Please go to the Great Challenges page and vote for #19, The Role of the Patient. The top 20 will be selected.
The event: A number of SPM members are at TEDMED, the big high-profile conference happening this week at the Kennedy Center in Washington. As I’ve discussed with the conference organizers, I have a great concern that the event is conceived from the old-school perspective: it’s about the business of medicine, not about whether patients are getting the care they need.
In the list of 70 speakers, there is not a single patient. We must vote.
18 months ago TEDMED opened with a spectacular patient story from Charity
Tillemann-Dick. This year there are none. We must vote.
This industry-centered perspective is understandable but we must guide the founders to start thinking the way other industries do: ask “What’s important to the people who consume our services? What do they want?” (More on this problem below.)
Our opportunity to vote: Happily, TEDMED and the Robert Wood Johnson Foundation have provided a structure for us to say what’s missing. And we must vote.
That means you. Tell friends. Forward this to others, or cross-post it.
Patients outnumber the people in industry, but we must vote.