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How The System Failed Teen Who Starved To Death

How The System Failed Teen Who Starved To Death | diabetes and more | Scoop.it
Provincial leaders from both Alberta and British Columbia say changes are needed after the parents of a 15-year-old boy who died of untreated diabetes were charged with his murder. Alex Radita died last May after he was found severely emaciated and confined to his bed. Police have charged his parents Rodica and Emil Radita with first-degree murder. While the courts will decide on the parents' level of responsibility, it seems as though several systems across two provinces failed the teen along the way. Alex was diagnosed with diabetes as toddler. But the Raditas had a history of not treating their son's diabetes when they lived in B.C., according to a court document obtained by CBC News. His condition landed him in the hospital several times when he was younger. Child services in B.C. even seized Alex when he was four after he was admitted to hospital in grave condition. Returned to family despite concerns Alex was kept in provincial care for a year before a judge ordered that he be returned to his family — a ruling made despite his social worker's fight to have him permanently removed from their care. "The social workers and the Ministry of Child Development did all the right things; they brought the child into care, they kept the child in care and they advocated for the child coming under continuing care order," said B.C. social worker union spokesperson Doug Kinna. "The judge overruled that and returned the child.... It's a poor decision by the judge, I would say." After he was returned to his family, the Raditas moved to Alberta. His parents never took him to a doctor in the province. He was home schooled and kept behind closed doors. Nobody in Alberta was alerted to the fact that the Raditas failed to treat their son's condition in the past. "They can just disappear if they're not in touch with any of the other social service agencies," said Kinna. "You can put an alert on the file but if they don't come to someone's attention and they stay low to the ground, you're not going to be able to find them." He says it's too easy for families to fly under the radar of provincial protection agencies. Jurisdiction issues "Once a child moves to another jurisdiction, that jurisdiction then assumes responsibility for any child protection services," said a spokesperson from the British Columbia ministry of Children and Family Development. Much of the same story came from Alberta's Child Advocate's office. "We don't have jurisdiction to investigate because the young person was not involved in the child intervention system in Alberta, so was not known to us," wrote a communications spokesperson. B.C.'s Children and Youth Advocate wouldn't comment, but Alberta's Human Services Minister Manmeet Bhullar said protecting children should come before privacy concerns. "We need to make sure people are sharing information — whether that's community, agencies, governments — that needs to happen," he said. "Governments are bound to share information on open files but maybe we lower the threshold and it's not just open files but files that were open a year ago or two years ago." The education system also wasn't checking on Alex Radita. According to Alberta Education, a teacher checks on children who are home schooled twice a year but not necessarily in the home.  Need for continued oversight Bhullar said the main question is how long provinces should share information after the file is closed. He is calling on child welfare directors from across the country to address the issue. "(They) need to say, 'How do we make sure people don't use a move (moving from one jurisdiction to another) as a way to get out of involvement with the child intervention system?'" The minister says closed files are the issue because once a family's file in one province is concluded there is no inter-jurisdiction communication. "These are very significant conversations, these are very significant policy issues," he said.  "There still needs to be continuing oversight."  B.C. Premier Christy Clark says her government is doing what it can to protect children who find themselves in a similar situation, but she did not say whether an investigation would be launched. "We don't know all the details yet, [but] we absolutely have to determine how those things happened.
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Dorothy Retha Cook's curator insight, June 27, 2015 4:43 PM

SYSTEM STILL FAILING CHILDREN TO DEATH! WHY?

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Important news for those concerned with all types of diabetes, associated autoimmune diseases, & health
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JDRF - New Research Advisory Committee formed to support people with type 1 diabetes

JDRF - New Research Advisory Committee formed to support people with type 1 diabetes | diabetes and more | Scoop.it
JDRF, the leading global organization funding type 1 diabetes (T1D) research, announced today the formation of a new external Research Advisory Committee (RAC) comprised of individuals internationally renowned for their expertise in research as well as the care and treatment of those with T1D.
Ellen H Ullman, MSW's insight:

"to bring the greatest good for the largest number of people in the shortest amount of time."  - The majority of the people worldwide with t1 diabetes will not benefit from the artificial pancreas - they need a biological cure.

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Potential diabetes treatment advances

Potential diabetes treatment advances | diabetes and more | Scoop.it
Device shields beta cells from immune system attack | Researchers at MIT’s David H. Koch Institute for Integrative Cancer Research, in collaboration with scientists at the Harvard Stem Cell Institute and several other institutions, have developed an implantable device that in mice shielded insulin-producing beta cells from immune system attack for six months — a substantial proportion of life span.
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Engineered micro-pancreas helps transplanted islet cells to live longer

Engineered micro-pancreas helps transplanted islet cells to live longer | diabetes and more | Scoop.it
A newly-developed micro-pancreas can prevent transplanted islet cells from failing, potentially overcoming one of the biggest problems with islet cell transplantation for people with type 1 diabetes. The platform, known as the engineered micro-pancreas (EMP), is developed by Israeli biotech company Betalin Therapeutics. It solves several of the difficulties associated with islet cell transplantation. Researchers know how to transplant islet cells to people with type 1 diabetes, and they know how to make those cells work. What they don't know is how to stop those cells from failing. Half of islet cell transplant patients are back on insulin injections with a year; 90 per cent within five years.
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FULL TEXT - A child with type 1 diabetes mellitus (T1DM) successfully treated with the Paleolithic ketogenic diet: A 19-month insulin freedom - International Journal of Case Reports and Images (IJCRI)

FULL TEXT - A child with type 1 diabetes mellitus (T1DM) successfully treated with the Paleolithic ketogenic diet: A 19-month insulin freedom - International Journal of Case Reports and Images (IJCRI) | diabetes and more | Scoop.it
Introduction: Currently type 1 diabetes mellitus (T1DM) is treated with insulin and a high carbohydrate diet. In the literature, however, there are studies indicating that low carbohydrate diets may be beneficial in reducing hypoglycemic episodes as well as the need for insulin. Previously we reported a case of a 19-year-old T1DM patient who was successfully treated with a modified version of the ketogenic diet we refer to as the Paleolithic ketogenic diet. Case Report: Here we provide a case study of a 9-year-old child with T1DM who initially was on an insulin regime with high carbohydrate diet then was put on the Paleolithic ketogenic diet. Following dietary shift glucose levels normalized and he was able to discontinue insulin. No hypoglycemic episodes occurred on the diet and several other benefits were achieved including improved physical fitness, reduction of upper respiratory tract infections and eczema. Currently he is on the diet for 19 months. Conclusion: Adopting the Paleolithic ketogenic diet ensured normoglycemia without the use of external insulin. The diet was sustainable on the long-term. Neither complications nor side-effects emerged on the diet.
Ellen H Ullman, MSW's insight:

SHARING WITH AN ABUNDANCE OF CAUTION.  THERE IS NOTHING HEALTHFUL ABOUT THIS DIET IN A 9 YEAR OLD GROWING CHILD IMO.

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Two Big Wins For A UConn Medical Device Startup- Implantable Sensor - size of a grain of rice

Two Big Wins For A UConn Medical Device Startup- Implantable Sensor - size of a grain of rice | diabetes and more | Scoop.it
STORRS — It's been a whirlwind fall season at Biorasis, a startup biomedical company at UConn.
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Artificial Pancreas Could Be Operated by a Smartphone

Artificial Pancreas Could Be Operated by a Smartphone | diabetes and more | Scoop.it
RT @SamISureAm: Managing #Diabetes could be much easier with a smartphone-operated #ArtificialPancreas
https://t.co/lhUqZNMI1Y https://t.c
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Researchers Coax Leftover Pancreatic Cells to Morph Into Insulin-Producing Cells - EndocrineWeb

Researchers Coax Leftover Pancreatic Cells to Morph Into Insulin-Producing Cells - EndocrineWeb | diabetes and more | Scoop.it
Using a growth factor produced naturally by the human body – and used in spinal-fusion surgeries – scientists from the Diabetes Research Institute (DRI) at the University of Miami Miller School of Medicine have coaxed “leftover” cells from the...
Ellen H Ullman, MSW's insight:

Rodent studies.  Next step "animal studies".  Let's hope HUMANS will someday benefit from this research.

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“You Can’t Eat That!” – the effect of words on diabetes, research by Jane K. Dickinson

Jane K. Dickinson is a nurse and Certified Diabetes Educator, who has been living with type 1 diabetes for 40 years. In 1993 Jane gave her first talk on the ...
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Immunotherapy for type 1 diabetes deemed safe in first US trial

Immunotherapy for type 1 diabetes deemed safe in first US trial | diabetes and more | Scoop.it
In the first U.S. safety trial of a new form of immunotherapy for type 1 diabetes (T1D), led by UC San Francisco scientists and physicians, patients experienced no serious adverse reactions after receiving infusions of as many as 2.6 billion cells that had been specially selected to protect the body's ability to produce insulin.
Ellen H Ullman, MSW's insight:

I'd like to see the data!  Your thoughts? 

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Oral Insulin Capsule to Replace Injections - NOT READY FOR PRIME TIME!

Oral Insulin Capsule to Replace Injections - NOT READY FOR PRIME TIME! | diabetes and more | Scoop.it
A way to deliver insulin in a capsule that can be taken orally has been developed with the hope that it can replace injections for people with diabetes.
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Scientists create insulin-producing cells that may treat diabetes | EurekAlert! Science News

Scientists create insulin-producing cells that may treat diabetes | EurekAlert! Science News | diabetes and more | Scoop.it
A new technique to produce cells with insulin-secretion capabilities has been developed, according to research presented today at the 54th Annual European Society for Paediatric Endocrinology Meeting. The technique could be further developed to be used in the transplantation for patients with type 1 diabetes.
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Insulin-Producing Pancreatic Cells Could Be The Next Big Thing In Cure Of Diabetics

Insulin-Producing Pancreatic Cells Could Be The Next Big Thing In Cure Of Diabetics | diabetes and more | Scoop.it
A team of scientists has discovered cells in the human body that could potentially be used to harness insulin to cure diabetics.
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Home Use of an Artificial Beta Cell in Type 1 Diabetes — NEJM

Original Article from The New England Journal of Medicine — Home Use of an Artificial Beta Cell in Type 1 Diabetes
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Scott's Web Log: Just Who Is JDRF Therapeutic Ventures, LLC? Why is it such a secret?

Scott's Web Log: Just Who Is JDRF Therapeutic Ventures, LLC? Why is it such a secret? | diabetes and more | Scoop.it
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Beyond Fitness Trackers At CES: Tiny Wearable Biosensor Continuously Monitors Your Body Chemistry

Beyond Fitness Trackers At CES: Tiny Wearable Biosensor Continuously Monitors Your Body Chemistry | diabetes and more | Scoop.it
Forbes Welcome page -- Forbes is a global media company, focusing on business, investing, technology, entrepreneurship, leadership, and lifestyle.
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7 New Diabetes Products to Look for in 2016

7 New Diabetes Products to Look for in 2016 | diabetes and more | Scoop.it
Looking ahead to 2016, we’re optimistic about these seven diabetes products potentially hitting the market in the next 12 months.
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Small cap Nemaura raises $10M, starts JV for EU launch of patch-based glucose monitor

Small cap Nemaura raises $10M, starts JV for EU launch of patch-based glucose monitor | diabetes and more | Scoop.it
Nemaura Medical stealthily listed on the Nasdaq OTC market late last year. That followed a corporate restructuring in late 2013. All this is in the name of developing a novel continuous glucose monitoring system that includes a disposable patch, a watch and a smartphone app--that the company has dubbed SugarBeat.
Ellen H Ullman, MSW's insight:

Hopefully it's better than the old Glucowatch!

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Tweet from @Diabetes_DRI

Tweet from @Diabetes_DRI | diabetes and more | Scoop.it
What do human islets have in common with animal islets? See answer here: instagram.com/p/-319ghFBpX/ #t1d #science pic.twitter.com/gaKzSQG6xu
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Current Research into Cures for Type-1 Diabetes via Joshua Levy

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Orgenesis and Biosequel Enter Collaboration Agreement for Conducting Clinical ... - CNNMoney

Orgenesis and Biosequel Enter Collaboration Agreement for Conducting Clinical ... - CNNMoney | diabetes and more | Scoop.it
Orgenesis and Biosequel Enter Collaboration Agreement for Conducting Clinical ...
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INGAP IS BACK? Landmark clinical trial of a novel combination treatment for type 1 diabetes

INGAP IS BACK?  Landmark clinical trial of a novel combination treatment for type 1 diabetes | diabetes and more | Scoop.it
Investigators at Montreal's Lady Davis Institute at the Jewish General Hospital and McGill University Health Centre have announced the start of a landmark clinical study aimed at restoring normal insulin secretion in people with longstanding type 1 diabetes. The treatment combines INGAP Peptide (ExsulinTM), which stimulates growth of the insulin secreting islets, and ustekinumab (SteleraTM), a drug approved for the treatment of psoriasis.
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The Doctor on a Quest to Save Our Medical Devices From Hackers

The Doctor on a Quest to Save Our Medical Devices From Hackers | diabetes and more | Scoop.it
Dr. David Klonoff is spearheading an effort to eliminate dangerous security holes in insulin pumps, which could help secure other medical devices as well.
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Richard Vaughn Interviewed by Daniele Hargenrader - Unleash Your Inner Diabetes Dominator, Episode 25 - The Diabetes Dominator™

Richard Vaughn Interviewed by Daniele Hargenrader - Unleash Your Inner Diabetes Dominator, Episode 25 - The Diabetes Dominator™ | diabetes and more | Scoop.it
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4-drug mixture reverses Type 1 diabetes in mice

4-drug mixture reverses Type 1 diabetes in mice | diabetes and more | Scoop.it
Call it the scientist’s version of happy hour: A new, four-drug cocktail has shown a novel ability to reverse established Type 1 diabetes in some mice, University of Florida Health researchers have found.
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EASD Virtual Meeting - Prof. Steven Russel The Bionic Pancreas: When will the dream come true?

EASD Virtual Meeting - Prof. Steven Russel The Bionic Pancreas: When will the dream come true? | diabetes and more | Scoop.it
Randomized cross-over design (11 days bionic pancreas, 11 days usual care)Subjects work or study on one of four campusesMGH, UNC Chapel Hill, Stanford, UMass Medical Center10 subjects per site (40 total)Normal daily routine, no restrictions on diet or exerciseRemote monitoring of alarms in BP, call subject if not response to alarms
Ellen H Ullman, MSW's insight:

Thank you Joshua Levy for sharing this via Twitter

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