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DMossEsq: Lack of control, insecurity, irrelevance to attribute exchange and inconvenience – what else do you look for in a personal data store?

DMossEsq: Lack of control, insecurity, irrelevance to attribute exchange and inconvenience – what else do you look for in a personal data store? | Health Open Data NHS | Scoop.it
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Flatiron Health: The New Standard for Oncology Technology

Flatiron Health: The New Standard for Oncology Technology | Health Open Data NHS | Scoop.it
Flatiron Health is a healthcare technology company. Our goal is to fight cancer with organized data. With OncologyCloud, we help oncologists enhance care.
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Garret Hampton: «Le risque du Big Data médical est faible»

Garret Hampton: «Le risque du Big Data médical est faible» | Health Open Data NHS | Scoop.it
Garret Hampton, responsable du développement des biomarqueurs chez Roche-Genentech, décrit les enjeux
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Ben voyons 

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#DériveNumérique VS #ResponsabilitéNumérique

#DériveNumérique VS #ResponsabilitéNumérique | Health Open Data NHS | Scoop.it
Je découvre avec effroi (merci @DrSportSanté) l'article du @24heuresch : "Les caisses veulent surveiller notre activité sportive" d'hier, repris du blick dimanche. Nous y découvrons l'existence du ...
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Senate Must Pass the 21st Century Cures Act | Commentary - Beltway Insiders

Senate Must Pass the 21st Century Cures Act | Commentary - Beltway Insiders | Health Open Data NHS | Scoop.it
By Peter Pitts In a rare display of bipartisanship in politically polarized Washington, 344 members of the House of Representatives voted in July to pass t
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NHS to carry on selling patient records to insurers

NHS to carry on selling patient records to insurers | Health Open Data NHS | Scoop.it
Study finds details of more than 50,000 people were passed to the academics working in universities without the necessary legal safeguards
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NHS circumvents GPs to obtain confidential patient data

NHS circumvents GPs to obtain confidential patient data | Health Open Data NHS | Scoop.it
Raises concerns about privacy and security of highly personal information.
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NHS boss demands health information for MILLIONS of Britons - and it could identify YOU

NHS boss demands health information for MILLIONS of Britons - and it could identify YOU | Health Open Data NHS | Scoop.it
CONFIDENTIAL NHS data revealing millions of patients' private health details and information including their date of birth and postcode have been demanded by an aide to the Prime Minister.
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OPM: 21.5M impacted by background-check breach -- FCW

OPM: 21.5M impacted by background-check breach -- FCW | Health Open Data NHS | Scoop.it
Agency details results of an "interagency forensic investigation," plans for assisting affected individuals.
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Fine ! 

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Prélèvements d’organes, données de santé : qu’en est-il de la démocratie sanitaire ?

Prélèvements d’organes, données de santé : qu’en est-il de la démocratie sanitaire ? | Health Open Data NHS | Scoop.it
La transparence et le consentement sont des principes importants pour le prélèvement d’organes. Quant à la collection de données sanitaires, de bonnes intentions risquent de nous faire mal, explique Emmanuel Hirsch, professeur d’éthique médicale
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Privacy and the 100,000 Genome Project

Privacy and the 100,000 Genome Project | Health Open Data NHS | Scoop.it
Since the DoH admits that “public access documents” state that all data will be anonymised when the format is in fact pseudonymisation, the question arises as to whether those participating in the 100,000 Genome Project have in fact given informed consent for their data to be used in this way.
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- "Since the DoH admits that “public access documents” state that all data will be anonymised when the format is in fact pseudonymisation, the question arises as to whether those participating in the 100,000 Genome Project have in fact given informed consent for their data to be used in this way." 

 

- "‘Genomic research’ is extraordinarily vague"

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Quand la Big Pharma rencontre le Big Data

Quand la Big Pharma rencontre le Big Data | Health Open Data NHS | Scoop.it
Au début du mois, Sanofi et la division sciences de la vie de Google annonçaient la mise en place d'une collaboration « pour améliorer la...
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Les big data sont aussi dangereuses que prometteuses, prévient le patron de Novartis

Les big data sont aussi dangereuses que prometteuses, prévient le patron de Novartis | Health Open Data NHS | Scoop.it
Dans une interview au quotidien suisse Le Temps, Joe Jimenez, le patron de Novartis, numéro un mondial de l’industrie pharmaceutique, revient sur son partenariat avec Google. Et donne son point de vue sur la révolution engendrée par les big data dans la santé.
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«10 à 15% des médicaments de Novartis ont un prix différencié selon le principe satisfait ou remboursé»

«10 à 15% des médicaments de Novartis ont un prix différencié selon le principe satisfait ou remboursé» | Health Open Data NHS | Scoop.it
Le directeur général de Novartis croit à un rebond de l’innovation pharmaceutique et propose des prix différenciés selon l’efficacité des médicaments
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21st Century Cures Act Prompts Debate Over Patient Consent Rules - iHealthBeat

21st Century Cures Act Prompts Debate Over Patient Consent Rules - iHealthBeat | Health Open Data NHS | Scoop.it
Patient privacy advocates say the House-approved 21st Century Cures Act lacks safeguards for personal health data being used for medical research and hope the Senate version of the bill will do more to strengthen patient consent rules.
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Privacy campaigners on red-alert following seven-day patient data proposals | Health IT Central

Privacy campaigners on red-alert following seven-day patient data proposals | Health IT Central | Health Open Data NHS | Scoop.it
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PM plans patient data grab in proposals for seven-day NHS

PM plans patient data grab in proposals for seven-day NHS | Health Open Data NHS | Scoop.it
Privacy campaigners raise concerns over NHS official’s letter to IT companies asking for confidential data for patients who get a ‘seven-day’ service
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OPM yanks background check system offline -- FCW

OPM yanks background check system offline -- FCW | Health Open Data NHS | Scoop.it
Weeks after first disclosing massive breaches, OPM has shuttered a vital background check system.
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Ouverture des données de santé, le secret médical en danger ?

Ouverture des données de santé, le secret médical en danger ? | Health Open Data NHS | Scoop.it
Le projet de loi santé prévoit l'ouverture des données concernant les patients. Elles sont certes "anonymisées", mais des dérives ne sont-elles pas à craindre? Par Jonathan Kisler, Consultant mc2i Groupe
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Oi, UK.gov, your Verify system looks like a MASS SPY NETWORK

Oi, UK.gov, your Verify system looks like a MASS SPY NETWORK | Health Open Data NHS | Scoop.it
Academic eyeballs architecture, screams in horror
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Why The OPM Breach Is Such a Security and Privacy Debacle | WIRED

Why The OPM Breach Is Such a Security and Privacy Debacle | WIRED | Health Open Data NHS | Scoop.it
The hacker breach of the Office of Personnel Management, exposing four million government employees' data, is far worse than it looked when it first hit the public eye.
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