CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome
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Living with Reflex Sympathetic Dystrophy Syndrome/RSD

Living with Reflex Sympathetic Dystrophy Syndrome/RSD | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
Living with Reflex Sympathetic Dystrophy Syndrome (RSD), is like having a nightmare, and never waking up from it! RSD is a chronically painful neurological disorder, that affects the  central nervo...
Paulette's insight:

Reflex Sympathetic Dystrophy Syndrome, can literally turn one’s life upside down, and inside out! However, many patients are able to live some semblance of a normal life. For example, some patients are able to work, take care of their families, and enjoy outings, etc. Usually, this is due to a patient receiving an accurate diagnosis shortly after onset, as well as receiving aggressive treatment early on. 

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Stay Positive Warriors! - Surviving CRPS & Chronic Pain, Our Personal Journeys | Facebook

“Stay Positive Warriors! (Stay Positive Warriors! http://t.co/SvsQvscTLF)”
Paulette's insight:
Staying positive is a constant struggle for many who live with RSD/CRPS! Staying close to God is the only way I am able to handle all that I endure daily. Stay strong!
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American RSDHope

American RSDHope | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
“American RSDHope Organization (Fab site dedicated to bringing help & understanding to those who fight crps/rsd, highly informative, check it out x http://t.co/JzGfCsruQE)...”
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Does RSD Spread?

Does RSD Spread? | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it

It still amazes me, that some doctors who treat patients that suffer from RSD/CRPS, are still questioning whether or not RSD spreads. They are telling patients they are not experiencing spread, on...

Paulette's insight:

Unfortunately, RSD/CRPS does spread. I hope the information shared here will be helpful.

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RSD sufferer making remarkable recovery

RSD sufferer making remarkable recovery | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
An Air Force veteran who has suffered with Reflex Sympathetic Dystrophy (RSD) for years, is successfully on his road to recovery, after a risky procedure and subsequent treatments.
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Living with Chronic Pain and Depression

Living with Chronic Pain and Depression | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
“ About 50 percent of people who have chronic pain also have depression , according to Robert D. Kerns , Ph.D, National Program Director for Pain Management for the Veterans Health...”
Via People in Pain
Paulette's insight:
If you are suffering from depression, coupled with chronic pain, please get the help you need for both, ASAP!
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Pain management theme for September

Pain management theme for September | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
September is Pain Awareness Month, a time to recognize an issue that affects more people than cancer, diabetes and heart disease combined.
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Chronic Pain Management: Tips for Coping and Relief

Chronic Pain Management: Tips for Coping and Relief | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
“{excerpt:} (Chronic Pain Management: Tips for Coping and Relief - AiM Archives http://t.co/tOS3uC706O)”
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RSDSA :: Reflex Sympathetic Dystrophy Syndrome Association

RSDSA :: Reflex Sympathetic Dystrophy Syndrome Association | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
Paulette's insight:

As a patient who suffers from RSD/CRPS, visiting an emergency room for any reason is a very scary proposition, because it is extremely likely, that the doctor treating you will know nothing about Reflex Sympathetic Dystrophy Syndrome/Complex Regional Pain Syndrome, and would in all likelihood, make matters so much worse! This article is an excellent resource about what you can do to help the ER visit proceed smoothly. Please take a few moments to check out the other information presented on  this website. Take care!                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                           

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» Comfort Foods and Depression (i.e.- Self-medicating with donuts…it’s tastier than Prozac) - Living with Chronic Pain

» Comfort Foods and Depression (i.e.- Self-medicating with donuts…it’s tastier than Prozac) - Living with Chronic Pain | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
An article discussing why depression can lead to poor eating and a healthy alternative to a favorite milkshake!
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Living with Chronically Painful Disorders

Living with Chronically Painful Disorders | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
Reflex Sympathetic Dystrophy Syndrome is only one of many chronically painful disorders. Living with any chronically painful condition, is not an easy existence. For most who suffer from chronic pa...
Paulette's insight:

There are some general things patients can do, to manage their pain more efficiently. 1. Having a good support system, which may consist of family, friends, and medical specialists, is extremely important. Sometimes, those who suffer from chronically painful, disabling, and debilitating disorders, simply need someone to lend an ear. Laughter definitely does the body good. Spending a few lighthearted moments in conversation via telephone, brings a smile to a face that is often filled with pain! At other times, they may need help with daily living activities. It is also a good idea for family members and friends, to educate themselves as it pertains to the specific condition that their loved one is suffering from.

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» Helpful Things TO Say to Someone in Chronic Pain - Living with Chronic Pain

» Helpful Things TO Say to Someone in Chronic Pain - Living with Chronic Pain | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
a list of helpful things to say and do for someone living with chronic pain
Paulette's insight:

This article is a very good read. Most of the suggestions listed were statements that have been said to me, over and over again. Some are helpful, and some were rather numbing. Still, I know that the persons speaking to me, only had much love for me, and my best interest at heart!

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7 Ways To Cope With Chronic Illness - MindBodyGreen.com

7 Ways To Cope With Chronic Illness - MindBodyGreen.com | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
“ I was diagnosed with a chronic illness over a year ago, and my life was turned upside down. I was in my prime: a health-conscious runner who was enjoying her life. Then, out of nowhere, my.”
Via People in Pain, Jacqueline Goguen (AbleIAm.com)
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CRPS & Dentistry

“RSD and Dentistry, One Assessment - Dental Issues Reflex Sympathetic Dystrophy Patients and Dentistry by Dr. Aldino P. Maggiulli Reflex Sympathetic Dystrophy Syndrome (RSD) usually develops after a...”
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November Is National RSD/CRPS Awareness Month; Help us ...

November Is National RSD/CRPS Awareness Month; Help us ... | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
On November 16, 2013 CRPS Partners In Pain, Inc will be holding a symposium on CRPS at Drexel University's New College Building First Floor. The panel will include: Dr Pradeep Chopra, MD Dr Guillermo Alexander, PhD.
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Pain Relief & Management | Calmar Pain Relief Therapy - RI

Pain Relief & Management | Calmar Pain Relief Therapy - RI | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
Calmar Pain Relief Therapy developed the country’s first center entirely
devoted to the treatment of chronic pain using Scrambler Therapy. Visit us
today!
Paulette's insight:

Apparently, this is a new treatment for chronically painful syndromes/disorders which has met with some measure of success. This is the second article that I've read about this treatment. If you have information pertaining to this treatment, please leave a comment. According to this article, this treatment is not covered by insurance. 

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Firstgiving - 2013 CRPS/RSD Walk for Awareness

Firstgiving - 2013 CRPS/RSD Walk for Awareness | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
2013 CRPS/RSD Walk for Awareness
5k Walk/Run

RSDSA mission is to provide support, education, and hope for everyone affected by the ... (Still time left to #donate to tomorrow's CRPS/RSD Walk For Awareness charity event!
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Neurological Disorders and Vitamin D

“Chronic pain, depression, tremors, memory loss and other neurological disorders stem from vitamin D deficiency. Get to the root of the problem with vitamins and supplements that correct imbalances in your body.”
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Twitter / rsdprobs: I hate having those nights ...

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The complete quote says, "I hate having those nights where you just break down."

 

Been there, done that!

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Imagine Living With RSD/CRPS

“ Throughout my time living with RSD/CRPS everyone always asks 'What does the pain feel like?' I've never been able to answer that question because the pain is...”
Via marianne vennitti
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Criteria for CRPS/RSD

Criteria for CRPS/RSD | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
Please read the article titled, Living with Reflex Sympathetic Dystrophy Syndrome/RSD, before proceeding further with, "Criteria for CRPS/RSD." Most recently published criteria for CRPS December 8t...
Paulette's insight:

There is no cut and dry test which definitively diagnoses RSD/CRPS. The most accurate method used to rule in, or rule out this syndrome, is by a Clinical Diagnosis performed by a Physician who specializes in the treatment of RSD/CRPS. The criteria for RSD/CRPS is discussed at length in this article. 

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RSD TYPES I and II

RSD TYPES I and II | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
There are two types of RSD. There is RSD I, and RSD II. RSD type I is most commonly triggered by a tissue injury. Patients who suffer from RSD I and RSD II suffer mostly from the same symptoms. How...
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Tip: Handling Isolation That Comes From Chronic Illness | But You Dont Look Sick? support for those with invisible illness or chronic illness

Tip: Handling Isolation That Comes From Chronic Illness | But You Dont Look Sick? support for those with invisible illness or chronic illness | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
a list of helpful things to say and do for someone living with chronic pain
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add your insight...
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» What NOT to Say to Someone in Chronic Pain - Living with Chronic Pain

» What NOT to Say to Someone in Chronic Pain - Living with Chronic Pain | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
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Lately, I've seen so many web posts -... - ButYouDontLookSick.com | Facebook

Lately, I've seen so many web posts -... - ButYouDontLookSick.com | Facebook | CRPS or RSD, a Chronically Painful and Debilitating, Neurological Syndrome | Scoop.it
"Lately, I've seen so many web posts - "What not to say to...". There is one for Lupus, Chronic illness, etc. There's even one in my Rheumy's office! Maybe it's me - I'm a glass half full kind of person - even with chronic illness. Those things really annoy me. "...
Via Jacqueline Goguen (AbleIAm.com)
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