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How The System Failed Teen Who Starved To Death

How The System Failed Teen Who Starved To Death | diabetes and more | Scoop.it
Provincial leaders from both Alberta and British Columbia say changes are needed after the parents of a 15-year-old boy who died of untreated diabetes were charged with his murder. Alex Radita died last May after he was found severely emaciated and confined to his bed. Police have charged his parents Rodica and Emil Radita with first-degree murder. While the courts will decide on the parents' level of responsibility, it seems as though several systems across two provinces failed the teen along the way. Alex was diagnosed with diabetes as toddler. But the Raditas had a history of not treating their son's diabetes when they lived in B.C., according to a court document obtained by CBC News. His condition landed him in the hospital several times when he was younger. Child services in B.C. even seized Alex when he was four after he was admitted to hospital in grave condition. Returned to family despite concerns Alex was kept in provincial care for a year before a judge ordered that he be returned to his family — a ruling made despite his social worker's fight to have him permanently removed from their care. "The social workers and the Ministry of Child Development did all the right things; they brought the child into care, they kept the child in care and they advocated for the child coming under continuing care order," said B.C. social worker union spokesperson Doug Kinna. "The judge overruled that and returned the child.... It's a poor decision by the judge, I would say." After he was returned to his family, the Raditas moved to Alberta. His parents never took him to a doctor in the province. He was home schooled and kept behind closed doors. Nobody in Alberta was alerted to the fact that the Raditas failed to treat their son's condition in the past. "They can just disappear if they're not in touch with any of the other social service agencies," said Kinna. "You can put an alert on the file but if they don't come to someone's attention and they stay low to the ground, you're not going to be able to find them." He says it's too easy for families to fly under the radar of provincial protection agencies. Jurisdiction issues "Once a child moves to another jurisdiction, that jurisdiction then assumes responsibility for any child protection services," said a spokesperson from the British Columbia ministry of Children and Family Development. Much of the same story came from Alberta's Child Advocate's office. "We don't have jurisdiction to investigate because the young person was not involved in the child intervention system in Alberta, so was not known to us," wrote a communications spokesperson. B.C.'s Children and Youth Advocate wouldn't comment, but Alberta's Human Services Minister Manmeet Bhullar said protecting children should come before privacy concerns. "We need to make sure people are sharing information — whether that's community, agencies, governments — that needs to happen," he said. "Governments are bound to share information on open files but maybe we lower the threshold and it's not just open files but files that were open a year ago or two years ago." The education system also wasn't checking on Alex Radita. According to Alberta Education, a teacher checks on children who are home schooled twice a year but not necessarily in the home.  Need for continued oversight Bhullar said the main question is how long provinces should share information after the file is closed. He is calling on child welfare directors from across the country to address the issue. "(They) need to say, 'How do we make sure people don't use a move (moving from one jurisdiction to another) as a way to get out of involvement with the child intervention system?'" The minister says closed files are the issue because once a family's file in one province is concluded there is no inter-jurisdiction communication. "These are very significant conversations, these are very significant policy issues," he said.  "There still needs to be continuing oversight."  B.C. Premier Christy Clark says her government is doing what it can to protect children who find themselves in a similar situation, but she did not say whether an investigation would be launched. "We don't know all the details yet, [but] we absolutely have to determine how those things happened.
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Scooped by Ellen H Ullman, MSW
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Confessions of a Diabetes Hacker

Confessions of a Diabetes Hacker | diabetes and more | Scoop.it
How underground T1D tech programmers are using Nightscout and other apps to make all CGM readings wireless.
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First Medical App System to Monitor Glucose Cleared in U.S.

First Medical App System to Monitor Glucose Cleared in U.S. | diabetes and more | Scoop.it
irst Medical App System to Monitor Glucose Cleared in U.S.
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Most People With Long-Duration Type 1 Diabetes in a Large Population-Based Study Are Insulin Microsecretors

Most People With Long-Duration Type 1 Diabetes in a Large Population-Based Study Are Insulin Microsecretors | diabetes and more | Scoop.it
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Psychosocial aspects of closed- and open-loop insulin delivery: closing the loop in adults with Type 1 diabetes in the home setting.

Psychosocial aspects of closed- and open-loop insulin delivery: closing the loop in adults with Type 1 diabetes in the home setting.
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Type 1 Diabetes Prevented in Mice - LA DEE DA

Type 1 Diabetes Prevented in Mice - LA DEE DA | diabetes and more | Scoop.it
This new study is the latest of several that have been published in recent years concerning attempts to stop the development of the autoimmune disease
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With Apple Watch near, FDA clarifies regulatory stance on health-tracking ... - Apple Insider

With Apple Watch near, FDA clarifies regulatory stance on health-tracking ... - Apple Insider | diabetes and more | Scoop.it
The U.S. Food and Drug Administration has issued preliminary guidance that defines the agency's criteria for determining when wearables which provide health tracking or advice, such as the forthcoming Apple Watch, could be classed as regulated...
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Princeton Engineers Develop a Non-invasive Blood Glucose Test that Uses Imaging Technology | Dark Daily

Princeton Engineers Develop a Non-invasive Blood Glucose Test that Uses Imaging Technology | Dark Daily | diabetes and more | Scoop.it
Glucose testing is both a headache and an opportunity for clinical laboratories here in the United States and across the globe. It is a headache because many point-of-care and patient self-test glucose devices in wide use today lack the reliability of glucose testing performed in medical laboratories that use sophisticated diagnostic instruments.
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A Line in the Sand

A Line in the Sand | diabetes and more | Scoop.it
In #DiscoverysEdge: Dr. Russell Wilder pioneered early treatment of type 1 #diabetes http://t.co/CmVWx9VmgR http://t.co/B73DBZ7ALd
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EMA issues revised guideline on clinical and non-clinical issues for biosimilars / Guidelines / Home - GaBI online - Generics and Biosimilars Initiative

EMA issues revised guideline on clinical and non-clinical issues for biosimilars / Guidelines / Home - GaBI online - Generics and Biosimilars Initiative | diabetes and more | Scoop.it
Generics and Biosimilars Initiative
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Top Legal Minds Against FDA's Proposal to Regulate Lab Tests - Regulatory Focus

A new legal whitepaper authored by two of America's most prominent lawyers argues that the US Food and Drug Administration's (FDA) plan to regulate lab developed tests (LDTs) more similarly to traditional medical devices lacks legal justification...
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Could Our Brain Instruct Our Bodies to Burn More Fat?

Could Our Brain Instruct Our Bodies to Burn More Fat? | diabetes and more | Scoop.it
New research provides additional insight into how the brain regulates body fat and could help provide more effective methods of weight loss.
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Medtronic MiniMed 640G and SmartGuard Technology

Medtronic MiniMed 640G and SmartGuard Technology | diabetes and more | Scoop.it
The next step towards the artificial pancreas - The new #MiniMed640G by @MedtronicUK http://t.co/BuE4mLPdAD My hands on experience.
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Registration - The Diabetes World Summit

Registration - The Diabetes World Summit | diabetes and more | Scoop.it
SI’m attending The #DiabetesSummit to learn more about preventing and reversing type 2 diabetes… you should, too! http://t.co/p3nKiCUTMj
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#WeAreNotWaiting: The (Not So?) Brief Story of Tidepool. - Six Until Me - diabetes blog

#WeAreNotWaiting: The (Not So?) Brief Story of Tidepool. - Six Until Me - diabetes blog | diabetes and more | Scoop.it
#WeAreNotWaiting: The (Not So?) Brief Story of Tidepool.
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Assessment of β-Cell Mass and α- and β-Cell Survival and Function by Arginine Stimulation in Human Autologous Islet Recipients

Assessment of β-Cell Mass and α- and β-Cell Survival and Function by Arginine Stimulation in Human Autologous Islet Recipients | diabetes and more | Scoop.it
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Dexcom OK to market glucose monitoring app

Dexcom OK to market glucose monitoring app | diabetes and more | Scoop.it
The FDA allows the marketing of Dexcom's (NASDAQ:DXCM) Share mobile app that enables diabetics to share data from a continuous glucose monitor (CGM) in real time from an Apple mobile device thereby enabling careg
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Medtronic Releases MiniMed 640G with Advanced Glucose Control

Medtronic Releases MiniMed 640G with Advanced Glucose Control | diabetes and more | Scoop.it
Medtronic has unveiled its new MiniMed 640G System, an advanced blood glucose sensor and insulin delivery combination that in some ways mimics a healthy pa
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With Dana Lewis

With Dana Lewis | diabetes and more | Scoop.it
Featuring Dana Lewis, #hcsm moderator and co-creator of the Do It Yourself Pancreas System. Listen Now.
Ellen H Ullman, MSW's insight:
January 20, 2015 · by Christopher · in Podcast · Leave a comment 

Dana Lewis returns to the podcast to talk about wedding planning, her Do It Yourself Pancreas System, its evolution into an artificial pancreas, and the technological possibilities for people with diabetes in the coming years. Enjoy.

Follow Dana on Twitter @danamlewis and diyps.org.

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Diabetes Discovery: Heart Drug Spares Beta Cells in Lab

Diabetes Discovery: Heart Drug Spares Beta Cells in Lab | diabetes and more | Scoop.it
Can verapamil preserve beta cell function in type 1 diabetes?
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84 Signs You Have Celiac Disease (Infographic)

84 Signs You Have Celiac Disease (Infographic) | diabetes and more | Scoop.it
Feeling less-than-stellar? Worried you've got celiac disease? Here's a list from the GlutenDude of some commonly-cited symptoms from people living with celiac.
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H2O Alkalizer's curator insight, January 20, 7:43 AM

Do you experience any of these symptoms?

Ilse Ortega Ibarra's curator insight, January 20, 4:49 PM

En esta publicación habla sobre los signos de un paciente Celiaco,  su dieta seria libre de gluten como el caso de los niños con autismo.

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Medical Device Alerts : MHRA

Medical Device Alerts : MHRA | diabetes and more | Scoop.it
MHRA - Medical Device Alert: Accu-Chek Spirit Combo insulin infusion pumps manufactured by Roche Diagnostics http://t.co/fdoDZfNV8m
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FDA Says It's Not Interested in Regulating Most Mobile Apps or Wearable Devices - Regulatory Focus

Will the US Food and Drug Administration (FDA) ever regulate your FitBit, Apple iWatch or calorie-tracking mobile apps?
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Professor with UNC and NCSU gets grant to pursue innovative diabetes treatment - Charlotte Observer

Professor with UNC and NCSU gets grant to pursue innovative diabetes treatment - Charlotte Observer | diabetes and more | Scoop.it
A researcher with the UNC-NCSU joint department of biomedical engineering has received a $1.6 million grant for an ambitious idea for treating diabetes: creating a synthetic version of the human cell that dispenses insulin in the bloodstream.
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American College of Endocrinology launches yearlong thyroid awareness ... - Healio

American College of Endocrinology launches yearlong thyroid awareness ... - Healio | diabetes and more | Scoop.it
Endocrinology | Launching a year-long campaign to deepen public understanding about the importance of the thyroid, the American College of Endocrinology has released “10 Questions to Ask About Your Thyroid Health” to encourage dialogue among...
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