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Social Media and Patient Advocacy

These are the slides from my talk at the 4th Annual Putting Patients First Conference in Mumbai.

 

If god were to manifest the world using technology, he would first create something like social media. Conceptually provide technology with the ability to understand the thoughts of a population


SocMed leaves behind the old model of 1-to-1 communication – “talking to someone over the phone”  Enables one-to-many communication (via blogs or microblogging) or many-to-many communication (discussion forums, social walls). Now anyone can setup an online community site/portal to represent a small or big offline community.

 

Further, anyone can setup an online site related to a treatment, a disease, a doctor, a drug , a concept or anything and see it grow into a popular site which in effect is simply the manifestation of a community which exists/ed but which no one ever knew of.


Via nrip
PatientView's insight:

We have figures on the scale of soical media intreaction by patient advocates. In countries where the impact of the finanical crisis is at its worst, patient advocates have turned to social media to interact with one another and raise awareness  of the predicaments of their country's healthcare system to place pressure on government when undertaking reforms. 

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Marie Ennis-O'Connor's curator insight, November 17, 2013 4:09 PM

Thanks so much for sharing your slides - i am looking forward to reading them. 

Plaza Dental Group's curator insight, January 29, 5:53 AM

Great info! I think SocMed  will boost the thought of population and will effect change in local communities. 

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Plastics Today

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The medical device industry: keeping face with patients | MedTech Views

The medical device industry: keeping face with patients | MedTech Views | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
PatientView's insight:

More details on the medical device corp rep survey

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Corporate reputation of the medical device industry - the patient perspective (3rd edition)

Corporate reputation of the medical device industry - the patient perspective  (3rd edition) | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
      Report published by PatientView, June 4th 2014 London, June 4, 2014. This report is based on the findings of a PatientView March-April 2014 global survey exploring the views of...
PatientView's insight:

Coloplast 1st but some surprising findings. Rising stars listed.  

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The Reputation Stumble Rate Stumbles

The Reputation Stumble Rate Stumbles | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Weber Shandwick’s annual calculation of reputation loss – the “stumble
rate” – finds the lowest rate of reputation leadership loss since we began
tracking this rate in 2010. During 2013, fewer than four in 10 of the
world’s largest companies lost their esteemed status as their industries’
#1 most admired company during 2013. This is good news.

Each year Weber Shandwick measures the rate at which companies lose their
#1 most admired position in their respective industries on the Fortune
World’s Most Admired Companies survey. We call this the stumble rate.
Between 2013 and 2014, 35% of the world’s largest companies experienced a
stumble, down from last year’s 46%. For those companies that fell from
their perches, there is likely extensive introspection and remedial action
plans being discussed as I write this post.

The good news is the non-stumble rate of 65%. This means that about
two-thirds of the industries in the Most Admired survey boast companies
with durable reputations.

 

In addition to calculating the stumble rate, we also dig through the data,
including the nine drivers of reputation, to glean some interesting
insights about stumblers and non-stumblers. A stumbler is an industry whose
top company last year is no longer the top company this year. What is
interesting this year?

* 19 industries (out of nearly 60, give or take depending on the year)
have never had a stumbler since we started monitoring the stumble
rate in 2010. The most admired companies in these industries have
been stalwarts of reputation: Automotive Retailing, Building,
Materials-Glass, Computer Peripherals, Consumer Food Products,
Electric & Gas Utilities, Electronics, Entertainment, Household &
Personal Products, Property & Casualty Insurance, Internet Services &
Retailing, Metal Products, Mining, Crude Oil Production, Oil & Gas
Equipment Services, Pipelines, Newspapers & Magazines Publishing,
Railroads, Semiconductors, Diversified Retailers, Food & Grocery
Wholesalers.
* Two industries stumbled for the first time during 2013: Information
Technology Services  and Office Equipment & Electronics Wholesalers.
This must hurt.
* The Energy industry is a chronic stumbler. No Energy company has been
able to hold the #1 spot for consecutive years.  In the course of six
years, there have been five different Energy leaders.
* Five industries have stumbled four times since 2010. The most
volatile industries are: Airlines, Life & Health Insurance, Medical
Equipment, Motor Vehicle Parts and Health Care Wholesalers.
* Six industries have a first-ever number one: Diversified Outsourcing
Services, Food Production Information Technology Services, Medical
Equipment, Mega Banks and Electronics and Office Equipment.
Interestingly, the new leader in Medical Equipment is also new to the
industry, having ranked #3 last year in Pharmaceuticals. This
probably has to do with a change in their business mix.
* For most of the stumblers, the People Management driver declined. The
biggest drops in People Management (one of the nine drivers) were in
Mega Banks (-3 ranking positions) and in Soaps and Cosmetics (also -3
spots).  In 2013, the Mega Banks stumbler experienced a
crisis-riddled year that pointed to lack of leadership oversight of
personnel.
o The Soaps and Cosmetics stumbler decline might not be
reflection of its own management troubles, but rather strides
made by the competitors.  In one case, a well-respected CEO
came out of retirement to replace his successor on an interim
basis. One of his top priorities is to prepare a lineup of
executives who will eventually replace him.
o The other competitor announced – shortly before the Fortune
survey was distributed to respondents – it was rolling out a
supply chain collaboration platform to make its manufacturing
more responsive to shifting customer tastes. This agile
manufacturing process is expected to help add 1 billion new
customers.

 

 

 

 

 

 
PatientView's insight:

Seem to concur with our findings ... which is nice. 

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How to bring the price of health care into the open.

How to bring the price of health care into the open. | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it

cingThere's a major effort under way to make sure patients know how much they'll pay—before they make treatment decisions.

PatientView's insight:

Perhaps this could be applied to global drug pricing

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Article > HIV/AIDS firms top new pharma reputation list

Article > HIV/AIDS firms top new pharma reputation list | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Last year’s leader Lundbeck drops to 22nd place
PatientView's insight:

Coverage of PatientView's latest corporate reputation report 

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Johnson & Johnson gives clinical trial data to researchers: a “game changer” | All Trials

Johnson & Johnson gives clinical trial data to researchers: a “game changer” | All Trials | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
PatientView's insight:

The first real steps to improving transparency in clinical trials 

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MSF responds to news of pull out of neglected disease R&D by AstraZeneca

MSF responds to news of pull out of neglected disease R&D by AstraZeneca | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
31 January

News emerged yesterday that British/Swedish pharmaceutical company AstraZeneca has pulled out of all early stage research and development for tuberculosis, malaria and neglected tro..
PatientView's insight:

Intrestingly AZ and Bayer  corp rep was not ranked highly by patient groups as you will find out on Feb 13th. .. not v patient cnetric 

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Why the Public Accounts Committee Report on Tamiflu Is Important for Us All

Why the Public Accounts Committee Report on Tamiflu Is Important for Us All | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
It is not surprising that the PAC has registered its concerns and its strong recommendation that all data from clinical trials should be made public.
PatientView's insight:

A view from Dr David Tovey of the Cochrane Collaboration

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The Year of Healthcare Data Analytics | --???

The Year of Healthcare Data Analytics | --??? | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
What does 2014 have in store for healthcare? Guest contributor, Brian Ahier, explains why it’s the year of healthcare data analytics....
PatientView's insight:

I would go much further than the above. In our experience companies do not just want the data they want to know what to do following the analytics. For example PatientView has found that after three years of doing corporate reputation index companies now want strategies  to improve performance and be patient centric. With nearly every healthcare company claiming to be patient centric, when few to none are, this is no mean feat

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Corporate Reputation of Pharma—the Patient Perspective

A global survey of the views of 500 large and influential patient groups
PatientView's insight:

PatientView's methodology for measuring corporate reputation of the pharmaecutical industry -

NEXT EDITION OUT IN jANUARY 2014  

Comparing three year tends 

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• CORP REPUTATION

• CORP REPUTATION | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
PatientView corporate reputation  As of 2014, PatientView Quarterly is focusing on patient perceptions of corporate reputation
PatientView's insight:

PatientView has continued its corporate reputation analyses of pharma-from a patient perspective: ranking 1st in the UK is Novo Nordisk and 1st in Germany is Roche

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Ideas for leaders

Ideas for leaders | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
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The corporate reputation of pharma companies varied significantly in 2013 when assessed by patient groups of different specialties —even between the therapeutic divisions of a single company

The corporate reputation of pharma companies varied significantly in 2013 when assessed by patient groups of different specialties —even between the therapeutic divisions of a single company | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Press Release Date: 14-04-2014 Contact: Alexandra Wyke                  email: alexwyke@patient-view.com Tel: 0044-(0)1567-520-965 The corporate reputation of 23 pharma companies in 2013 was analys...
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Purpose Economy

Purpose Economy
PatientView's insight:

Have always been a fan of Aaron Hurst 

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PATIENTVIEW PRESS RELEASE CORPORATE REPUTATION 13-02-2014.pdf

PATIENTVIEW PRESS RELEASE CORPORATE REPUTATION 13-02-2014.pdf | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Shared with Dropbox
PatientView's insight:
  • Download the press release on our latest report 
  • "Corporate Reputation of Pharma-the patient perspective"
  • Based on a survey of 800 patient groups and their views on how pharma did in 2013 versus 2012 


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Protecting Your Corporate Reputation

Protecting Your Corporate Reputation | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Since 2010, there has been an outbreak of “new and improved” reputation insurance policies from name-brand insurance carriers like Zurich (Brand Assurance), AIG (ReputationGuard), Munich Re (Reputation Insurance) and a number of Lloyds syndicates, including a standalone reputation policy produced by Steel City Re.
PatientView's insight:

Seems bizarre that you can insure against a declining corporate reputation -would love to see how insurers assess claims

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How is health IT improving approaches to patient engagement? | EHRintelligence.com

How is health IT improving approaches to patient engagement? | EHRintelligence.com | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Patient engagement is a popular concept, but it is not at all a new one by any means. New technologies and patient-centered approaches simply redefine it.

Via VitalHealthSoftware, Lionel Reichardt / le Pharmageek
PatientView's insight:

Tx for picking this up Pharmageek

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Corporate Reputation of Pharma- the Patient Perspective, the views of 800 patient groups worldwide ...out 13/02/2014

Corporate Reputation of Pharma- the Patient Perspective, the views of 800 patient groups worldwide ...out 13/02/2014 | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it

Corporate Reputation of Pharma - the Patient Perspective, headlines results to be released Thursday, February 13th 2014. Reports on a survey of 800 patient groups worldwide

PatientView's insight:

Will be loading up press release here on the day 

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Connecting with consumers: Know more about their pharma experience

Connecting with consumers: Know more about their pharma experience | CORPORATE REPUTATION-THE PATIENT PERSPECTIVE | Scoop.it
Pharmaceutical companies are rethinking the way they operate, thanks to a combination of tough challenges: expiring patents, cost pressures, stricter regulation, and stiff competition.
PatientView's insight:
No surprise!
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Social Media and Patient Advocacy

These are the slides from my talk at the 4th Annual Putting Patients First Conference in Mumbai.

 

If god were to manifest the world using technology, he would first create something like social media. Conceptually provide technology with the ability to understand the thoughts of a population


SocMed leaves behind the old model of 1-to-1 communication – “talking to someone over the phone”  Enables one-to-many communication (via blogs or microblogging) or many-to-many communication (discussion forums, social walls). Now anyone can setup an online community site/portal to represent a small or big offline community.

 

Further, anyone can setup an online site related to a treatment, a disease, a doctor, a drug , a concept or anything and see it grow into a popular site which in effect is simply the manifestation of a community which exists/ed but which no one ever knew of.


Via nrip
PatientView's insight:

We have figures on the scale of soical media intreaction by patient advocates. In countries where the impact of the finanical crisis is at its worst, patient advocates have turned to social media to interact with one another and raise awareness  of the predicaments of their country's healthcare system to place pressure on government when undertaking reforms. 

more...
Marie Ennis-O'Connor's curator insight, November 17, 2013 4:09 PM

Thanks so much for sharing your slides - i am looking forward to reading them. 

Plaza Dental Group's curator insight, January 29, 5:53 AM

Great info! I think SocMed  will boost the thought of population and will effect change in local communities.