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Dr. Paul Muchowski addresses the community.

Dr. Paul Muchowski addresses the community. | Help4HD-International.org | Scoop.it
I openly invited Dr. Paul Muchowski for an interview. On January 10, 2013, I received an email from him with the following address to the community. I wish to thank Dr. Muchowski for contacting me directly.
Hdsgcc Ca's insight:

**TheHuntingtonsPost.org was contacted today by Dr. Paul Muchowski. Please take a moment to read Dr. Paul Muchowski's address to the Huntington's disease community.**
http://thehuntingtonspost.org/Dr_Paul_Muchowski.html

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CIRM Stem Cell Research Updates: A patient's story of hope for a Huntington's disease therapy

CIRM Stem Cell Research Updates: A patient's story of hope for a Huntington's disease therapy | Help4HD-International.org | Scoop.it
Hdsgcc Ca's insight:

Super amazing advocate Katie Jackson's CIRM blog has been Scoop.it!

Hdsgcc Ca's curator insight, January 6, 3:50 PM

You can even listen to Katie Jackson, Dr. Jan Nolta and Dr. Ellen Feigal on Help 4 HD Radio right from her article at The Official Huntington's Post...

Please "Like" and "Comment" and Share. Thank you for your support

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James Valvano - Huntington's Disease Film Project

James Valvano -  Huntington's Disease Film Project | Help4HD-International.org | Scoop.it

Governed by Deshalamar CDC 501 (c)3 of Brentwood, New York -
WeHaveAFace.org was created to bring about international awarenss of Huntington's disease via the first documentary on the disease!

Join us!

https://www.facebook.com/pages/James-Valvano-Huntingtons-Disease-Film-Project/189650917743909 ;


Via WeHaveAFace
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The Official Huntington's Post Fan Page

The Official Huntington's Post Fan Page | Help4HD-International.org | Scoop.it

Thank you for visiting The Official Huntington’s Post Fan Page!

 

I am a mom, caregiver and advocate for my son who is suffering from Huntington’s disease. In my quest to find help and hope for my son, I promised him that I would share what I have learned with the world.

The Huntington’s Post vision is to reach people all over the world who are battling Huntington’s disease or who are interested in helping; provide credible yet interesting stories; always reporting the truth about what is in the news.

 

The HD community deserves to know the who, what, where, when and why about all that is going on in the scientific, medical and advocacy world of HD. I have set out to help anyone who has our best interest at heart and may Heaven help the ones who do not.

 

Always in truth, light and love,

 

Melissa Biliardi

Editor-in-Chief

www.TheHuntingtonsPost.org 

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Help 4 HD - The HD View Fan Page

Help 4 HD - The HD View Fan Page | Help4HD-International.org | Scoop.it

Welcome to Help4HD-International.org Fan Page!


We are a grassroots non-profit organization with a mission to help the juvenile Huntington's disease (JHD) and adult Huntington's disease (HD) community with support, education, resources, information and entertainment.

 

My name is Melissa Biliardi, and I am a mom and caregiver of my son who is suffering from the devastating symptoms of Huntington's disease. In 2008 when he was diagnosed, he asked me to find his community. What I found was a warm and loving family of H'Dears and JH'Dears across the country and around the world, all related by this one gene called Huntingtin.

 

As the founder of Help 4 HD International: Help 4 HD Support Groups; Help 4 HD - The HD View and Help 4 HD News Channel on BlogTalk Radio; Research4HD and The Huntington's Post websites, I have observed that there is a great need in the community for support and resources and so this is my first attempt to collaborate with other grassroots organizations to collectively and cooperatively provide help and hope to the community.

 

In the weeks, months, years to come more information and education will be discovered and with that knowledge, we will update these websites, Facebook pages and groups and the Help 4 HD Radio site. For more information, programs and news, please visit these Help 4 HD International websites:

 

www.Help4HD-International.org

www.TheHuntingtonsPost.org

www.Research4HD.org

www.BlogTalkRadio.com/Help4HD

 

 

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CIRM Stem Cell Research Updates: A patient's story of hope for a Huntington's disease therapy

CIRM Stem Cell Research Updates: A patient's story of hope for a Huntington's disease therapy | Help4HD-International.org | Scoop.it
Hdsgcc Ca's insight:

You can even listen to Katie Jackson, Dr. Jan Nolta and Dr. Ellen Feigal on Help 4 HD Radio right from her article at The Official Huntington's Post...

Please "Like" and "Comment" and Share. Thank you for your support

Hdsgcc Ca's curator insight, January 4, 8:50 PM

Super amazing advocate Katie Jackson's CIRM blog has been Scoop.it!

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magazine

magazine | Help4HD-International.org | Scoop.it
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Advertising with Deshalamar makes sence...

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Help 4 HD - Mobile Application!

Help 4 HD - Mobile Application! | Help4HD-International.org | Scoop.it

Get the free app "Help 4 HD" - your original source for everything related to Huntington's disease and Juvenile Huntington's disease education, resources and information!

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Research4HD.org Fan Page

Research4HD.org Fan Page | Help4HD-International.org | Scoop.it

Thank you for visiting the Research4HD Fan Page!

 

Our Mission is to provide the national and international Huntington's disease community with direct links to our HD researchers, HD foundations, HD clinics, and HD clinical trials and studies, so that private donations may be facilitated. These wonderful resources show incredible promise in finding viable treatments or the cure for Huntington’s disease in addition to providing exemplary care for our JH'Dears and H'Dears. Here you can learn more about the Huntington Study Group (HSG) or locate and participate in a clinical trial or study in your area. Help4HD radio show links are provided so that you may listen and learn more about what they are doing to help all of us in the HD community.

 

Our scientific researchers are working day and night to find viable treatments or the cure for Huntington's disease, but funding has become more challenging. Our researchers need to continue their work from the bench to the bedside, without interruption or delay. Our HD care facilities need much more support in order to continue providing excellent care to those who are suffering from Huntington's disease.

 

Researchers work from grants, philanthropic and private donations. Many times research money dries up and their research ends in the valley of death (VOD), where promising research dies due to lack of funding. The Food and Drug Administration (FDA) may mandate additional preliminary testing before they will allow a clinical trial to begin, which usually falls outside a specified grant allocation. Private donations will make a huge difference to bridge the gap and pay for these additional mandates. Without private funding, many trials and studies will not take place.

 

Research4HD.org is designed to assist the entire community with direct links to these vital resources who need fostering so that crucial research does not get shelved and precious time is not wasted. Time is of the essence, and for many who suffer from Huntington's disease, time is running out. We need to eradicate HD!

 

Thank you for visiting - www.Research4HD.org

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