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Social Media Use By People With Chronic Pain – A Global Online Survey (Preliminary Results)

Social Media Use By People With Chronic Pain – A Global Online Survey (Preliminary Results) | Informatics in Participatory Health | Scoop.it
We recently ran a global online survey targeting People With Chronic Pain (PWCP) as a result of various chronic diseases who have used social media as part of self-management. The aim of the survey...
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Informatics in Participatory Health
Main informatics issues and challenges related with the concept of Participatory Health
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Using Phones to Connect Children to Health Care

Using Phones to Connect Children to Health Care | Informatics in Participatory Health | Scoop.it
Researchers and medical providers are looking at ways of better reaching children by cellphone to improve health care.

Via COUCH Medcomms
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European Commission forms group to create guidelines for health app data quality

European Commission forms group to create guidelines for health app data quality | Informatics in Participatory Health | Scoop.it
The European Commission has formed a working group that will create guidelines to evaluate the accuracy and reliability of health app data. The group’s first meeting will be in March.
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What Do People Want from Their Health Care? A Qualitative Study | Journal of Participatory Medicine

What Do People Want from Their Health Care? A Qualitative Study | Journal of Participatory Medicine | Informatics in Participatory Health | Scoop.it

The doctor-patient relationship remains at the heart of people’s perceptions of health care, and innovations in patient-centered medicine should aim to

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Innovation in Health Informatics: much is underpinned by eHealth and better information for patients. | Bond | Journal of Innovation in Health Informatics

Innovation in Health Informatics: much is underpinned by eHealth and better information for patients.

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From Research Participant to Advocate + Beyond ...

From Research Participant to Advocate + Beyond ... | Informatics in Participatory Health | Scoop.it

The following interview is with Jeri Burtchell, a renowned patient advocate with first-hand experience participating in clinical trials. | Informatics in Participatory Health

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From Research Participant to Advocate + Beyond

From Research Participant to Advocate + Beyond | Informatics in Participatory Health | Scoop.it

The following interview is with Jeri Burtchell, a renowned patient advocate with first-hand experience participating in clinical trials.

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It’s time to adopt a good working definition of empowerment.

It’s time to adopt a good working definition of empowerment. | Informatics in Participatory Health | Scoop.it

A major theme of my work last year was that it's time to create a science of patient engagement (see blog posts) - a rigorous inquiry into what patient engagement is, what factors (parameters) increase it, which ones diminish it, develop...

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Can Digital Wearables Help in Clinical Trials?

Can Digital Wearables Help in Clinical Trials? | Informatics in Participatory Health | Scoop.it

When applied to clinical trials, wearable technology is a potentially powerful research tool to gather clinical data in real-time and provide remote patient

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Infographic: Tech tools that promote patient empowerment | Articles | Main

Infographic: Tech tools that promote patient empowerment  | Articles | Main | Informatics in Participatory Health | Scoop.it

Patient-Centric Care #infographic showing tech tools that promote patient empowerment | See more about Infographic, Tech and Tools.

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Are We Ready for Mobile Health?

Are We Ready for Mobile Health? | Informatics in Participatory Health | Scoop.it

With more than 80% of US residents between the ages of 18 and 49 currently owning an app-enabled mobile phone, Marie Ennis-O'Conner explores the reality of

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Investigation of the relationship between patient empowerment and glycaemic control in patients with type 2 diabetes: a cross-sectional analysis. - PubMed - NCBI

Investigation of the relationship between patient empowerment and glycaemic control in patients with type 2 diabetes: a cross-sectional analysis. - PubMed - NCBI | Informatics in Participatory Health | Scoop.it

BMJ Open. 2015 Dec 18;5(12):e008422. doi: 10.1136/bmjopen-2015-008422.

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Study shows social media content may hold keys to important health information

Study shows social media content may hold keys to important health information | Informatics in Participatory Health | Scoop.it
Language used in everyday social media posts may have a strong connection to an individual's health, according to new research. In the first study of its kind, the new results suggest that not only are many adult Facebook and Twitter users willing to share their social media data and medical data for research purposes, but that by building a language databank, it may be possible to link social media content to health outcomes.
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Medinfo2015 workshop-adherence mangement-patient_driven-publicized

Workshop: Effective Patient Adherence Management by Engaging Enabling Technologies
Pei-Yun Sabrina Hsueha, Vimla L. Patelb, Fernando Sanchezc, Marcia Itod,e, Chohreh Partoviana, María V. Giussi Bordonig, Marion Ballf,a
a IBM T.J.

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Improved Lifestyle is the Pathway to Health | Journal of Participatory Medicine

Improved Lifestyle is the Pathway to Health | Journal of Participatory Medicine | Informatics in Participatory Health | Scoop.it

it is ironic that patient-provider encounters spend so much time and effort on obtaining lab tests and adjusting medications and doses when attention isn't

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International Rare Disease Day 2016: Patient Voice & Empowerment

International Rare Disease Day 2016: Patient Voice & Empowerment | Informatics in Participatory Health | Scoop.it

This year's International Rare Disease Day Theme is "Patient Voice"; and we are making our contribution through three events: First, on Wednesday 17th February, at 12.30 to 2pm, the launch of the Foyle and North West Rare Disease Forum,...

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http://www.jopm.org/opinion/editorials/2015/10/06/improved-lifestyle-is-the-pathway-to-health/

Great article discussing participatory medicine and reconnecting patients to a preventive path through lifestyle https://t.co/XAYZt0XAI2

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The future is now

The future is now | Informatics in Participatory Health | Scoop.it
The future is now | The innovations of today that point to better health care tomorrow
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Twitter Can Provide Patient Perspective on Medical Errors, Study Shows | Healthcare Informatics Magazine | Health IT | Information Technology

Twitter Can Provide Patient Perspective on Medical Errors, Study Shows | Healthcare Informatics Magazine | Health IT | Information Technology | Informatics in Participatory Health | Scoop.it

Heather LandiWith growing concerns about medical errors, the social media app Twitter can be used as a tool to help providers collect data and gain the patient’s perspective on medical errors, according to a study published in the Journal of...

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Strike all you like, doctors - technology will soon take away your power

The advent of wearable medical monitors, like FitBit, and smartphone-based
medicine will lessen the power and the number of medical professionals in
the NHS
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EURORDIS Summer School for patient advocates

EURORDIS Summer School for patient advocates | Informatics in Participatory Health | Scoop.it

RT @RarasReales: Solicita antes 20ene 1plaza https://t.co/d2l7mhkoUj Escuela Verano EURORDIS Pacientes e Investig.

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Doctors empower patients by providing the information they need

Doctors empower patients by providing the information they need | Informatics in Participatory Health | Scoop.it

Regarding the Dec. 1 Health & Science article “Patients make themselves heard”: While I appreciate the effort to further the discussion of engaging patients in their health, the article put the burde...

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Journal of Participatory Medicine

Journal of Participatory Medicine | Informatics in Participatory Health | Scoop.it

The Journal publishes articles on an ongoing basis about topics related to participatory medicine, a movement in which networked patients shift from being mere

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Patients become citizen scientists | Nesta

Patients become citizen scientists | Nesta | Informatics in Participatory Health | Scoop.it

2016 will bring a new generation of digitally-enabled and patient-led research, says John Loder

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The Results Are In: Recent OpenNotes Research Has Made Me a Believer | Healthcare Informatics Magazine | Health IT | Information Technology

The Results Are In: Recent OpenNotes Research Has Made Me a Believer | Healthcare Informatics Magazine | Health IT | Information Technology | Informatics in Participatory Health | Scoop.it
Initial feedback shows patients feel more in control of their #health w/ OpenNotes. See @RajivLeventhal article here https://t.co/PRh0oYJYQO
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Mobile health apps should connect to EHRs - ModernMedicine

Mobile health apps should connect to EHRs - ModernMedicine | Informatics in Participatory Health | Scoop.it
While healthcare providers agree that mobile health apps can reduce healthcare costs and improve patient outcomes, a few barriers to full adoption remain, according to a new report.
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