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Differently Abled and Our Glorious Gadgets
Articles on the joys and challenges of being differently abled and the gadgets that help us be independent and productive.
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Sesame Street - Elmo and Ray Charles - "Believe in Yourself"

From the dvd The Best Of Elmo 2 :) enjoy
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Social Media Use By People With Chronic Pain – A Global Online Survey (Preliminary Results)

Social Media Use By People With Chronic Pain – A Global Online Survey (Preliminary Results) | Differently Abled and Our Glorious Gadgets | Scoop.it
We recently ran a global online survey targeting People With Chronic Pain (PWCP) as a result of various chronic diseases who have used social media as part of self-management. The aim of the survey...

Via Dr Derek Jones
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Dr Derek Jones's curator insight, August 7, 2013 4:38 AM

This interesting survey (231 responses) captures information about social media use and some interesting data on pain and its impact on daily life. Of particular note to OTs is the intresting finding of "preliminary support for a positive role social media may play in managing areas such as ‘social and recreational life’ and ‘psychosocial health status."

Elisabeth Skeet's curator insight, August 8, 2013 4:18 AM

A really interesting article, particularly for anyone wanting to understand more about the potential impact of social media accessed 'tools' to help self-manage pain.

Jacqueline Goguen (AbleIAm.com)'s curator insight, August 17, 2013 11:02 AM

Blessings,

Jacqui

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Governors Put Focus On People With Disabilities - Disability Scoop

Governors Put Focus On People With Disabilities - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
With a newly-released blueprint, the nation's governors are looking at how they can help boost employment among people with disabilities.
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With Documentary, PBS Looks At Life On The Spectrum - Disability Scoop

With Documentary, PBS Looks At Life On The Spectrum - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
A new documentary set to premiere on PBS takes a look at life with autism from the perspective of those with the developmental disorder.
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Labor Department Finds More With Disabilities Unemployed - Disability Scoop

Labor Department Finds More With Disabilities Unemployed - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
Even as the economy added 162,000 jobs last month, the U.S. Department of Labor said Friday that Americans with disabilities continued to struggle in the job market.
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Wheelchairs roll at Aspen Valley Marathon - Aspen Times

Wheelchairs roll at Aspen Valley Marathon - Aspen Times | Differently Abled and Our Glorious Gadgets | Scoop.it
Wheelchairs roll at Aspen Valley Marathon Aspen Times Berthiaume, from Tucson, Ariz., and two wheelchair racing colleagues rolled into the third annual Aspen Valley Marathon as part of a national campaign to promote research and treatment for those...

Via Shaji Mathew
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Delta offers to put down cardboard while forcing disabled man to crawl on tarmac | The Raw Story

Delta offers to put down cardboard while forcing disabled man to crawl on tarmac | The Raw Story | Differently Abled and Our Glorious Gadgets | Scoop.it
Center for Accessible Living NKY's insight:

OMG!

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Man with mental disabilities found dead in hot car in Arlington

Man with mental disabilities found dead in hot car in Arlington | Differently Abled and Our Glorious Gadgets | Scoop.it
Dallas News | myFOXdfw.com Update at 3:30 p.m., July 28: The man was Terrance Sanders, 29, according to the Tarrant County Medical Examiner. His cause of death is listed as pending.
Center for Accessible Living NKY's insight:

It's not just small children that we need to consider during the summer months.

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States Get Ranked On Disability Services - Disability Scoop

States Get Ranked On Disability Services - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
Arizona is the place to be when it comes to services for people with intellectual and developmental disabilities, according to a new national ranking.
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White House Honors Young Disability 'Champions' - Disability Scoop

White House Honors Young Disability 'Champions' - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
As the nation marks the anniversary of the Americans with Disabilities Act, the White House is honoring eight next generation leaders in the disability community.
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McDonald's, Walmart and Other Companies Guilty of Wage Abuse Against People with Disabilities

McDonald's, Walmart and Other Companies Guilty of Wage Abuse Against People with Disabilities | Differently Abled and Our Glorious Gadgets | Scoop.it
Article looks at low wages associated with working at some major corporations in America.

Via Disabled World
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In First, Down Syndrome Chromosome Turned Off - Disability Scoop

In First, Down Syndrome Chromosome Turned Off - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
In a finding that could pave the way for new treatments, scientists say they've found an off switch that can be applied to the extra chromosome responsible for Down syndrome.
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The Superhuman Mind: Kim Peek, The Real Rain Man

The Superhuman Mind: Kim Peek, The Real Rain Man | Differently Abled and Our Glorious Gadgets | Scoop.it

Kim Peek, who lent inspiration to the fictional character Raymond Babbitt—played by Dustin Hoffman—in the movie Rain Man, was a remarkable savant. A savant is an individual who—with little or no apparent effort—completes intellectual tasks that would be impossible for ordinary people to master.

 

Kim Peek’s special abilities started early, around the age of a year and a half. He could read both pages of an open book at once, one page with one eye and the other with the other eye. This style of reading continued until his dead in 2009. His reading comprehension was impressive. He would retain 98 percent of the information he read. Since he spent most of his days in the library with his dad, he quickly made it through thousands of books, encyclopedia and maps. He could read a thick book in an hour and remember just about anything in it. Because he could quickly absorb loads of information and recall it when necessary, his condition made him a living encyclopedia and a walking GPS. He could provide driving directions between almost any two cities in the world. He could also do calendar calculations (“which day was June 15, 1632?”) and remember old baseball scores and a vast amount of musical, historical and political facts. His memory abilities were astounding.

 

Unlike many individuals with savant syndrome, Kim Peek was not afflicted with autistic spectrum disorder. Though he was strongly introverted, he did not have difficulties with socialunderstanding and communication. The main cause of his remarkable abilities seems to have been the lack of connections between his brain's two hemispheres. An MRI scan revealed an absence of the corpus callosum, the anterior commissure and the hippocampal commissure, the parts of the neurological system that transfer information between hemispheres. In some sense Kim was a natural born split-brain patient.

 

Peek's ability to retain large amounts of information may have had something to do with another condition he was afflicted with called macrocephaly. This brain abnormality consists in an excessively large head and a correspondingly huge brain. Kim's head was so heavy that it took several years before he could hold it up on his own.

 

As a baby the real rain man was diagnosed with mental retardationand the physicians told his parentsthat he never would be able to read or talk. They recommended sending their little boy to a mental institution and geting on with their lives. Despite the recommendation, Kim’s parents chose to raise him at home. They quickly realized that their little boy with the oversized head had a remarkable brain. Due to his parets' efforts, Kim had the oppotunity to develop his amazing talents. A large head does not equal intelligence or ability to retain information. But it does provide more storage space for someone who is able to process the content of 10,000 books, which was the number of books Peek had read by the time of the his death in 2009.


Via Dr. Stefan Gruenwald
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Health News - Comic books to help children understand chronic pain

Health News - Comic books to help children understand chronic pain | Differently Abled and Our Glorious Gadgets | Scoop.it
Comic books to help children understand chronic pain

Via Dr Derek Jones
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Dr Derek Jones's curator insight, July 30, 2013 7:42 AM

This product emerged out of the research undertaken by a group (of which I am a part) funded by the MRC led Lifelong Health & Wellbeing programme.

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8 People with Down Syndrome Who Are Making History

8 People with Down Syndrome Who Are Making History | Differently Abled and Our Glorious Gadgets | Scoop.it
These eight people with Down syndrome have made history during the last two years, not only for others with the same condition and their families, but to the entire world.
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NY judge: Let disabled HS runner compete - Wall Street Journal

NY judge: Let disabled HS runner compete - Wall Street Journal | Differently Abled and Our Glorious Gadgets | Scoop.it
NY judge: Let disabled HS runner compete
Wall Street Journal
ORCHARD PARK, N.Y. — A state judge has ruled that a 20-year-old disabled youth can compete on his high school cross country team.
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Study: 1 In 4 With Cerebral Palsy In Pain - Disability Scoop

Study: 1 In 4 With Cerebral Palsy In Pain - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
Many children and teens with cerebral palsy are struggling with chronic pain, researchers say, but it often goes unrecognized and untreated.
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Cincinnati.com

Cincinnati.com | Differently Abled and Our Glorious Gadgets | Scoop.it
News and information from Cincinnati.com
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Article on St. Paul's Free Clinic which also mentions the Center for Accessible Living.

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Metropolitan Area Employment and Unemployment - June 2013

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June jobless rates down over the year in 272 of 372 metro areas; payroll jobs up in 282

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American DanceWheels Foundation | American Style Wheelchair Ballroom & Latin Dance

American DanceWheels Foundation | American Style Wheelchair Ballroom & Latin Dance | Differently Abled and Our Glorious Gadgets | Scoop.it
ADF teaches wheelchair ballroom and latin dancing and provides resources for the disabled, dance teachers, and occupational & physical therapists.
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What a neat idea!

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US: Expand Protections for People With Disabilities | Human Rights Watch

US: Expand Protections for People With Disabilities | Human Rights Watch | Differently Abled and Our Glorious Gadgets | Scoop.it
(New York) – The United States should mark July 26, 2013, the 23rd anniversary of the Americans with Disabilities Act (ADA), by strengthening legal protections for people with disabilities at home and abroad, Human Rights Watch said in a...
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With Documentary, PBS Looks At Life On The Spectrum - Disability Scoop

With Documentary, PBS Looks At Life On The Spectrum - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
A new documentary set to premiere on PBS takes a look at life with autism from the perspective of those with the developmental disorder.
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New homes must be more accessible to cope with demand

New homes must be more accessible to cope with demand | Differently Abled and Our Glorious Gadgets | Scoop.it
Housing an ageing population is an ongoing challenge, but applying a few simple principles could ease concerns
Effective housing will make or break the UK's ability to meet the challenge of our ageing population.

Via Jane Young
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White House Taps New Disability Liaison - Disability Scoop

White House Taps New Disability Liaison - Disability Scoop | Differently Abled and Our Glorious Gadgets | Scoop.it
Starting this week, there is a new adviser at the White House focusing specifically on disability issues.
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Silencing an extra chromosome: Researchers turn off Down’s syndrome genes

Silencing an extra chromosome: Researchers turn off Down’s syndrome genes | Differently Abled and Our Glorious Gadgets | Scoop.it

Individuals with Down's syndrome carry an extra copy of chromosome 21, which causes pervasive developmental delays.  The insertion of one gene can muzzle the extra copy of chromosome 21 that causes Down’s syndrome. The method could help researchers to identify the cellular pathways behind the disorder's symptoms, and to design targeted treatments.

 

The experiment used induced pluripotent stem cells, which can develop into many different types of mature cells, so the researchers hope that one day they will be able to study the effects of Down’s syndrome in different organs and tissue types. That work could lead to treatments that address degenerative symptoms of Down’s syndrome, such as the tendency of people with the disorder to develop early dementia.

 

“The idea of shutting off a whole chromosome is extremely interesting” in Down’s syndrome research, says stem-cell researcher Nissim Benvenisty of Hebrew University in Jerusalem. He anticipates future studies that split altered cells into two batches — one with the extra chromosome 21 turned on, and one with it off — to compare how they function and respond to treatments.

 

Researchers have previously removed the extra chromosome in cells from people with Down’s syndrome using a different type of genetic modification. That technique relied on the fact that induced pluripotent stem cells that carry the third copy of chromosome 21 occasionally boot it out naturally — but "it’s a pain in the neck”, says Mitchell Weiss, a stem-cell researcher at the Children’s Hospital of Philadelphia in Pennsylvania. “You can’t control it.”

 

However, Weiss says that the latest method has its own drawbacks: turning on XIST may not block all gene expression in the extra chromosome, and that could muddle experimental results.

 

Still, Weiss thinks that the approach could yield fresh treatments for Down's syndrome — and prove useful for studying other chromosome disorders such as Patau syndrome, a developmental disorder caused by a third copy of chromosome 13.


Via Dr. Stefan Gruenwald
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