It is noteworthy that, of the patients who have responded to Epidiolex, a high proportion show a reduction in seizure frequency of greater than 50% and a portion of these patients were reported to be seizure-free at the end of 12 weeks of treatment,” stated Justin Gover, GW’s Chief Executive Officer.
The only marijuana available for research in the U.S. is locked down by federal regulators who are more focused on studies to keep people off the drug than helping researchers learn how it might be beneficial. Marijuana is a trend that "will peak like tobacco then people will see their error," said Nora Volkow, director of the National Institute on Drug Abuse, which serves as the gatekeeper for U.S. marijuana research through its oversight of a pot farm that grows the only plants that can be used in clinical trials. Meanwhile, marijuana advocates say NIDA's control over research has made almost impossible their ability to test the drug against ailments such as pain, cancer-related nausea and epilepsy.
A family from North Carolina booked a one-night hotel stay in Baton Rouge, but were told to go somewhere else because they were bringing a service animal to help their son. The mother says they've never had that kind of treatment, especially since it's a violation of the law.
Camp Oz on the shores of the St. Croix River may seem like your typical camp complete with cabins, a camp counselor's office, a mess hall, and volleyball and basketball courts. But at Camp Oz most of the children have something in common -- they suffer from seizures, and some have epilepsy.
Westborough - Father of four Robert Reid was honored with the 2014 “All-Star” Dad Award at the 73rd annual Father of the Year Awards luncheon June 4 at the New York Hilton Hotel in New York City. The national award recognizes a special dad who embodies the values of fatherhood, and serves as a model of dedication, leadership and service to both his own children and his community.
Tim Mikulski's insight:
Reid’s passion in the neurology field is driven by his daughter Olivia, who has had intellectual and executive functioning disabilities due to epilepsy since she was a year old. Olivia’s disability also fueled Reid’s involvement with the Special Olympics of Massachusetts (SOMA). He has coached the Westborough Special Olympics swim team for the past 11 years (even after Olivia could no longer participate), working with over 100 swimmers. He recently attended the SOMA summer games at Boston University. Reid has not only volunteered as a swim coach, walked in local and national Epilepsy Foundation relays and participated in multiple fundraising efforts, he has done much more.
On a sunny Monday morning, a group of kids is gathered around a tree, rear ends pointed barkward, tongues stuck out and raspberry noises sputtering from their mouth. Possibly this fake flatulence is directed at a spider sitting on the tree. Possibly they’re directed at the tree itself. Either way,...
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Tim Mikulski's insight:
Marijuana could be prescribed for at least 10 diseases — including epilepsy, AIDS, ALS and neuropathy — under the direction of the state's health department. The health commissioner would be able to add more illnesses. If approved by the Legislature, the bill would allow the program to start in as soon as 18 months and would allow a governor to terminate it under advice from the health department or law enforcement.
What would you do if your child had a disease or condition that mainstream medicine couldn't cure? What if you found a medicine that could help your child, but it wasn't legal or commonly accepted as mainstream medicine? Would you break the law to sa...
Tim Mikulski's insight:
passing reference to epilepsy in article about Ricki Lake's documentary on CBD
The Danny Did Foundation (DDF) today announced a $50,000 grant to test the SmartWatch®, a wristwatch device that provides mobile monitoring for seizure activity. The testing will be conducted among children, teenagers and adults at four leading epilepsy centers across the United States.
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