Metastatic Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it

For people living with metastatic breast cancer, managing pain and other symptoms often depends on how much the cancer has spread to other parts of the body and the location of the tumors. Patients don’t have to live with pain as they cope with metastatic breast cancer. It is important to maintain open and honest communication with your health care team about any symptoms or pain that you are experiencing to help improve your quality of life.

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Introducing the Guardian's new living with cancer series

Introducing the Guardian's new living with cancer series | Journeying Beyond Breast Cancer | Scoop.it
More people are surviving cancer, but the personal and financial consequences remain long after diagnosis
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NEW FIGURES SHOW INEQUALITIES IN BREAST SCREENING UPTAKE IN SCOTLAND | Breakthrough Breast Cancer

NEW FIGURES SHOW INEQUALITIES IN BREAST SCREENING UPTAKE IN SCOTLAND | Breakthrough Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it
New statistics published today show that around a quarter of women in Scotland do not attend breast screening.
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Identifying survival associated morphological features of triple negative breast cancer using multiple datasets -- Wang et al. -- Journal of the American Medical Informatics Association

Identifying survival associated morphological features of triple negative breast cancer using multiple datasets -- Wang et al. -- Journal of the American Medical Informatics Association | Journeying Beyond Breast Cancer | Scoop.it
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Quick Surgery Best for Breast Cancer in the Young - Breast Cancer Center - Everyday Health

Quick Surgery Best for Breast Cancer in the Young - Breast Cancer Center - Everyday Health | Journeying Beyond Breast Cancer | Scoop.it
Longer treatment delay time, estrogen receptor-negative status, having public or no insurance, and late cancer stage also were significant risk factors for shorter survival.
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Putting Stress in Its Place

Putting Stress in Its Place | Journeying Beyond Breast Cancer | Scoop.it
Coping with Cancer provides resources for cancer survivors, cancer caregivers, and cancer medical professionals.
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by Bonnie A. McGregor, PhD

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With breast cancer discovered at age 26, a young woman confronts her mortality

With breast cancer discovered at age 26, a young woman confronts her mortality | Journeying Beyond Breast Cancer | Scoop.it
The disease is rare in women younger than 30, but it’s especially potent for those in that age group.
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Psycho-Oncologic Interventions May Be Beneficial for Adults

Psycho-Oncologic Interventions May Be Beneficial for Adults | Journeying Beyond Breast Cancer | Scoop.it

For adults with cancer, psycho-oncologic interventions, such as relaxation, individual and group psychotherapy, and psychoeducation, may be effective in producing significant small-to-medium improvement in patients' emotional distress and quality of life, according to a study published in the Feb. 20 issue of the Journal of Clinical Oncology.

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Health Behaviors in Cancer Survivors

Health Behaviors in Cancer Survivors | Journeying Beyond Breast Cancer | Scoop.it

In this HINTS Brief, we explore health behaviors of cancer survivors and summarize public health strategies to promote health and well-being among cancer survivors.

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The Worst Part Of Cancer Was Having To Tell My Kids

The Worst Part Of Cancer Was Having To Tell My Kids | Journeying Beyond Breast Cancer | Scoop.it
When my son was 7 and my daughter was 3, I was diagnosed with breast cancer. My husband and I knew from the beginning that we would not try to hide cancer from our children. I wanted them to know
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Study: How Exercise May Decrease Breast Cancer Risk

Study: How Exercise May Decrease Breast Cancer Risk | Journeying Beyond Breast Cancer | Scoop.it

For postmenopausal breast cancer, there’s a strong body of evidence that shows exercising reduces the risk. But cancer can take years to develop. A new study that may help explain the link now suggests that when young women jog and are aerobically active it causes changes in estrogen metabolism, which then plays a role in reducing later breast cancer risk.

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Understanding Your Mammogram Report

Understanding Your Mammogram Report | Journeying Beyond Breast Cancer | Scoop.it
Understanding your mammogram report is important, whether it says “no sign of cancer” or it indicates that changes have occurred which need follow-up.
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Managing Practical Concerns Raised by Metastatic Breast Cancer

Managing Practical Concerns Raised by Metastatic Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it

If you have been diagnosed with metastatic breast cancer, or are caregiving for a loved one, you may feel overwhelmed with questions, concerns and responsibilities. As you manage medical treatments and cope with difficult emotions, it is important to know what sources of assistance are available and what you can do on your own to cope with metastatic breast cancer.

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Supporting a Loved One with Metastatic Breast Cancer

Supporting a Loved One with Metastatic Breast Cancer | Journeying Beyond Breast Cancer | Scoop.it

A metastatic breast cancer diagnosis affects not only the person who is diagnosed, but also their caregiver. The many medical, emotional and practical challenges caregivers may face can lead to stress and burnout, which impacts the care your loved one receives. That is why it is important to know there are many ways to help and support your loved one while caring for yourself as well. Here are some tips on how you can provide the best care for your loved one coping with metastatic breast cancer

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Research interest grows in BRCA-mutation positive cancers

Research interest grows in BRCA-mutation positive cancers | Journeying Beyond Breast Cancer | Scoop.it
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Cardiovascular risk a gap in survivorship care

Cardiovascular risk a gap in survivorship care | Journeying Beyond Breast Cancer | Scoop.it

It's hard to imagine that someone who has been through cancer would have to worry about dying of cardiac disease, but according to a new study, long-term cancer survivors have more risk factors for cardiovascular disease than those who have not had cancer.

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Living With Cancer: Living Without Hair

Living With Cancer: Living Without Hair | Journeying Beyond Breast Cancer | Scoop.it
Losing your hair to cancer treatment — on your head and the rest of your body — is one of the many emotional challenges that patients must face, writes Susan Gubar.
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UCLA Researchers Find Scientific Basis For Cognitive Complaints In Post-Treatment Breast Cancer Patients

UCLA Researchers Find Scientific Basis For Cognitive Complaints In Post-Treatment Breast Cancer Patients | Journeying Beyond Breast Cancer | Scoop.it
UCLA Researchers led by Dr. Patricia Ganz, director of cancer prevention and control research at the Jonsson Comprehensive Cancer Center, professor of health policy and management at the Fielding

Via Heather Swift
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