Family-Centred Care Practice
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Family-Centred Care Practice
Dedicated to battling injustice of any form against children, youth, persons with disability and the elderly. Family-Centred Care Practice is the most ethically viable and cost-effective approach of service delivery.
Curated by Velvet Martin
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Samantha's Law

Samantha's Law | Family-Centred Care Practice | Scoop.it
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Alberta Tory Propaganda on the Backs of Children 

Alberta Tory Propaganda on the Backs of Children  | Family-Centred Care Practice | Scoop.it
I'm pretty p'd off atm at Alberta Tory propaganda pretending to be heroes for dead little children; particularly when Serenity died while that team was in power and managed to hide 685 child fatalities from the Public! - VM
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Edmonton women's march on Washington 

Edmonton women's march on Washington  | Family-Centred Care Practice | Scoop.it
Felt proud, humbled ... and empowered ... to deliver this speech at the Edmonton Women's March on Washington ...

Like most of you, the language that I heard through much of 2016 left me feeling sad, anxious, even scared. But if you are a woman, a person of color, an indigenous person … if you are a person with disabilities … if you are gay, lesbian, bisexual, transgender, two-spirit, queer or questioning, if you are Muslim, Mexican or any visible minority. You probably feel even more disheartened, even more frightened.

When we have leaders and people with large public platforms use sexist, misogynist, racist, homophobic language it gives others on society a moral license to do the same. When we have our elected officials and party leaders in our own province stay silent when their supporters viciously attack other politicians on twitter or their Facebook walls because of their gender … let me tell you … when you remain silent, you are not part of the solution, you are part of the problem.

When you don’t take a stand against sexism and misogyny … you stand for it.

When you don’t speak up to hate and intolerance, you give permission for people to turn their hateful thoughts into words. And hateful words become actions.

Just over a year ago many of us gathered on these steps to celebrate when protections against discrimination based on gender identity and gender expression were added to Alberta’s Human Rights Act. We celebrated when we were promised our LGBTQ kids would be protected in their schools. We showed up at the airport to welcome thousands of refugees … making our home … their home.

But be warned by what is happening in politics in the United States. Listen to the words of those in our own province and country who are campaigning to lead their own parties. We are always only one election away from losing many of the rights and freedoms we’ve spent decades fighting for.

But what can we do?

We run for office ourselves. If we can’t run for office, we actively support women in politics, we support candidates of any gender who share our values of diversity, inclusion, women’s rights, human rights and social justice.

We donate our time and money to causes which support equality. Causes that support reproductive rights. Causes that will protect the rights we have over our own bodies and identities.
We meet hate with love. We meet intolerance with acceptance. We meet fear with education.

We take the time to get to know people who are different than us.
We celebrate those differences and embrace the power of diversity.

We elevate each other, build each other up.
When we see someone fall at the hurtful words or actions of another … we don’t stay silent, we speak out.

We create spaces for their voices to be heard.

When those voices have been silenced by fear or oppression, we become their choir.

We can’t force people to be kind, respectful and honourable … but we can show them how.

No matter your gender, your color, your ability or disability. No matter your age. No matter your race or sexual orientation. Stand up for each other. Stand with each other. We stand with our children. We stand with our families. Our friends. Our communities. We stand with our sisters, mothers, daughters and supporters in Washington and cities across the world today and every day.

We link our arms and build our own wall … a wall of peace, love, respect and resilience. Because you may be able to knock one of us down. But when we stand together arm in arm … you can’t knock any of us down.

Together … we are stronger. Together … we are louder. Together … We are survivors. Together … we prevail. And make no mistake … we … will … prevail. — Marni Panas with Manwar Khan.
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Colin Mochrie champions transgender rights, expresses support for daughter

Colin Mochrie champions transgender rights, expresses support for daughter | Family-Centred Care Practice | Scoop.it
Canadian comic Colin Mochrie says he welcomes his new role as a champion for transgender rights after speaking out in support of his daughter.
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Government names child welfare panel experts

Government names child welfare panel experts | Family-Centred Care Practice | Scoop.it

A professor, a social worker and a director of the Native Counselling Services of Alberta have been named to panel of child welfare experts.


http://edmontonjournal.com/news/politics/government-names-child-welfare-panel-experts


Government names child welfare panel experts

EMMA GRANEY
More from Emma Graney
Published on: January 18, 2017 | Last Updated: January 18, 2017 6:05 AM MST
Human Services Minister Irfan Sabir said that details about the child intervention review panel will be released Thursday.
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A professor, a social worker and a director of the Native Counselling Services of Alberta will provide the provincial government with expert advice to try and fix the province’s broken child welfare system.
Peter Choate, registered social worker and assistant professor at Mount Royal University, Bruce MacLaurin, professor at the University of Calgary’s social work faculty and Patti LaBoucane-Benson, research and evaluation director at NCSA, have agreed to join five NDP MLAs, and one from each opposition party, to take a magnifying glass to child intervention.

More details of the panel are expected Wednesday, including the date of the first meeting.

Progressive Conservative interim leader Ric McIver first proposed a child review committee in November.

Human Services Minister Irfan Sabir instead proposed a ministerial panel, causing opposition parties to demand changes to the panel’s terms of reference. They reached a compromise on Dec. 22.


Sabir told Postmedia Tuesday it wasn’t hard to find experts willing to review the system.
“It’s an issue that everybody cares about — it’s about the vulnerable children, the vulnerable citizens — so whoever we reached out to, everybody was very positive,” he said.


“Everybody wants to work on this file.”

The panel has its work cut out — it has six weeks to recommend changes to the death review process, and a larger report recommending concrete actions for systematic change is due in six to eight months.

The panel is the most recent attempt in a string of reviews to improve Alberta’s child welfare system.

It was formed following the case of Serenity — a four-year-old girl who died of a traumatic head injury after being in government care.

When she arrived in hospital, she was suffering from serious hypothermia, catastrophic malnutrition, anal and genital bruising, and weighed just 18 pounds, the typical weight of a nine-month-old baby.

The case took two years to get to police, who are still investigating.

The experts

Peter Choate

A registered social worker, Peter Choate holds a PhD in addictions and a master of social work, and is an assistant professor of social work at Mount Royal University.

Choate is engaged in clinical private counseling with an emphasis on addictions, domestic violence and child protection matters, and has been qualified as an expert witness multiple times in the Alberta Provincial Court and Court of Queen’s Bench.

His particular emphasis is on child and adolescent mental health including maltreatment, neglect and abuse (physical, sexual, emotional) and those issues within family systems.



Bruce MacLaurin

Bruce MacLaurin is a professor of social work at the University of Calgary, where he teaches classes on child maltreatment, social work evaluation, research and social work policy at the undergraduate and graduate levels.

His research interests include child maltreatment, child welfare policy and service delivery, foster care outcomes, street youth and youth at risk. Before moving to the University of Calgary in 2002, he was a research associate at the University of Toronto’s Bell Canada Child Welfare Research Unit.

MacLaurin is currently the primary investigator in a three-year study for the Alberta Centre for Child, Family and Community Research, and is a co-investigator on three other major studies funded by the Social Sciences and Humanities Research Council and the Canadian Institutes of Health Research.


Patti LaBoucane-Benson

Patti LaBoucane-Benson has a PhD in human ecology, focusing on Aboriginal family resilience, and a Master of Science in family ecology. She has worked for the Native Counseling Services of Alberta for 16 years, where she is currently the director of research, training and communication.

Laboucane-Benson has been the principle or co-investigator on many community-based, applied research projects within the Aboriginal and non-Aboriginal communities in Canada.

LaBoucane-Benson was also the lead on the healing program curriculum for Aboriginal offenders for NCSA, and is the managing editor of international periodical Pimatisiwin: A Journal of Indigenous and Aboriginal Community Health Research.

egraney@postmedia.com

twitter.com/EmmaLGraney


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Velvet Martin's comment, January 18, 1:05 PM
A member of the Public shared this with me:

"Dear Honourable Irfan Sabir:

I read this article today in the paper. I am quite concerned about the panel because in my opinion it's missing the most important experts, namely:

- Adult Children of the System (a survivor of abuse in foster care)
- Bio parents who have lost a child in the system
- Foster parent that is caring for children at risk.

Text book experts are great and I agree they are needed, but only experience can truly tell the story of the magnitude of suffering that occurs as a result of government decisions. It's the recommendations of those that have suffered of the system that most need to be addressed and heard. It is after all those in the system that we are supposed to be serving and those in the system that deserve answers. I hope this government will be blatantly honest about the problems that have occured. That instead of sweeping issues under the rug to save face, that our government has the courage to tell the truth. Only in the truth will the problems be solved.

I kindly request as a citizen of Alberta that your panel invite those that have suffered in the system to be active in the creation of solutions to the problem. Thank you."
Velvet Martin's comment, January 18, 1:06 PM
I am reminded of the Previous Government's handling of circumstances. Opposition Leaders publicly recommended my inclusion in the Child Welfare Roundtable and were ignored. A renown paediatrician offered expert input as an individual in contact with many children attached to the System, but was excluded. What changes have we seen stemming from the Roundtable? Our youth continue to die! And, they will continue to perish until there is concerted efforts to add public voices and ensure ALL individuals are held equal before the law.

Why is this Minister not listening?

Velvet Martin
Spokesperson for Protecting Canadian Children
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Betrayed by the Government of Alberta 

Betrayed by the Government of Alberta  | Family-Centred Care Practice | Scoop.it
In January 2007, I submitted several recommendations to the Government under Minister Janis Tarchuk. Amongst those implemented by the Ministry were the ones I made, however, the Department failed to acknowledge the work as my own. Media even questioned origin of content so obvious the fact recommendations did not align with the case it promoted as basis of change.:

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.google.ca%2Famp%2Fwww.cbc.ca%2Famp%2F1.709645%3Fclient%3Dsafari&h=dAQFjKkET

Alberta will implement foster care recommendations: minister

CBC News

June 10, 2008

Janis Tarchuk, Alberta's minister of children and youth services, is promising to follow all eight recommendations of a report into foster care in the province that was prompted by the death of a three-year-old foster child.

None of the recommendations refer directly to the case that led to the review. The department has refused to discuss the details of incident, citing privacy rules.

In addition, I was directly informed by a member of the Department that CYFA FSCD Policy was thoroughly explored and adjustments made due to Samantha’s case to ensure families tasked with disability and medical concerns without intervention issues would be protected in the future. Section 2-3 of the FSCD Act was revised and made retroactive to December 2006 reflective of Samantha’s date of death; revision is noted in the Manual as indicated. However, no one to date since 2008 has acknowledged the truth that the revision was legitimately attributed to Samantha and need be proclaimed a House Bill, “Samantha’s Law.” Again, thousands of signatures were summoned in support of naming FSCD section 2-3 properly. I cannot put into words strong enough how betrayed I feel.
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Dorothy Retha Cook's curator insight, January 18, 1:29 PM

There are those things that with the humane eye it appears to be unrealistic but then there are the inhuman things that when done by the government it makes the one it's done to appear to have created the problem even when she didn't.  I just say remember not all in the government mean others well but some not only mean but make others life hell instead. 

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Is There a Link Between Autism and Gender Dysphoria?

Is There a Link Between Autism and Gender Dysphoria? | Family-Centred Care Practice | Scoop.it
When autism is mentioned, that mention will almost certainly include a statistic. One of the more common autism-related numbers thrown around these day
Velvet Martin's insight:
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Velvet Martin's comment, January 17, 5:37 AM

THE BLOG
Is There a Link Between Autism and Gender Dysphoria?
Sep 13, 2013 | Updated Feb 02, 2016
Kyle Simon Co-founder and Vice President, Autism Family Center

GETTY
When autism is mentioned, that mention will almost certainly include a statistic. One of the more common autism-related numbers thrown around these days is the fact that it is four times more likely to occur in boys than in girls. A less commonly discussed phenomenon in the autism community (and in the greater mental health community) is that autism spectrum disorders (ASD) occur at a higher rate in transgender people than in the general population. This trend, documented in dozens of case studies and prevalence studies, causes some uncertainty around the four-times-more-common-in-males statistic and raises questions about autism and gender identity.

A study conducted by a team of British scientists in 2012 found that of a pool of individuals not diagnosed on the autism spectrum, female-to-male (FTM) transgender people have higher rates of autistic features than do male-to-female (MTF) transgender people or cisgender males and females. Another study, which looked at children and adolescents admitted to a gender identity clinic in the Netherlands, found that almost 8 percent of subjects were also diagnosed with ASD. That figure is nearly four times higher than the rate of ASD in the general population, according to the Centers for Disease Control and Prevention (CDC). Turkish researcher N. M. Mukaddes suggests that this number may even be low, citing the fact that individuals with lower levels of language may be unable to communicate their feelings of dissatisfaction with their assigned gender.

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A core theory of autism is that it is an exaggeration of the typically male characteristic of systemizing with a low level of empathizing, considered a female characteristic. Called the extreme male brain (EMB) theory of autism, this theory developed from a body of research that found that males typically exhibit higher performance on tasks designed to test systemization, and lower performance on tasks measuring empathy. The British researcher who originally published this theory, Simon Baron-Cohen, applied it to individuals on the autism spectrum, observing that individuals with ASD generally perform even higher on systemization tasks than do neurotypical males, hence the term “extreme male brain.” As bizarre as these findings may sound, they have been supported by several other studies looking at sex and ASD. However, this theory has been criticized as being based on an “unpersuasive gendering of certain capacities or aptitudes in the human population,” Timothy Krahn and Andrew Fenton wrote. Krahn and Fenton go even further to suggest that this theory may inadvertently favor males in the diagnostic process, thereby reducing access to services by females with symptoms of ASD.

While the EMB theory focuses on cognitive abilities, other factors related to sex and gender have been found to correlate with ASD. An international team of researchers found significantly higher levels of male hormones in both males and females diagnosed with ASD than in the neurotypical control group. These findings raise questions regarding both ASD and gender nonconformity. For example, could higher levels of male hormones be the cause of both ASD and feelings of gender dysphoria (the newly published clinical term for being transgender)? Or could the presence of one cause the higher levels of hormones, which in turn causes the other? Is it only more masculine women who are diagnosed with ASD, while others who show symptoms go undiagnosed? Only time and much more research on the topic will reveal the answers to these questions.

One thing we do know for sure is that transgender individuals with ASD need an extra level of treatment. Research has found that transgender individuals diagnosed with developmental disabilities are at increased risk of sexually unhealthy behavior. The authors of that study suggest that caretakers’ efforts to protect these individuals may inadvertently limit their autonomy and push them toward riskier sexual behavior. Therefore, it is important that people providing care to these unique individuals remain mindful of the unique needs and limitations that they face.

Special thanks to the Center for Gender, Sexuality and HIV Prevention at the Ann & Robert H. Lurie Children’s Hospital of Chicago for assistance with resources.
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Paula Simons: It's time to fill accountability vacuum in child welfare system

Paula Simons: It's time to fill accountability vacuum in child welfare system | Family-Centred Care Practice | Scoop.it
Alberta's child and youth advocate has no power or mechanism to hold human services bureaucrats accountable.
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Alberta Crown drops retrial of woman with IQ of 50 wrongfully convicted of murder - APTN News

Alberta Crown drops retrial of woman with IQ of 50 wrongfully convicted of murder - APTN News | Family-Centred Care Practice | Scoop.it
(( Wendy Scott in a Facebook photo posted in 2008. The Crown stayed a murder charge against the women Friday.)) Jorge Barrera APTN National News …
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Put the stones over the grave 

Put the stones over the grave  | Family-Centred Care Practice | Scoop.it
http://readingchildrensbooks.blogspot.ca/2017/01/took-my-life-like-basket-and-collected.html

-------Silence is complicit ----Mdm. Marie-Claude Landry Chief Commissioner of the Canadian Human Rights Commission ---------------------took my life like a basket /and collected stones / put the stones over the grave / of Serenity and I kept going

Velvet Martin
December 13



Image may contain: 1 person, eyeglasses, sunglasses and text




took my life like a basket
and collected stones
laid out the stones
over the graves of children

walked a little way
feeling lighter
and then collected more stones
as there were more children dead

wondered to myself
how long will this continue?
why are other mothers not asking
these questions?

if these were our beloved ones
change would happen but since these
are children we throw away
the silence continues and no action is taken

took my life like a basket
and collected stones
put the stones over the grave
of Serenity and I kept going

http://www.cbc.ca/news/canada/manitoba/winnipeg-students-lay-poppies-on-soldiers-graves-for-remembrance-day-1.3313061
Image result for poppies stone graves pictures



https://www.youtube.com/watch?v=WAdVQkwIfMs&index=34&list=RDSFOIca0thpU
Gregory Alan Isakov "Suitcase Full of Sparks"


http://edmontonjournal.com/news/politics/premier-notley-denies-hypocrisy-over-child-welfare-conflicts

Premier Notley denies hypocrisy over child welfare conflicts

EMMA GRANEY
More from Emma Graney
Published on: December 14, 2016 | Last Updated: January 12, 2017 5:21 PM MST
Human Services Minister Irfan Sabir talks about actions to improve, Alberta's child intervention system on Dec. 8, 2016 in Edmonton.
Human Services Minister Irfan Sabir talks about actions to improve, Alberta's child intervention system on Dec. 8, 2016 in Edmonton.GREG SOUTHAM / POSTMEDIA
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In October 2008, as an opposition MLA, Rachel Notley demanded the resignation of then-human services minister Janis Tarchuk over problems in the child intervention system.
Notley charged that Tarchuk’s ministry had bungled the screening process for would-be government care homes.
“You clearly have no idea what’s going on inside your ministry,” Notley told Tarchuk during question period.
“You failed your staff. You failed Albertans. You failed these children. Why won’t you resign?”
Tarchuk responded that “actions have taken place” and issues “have been addressed,” but Notley said Albertans had no reason to have any faith in the minister’s assurances.
“You’ve lost all credibility,” Notley said. “Why won’t you resign?”
Then-premier Ed Stelmach stood by Tarchuk, just as Notley stood by current Human Services Minister Irfan Sabir last week as the opposition called for his resignation.
Notley’s decision was twice called into questioning the house this week by Progressive Conservative interim Leader Ric McIver and Wildrose MLA Todd Loewen, but the premier denied Wednesday she took a hypocritical stance by backing Sabir.
In response to McIver’s questions, she said her minister had “worked diligently” to support the work of Human Services and child intervention, reversing potential cuts and increasing funding by $37 million.
When asked Wednesday about her support for Sabir, she said the incident in 2008 and 2016 were “two very different sets of facts, two very different situations.”
In 2008, there was no public reporting of children who died in care — not the numbers, not the circumstances — and the children’s advocate was buried inside a ministry.
“Back at that time, it was an opposition member who had to inform the government that a death had occurred,” Notley said.
“It was a very, very different situation.”
egraney@postmedia.com
twitter.com/EmmaLGraney



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Foster care recommendations penned by Velvet Martin 

Foster care recommendations penned by Velvet Martin  | Family-Centred Care Practice | Scoop.it
In January 2007, I submitted several recommendations to the Government under Minister Janis Tarchuk. Amongst those implemented by the Ministry were the ones I made, however, the Department failed to acknowledge the work as my own. Media even questioned origin of content so obvious the fact recommendations did not align with the case it promoted as basis of change.:

https://l.facebook.com/l.php?u=https%3A%2F%2Fwww.google.ca%2Famp%2Fwww.cbc.ca%2Famp%2F1.709645%3Fclient%3Dsafari&h=dAQFjKkET

Alberta will implement foster care recommendations: minister

CBC News

June 10, 2008

Janis Tarchuk, Alberta's minister of children and youth services, is promising to follow all eight recommendations of a report into foster care in the province that was prompted by the death of a three-year-old foster child.

None of the recommendations refer directly to the case that led to the review. The department has refused to discuss the details of incident, citing privacy rules.


In addition, I was directly informed by a member of the Department that CYFA FSCD Policy was thoroughly explored and adjustments made due to Samantha’s case to ensure families tasked with disability and medical concerns without intervention issues would be protected in the future. Section 2-3 of the FSCD Act was revised and made retroactive to December 2006 reflective of Samantha’s date of death; revision is noted in the Manual as indicated. However, no one to date since 2008 has acknowledged the truth that the revision was legitimately attributed to Samantha and need be proclaimed a House Bill, “Samantha’s Law.” Again, thousands of signatures were summoned in support of naming FSCD section 2-3 properly. I cannot put into words strong enough how betrayed I feel.
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Discrimination against persons with mental disabilities

Discrimination against persons with mental disabilities | Family-Centred Care Practice | Scoop.it
http://readingchildrensbooks.blogspot.com/

Reading Children's Books
I took my Power in my Hand – / And went against the World – Emily Dickinson (Poem 660)

Sunday, January 15, 2017
You may also wish to consider retaining a lawyer to seek legal advice on the matters you have raised. -----------Discrimination against persons with mental disabilities contravenes the Ontario Human Rights Code, the Canada Human Rights Act and the United Nations Convention on the Rights of Persons with Disabilities. Yet health-care workers disregard the rights of the mentally ill with apparent impunity.----------- • She is urging the province’s medical schools, the College of Physicians and Surgeons of Ontario and the Ontario Medical Association to train students and practising doctors about their obligations under the Human Rights Code not to deny service to people with psychiatric problems.------Alberta Health is oblivious to the requirements of the Human Rights legislation that requires no discrimination against citizens with disabilities. When I repeatedly ask the GOA for the requirement for the Minister of Health to remind the health authorities and professional bodies of their need to follow human rights legislation I get the runaround. I don't need to enter the GOA maze. The health minister needs to stop abdicating her responsibility like Mr. Horne and Mr. Mandel and spell it out for AHS and Covenant Health. Denying resuscitation to a patient with disabilities is counter to the human rights legislation especially when legal documents are present that indicate this is the requirement. I trust the Minister of Health will get with the program. Or do families have to go public repeatedly to get the public attention required for the GOA to do it's job?





Julie Ali
Just now ·
Alberta Health is oblivious to the requirements of the Human Rights legislation that requires no discrimination against citizens with disabilities. When I repeatedly ask the GOA for the requirement for the Minister of Health to remind the health authorities and professional bodies of their need to follow human rights legislation I get the runaround. I don't need to enter the GOA maze. The health minister needs to stop abdicating her responsibility like Mr. Horne and Mr. Mandel and spell it out for AHS and Covenant Health. Denying resuscitation to a patient with disabilities is counter to the human rights legislation especially when legal documents are present that indicate this is the requirement. I trust the Minister of Health will get with the program. Or do families have to go public repeatedly to get the public attention required for the GOA to do it's job?



You may also wish to consider retaining a lawyer to seek legal advice on the matters you have raised. -----------Discrimination against persons with mental disabilities…
READINGCHILDRENSBOOKS.BLOGSPOT.COM|BY JULIE ALI

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although we fail
and we we fall

although we have no help
from government and public bodies

although the media is captured as well
and we walk alone in the drama of do not resuscitate

“Every attempt to question, understand or challenge a diagnosis I felt was woefully inaccurate was met by a smug smile and a dismissal. I have never felt so hopeless, helpless and suicidal.”



although we are waiting for the doctors to realise
that these handicapped citizens have their own lives

although we have written of the plight
of handicapped citizens on blogs and on social media

although the cases keep mounting
that there are practices that are unbecoming



“One person who experienced abdominal pain was left in the hospital for 10 hours alone before it was realized urgent surgery was needed.” The reason: the patient, a recovering addict, was on methadone treatment.

although advocates face retribution
and the public guardian engages in usurpation of the role of families

although Covenant Health and AHS engages
in these practice so as to "facilitate discharge:

although our words are taken straight out
of the medical files of a handicapped citizen

“After surgery, my surgeon told me, ‘had I known you were crazy, I wouldn’t have operated on you.’ ”

although there is proof and evidence
what is done is moving forwards and no communication by AHS

although we are the people
and we have gone before the world to speak of these tribulations

although in other provinces human rights infringements have been observed
the mentally ill for example are treated like throw away citizens by medical professionals

Discrimination against persons with mental disabilities contravenes the Ontario Human Rights Code, the Canada Human Rights Act and the United Nations Convention on the Rights of Persons with Disabilities. Yet health-care workers disregard the rights of the mentally ill with apparent impunity.


although all this is true nothing is done by the provincial governments
and what will the federal government do with these signs of ignorance and fear?


I put the news before the people since the provincial government and the college of
physicians and surgeons will issue spin and then nothing at all

although the rules are clear and we know them what good does this do?
we are speaking of the most vulnerable and without advocates their lives are through

The commission heard from people with mental diseases who were denied treatment on the presumption they were angling for drugs; turned away by doctors who didn’t want time-consuming patients; and pigeon-holed by psychiatrists who knew nothing about them.



what are we to do about these failures? I simply suggest the following
go to the human rights commission and speak clearly

then go public with the sad news of do not resucitate
do not intubate and no ICU because she is disabled and not normal

these are matters of highest significance
but of course the state is indifferent

• She is urging the province’s medical schools, the College of Physicians and Surgeons of Ontario and the Ontario Medical Association to train students and practising doctors about their obligations under the Human Rights Code not to deny service to people with psychiatric problems.


but when this happens do not think you are alone
you must go to defend the human rights of the most disadvantaged citizen

what is happening in Ontario happens in Alberta
and in BC too perhaps no place is immune from prejudice of this sort

but don't they understand such decisions are not immutable?
that when we activate ourselves there are penalties that need to imposed on all?

• She is vowing to intervene in court challenges if the commission believes a doctor is denying service to would-be patients with mental disabilities; to hold public inquiries and to initiate cases before the Human Right Tribunal of Ontario.

and where is the health minister in Alberta?
avoiding her responsibilities


we are the people
and we are speaking clearly

defend human rights for all of the citizens
and not those deemed essential in the eyes of the system (such as it is)


Worthy as these recommendations are, stronger medicine is needed. Health Minister Deb Matthews has to lay down the law: Any health-care worker found violating the rights of Ontarians with mental disabilities will be disciplined. Any institution that allows such behaviour will be penalized.



From:
Date: Wed, Nov 16, 2016 at 7:56 AM
Subject: RE:Medical Orders for Scope of Treatment (MOST) and Advance Care Planning (ACP)(ACR-421417)
To:


**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********

Thank you for visiting the Alberta Government feedback web site. Following is the response to your question prepared by Health :

Alberta Health received your inquiry regarding do not resuscitate orders and related policy in Alberta, as well as complaints resolution mechanisms. We understand your desire to ensure that your sister receives quality care. The Ministry of Health, Alberta Health Services (AHS) and Covenant Health take quality of care very seriously. As partners, we are all committed to ensuring that each Albertan receives quality health care, and is treated with dignity and respect.

While you mention that your sister is handicapped, it is not clear from your email whether or not she has the ability to make decisions on her own behalf related to her health. If she has this capacity, there are processes in place for her to raise her concerns. She may do so with assistance and support from others if she wishes to. If she lacks this capacity, a complaint may be made on her behalf by an appropriate substitute decision-maker. We will summarize some key policies and processes in place which we hope will be of assistance.

For adults that have the capacity to make health care decisions for themselves, Alberta’s Adult Guardianship and Trusteeship Act supports well-established law that normally, where consent of an individual is required with respect to a health care decision, a competent adult is the one to make such decisions for herself. This legislation states that an adult is presumed to be competent.

The Government of Alberta has also enacted the Personal Directives Act to allow competent adults to name an agent, leave instructions with respect to personal decisions (including health care decisions) or both in the event that they lose capacity in the future. There are some limits as to instructions or decisions that may be made under a personal directive. The Ministry of Human Services is responsible for this legislation and would be a good source of information if you have questions about personal directives. There is more information available online at the Ministry of Human Services web site, www.humanservices.alberta.ca/guardianship-trusteeship/personal-directives-how-it-works.html. You can contact the Ministry of Human Services at 1-877-427-4525 (toll-free), 8:15 am – 4:30 pm, Monday to Friday for further information.

Alberta’s Adult Guardianship and Trusteeship Act also provides direction for decisions made on behalf of individuals who have lost the capacity to make decisions. This normally applies in instances where no personal directive exists. However, it may also be applicable in some cases where an individual has a personal directive. The Act allows for the appointment of a guardian when appropriate. It provides authority in some instances for health care decisions to be made in the absence of an agent or guardian. It also sets out an ability to have certain decisions reviewed by the courts. The Ministry of Human Services is responsible for this legislation as well and you may wish to contact them with questions about this Act at the above toll free telephone number.

In addition to this, both AHS and Covenant Health have policies and procedures in place for decision-making, both for adults with capacity, and for adults who lack the capacity to make decisions. They also have policies and procedures setting out mechanisms for patients or others to make complaints with respect to treatment decisions. Specifically, both AHS and Covenant Health have patient concerns resolution processes that may be used, as you’ve indicated. Please see the following links to these policies: AHS http://www.albertahealthservices.ca/info/Page7451.aspx; Policy: https://extranet.ahsnet.ca/teams/policydocuments/1/clp-patient-concerns-resolution-process-prr-02-policy.pdf; and Covenant Health: https://medicalstaff.covenanthealth.ca/corporate-services/policies-procedures Policy: http://extcontent.covenanthealth.ca/Policies/iii-95.pdf. These policies are supported through the Patient Concerns Resolution Process Regulation under the Regional Health Authorities Act.

Further, if a complaint relates to a particular order made by a physician or other regulated health care professional, complaints may be filed with the appropriate regulatory body under Alberta’s Health Professions Act. For example, the College of Physicians and Surgeons (CPSA) may be contacted if someone wishes to file a complaint related to a physician. There is more information on filing a complaint with the CPSA online at www.cpsa.ca/complaints. You can also contact the CPSA for further information at 1-800-661-4689 or complaints@cpsa.ab.ca.

You may not be aware that in the event that a decision is made by AHS or Covenant Health under these patient concerns resolutions processes, or by a regulatory body such as the CPSA, the Government of Alberta has provided for a further safeguard in that a complaint may be made to the Ombudsman, under Alberta’s Ombudsman Act. You may contact the Alberta Ombudsman’s Office by phone: 780-427-2756 or 403-297-6185 or visit www.ombudsman.ab.ca for more information.

You may also wish to contact Alberta’s Health Advocate who can also assist with information about appropriate mechanisms to file complaints related to the health care system in Alberta. There is more information about Alberta Health Advocates online at www.albertahealthadvocates.ca. You can contact Alberta’s Health Advocates toll free at 310-0000, then 780-422-1812 or via email at info@albertahealthadvocates.ca.

You reference Fraser Health’s Medical Orders for Scope of Treatment and Advanced Care Planning in B.C. Both AHS and Covenant Health have formally implemented a policy that is very similar to the policy you reference. You may wish to see the Advance Care Planning and Goals of Care Designation (ACP GCD) policy as set out by AHS and Covenant Health.

For information about Advance Care Planning and Goals of Care Designation (ACP GCD) at Alberta Health Services, including further information about dispute resolution policy please visit www.conversationsmatter.ca. To contact the Provincial Palliative and End-of-Life Care Team at AHS please email palliative.care@ahs.ca.

For information about Advance Care Planning and Goals of Care Designation (ACP GCD) at Covenant Health, please contact Carleen Brenneis, Director, Palliative Institute, at 780.735.9637 or email palliative.institute@covenanthealth.ca

Thank you again for your comments and for contacting Alberta Connects.

On 2016-11-06 18:43:00.0 you wrote:

Hi,
As my handicapped sister has been subject to numerous Do not resuscitate orders over a period of five
years in the continuing care system, I wish to determine what policies at AHS and Covenant Health govern
the unilateral issuing of such orders by physicians employed by the health authorities.
Since the DNR orders were contradictory to the expressed wishes of a vulnerable handicapped citizen,
since the legal requirements were clearly stated in a document that is established called the personal
directive, since there appears to be confusion among physicians and hospitals in the province, what is
Alberta Health doing to standardise policies province wide regarding end of life decisions and what is
being done to prevent premature termination of citizens who lack capacity, aren't able to defend
themselves from medical staff and certainly would die prematurely without strong advocates in places?

My sister's case requires further investigation by Alberta Health but apparently her case isn't interesting
enough to the system and no one has indicated that a policy change has been made or that a policy is even
in place to govern the premature termination of such vulnerable citizens in Alberta.

Since other provinces have some policy in this regard, can the government of Alberta indicate what the
policy is in Alberta? In addition what dispute resolution mechanism is in place other than the ineffective
internal to AHS appeal process? When will the government provide citizens with an effective external
appeal process or does the government feel that citizens should simply go to the judicial route to save
their own?

I provide you with one example of a policy governing end of life decisions:
http://www.fraserhealth.ca/media/Medical%20Orders%20for%20Scope%20of%20Treatment%20(MOS
T)%20and%20Advance%20Care%20Planning%20(ACP).pdf
Sincerely, Julie Ali



The Alberta feedback site is constantly updated to provide you with important information about Alberta programs and services. We invite you to visit us soon. Your Alberta, a new e-newsletter from the Government of Alberta, will keep you up-to- date on the province’s latest projects and plans.

To sign-up, visit http://www.alberta.ca/contact.cfm

Internet www.Alberta.ca (AC-421417)



**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********

---------- Forwarded message ----------
From:
Date: Tue, Dec 6, 2016 at 9:33 AM
Subject: RE:End of life decisions --Medical Orders for Scope of Treatment (MOST) and Advance Care Planning (ACP)(ACR-421417)(ACR-424163)
To:


**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********

Thank you for visiting the Alberta Government feedback web site. Following is the response to your question prepared by Health :

Alberta Health has received your inquiry regarding End of Life Decisions.

We acknowledge that in your last email, and in extensive, previous correspondence between you and Alberta Health, you have indicated that you have not been satisfied with your experiences in the health care system. We have responded on numerous occasions to provide information aimed at connecting you with the appropriate resources to follow up with regarding your concerns. We continue to encourage you to connect with those resources, as they have substantive experience and supports in place to help patients with some of the concerns you have expressed. Your last email appears to indicate that you are no longer writing to seek information but to continue to voice your dissatisfaction with the system.

Health services in Alberta are delivered within a system where responsibilities and accountabilities are shared with other Ministries (such as Alberta Human Services), our regional health authority (Alberta Health Services), and many other organizations and stakeholders.

The Government sets and oversees the legislative framework for our health system, including the relevant statutes and regulations that provide the authority for a number of stakeholders to deliver health services in Alberta. We have noted your concerns, and provided advice to you in the relevant areas. There are a number of ways to address the concerns you have raised and previous correspondence has provided you with details about a number of options.

One possible resource you may wish to contact is Alberta’s Health Advocate. She and her staff are able to provide information on how to address issues, such as the ones you have identified, within the health system.

You may also wish to consider retaining a lawyer to seek legal advice on the matters you have raised. You may be interested to know that the Law Society of Alberta provides a lawyer referral service. There is more information on this service available online at www.lawsociety.ab.ca/public/lawyer_referral.aspx.

Thank you for contacting Alberta Connects.

On 2016-11-19 01:02:00.0 you wrote:

Thank you for the information you have provided in response Medical Orders for Scope of Treatment
(MOST) and Advance Care Planning (ACP)(ACR-421417).
Your response still does not provide any sort of safeguards for handicapped citizens as evidenced by my
sister's case.
Let me again go over my concerns and indicate to you that all the safeguards the government had in place
were of no use whatsoever.

1) The "Do not Resuscitate Order" was placed by one physician at the Grey Nuns Hospital in 2010.
2) We did not find out about the 2010 DNR until we got my sister's medical files in 2015 and 2016.
3) The later DNR orders and do not intubate, no ICU orders were added by other physicians at the Grey
Nuns Hospital against the requirements of my sister's personal directive as well as family.
4) I complained to patient relations at the Grey Nuns Hospital as well as the CEO of Covenant Health.
They did nothing. The process is pretty bogus in my opinon.
5) We went to other doctors. They all stood by their colleagues. Eg. the doctors at the University of
Alberta Hospital refused to change the designation set by the Grey Nuns Hospital despite family requests
as well as requests by my sister. So really if all the doctors are supporting each other how the heck will a
handicapped citizen fight a DNR?
6) It was only the ethicist who was hired I believe by AHS who asked the doctors to consider why they
were resuscitating drug overdose cases but not my sister that got them to reconsider. Well at least the
doctors at the University of Alberta Hospital.
7) So this raises the question of how my handicapped sister would have been able to save her own life
without an advocate? She would not have been able to do this. So this tells me in this situation,
handicapped citizens will be terminated prematurely.
8) The policy may be present as noted here but what is the use of it if no one is doing what it requires?
http://www.albertahealthservices.ca/assets/Infofor/hp/if-hp-acp-gcd-key-messages.p
The ACP/GCD Tracking Record continues to
be an important mechanism to foster the relay of
best information available, in support of ideal
decision-making with and for patients. The
ACP/GCD Tracking Record assists in preventing
disputes, and provides better information regarding
the history of decision-making throughout the
patient’s trajectory of care.
******
For example a GCD tracking record is best practice and was not done in my sister's care despite the fact
that the DNR went from 2010 to 2015. So really what AHS and Covenant Health are doing is providing
policy and there is no assurance that anyone is doing what is required. In fact, from one hospital to another
the DNR business seems to vary.

7) I am curious how you expect a handicapped patient to go to the other dispute resolution or complaint
places you have mentioned such as the Ombudsman. Do you expect handicapped patients to understand
that they have a DNR when they have carbon dioxide narcosis such as my sister had and then dispute it?
What you are saying is impossible. Such patients are vulnerable, at the mercy of doctors and subject to
premature termination in my humble opinion.

8) How would someone like my sister manage to contact the Ombudsman when we aren't able to even get
the folks at Covenant Health to explain why they have the series of DNR, do not intubate, no ICU orders
on my sister's file? The system is a farce. I am telling you that there needs to be a formal inquiry into the
mess that happened with my sister and if you all won't do it I guess I have to yap about this for years and
years.

I see no reason for the Ombudsman to do an inquiry and spend two more years figuring out that everyone
messed up. Everyone messed up. There you go. And now what safeguards will be put in place so that
vulnerable handicapped citizens do not have to endure the hell my sister went through?

9) I am curious. Is anything going to be done? The chatter you have provided me is well known and useless.
I am not talking here about policy, procedure or legislation. What I want to know is what government is
doing to ensure that what happened to my sister does not happen to another handicapped citizen who is
unlucky enough to lack advocates.

10) You mention complaining to professional bodies. I don't think you all understand that the main
purpose of professional bodies is not to protect the public but to protect the professionals. I have had the
experience of complaining to the College of Physicians and Surgeons when I nearly died in childbirth with
my first child. I feel that complaints about physicians usually end up in no action. I doubt that any
complaint about a DNR will result in any sort of response that will help handicapped citizens and I doubt
that anyone at the College is interested in the patients who are being prematurely terminated in this
manner. Why would they be? It's not their problem. It's the problem of families.

11) Since I am already writing to you I would like to mention some information that is still outstanding. I
requested a respiratory review of the Good Samaritan Extended Care at Millwoods. I have not received a
report. I want to know the results of the AHS respiratory review that I requested for the facility. When
will I get this report?

It is troubling that I have to keep writing to the government to clarify the issue. The issue is simple. We
have handicapped citizens. They can be killed by doctors who don't do their due diligence in terms of
investigation. Do not resuscitate orders can be placed on their files contrary to their personal directive
requirements. And y'all just stand around and say complain to another level of bureaucracy when it is the
job of government to fix the problem and not send me on a wild goose chase of the Shauna McHarg type.
We've learned from what happened to Shauna. It's to hold the right people to account. I am holding
government--specifically Alberta Health to account. What are you doing to protect handicapped citizens
from what happened to my sister?

Sincerely,
Julie Ali




The Alberta feedback site is constantly updated to provide you with important information about Alberta programs and services. We invite you to visit us soon. Your Alberta, a new e-newsletter from the Government of Alberta, will keep you up-to- date on the province’s latest projects and plans.

To sign-up, visit http://www.alberta.ca/contact.cfm

Internet www.Alberta.ca (AC-424163)



**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********



---------- Forwarded message ----------
From:
Date: Tue, Dec 6, 2016 at 9:33 AM
Subject: RE:End of life decisions --Medical Orders for Scope of Treatment (MOST) and Advance Care Planning (ACP)(ACR-421417)(ACR-424163)
To:

**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********

Thank you for visiting the Alberta Government feedback web site. Following is the response to your question prepared by Health :

Alberta Health has received your inquiry regarding End of Life Decisions.

We acknowledge that in your last email, and in extensive, previous correspondence between you and Alberta Health, you have indicated that you have not been satisfied with your experiences in the health care system. We have responded on numerous occasions to provide information aimed at connecting you with the appropriate resources to follow up with regarding your concerns. We continue to encourage you to connect with those resources, as they have substantive experience and supports in place to help patients with some of the concerns you have expressed. Your last email appears to indicate that you are no longer writing to seek information but to continue to voice your dissatisfaction with the system.

Health services in Alberta are delivered within a system where responsibilities and accountabilities are shared with other Ministries (such as Alberta Human Services), our regional health authority (Alberta Health Services), and many other organizations and stakeholders.

The Government sets and oversees the legislative framework for our health system, including the relevant statutes and regulations that provide the authority for a number of stakeholders to deliver health services in Alberta. We have noted your concerns, and provided advice to you in the relevant areas. There are a number of ways to address the concerns you have raised and previous correspondence has provided you with details about a number of options.

One possible resource you may wish to contact is Alberta’s Health Advocate. She and her staff are able to provide information on how to address issues, such as the ones you have identified, within the health system.

You may also wish to consider retaining a lawyer to seek legal advice on the matters you have raised. You may be interested to know that the Law Society of Alberta provides a lawyer referral service. There is more information on this service available online at www.lawsociety.ab.ca/public/lawyer_referral.aspx.

Thank you for contacting Alberta Connects.

On 2016-11-19 01:02:00.0 you wrote:

Thank you for the information you have provided in response Medical Orders for Scope of Treatment
(MOST) and Advance Care Planning (ACP)(ACR-421417).
Your response still does not provide any sort of safeguards for handicapped citizens as evidenced by my
sister's case.
Let me again go over my concerns and indicate to you that all the safeguards the government had in place
were of no use whatsoever.

1) The "Do not Resuscitate Order" was placed by one physician at the Grey Nuns Hospital in 2010.
2) We did not find out about the 2010 DNR until we got my sister's medical files in 2015 and 2016.
3) The later DNR orders and do not intubate, no ICU orders were added by other physicians at the Grey
Nuns Hospital against the requirements of my sister's personal directive as well as family.
4) I complained to patient relations at the Grey Nuns Hospital as well as the CEO of Covenant Health.
They did nothing. The process is pretty bogus in my opinon.
5) We went to other doctors. They all stood by their colleagues. Eg. the doctors at the University of
Alberta Hospital refused to change the designation set by the Grey Nuns Hospital despite family requests
as well as requests by my sister. So really if all the doctors are supporting each other how the heck will a
handicapped citizen fight a DNR?
6) It was only the ethicist who was hired I believe by AHS who asked the doctors to consider why they
were resuscitating drug overdose cases but not my sister that got them to reconsider. Well at least the
doctors at the University of Alberta Hospital.
7) So this raises the question of how my handicapped sister would have been able to save her own life
without an advocate? She would not have been able to do this. So this tells me in this situation,
handicapped citizens will be terminated prematurely.
8) The policy may be present as noted here but what is the use of it if no one is doing what it requires?
http://www.albertahealthservices.ca/assets/Infofor/hp/if-hp-acp-gcd-key-messages.p
The ACP/GCD Tracking Record continues to
be an important mechanism to foster the relay of
best information available, in support of ideal
decision-making with and for patients. The
ACP/GCD Tracking Record assists in preventing
disputes, and provides better information regarding
the history of decision-making throughout the
patient’s trajectory of care.
******
For example a GCD tracking record is best practice and was not done in my sister's care despite the fact
that the DNR went from 2010 to 2015. So really what AHS and Covenant Health are doing is providing
policy and there is no assurance that anyone is doing what is required. In fact, from one hospital to another
the DNR business seems to vary.

7) I am curious how you expect a handicapped patient to go to the other dispute resolution or complaint
places you have mentioned such as the Ombudsman. Do you expect handicapped patients to understand
that they have a DNR when they have carbon dioxide narcosis such as my sister had and then dispute it?
What you are saying is impossible. Such patients are vulnerable, at the mercy of doctors and subject to
premature termination in my humble opinion.

8) How would someone like my sister manage to contact the Ombudsman when we aren't able to even get
the folks at Covenant Health to explain why they have the series of DNR, do not intubate, no ICU orders
on my sister's file? The system is a farce. I am telling you that there needs to be a formal inquiry into the
mess that happened with my sister and if you all won't do it I guess I have to yap about this for years and
years.

I see no reason for the Ombudsman to do an inquiry and spend two more years figuring out that everyone
messed up. Everyone messed up. There you go. And now what safeguards will be put in place so that
vulnerable handicapped citizens do not have to endure the hell my sister went through?

9) I am curious. Is anything going to be done? The chatter you have provided me is well known and useless.
I am not talking here about policy, procedure or legislation. What I want to know is what government is
doing to ensure that what happened to my sister does not happen to another handicapped citizen who is
unlucky enough to lack advocates.

10) You mention complaining to professional bodies. I don't think you all understand that the main
purpose of professional bodies is not to protect the public but to protect the professionals. I have had the
experience of complaining to the College of Physicians and Surgeons when I nearly died in childbirth with
my first child. I feel that complaints about physicians usually end up in no action. I doubt that any
complaint about a DNR will result in any sort of response that will help handicapped citizens and I doubt
that anyone at the College is interested in the patients who are being prematurely terminated in this
manner. Why would they be? It's not their problem. It's the problem of families.

11) Since I am already writing to you I would like to mention some information that is still outstanding. I
requested a respiratory review of the Good Samaritan Extended Care at Millwoods. I have not received a
report. I want to know the results of the AHS respiratory review that I requested for the facility. When
will I get this report?

It is troubling that I have to keep writing to the government to clarify the issue. The issue is simple. We
have handicapped citizens. They can be killed by doctors who don't do their due diligence in terms of
investigation. Do not resuscitate orders can be placed on their files contrary to their personal directive
requirements. And y'all just stand around and say complain to another level of bureaucracy when it is the
job of government to fix the problem and not send me on a wild goose chase of the Shauna McHarg type.
We've learned from what happened to Shauna. It's to hold the right people to account. I am holding
government--specifically Alberta Health to account. What are you doing to protect handicapped citizens
from what happened to my sister?

Sincerely,
Julie Ali




The Alberta feedback site is constantly updated to provide you with important information about Alberta programs and services. We invite you to visit us soon. Your Alberta, a new e-newsletter from the Government of Alberta, will keep you up-to- date on the province’s latest projects and plans.

To sign-up, visit http://www.alberta.ca/contact.cfm

Internet www.Alberta.ca (AC-424163)



**********please do not reply THIS EMAIL ADDRESS IS NOT MONITORED **********




From:
Date: Mon, Dec 12, 2016 at 11:42 PM
Subject: RE: Do Not Resuscitate Orders (DNR)s (AC425769)
To:


**********This is an automatically generated email, please do not reply to this email. **********

Thank you for asking a question or sharing your thoughts with the Government of Alberta. We try to respond to all questions within 3 working days. If you need to visit us again, please visit Alberta.ca
Stay in touch
Sign up for Alberta News
Participate in a public consultation

This site is frequently updated to provide you with important information about Alberta programs and services. It's also an opportunity for you to provide your government with feedback on the issues that concern you. Please visit our site again soon to read an article, or send a comment. Internet: Alberta.ca
(AC425769)

Your message was
--
Do Not Resuscitate Orders (DNR)s
Hi, I have written previously about the DNR orders that were issued for my handicapped sister. I am not satisfied by the current state of affairs. I believe that there needs to be legislation made by the government of Alberta. 1) There needs to be laws present to ensure patients in medical settings and residents in continuing care have rights. 2) One of these rights is the ability to go outside of Alberta health, AHS, Covenant Health and the continuing care industry to an independent appeal body to ensure there is no bias in the consideration of complaints or appeals to decisions made by these public bodies / government department. 3) There needs to be an automatic independent appeal when DNRs are issued with reference to people without capacity or handicapped citizens. 4) Why are DNRs allowed for mentally handicapped citizens and those without capacity when the death by doctor legislation prohibits termination in this way with this special population? 5) What rights do handicapped people have and those without insight when a doctor imposes a DNR order? 6) What can handicapped patients do if a DNR order is issued and they have no advocates? 7) How will poor handicapped citizens find the cash for a lawyer to go to court to challenge such orders? 8) How will a handicapped citizen challenge this order when he or she is in an emergency situation and doesn't even know about the DNR? 9) What are the legal obligations set out by the government of Alberta for DNR orders? Surely if there are obligations set out by the federal government for legal termination there must be obligations set out by government for premature termination of this sort? 10) What are the legal obligations of the government of Alberta with reference to the rights of disabled citizens in this area of conflict? 11) What are the purposes of these DNR orders and why were they kept on my sister's file for 5 years? 12) It is the obligation of our government to protect the most vulnerable among us. A government that fails this especially at the most critical time--at medical emergency time-is not doing the job required to protect the rights of the disabled in our society. Please provide answers. Sincerely, Julie Ali
--
end of message.

**********This is an automatically generated email, please do not reply to this email. **********






https://www.thestar.com/opinion/editorialopinion/2012/09/20/healthcare_providers_openly_discriminate_against_the_mentally_ill.html


Health-care providers openly discriminate against the mentally ill
Ontario Human Rights Commission documents discrimination against the mentally ill by the province’s healers and health-care leaders.


Ontario human rights commissioner Barbara Hall.
Ontario human rights commissioner Barbara Hall. (COLIN MCCONNELL / TORONTO STAR) | ORDER THIS PHOTO
By CAROL GOARStar Columnist
Thu., Sept. 20, 2012
The biggest surprise in the Ontario Human Rights Commission’s all-encompassing report on mental health is how deeply embedded discrimination against people with mental disabilities is in the health-care system.
Doctors, nurses and paramedics — who ought to know mental illness is a disease, not a moral weakness — withhold treatment from people who need medical help, ridicule individuals in distress, prejudge and label them.
Hospitals — which ought to be a refuge from discrimination — are as unenlightened as society at large.
Listen to a few of the 1,500 participants who told their stories at the commission’s province-wide consultations, round tables and focus groups:
“After surgery, my surgeon told me, ‘had I known you were crazy, I wouldn’t have operated on you.’ ”
“I worked in emergency services. At lunch they (paramedics) would talk about having to go pick up another ‘crazy’ or ‘junkie’ — and these are the people on the front line.”
“Every attempt to question, understand or challenge a diagnosis I felt was woefully inaccurate was met by a smug smile and a dismissal. I have never felt so hopeless, helpless and suicidal.”
Some of the most disturbing examples didn’t even make it into the report. Anya Kater, a senior policy analyst, pulled this out of the files for the release of the report: “One person who experienced abdominal pain was left in the hospital for 10 hours alone before it was realized urgent surgery was needed.” The reason: the patient, a recovering addict, was on methadone treatment.
The commission heard from people with mental diseases who were denied treatment on the presumption they were angling for drugs; turned away by doctors who didn’t want time-consuming patients; and pigeon-holed by psychiatrists who knew nothing about them.
Health care was not the sole focus of the report. It dealt with employment, housing, municipal bylaws, provincial laws and public attitudes. But what jumped out of the text was the lack of compassion by society’s healers. It was so counterintuitive, so hurtful.
Discrimination against persons with mental disabilities contravenes the Ontario Human Rights Code, the Canada Human Rights Act and the United Nations Convention on the Rights of Persons with Disabilities. Yet health-care workers disregard the rights of the mentally ill with apparent impunity.
There is a limited amount an advisory agency can do. But human rights commissioner Barbara Hall intends to use every lever she has to root out this pernicious form of discrimination.
• She is calling on the Ontario government to review its laws, policies and standards and correct those that fail to provide equity for individuals with mental disabilities.
• She is urging the province’s medical schools, the College of Physicians and Surgeons of Ontario and the Ontario Medical Association to train students and practising doctors about their obligations under the Human Rights Code not to deny service to people with psychiatric problems.
• She is asking Ontario’s accessibility directorate which develops and implements the standards to make the province barrier-free to Ontarians with disabilities, to evaluate its guidelines to ensure they take the needs of people with mental disabilities into account.
• She is vowing to intervene in court challenges if the commission believes a doctor is denying service to would-be patients with mental disabilities; to hold public inquiries and to initiate cases before the Human Right Tribunal of Ontario.
• And she is advising police to follow the guidelines on disclosure of sensitive medical information published by the human rights commission four years ago. Many forces continue to provide employers, sports organizations, child-care agencies and retirement homes with details about long-resolved mental health problems (nervous breakdowns, eating disorders, suicide attempts) that have no bearing on public safety.
Worthy as these recommendations are, stronger medicine is needed. Health Minister Deb Matthews has to lay down the law: Any health-care worker found violating the rights of Ontarians with mental disabilities will be disciplined. Any institution that allows such behaviour will be penalized.
That won’t happen without public pressure. And the human rights commission’s turgid report isn’t likely to galvanize anyone.
If Hall wants change, she should start by hiring a writer who can turn her agency’s tome into a compelling document that opens people’s eyes and makes them care. Then she should follow up by telling Ontarians what they can do to foment change.
The government needs a jolt of public anger. Medicare needs better guardians.
Carol Goar's column appears Monday, Wednesday and Friday.

Posted by Julie Ali at 12:02 PM
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Labels: Do Not Resuscitate Orders (DNR)s (AC425769), End of life decisions --Medical Orders for Scope of Treatment (MOST) and Advance Care Planning (ACP)(ACR-421417)(ACR-424163)
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Missing and Murdered Indigenous Men & Boys - InFocus - APTN News

Missing and Murdered Indigenous Men & Boys - InFocus - APTN News | Family-Centred Care Practice | Scoop.it
Should the National Inquiry be expanded to include men and boys?
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Beautiful Warrior Sister's Observation 

Beautiful Warrior Sister's Observation  | Family-Centred Care Practice | Scoop.it
Kathy Hamelin:

Washington Women's March - Edmonton, Alberta

I did not get this trans woman's name. I asked if I could take her photo and post it as I want to share what happened to her today at the Washington Women's March. She gave me her enthusiastic assent as she wants as many people as possible to be aware of the bullying and harassment she was receiving by the ciswomen around us.
I was appalled by how many ciswomen attempted to shut this transwoman down when she expressed transgendered issues that are being ignored by our governments, women's groups and society at large. In her determination to be heard, she was quite vocal, a little aggressive and downright confrontational at times. Perhaps it is because she has given up attempting to reason with those who disguise themselves as allies whilst dismissing her entirely. After what I witnessed this afternoon, I believe that is the case.
This transwoman was shushed, told to go elsewhere, scolded for addressing her issues because "this was not the time and place" had peace offers called on her and had a group of women yelling in her face. I must say, I admired her resilience and perseverance. She stood up to all the ciswomen and fired back with all she had. Even the peace officers backed off when she cited her civil rights and showed she was not threatening or being violent. Apparently someone or someones, complained about her threatening and violent nature.
It was after the peace offers had walked away when a gaggle, yes, a gaggle of ciswomen surrounded her while their leader yelled into her face. It was at this point that I spoke up. No. I didn't speak up, I SHOUTED. As loudly and clearly as I could, I thanked the transwoman for her courage and persistence. I told her I have a 10 year old two-spirited grandson, and if anyone every tried to shut him up, I would make damn sure they were sorry ass bitches. The transwoman thanked me. Phoenix then stepped in, walked over to her and hugged her, telling her she is one of us. The ciswomen went completely silent and the transwoman was also quiet for a good half hour after. Phoe and I moved to another spot.
This is what I witnessed at the Washington Women's March today in Edmonton. As appalled as I was by the bullying and harassment of this transwoman in the photo, by the ciswomen, I was not shocked, not in the least bit. I used to be the one who would get shouted down at the women's rallies. Because I did not have the right colour skin, I did not matter, my voice did not count. Angry white women were allowed to express their dissent, bellow their issues for the entire universe to hear, but I was not. Just as this transwoman was not allowed today. I was reminded this afternoon why I had lost faith in the white women's rights movements. I will not be attending another one anytime soon.
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Canadians appear to be more hateful online. Here's what you can do about it

Canadians appear to be more hateful online. Here's what you can do about it | Family-Centred Care Practice | Scoop.it
An analysis of Canada’s online behaviour commissioned by CBC’s Marketplace suggests a 600 per cent jump in the past year in how often Canadians use language online that’s racist, Islamophobic, sexist or otherwise intolerant. Here are 7 strategies to help you deal.
Velvet Martin's insight:
http://www.cbc.ca/news/canada/marketplace-racism-online-tips-1.3943351


"
Canadians appear to be more hateful online. Here's what you can do about it
Marketplace report suggests hateful language by Canadians online up by 600 per cent over last year

CBC News
January 20, 2017
TWITTER-IPO/
Hateful posts online are on the rise among Canadians, an analysis commissioned by Marketplace has found. (Kacper Pempel/Reuters)
3k shares
The internet can be a pretty intolerant place, and it may be getting worse.

An analysis of Canada's online behaviour commissioned by CBC's Marketplace suggests a 600 per cent jump in the past year in how often Canadians use language online that's racist, Islamophobic, sexist or otherwise intolerant.

"That's a dramatic increase in the number of people feeling comfortable to make those comments," James Rubec, content strategist for media marketing company Cision, told Marketplace.

​Minority groups are becoming targets at home
Deleting your account won't curb online hate
Cision scanned social media, blogs and comments threads between November 2015 and November 2016 for slurs and intolerant phrases like "ban Muslims," "sieg heil" or "white genocide." They found that terms related to white supremacy jumped 300 per cent, while terms related to Islamophobia increased 200 per cent.

"It might not be that there are more racists in Canada than there used to be, but they feel more emboldened. And maybe that's because of the larger racist sentiments that are coming out of the United States," Rubec said.

So when you see hateful speech online, what can you do about it?

Marketplace's Asha Tomlinson joined journalist and cultural critic Septembre Anderson and University of Ontario Institute of Technology sociologist Barbara Perry, whose work focuses on hate crimes, to share strategies and tips for confronting intolerance online.


Watch the Marketplace investigation "The Trump Effect: Has It Come To Canada?" tonight on TV and online at 8 p.m. ET.

Reach out

If the person making hurtful comments is a friend, message them privately about it. Calling them out publicly can backfire.

Media placeholderPlay Media
Reach out privately to your friends 0:37
"If someone's defensive, you're not going to reach them," Anderson says. "So sometimes it's best just to call in. Send them a private message, text them."

'Clap back'

If it's a stranger saying something cruel, feel free to respond in kind.

But that doesn't mean getting all-out social media war.

Media placeholderPlay Media
Clap back, then drop the mic 1:27
"Not shaming, but clapping back," Anderson says. "Something really witty that proves your point ... basically, I'm going to do a mic drop; I'm going to say this one thing, then the conversation is over."

"There's value in that to empower the person who is being attacked," Anderson says. "Sometimes people need to feel powerful again."

Shut it down

Ending the conversation is key.

"Oftentimes, we feel so drawn in, we get so emotionally invested. It's just not healthy for everybody. So you got to know when to fold 'em, know when to back out," says Anderson.

Media placeholderPlay Media
‘Know when to fold ‘em 0:34
It helps to have a personal guideline.

"I have a two-comment policy," says Anderson. "I'm only responding two times, that's it."

Ask questions

Not everyone who says something hurtful is necessarily coming from a place of hate, Perry says. If you want to have a conversation without getting into a fight, try starting with a question.

Media placeholderPlay Media
Don't make assumptions 1:59
"Where does that come from? Why is that your stance of the issue? Why is that how you understand this problem?" she says.

"Having a conversation that starts with questions, I think, is really important because then you're not starting with accusations or the presumption that they're being racist."

Drop some knowledge

Once you better understand their perspective, try sharing yours.

"Some people, they really want to understand," says Perry. "So that's when you can take those opportunities to really share some of that knowledge, share some of that experience that you have."

If that's too much to ask, Anderson suggests replying with links to useful articles, information and writers.

"It also ends the conversation," she says. "I've given you all the answers you need with all the information you need, so stop bothering me."

Intervene

It shouldn't always fall on marginalized people to defend themselves from online hate, says Anderson.

"When we talk about bystander intervention, it's often a conversation about what happens in public when you see an interaction that's negative," she says. "There are lots of ways for bystander intervention to work online."

Media placeholderPlay Media
If you see something, say something 1:50
That could mean jumping into the fray, documenting the abuse, or reporting the abuser.

Or it could be as simple as liking the victim's replies.

"Merely liking a comment shows you I'm here, I see what happens, I support you, you're not alone," Anderson says. "Often, that's so powerful."

Practise self-care

But no matter how diligent you are, the internet can still be a cesspool of racism, sexism and intolerance — so don't forget to unplug now and then, whether for a couple minutes or a couple weeks.

"Take a breather and get a mug of tea, have a shot if you need one, go for a walk, do a yoga flow," Anderson says. "Do what you would normally do to make yourself feel good. I know people are like, 'It's online, its not real' and you may feel silly doing it, but you know what? It's not silly. Take care of yourself."


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Know Your Rights Guide to Protesting ‹ Canadian Civil Liberties Association

Know Your Rights Guide to Protesting ‹ Canadian Civil Liberties Association | Family-Centred Care Practice | Scoop.it
If you're planning any protesting, marching, or demonstrating, be safe, be careful, and know your rights.Download our printable 1-page protest guide
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Activism - Velvet Martin 

Activism - Velvet Martin  | Family-Centred Care Practice | Scoop.it
So far, exposure of corruption seems best course. Certainly appealing to morals is a flop. It took me years to get that through my head; others in authoritative roles don't share similar ethics. It was a heartbreaking realization that went against all I was indoctrinated to believe. - Velvet Martin
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Groups call for increased transparency, information sharing at child advocate review

Groups call for increased transparency, information sharing at child advocate review | Family-Centred Care Practice | Scoop.it
Organizations working with vulnerable children asked for better information sharing and transparency
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Deaths of children in care fatality reports 

Deaths of children in care fatality reports  | Family-Centred Care Practice | Scoop.it
Tuesday, October 4, 2016
From: Julie Ali Date: Tue, Oct 4, 2016 at 10:20 PM Subject: Deaths of children in care -fatality inquiries To: Jennifer Fuchinsky Hi, I am looking for the fatality reports on the following children who died in care: 1) baby mentioned in the story below--Dani Jean 2) Braedan Dean Belcourt 3) Anthony James Leadley 4) J’Lyn Michelle Cardinal 5) Fenton Cattleman 6) Tylan Mason Poucette 7) Lissa Nanooch 8) Kaan Onal 9) Kawliga Potts 10) Kyleigh Crier 11) Nevaeh Michaud These names were obtained from the Calgary Herald article below. In addition to these names I am seeking fatality reports on all unnamed or other named children who died in the care of the government of Alberta who have fatality reports. I want all the fatality reports that Alberta Justice has on children in care including the earliest ones. I am also interested in learning why these fatality reports are not kept up on the Alberta Justice website. I could then simply obtain the reports by myself. Why do we only have a few reports on the website? Why does Alberta Justice remove the reports as new reports are generated? Thank you for your assistance in this matter. Sincerely, Julie Ali

From: Julie Ali
Date: Tue, Oct 4, 2016 at 10:20 PM
Subject: Deaths of children in care -fatality inquiries
To: Jennifer Fuchinsky


Hi,
I am looking for the fatality reports on the following children who died in care:

1) baby mentioned in the story below--Dani Jean
2) Braedan Dean Belcourt
3) Anthony James Leadley
4) J’Lyn Michelle Cardinal
5) Fenton Cattleman
6) Tylan Mason Poucette
7) Lissa Nanooch
8) Kaan Onal
9) Kawliga Potts
10) Kyleigh Crier
11) Nevaeh Michaud
These names were obtained from the Calgary Herald article below.
In addition to these names I am seeking fatality reports on all unnamed or other named children who died in the care of the government of Alberta who have fatality reports.

I want all the fatality reports that Alberta Justice has on children in care including the earliest ones.

I am also interested in learning why these fatality reports are not kept up on the Alberta Justice website. I could then simply obtain the reports by myself. Why do we only have a few reports on the website? Why does Alberta Justice remove the reports as new reports are generated?

Thank you for your assistance in this matter.
Sincerely,
Julie Ali

http://calgaryherald.com/storyline/parents-stunned-to-learn-how-their-baby-girl-died-in-foster-care-her-name-and-others-were-just-revealed

Paul Dean holds his daughter, Dani Isabella Jean, shortly before she died on May 4, 2013. She was found tangled in her foster mother's bed sheets.
Parents stunned to learn how their baby girl died in foster care. Her name and others were just revealed.
DECEMBER 29, 2014 10:33 AM
Paul Dean believed for more than a year that his six-week-old daughter had died in foster care from Sudden Infant Death Syndrome. From a newspaper report in August he learned she’d actually become tangled in her foster parents’ bed sheets, and died by accident.
He also believed for a long time that a Child and Youth Advocate’s report into Dani Jean’s death, released in August 2014, was the final word from the government. But on Saturday, also from a newspaper report, he discovered that the province had ordered a fatality inquiry into her death.
He and Dani’s mother, Kuna-Bianca Sauve, had no idea what that meant.
“We keep thinking we have grieved, but then we find that we haven’t, because we never know anything,” Dean said.
We were never really privy to any of the documents, and there has been so much coverup since.
We’re just a simple family, I’m a blue-collar worker. Trying to get documents like this is completely out of my expertise. Where would I start? We were relying on Child and Family Services to give us information. —Dean
The most recent story Dean read was published in the Edmonton Journal on Saturday.
It was based on a new Alberta Justice calendar that listed, for the first time, the full names of children whose deaths in foster care will be subject to a judge-led fatality inquiry.
Until recently, Alberta had in place a sweeping publication ban that prevented government from publishing the names of children who were known to the child welfare system. The government overturned that ban earlier this year and replaced it with a new law that says the child’s name is public unless the child’s family applies for a ban.
As a result, Alberta Justice has started listing names that were long protected by a publication ban and had never been published before — names like Dani Isabella Catherine Jean, who died May 4, 2013, when she was just six weeks old.
Another new policy requires the province to publicly report each child welfare death within four days of the child’s death. The most recent posting revealed a 14-year-old girl died on Dec. 19. She is the 13th child to die since July, according to figures released by the government earlier this year.
Human Services spokesman Mike Berezowsky did not release any additional details about the teen’s death, so nothing is known about who she was, how she died, or why. He said the teen’s family is still deciding whether to apply for a publication ban, which would bar news outlets from publishing her name.
Other names made public for the first time Dec. 17 include Braedan Dean Belcourt, a 16-year-old boy who died by suicide in 2012. His death was the subject of a report from the Child and Youth Advocate called Remembering Brian.
Forthcoming fatality inquiries also include a hearing into the death of Anthony James Leadley, a 14-week-old baby found dead in his crib in 2011. A judge will also review the death of J’Lyn Michelle Cardinal, 4, whose aunt was convicted of manslaughter in connection with her 2011 death.
In the coming months, a judge is expected to issue a fatality inquiry report into the death of Fenton Cattleman, 16, who died after falling down the stairs at a house party in Maskwacis in 2011.
Inquiries that have been called but not scheduled include reviews of the deaths of three teens who died by suicide: Tylan Mason Poucette, 17, who died in Morley in 2008; Lissa Nanooch, 15, who died in Wabasca-Desmarais in 2013; and Kaan Onal, a 17-year-old Turkish boy who died in Peace River in 2012. Oral was the subject of a Child and Youth Advocate’s report called Kamil: An Immigrant Youth’s Struggle.
The Fatality Inquiry Review Board has also called an inquiry into the high-profile death of Kawliga Potts, 3, who died in 2007 after he suffered a head injury in foster care.
His caregiver, Lily Choy, was convicted of manslaughter.
In its most recent rulings, the board has ordered fatality inquiries be held in connection with the high-profile deaths of Kyleigh Crier, 15, and Nevaeh Michaud, 9. Crier died by suicide, while Michaud died in her sleep.

Posted by Julie Ali at 10:21 PM
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Labels: Alberta, Death and Abuse in Foster Care, fatality reports, mind boggling cases in Foster Care
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Link Between Autism and Gender Dysphoria?

Link Between Autism and Gender Dysphoria? | Family-Centred Care Practice | Scoop.it
Underwhelming results suggest a link between autism and gender dysphoria.
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A turbulent history of Alberta's Coroner office 

A turbulent history of Alberta's Coroner office  | Family-Centred Care Practice | Scoop.it

A turbulent history of Alberta's medical examiners' office
Shawn Logan
Wednesday, December 07, 2016, 10:16 AM

Office of the medical examiner in Calgary, Alberta. (Photo by MIKE DREW/Calgary Sun)
article
2008 — Dr. Sam Andrews, southern Alberta's assistant chief medical examiner accepts new post in Texas, citing a heavy workload. He reconsiders the job and chooses to stay in Calgary, though the medical examiners' office remains short one pathologist.
Feb. 2011 — Alberta Justice launches probe into eight autopsies handled by former Calgary forensic pathologist Dr. Michael Belenky for potential mistakes. It's further revealed Belenky is a person of interest in a double murder investigation in Omaha, Nebraska, which has now focused on a former pathology resident in the ongoing trial. Shortly after the revelations, Belenky leaves the job.
Mar. 2011 — Andrews and another Calgary-based forensic pathologist, Dr. Evan Matshes, both citing heavy workloads and a lack of staff resign, leaving all three positions in the region vacant. Matshes in particular is outspoken about the difficulties of the job, saying the workload is threatening his integrity.
Mar. 2011 — The same month three Calgary-area forensic pathologists resign, long-serving chief medical examiner Dr. Graeme Dowling announces he'll be resigning his post after 18 years, but staying on as a forensic pathologist.
June. 2011 — Edmonton-based Dr. Anny Sauvageau is tapped as the province's new chief medical examiner.
Sept. 2011 — Calgary cops, in a review of 100 files connected to Belenky, ranging from drug overdoses to car crashes, find no issues, though a cloud remains over the 2009 death of a two-year-old boy initially ruled a homicide and later reversed to be accidental.
Feb. 2012 — An insurance company raises concerns about the work of the since departed Matshes, prompting Alberta Justice to review several autopsies, including 13 homicide investigations. A week later, Alberta Health Services says it found no issues with his work.
Mar. 2012 — Family of a toddler whose death was declared a murder by Belenky file a $2 million lawsuit against the province after a review finds the death to be accidental.
Nov. 2012 — The Alberta College of Physicians and Surgeons dismisses the complaints in the Matshes cases, though the Justice department's review remains ongoing.
Nov. 2012 — Alberta Justice completes its review into autopsies performed by Matshes, finding his conclusions were "unreasonable" in 13 of 14 cases examined. After the ruling, Alberta's former assistant chief medical examiner, Dr. Sam Andrews, writes a scathing letter to then-justice minister Jonathan Denis, saying the province's medical examiner's system is "broken" and "undermining the justice system."
Dec. 2012 — Soon after the review into the work of Matshes is completed, concerns are raised about the qualifications of Alberta's chief medical examiner Dr. Anny Sauvageau. It's revealed Sauvageau has no formal training as a forensic pathologist, though Justice officials say the designation is not a requirement for the top job.
Dec. 2012 — Calgary police take the extraordinary step of obtaining a search warrant to acquire autopsy results from six-year-old murder victim Meika Jordan. Investigators, concerned the Alberta medical examiner's autopsy left some questions unanswered, sought the opinion of Ontario forensic pathologist Dr. Chris Milroy, an expert in pediatric homicides, but the Alberta office refused to turn over post-mortem X-Rays, photographs and slides. The warrant says Sauvageau was "upset" police sought an outside opinion on the girl's death.
Jan. 2013 — A 30-year arrangement that saw the province pay a fee to rural doctors to perform to perform death investigations in rural areas is ended, with any bodies to be sent to Edmonton or Calgary to have autopsies performed by forensic pathologists.
May 2013 — Former Calgary forensic pathologist Matshes claims a provincial review of his work was "malicious" and should be re-examined, filing papers before the courts.
Nov. 2013 — Justice Paul Jeffrey quashes the Justice department review that found Matshes made mistakes in more than a dozen cases, finding there were breaches of "procedural fairness." A lawyer representing Alberta Justice concedes mistakes were made in the handling of the expert review.
Feb. 2014 — Matshes launches $30 million lawsuit against the province and Sauvageau, claiming the was the subject of a conspiracy to ruin his career.
Dec. 2014 — The contract of former chief medical examiner Sauvageau, extended an additional six months earlier in the year, expires, and the province opts not to renew it.
Feb. 2015 — Sauvageau launches $5 million wrongful dismissal suit against the province, alleging political interference and intimidation. In the lawsuit, Sauvageau claims her contract was not renewed by the province out of retaliation for her raising concerns about political interference.
Feb. 2015 — The province appoints Dr. Jeffery Gofton the new chief medical examiner, who returned to Alberta after stepping down as Oklahoma's chief ME amid allegations of political interference.
Mar. 2015 — In a response to the province's statement of defence to former chief medical examiner Sauvageau's wrongful dismissal suit, she alleges autopsy reports can be altered without being logged and firearms went missing from the evidence room. Sauvageau claims she warned justice officials about the problem but was told to "keep it secret." Alberta Justice denies the claim.
Mar. 2015 — A group of Calgary defence lawyers calls on the province to investigate claims made by the former chief medical examiner that autopsies reports can be altered without being tracked, concerned it could impact ongoing criminal cases.
Dec. 2015 — Former Alberta justice minister Jonathan Denis says he is no longer one of the subjects of a $2.9 million defamation lawsuit launched by Sauvageau earlier that year, though it continues to target the province and senior bureaucrats.
June 2016 — Alberta Public Interest Commissioner Peter Hourihan releases report on allegations made by Sauvageau, dismissing allegations of political interference. It also says the province was well within its rights to not renew her contract, but highlights the "strained relationship" between the justice department and the medical examiners office. It also reports some of the dysfunction and turmoil during Sauvageau's tenure.
July 2016 — Alberta's Auditor General Merwan Saher releases report finding Alberta Justice and the Office of the Chief Medical Examiner botched its handling of contracts to transport bodies from rural communities.
July 2016 — Just over a year since his appointment, Gofton announces he'll be leaving to return to a former post in Virginia. In a written statement he says he had no concerns about political interference and is leaving for family reasons. Deputy chief medical examiner Dr. Elizabeth Brooks-Lim is tapped to fill in until a new chief is chosen.
Nov. 2016 — It's revealed a report from the medical examiner's office into the death of a child in care wasn't completed until nearly two years after her death. Justice officials blame the delays on the case of the girl Postmedia identified as four-year-old Serenity on its complexity, and the need to consult with outside experts. The revelations prompt an emergency debate in the legislature to discuss what some called a "broken system."
Dec. 2016 — Brooks-Lim is promoted from interim role to Alberta's chief medical examiner.

http://m.calgarysun.com/2016/12/07/a-turbulent-history-of-albertas-medical-examiners-office-2
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"In the End, we will remember not the words of our enemies, but the silence of our friends."

"In the End, we will remember not the words of our enemies, but the silence of our friends." | Family-Centred Care Practice | Scoop.it
"In the End, we will remember not the words of our enemies, but the silence of our friends." #HumanRights #martinlutherkingday 
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Fear and Loathing…

Fear and Loathing… | Family-Centred Care Practice | Scoop.it
"Fear is the mind killer..." Frank Herbert (Dune) I came into the new year feeling a bit more rejuvenated having made the decision to look at the opportunities of "assisted living".  It wasn't an easy decision but the reality is I will be 67 this year and, like it or not, I'm a senior.  Accepting…
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Why didn't PC Govt hand over files in 2014?

Why didn't PC Govt hand over files in 2014? | Family-Centred Care Practice | Scoop.it
http://readingchildrensbooks.blogspot.ca/2016/12/ailina-coraline-why-didnt-pc-government.html
Reading Children's Books
I took my Power in my Hand – / And went against the World – Emily Dickinson (Poem 660)

Thursday, December 8, 2016
Ailina Coraline Why didn't the PC government hand over the files when she died in September 2014? Like · Reply · 1 · 15 hrs Julie Ali · University of Alberta Was the internal report produced under the PCs or the NDP? Sounds like it was produced under the NDP watch and therefore it is the NDP government responsibility. They gave the report to the band welfare authority and they were supposed to hand it to the RCMP. The band authority didn't do this. Why doesn't government give the reports to the RCMP directly? This would prevent such sloppy follow up. In any case, no matter who is in charge, the GOA has a problem with secrecy and transparency that will not be resolved any time soon. Incompetence is covered up. Failures in care are covered up. We don't know what errors and negligence is present in any case --in foster care, continuing care or the medical system due to privacy legislation, spin from the GOA, failures by so called advocates to do more than generate paper and the lack of public outcry. This situation will continue because the GOA wants it to continue. The GOA wants this situation to continue to ensure it has no liability for real problems in performance. Like · Reply · 2 · 13 hrs Jack Meyer Julie Ali Where is the proof it will contine and where is all this all encompassing fear coming from is it just a fear to sell your brand!-----------Julie Ali · University of Alberta Jack Meyer I have had experience with the GOA with reference to my handicapped sister's abuse in long term care in Alberta. The GOA under the PCs was abysmally bad at responding to concerns about abuse. The GOA under the NDP make similar politically and bureaucratically expedient decisions to ensure that folks are moved along when problems develop. It's pretty interesting how the entire system is arranged with retribution offered for public revelations of problems in the system. Here are links to our family's story. TV broadcast - Alberta Primetime 2 Part Video http://alberta.ctvnews.ca/video?clipId=648793 http://alberta.ctvnews.ca/video?clipId=647813 One day something like this might happen to one of your own. It is a very educational experience especially when doctors at the Grey Nuns Hospital use do not resuscitate orders to attempt to prematurely terminate handicapped citizens. You can't make this junk up. It's all real.----


http://www.calgaryherald.com/news/story.html?id=12493107&fb_comment_id=1353949027972381_1354564107910873&comment_id=1354317721268845&reply_comment_id=1354564107910873#f1987f8ee50fa
Wildrose calls on minister to resign after report on Serenity's death not given to RCMP

EMMA GRANEY, EDMONTON JOURNAL 12.08.2016
112216-Serenity_on_trike.jpg-53134843-Serenity_on_trike-W.jpg
Serenity, as a happy toddler riding her trike. ORG XMIT: 1_EjRomhc5R7Ee_0bq1s / EDMONTON JOURNAL
120415-659_0962_Irfan_Sabir,_Minister_of_Human_Services.jpg-1205_news_pdd-W.jpg
EDMONTON, ALTA: JUNE 18, 2015 -- Irfan Sabir, Minister of Human Services, during a press conference to discuss Bill 3 and the NDP's plan to reinvest in education and health at the Alberta Legislature in Edmonton on June 18, 2015. (Photo by Ryan Jackson / Edmonton Journal)RYAN JACKSON / EDMONTON JOURNAL
SHAREADJUSTCOMMENTPRINT
The official opposition has called for the resignation of Human Services Minister Irfan Sabir, after revelations his department failed to give the RCMP an internal report about the death of a four-year-old child in government care.
Wildrose House Leader Nathan Cooper called the oversight “unbelievable.”
“We’re shocked, we’re appalled,” Cooper told Postmedia Wednesday night.
Sabir and the NDP government have faced repeated questions over the past three weeks about what actions the government and ministry have taken to improve child services, and why criminal charges have not been laid in the death of four-year-old Serenity. There was even an emergency debate on the matter.
On Wednesday night, Sabir told Edmonton Journal columnist Paula Simons that his department had not handed over a vital report to the RCMP until this week.
He called the oversight “an unfortunate error” and took responsibility for the failure.
On Wednesday night at the legislative building, Sabir refused to comment to Postmedia on calls for his resignation, saying only, “I’m on my phone,” and walking past to start his car.
He ignored further questions.
Cooper said Sabir has let down Serenity and her family, and called for the minister’s resignation and that of Justice Minister Kathleen Ganley.
Serenity was four years old when she died in September 2014 after a traumatic head injury. She was also suffering from serious hypothermia, catastrophic malnutrition, and anal and genital bruising. A year before, she had been of normal body weight. When she arrived at hospital, she weighed just 18 pounds, the typical weight for a nine-month-old baby.
Cooper said it’s “unbelievable” that Ganley and Sabir didn’t know the details on the file and what had been done, particularly after repeated questioning.
More importantly, he said, they didn’t do anything when they were asked about the case.
“They didn’t go back to their departments and say, ‘Hey, what’s going on? What are they waiting on?'” Cooper said.
“Seemingly no-one has been following up on an issue of absolute critical importance to Albertans, to Serenity, to her family. It is appalling.
“Members of cabinet should be disgusted at what’s happened.”
egraney@postmedia.com
twitter.com/EmmaLGraney




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Ailina Coraline
Why didn't the PC government hand over the files when she died in September 2014?
Like · Reply · 1 · 15 hrs

Julie Ali ·
University of Alberta
Was the internal report produced under the PCs or the NDP? Sounds like it was produced under the NDP watch and therefore it is the NDP government responsibility. They gave the report to the band welfare authority and they were supposed to hand it to the RCMP. The band authority didn't do this.

Why doesn't government give the reports to the RCMP directly? This would prevent such sloppy follow up.

In any case, no matter who is in charge, the GOA has a problem with secrecy and transparency that will not be resolved any time soon. Incompetence is covered up. Failures in care are covered up. We don't know what errors and negligence is present in any case --in foster care, continuing care or the medical system due to privacy legislation, spin from the GOA, failures by so called advocates to do more than generate paper and the lack of public outcry.

This situation will continue because the GOA wants it to continue. The GOA wants this situation to continue to ensure it has no liability for real problems in performance.
Like · Reply · 2 · 13 hrs

Jack Meyer
Julie Ali Where is the proof it will contine and where is all this all encompassing fear coming from is it just a fear to sell your brand!
Like · Reply · 12 hrs

Ailina Coraline
Julie Ali The child died in September 2014, when the PCs were in power. The NDP did not get elected until mid-May of 2015. That is eight months later. Why were the police not informed in Autumn 2014? The PCs should have dealt with such a serious matter by then, but did not. When were the NDP notified about this case? I bet it has something to do with the fact that First Nations social agenices were involved. I agree that the NDP should have done something about this as soon as they knew, and that heads should roll.
Like · Reply · 3 hrs · Edited

Julie Ali ·
University of Alberta
Jack Meyer I have had experience with the GOA with reference to my handicapped sister's abuse in long term care in Alberta.
The GOA under the PCs was abysmally bad at responding to concerns about abuse.
The GOA under the NDP makes similar politically and bureaucratically expedient decisions to ensure that folks are moved along when problems develop.
It's pretty interesting how the entire system is arranged with retribution offered for public revelations of problems in the system.
Here are links to our family's story.

TV broadcast - Alberta Primetime
2 Part Video
http://alberta.ctvnews.ca/video?clipId=648793
http://alberta.ctvnews.ca/video?clipId=647813
One day something like this might happen to one of your own. It is a very educational experience especially when doctors at the Grey Nuns Hospital use do not resuscitate orders to attempt to prematurely terminate handicapped citizens. You can't make this junk up. It's all real.
Like · Reply · 9 mins

Ed Henderson ·
Uk
If this Minister gets serious and starts actually supervising or requiring effective responsible supervision of all social services organizations, gvt and private, this will be a much better Alberta. This incident just happens to be one that received outside attention, I shudder to think what is still tightly concealed under wraps.
The previous Minister responsible had a tragic accident and is now revered. But there needs to be a very in depth cleaning job done in Human Services.
Like · Reply · 3 · 9 hrs · Edited

Julie Ali ·
University of Alberta
Not only at Human Services. We need changes in Alberta Health and in the Continuing care system in Alberta. It's amazing to me that families have to be the boots on the ground to report abuse to the folks at Alberta Health.
Where is Alberta Health?
Who is doing audits of long term care facilities?
What are the penalties for non-compliances?
I don't consider mentoring non-compliant organizations to be a penalty; we are paying for AHS staff to teach organizations how to run their busineses. Why?

Good question. I guess continuing care organizations in Alberta operate with the shield of government in place. It's no wonder families do not go public. With the GOA working with the continuing care industry and health authorities (AHS, Covenant Health) there is no one working with families. We face retribution including resident evictions, banning of family members from contact with residents, legal intimidation and lawsuits.

The GOA and health authorities are perfectly aware of these activities by continuing care providers. If the family stays silent about the messes in continuing care --then Alberta Health is willing to get evicted residents back to their placements. This is what Alberta Health told our family But if we yap, you'd better be ready to get punishment. My handicapped sister was downgraded from long term care to SL4. I am being sued for commenting on the poor care my sister received as confirmed by two Protection for Persons in Care reports by the folks at Alberta Health. This is a surreal situation where the advocates and families are punished as per the Shauna McHarg case while the operators are protected. Guess this is how the PCs kept all the dirty secrets of continuing care under wraps. This junk is now continuing under the NDP folks.
Like · Reply · Just now

Jack Meyer
Nathan calm down and eat your wheaties, the world will not end today or tomorrow, an error was made and the world will go on even though you and the flat earth people can not see it just yet.
Like · Reply · 12 hrs

Raymond Dufour ·
All of them at Makes me work my ass off
I'm on my phone=I'm eating my cookie.
Like · Reply · 4 · 11 hrs

Julie Ali
1 min ·
Julie Ali · University of Alberta
Was the internal report produced under the PCs or the NDP? Sounds like it was produced under the NDP watch and therefore it is the NDP government responsibility. They gave the report to the band welfare authority and they were supposed to hand it to the RCMP. The band authority didn't do this.
Why doesn't government give the reports to the RCMP directly? This would prevent such sloppy follow up.
In any case, no matter who is in charge, the GOA has a problem with secrecy and transparency that will not be resolved any time soon. Incompetence is covered up. Failures in care are covered up. We don't know what errors and negligence is present in any case --in foster care, continuing care or the medical system due to privacy legislation, spin from the GOA, failures by so called advocates to do more than generate paper and the lack of public outcry.
This situation will continue because the GOA wants it to continue. The GOA wants this situation to continue to ensure it has no liability for real problems in performance.
Like · Reply · 2 · 13 hrs

Ailina Coraline Why didn't the PC government hand over the files when she died in September 2014? Like · Reply · 1 · 15 hrs Julie Ali · University of Alberta Was the internal report…
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Labels: commenting on newspapers, we got spin and no action from the NDP
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Sammy's Law Would Require Recording CPS Interviews With Parents

Sammy's Law Would Require Recording CPS Interviews With Parents | Family-Centred Care Practice | Scoop.it
A new report by the state auditor reveals assessments by CPS workers in three counties were routinely “flawed” as well as “incomplete and inconsistent.”
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The Ultimate hack CAS

The Ultimate hack CAS | Family-Centred Care Practice | Scoop.it






Toronto Catholic Children's Aid Society sues man $50M over fake website
'Most times it is just a sick game being played by a morally bankrupt institution,' the fake site says.
ccastoronto.ca screenshot
The real site is located at www.torontoccas.org
Published on Aug 21 2015
Staff
TORSTAR NEWS SERVICE
The Catholic Children’s Aid Society of Toronto is suing a man for $50 million for creating an allegedly “intentionally confusing” and defamatory website with a similar domain name to their own website, according to a statement of claim filed Wednesday.
The website misuses the CCAS trademark and brand and is intended to undermine the work of the organization, the lawsuit alleges.
The lawsuit, which contains allegations that have not been proven in court, also claims that the 52-year-old man launched an “ugly campaign” of intimidation, defamation, invasion of privacy and threats against CCAS employees and their family members in a series of online posts, following the CCAS apprehending his daughter and placing her in foster care for four months before she was returned to him and his wife.
“It is clear (the defendant) intends to create an environment of danger for CCAS and its staff and must be stopped from his nefarious course of conduct with the assistance of this honorable court,” the statement of claim alleges.
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The man also claims to have somehow obtained more than 16,000 internal emails from the CCAS upon activating his website and is threatening to release them to the public, the lawsuit alleges.
In a post on his Facebook page referring to the emails, the man is alleged to have written: “I am about to feed you a diet of fear until I feel (my daughter) has been avenged . . . my revenge against you will never end.”
In court Thursday morning, a judge granted an interim injunction with the man’s consent. It required the website be taken down and prohibits the man from communicating with CCAS staff about anything unrelated to his daughter, from posting about anything intimidating or threatening about the CCAS online, and from “engaging in false and misleading business practices that utilize the CCAS trademark and business name.”
The lawyer representing the CCAS, Mark Ellis, said he could only say that the CCAS was “satisfied” with the terms of the interim injunction.
A statement of defence has not yet been filed.
In an interview, the man, who is not being named to protect the identity of his young daughter, says he denies the allegations and intends to vigorously defend himself.
He claims the CCAS wrongfully apprehended his daughter and that she was mistreated while in the care of a foster family. (The CCAS says his claims are “without foundation and substance” in the statement of claim.) He is currently seeking $72,000 in legal costs from the CCAS related to the apprehension.
What the CCAS describes as intimidation “is holding up a mirror to things I have found in documents,” the man said, adding that his online posts have been taken out of context. “It’s perfectly legal to look into any public record on any person and publish it.”
He also says he notified the CCAS shortly after receiving the internal emails to figure out what to do with them and never heard back until the lawsuit was filed.
The man says he set up the website www.ccastoronto.ca three weeks ago to help parents fight the CAS, to bring attention to the flaws in the system and to hold the CAS accountable. (The CCAS website is www.torontoccas.org).
The website promotes the “Canadian Coalition for Accountability in Social Work” going by the acronym CCAS and uses a modified version of the CCAS logo.
“I am a parent who is extremely pissed off,” the man said.

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