Eating Disorder - Sibling Perspective
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Obama dares GOP for mental health reforms

Obama dares GOP for mental health reforms | Eating Disorder - Sibling Perspective | Scoop.it

As part of his wide-reaching efforts to rein in gun violence, Obama on Tuesday called for a half-billion dollars in new mental health spending, taunting the GOP on their failure to pass a mental health reform bill since pledging to do so in 2013."

Kym Piekunka's insight:

Do I want Mental Health care improved because of gun violence? Honestly, it's not my ideal pathway. BUT, I'll take it! The shame & stigma associated with mental health is still alive and well. People are needlessly suffering and sadly dying. Why is this when the National Alliance on Mental Health reports, "approximately 61.5 million Americans- experiences mental illness in a given year."


My sister died of bulimia because of this shame, inadequate funding for research and treatment, ineffective public education and lack of training for physicians, medical examiners and therapists. It's time for change!

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Living In The Shadow Of My Daughter's Anorexia

Living In The Shadow Of My Daughter's Anorexia | Eating Disorder - Sibling Perspective | Scoop.it

This illness rocked our family to its foundation. My husband (at the time) was unable to come to terms with her illness. We have never spoken about it and are unlikely ever to do so. My sons were bewildered. The eldest (17 at the time) felt an enormous sense of guilt -- "if I'd been a better brother"... "if I'd been around more" ... "if I hadn't done as much sport" ... My youngest (8 at the time) withdrew completely, daydreamed his way through school and cried. His words still resonate, "I just want my sister back."

Kym Piekunka's insight:

What a beautiful reflection on the family experience. My sister's 15+ year battle with her eating disorder and ultimate death shares the same painful family struggle. We need to come together as a community. No one should feel alone. No more shame, no more blame, no more isolation. 

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What I Couldn't Believe I Saw On A Shelf At Nordstrom

What I Couldn't Believe I Saw On A Shelf At Nordstrom | Eating Disorder - Sibling Perspective | Scoop.it
Some might say, "What's the big deal about a pillow with a cute little saying?" And I'm saying -- taking a pillow off the shelves is one little step in the direction where millions of steps still need to be taken if we are ever going to sto...
Kym Piekunka's insight:

Tracy Morrison's article worked! Here's the Tweet I just received from Nordstrom, "@kymraines We're sorry you're disappointed. We understand your perspective and are removing the pillow from our stores. Thank you. LOVE social media!  Thank you Nordstrom!

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Meditation May Help Improve Body Image of Those With Eating Disorders

Meditation May Help Improve Body Image of Those With Eating Disorders | Eating Disorder - Sibling Perspective | Scoop.it
Eating disorders may soon be treated using meditation and body awareness techniques according to a new study.

Via LifeWorks Surrey
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mor shwartz's curator insight, November 18, 2016 10:47 AM

נכתב על הדרך בא משלבים מדיטציה כדרך טיפול גם בהפרעות אכילה

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the HAES® files: The Skinny on … skinny?

the HAES® files: The Skinny on … skinny? | Eating Disorder - Sibling Perspective | Scoop.it
by Jenny Copeland, PsyD Who gets to decide what is desirable? Who defines the standards for beauty? At what point did it become acceptable – the norm even – for bodies to be judged? In modern socie...
Kym Piekunka's insight:

Articulate article on our need to judge. I find the following quote to be right on, "The thought behind this comparison photo is to turn the dominant paradigm on its head, but what it really does is reinforce that for one woman to be good, another must be bad. And that kind of thinking isn’t going to get us anywhere."

 

 

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50-Plus Women Take on 2013 Emotional Eating Disorder Month with Newly Discovered Emotional Freedom Technique - San Francisco Business Times

50-Plus Women Take on 2013 Emotional Eating Disorder Month with Newly Discovered Emotional Freedom Technique - San Francisco Business Times | Eating Disorder - Sibling Perspective | Scoop.it

According to Jennifer L. Derenne, M.D. of the Stanford University Eating Disorders Research Program, 10% of those diagnosed with eating disorders eventually lose their lives. This year, eating disorder awareness month coincides with the conclusion of Watkins' latest Emotional Freedom Technique (EFT) program, which has successfully progressed the recovery of 54 women facing the gamut of struggles with emotional eating and food.

Kym Piekunka's insight:

I have not heard of the Emotional Freedom Technique. Does anyone have any insight or thoughts on this?

 

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Annette Schmeling's comment, February 20, 2013 12:26 PM
The neurological data is interesting. Dr Derenne is a Board certified Child Psychiatrist. It would be interesting to see if she has published any scholarly articles on EFT or endorses the program. How do you think this differs from Mindfulness Eating?
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Medical Complications of Purging in Bulimia Nervosa

Medical Complications of Purging in Bulimia Nervosa | Eating Disorder - Sibling Perspective | Scoop.it
In summary, because the patient with bulimia nervosa may go unrecognized in healthcare settings and because their symptoms are relatively longstanding, it is important to be vigilant about the detection of bulimia in young patients with the aforementioned medical complications. Most of the medical complications of bulimia nervosa are readily treatable, but do require familiarity with the therapeutic interventions, to maximize their efficacy and help facilitate recovery.
Kym Piekunka's insight:

Often we do not discuss in detail the medical complications that arise from bulimia. Such discussions can be extremely uncomfortable, especially for families, but are valuable for early detection as stated by the author. My sister, Kacy, suffered from each of these conditions, which were dismissed multiple times by physicians. When she ultimately died, the coroner's cause of death was deemed undetermined, regardless of her 15-year battle with bulimia.

 

My hope in disseminating articles like this is to increase awareness and detection as well as advocate for more accurate bulimia statistics; determining the number of sufferers as well as mortality rate. My sister's death was not included in any data which leaves open the question, how accurate are the statistics for bulimia mortality?

 

 

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Chris Thornton 'The brain, the mind and eating disorders' at Mind & Its Potential 2012

What is an eating disorder? What's the effect on the brain? How can neuroscience help in treating eating disorders? New therapies for eating disorders: cogni...
Kym Piekunka's insight:

Chris Thornton does an outstanding job of informing families, friends and the general public that eating disorders are more than the common myth of being a rich, entitled, white girl’s problem. Through neuroscience, he demonstrates that eating disorders are a complex and dangerous disease. He removes the stigma for families and sufferers and provides an overview of new, effective treatment.

 

As someone who lost a sister to bulimia, this is thrilling. Our family was blamed and ignored while my sister was isolated and often removed from treatment due to poor health insurance coverage. We were each left feeling frustrated, isolated and frightened.  I hope through this discovery it becomes common knowledge that an eating disorder is a disease, not a choice; that families are supported, not shamed; and an effective treatment is discovered that is not only supported by the medical field but insurance companies as well.

 

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What does the brain have to do with ED?

What does the brain have to do with ED? | Eating Disorder - Sibling Perspective | Scoop.it

"Body Image Processing in Anorexic Patients: An fMRI study – visual processing in the Occipital Lobe of the brain in an anorectic patient, is, well, switched off!  This helped me understand why my anorexic daughter is telling me she is fat when in fact she is emaciated, cold and appearing completely switched off from the world around her."

Kym Piekunka's insight:

Such a wonderful blog. For families, this is invaluable information especially when they are frustrated and feeling helpless/hopeless. It is invaluable the,
"Not only is full nutrition relevant to healing neurological damage, it is necessary to benefit from therapeutic interventions."

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Perfectionism and eating disorders: Complex issue

Perfectionism and eating disorders: Complex issue | Eating Disorder - Sibling Perspective | Scoop.it
Two aspects of perfectionism are involved in body dissatisfaction and the development of eating disorders, according to a new study.
Kym Piekunka's insight:

Research regarding key components that lead to eating disorders is critical. Without these discoveries we can't effectively treat those suffering or guide and support the family.

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Medical Complications Of Eating Disorders

Medical Complications Of Eating Disorders | Eating Disorder - Sibling Perspective | Scoop.it

"Conservative estimates suggesting mortality rates of four percent for anorexia nervosa, 3.9 percent for bulimia nervosa and 5.2 percent for eating disorders not otherwise specified. (5) However, it is likely that eating disorders are responsible for far more deaths than these statistics reveal. Individuals suffering from an eating disorder may ultimately die of organ failure, malnutrition or suicide. In these instances, it is common for the medical complication resulting in death to be reported as the cause of death instead of the eating disorder, which likely led to the fatal medical complication in the first place."

 
Kym Piekunka's insight:

My sister suffered from bulimia ultimately resulting in her death. This was not a lifestyle choice it was a serious mental health illness with devastating medical complications. Not only did her hair fall out, her teeth deteriorate and her taste buds burn off, she broke ribs when she  sneezed due to osteoporosis. She could no longer hold food down without medication and often left treatment due to the pain caused by edema. Her organs began to fail and death was soon to follow. After 15 years of this trauma to my sister and our family her cause of death was determined "unknown." 

This is why I advocate for the Anna Westin Act. It provides the necessary attention and education so desperately needed to treat this devastating illness as well as open the door to obtain accurate stats. 

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Posttraumatic stress disorder in mothers of individuals with anorexia nervosa: a pilot study

Posttraumatic stress disorder in mothers of individuals with anorexia nervosa: a pilot study | Eating Disorder - Sibling Perspective | Scoop.it

"Results suggest that maternal mental health should be kept in mind during assessments of individuals with eating disorders and referral for a service in their own right might be indicated."

Kym Piekunka's insight:

When navigating an Eating Disorder,  providing therapy and support for family members is critical as they are greatly impacted. Learning boundary setting skills, addressing enmeshment and codependent issues as well as learning to manage the plethora of feelings that swirl daily can be a powerful step toward healthy coping skills. We need to stop ignoring the family and begin supporting them.

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A Seat at the Table: Understanding and Helping the Siblings of Eating Disorder Patients « Dr. Sarah Ravin | Eating Disorders, Depression, Anxiety, Psychotherapy

A Seat at the Table: Understanding and Helping the Siblings of Eating Disorder Patients « Dr. Sarah Ravin | Eating Disorders, Depression, Anxiety, Psychotherapy | Eating Disorder - Sibling Perspective | Scoop.it
Kym Piekunka's insight:

Dr. Ravin provides a clear and concise description of how "eating disorders impact the patient’s siblings from various angles." For parents this can be a resource to utilized while uncovering what the sibling experience may be for their child.

 

The sibling experience is infrequently discussed and my hope is to bring more awareness and light to our journey. My sister's eating disorders began when I was a sophomore in high school ending with her death at my age of 33. I'd like to bring light to two aspects of Dr. Ravin's article I feel are usually not given enough consideration.

 

As Dr. Ravin's article demonstrates, siblings may experience the eating disorder in very different ways. Providing the sibling with professional support allows them to express their feelings without fearing hurting the parents or patient's feelings. Providing family and individual therapy allows them space to be cared for themselves, provides necessary tools for the stress and the powerful emotions. In addition, family and individual counseling can provide tools to address the dysfunction prior to the diagnosis as well as what has developed since the eating disorder.

 

The roles that develop within the family structure can be created quickly. The ones I believe deserve to be highlighted are enmeshment and co-dependency. Often the sibling knows more about the patients eating disorder than the parents and are put in the middle. This can become quite complicated and distressing for the sibling especially if the parents are in denial. Navigating the complicated family dynamics can be overwhelming.

 

I cannot stress enough for the sibling and family to have the support and care they need regardless if the patient is accepting treatment or not.

 

 

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Eating disorders impact brain function, new brain research suggests

Eating disorders impact brain function, new brain research suggests | Eating Disorder - Sibling Perspective | Scoop.it

"This is the first study that suggests that brain dopamine related reward circuitry, pathways that modulate our drive to eat, may have a role in bulimia nervosa. We found reduced activation in this network in the bulimic women, and the more often an individual had binge/purge episodes the less responsive was their brain. That suggests that the eating disorder behavior directly affects brain function. These findings are important since the brain dopamine neurotransmitter system could be an important treatment target for bulimia nervosa," said Frank.

Kym Piekunka's insight:

I am eager to see how these studies progress over the next few years.

 

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For the Brides of Ed*: An Integrated Approach (Exhibit)

For the Brides of Ed*: An Integrated Approach (Exhibit) | Eating Disorder - Sibling Perspective | Scoop.it
» For the Brides of Ed*: An Integrated Approach (Exhibit) | Storytelling Photo Collage Gifts Custom-Made by Digital Artist Nancy Gershman
Kym Piekunka's insight:

I am looking forward to hearing about this. Wonderful, creative & inspired.

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Transcript of a Congressional Briefing on the High Mortality Rates for Eating Disorders and the FREED Act

Kym Piekunka's insight:

Worth reading for information on mortality rates, issues with insurance, family struggles and call to action. Thank you F.E.A.S.T. for providing this transcript!

 

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Peer pressure trumps 'thin' ideals in the media

The influence of the media on body image, life satisfaction, and symptoms of eating disorders in teenage girls is a hot debate. Some experts believe that media influences on body dissatisfaction may extend to symptoms of eating disorders. Others contend that the link between media exposure and body image is inconsistent.

Kym Piekunka's insight:

This is a very interesting article especially in light of the the video I posted yesterday by Dr. Chris Thornton who discussed the Neurobiology of eating disorders. While most would now agree a combination of factors contribute to eating disorders, more research is essential.


You can find Dr. Chris Thornton's, 'The brain, the mind and eating disorders' at Mind & Its Potential 2012 on YouTube: http://www.youtube.com/watch?v=wRKV1ltiSFc

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Photoshopping: Altering Images and Our Minds | BEAUTY REDEFINED

Photoshopping: Altering Images and Our Minds | BEAUTY REDEFINED | Eating Disorder - Sibling Perspective | Scoop.it

"It’s hard to believe anyone’s “personal best” is a fake representation of herself. They’ll plaster “body confidence!” all over the magazine and quote Kelly talking about her own real body confidence, but they refuse to show us her actual body."

Kym Piekunka's insight:

What is it going to take to create the change we need? As we face increasing numbers of eating disorders and obesity, the focus needs to be toward health and accepting our genuine selves. Being manipulated and brainwashed to believe human beings are perfect is disturbing yet magazine sales are doing just fine. Why?

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Obama intends to fix holes in mental health coverage

Obama intends to fix holes in mental health coverage | Eating Disorder - Sibling Perspective | Scoop.it

"Obama this week directed Sebelius' department to quickly complete the regulations that will direct insurers to cover more mental health services. When the 2010 Affordable Care Act is fully implemented next year, millions of Americans stand to gain access to such care for the first time."

Kym Piekunka's insight:

This article states 40% of those suffering from metal illeness did not get care in 2011. What it does not account for is those who wanted treatment but were denied.

 

When my sister went to a facility for eating disorders, her coverage was pulled when the insurance company claimed since she could keep food down she no longer needed to be hospitalized. She died months later.

 

This is a serious issue that needs our full attention. I will be following closely.

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Cameron Russell: Looks aren't everything. Believe me, I'm a model. | Video on TED.com

TED Talks Cameron Russell admits she won “a genetic lottery”: she's tall, pretty and an underwear model. But don't judge her by her looks.
Kym Piekunka's insight:

A powerful account of how we can hate our bodies and stereotype others based on an untruth.

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