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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Social Networking, Online Communities and Clinical Research

Social Networking, Online Communities & Research Colleen Young Manager of Engagement & Social Innovation ELLICSR, Princess Margaret Cancer Centre, UHN …
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Un lungo caffè in compagnia di Domitilla Ferrari: giornalista e social player di Mondadori

Un lungo caffè in compagnia di Domitilla Ferrari: giornalista e social player di Mondadori | Co-creation in health | Scoop.it
Ore 18 in punto di un venerdì pre-pasquale. Mentre fuori il cielo sopra Bologna è grigio, all’interno della libreria Trame un sorriso scintillante illumina la location. Entra Domitilla Ferrari con i suoi inconfondibili occhiali neri, accompagnata da Gianluca Diegoli e Matteo Bianconi, pronta per la presentazione del suo libro ‘Due gradi e mezzo di separazione: Come il networking facilita la circolazione delle idee (e fa girare l’economia)’.
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Luciano Berio: memorie di Duchamp

Luciano Berio: memorie di Duchamp | Co-creation in health | Scoop.it
Negli ultimi anni la figura e l'opera di Duchamp hanno trovato nuova eco nella stampa specializzata. Oltre alla biografia scritta da Bernard Marcadé (pubblicata in Italia da Johan & Levi), veng...

Via Luis Manuel
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Beyond rhetoric: we need a strategy for patient involvement in the health service | BMJ

Beyond rhetoric: we need a strategy for patient involvement in the health service | BMJ | Co-creation in health | Scoop.it

Respect for a patient’s individual autonomy is an accepted principle in modern medicine. In the past half century, the concept of autonomy has usurped medical paternalism in almost all of its forms and has aspired to promote patients from passive recipients of care to partners in planning their own treatment.1 Now the concept has extended beyond individual autonomy to an expectation of empowerment at the population level.

The notion of patient empowerment is reflected in the development of regulation and guidance, and phrases such as “patient led care,” “putting patients at the heart of the NHS,” and “shared treatment decision making” abound. Since the NHS Plan in 2000, the UK government has promised to “encourage the involvement of citizens in redesigning the health service from the patients’ point of view.”2

Despite the strong rhetoric, however, there has been no consistent strategy for involving patients. The approach to enabling patients and the general public to have more say about how services are planned and …

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New York legislature approves medical marijuana bill | Reuters

New York legislature approves medical marijuana bill | Reuters | Co-creation in health | Scoop.it

(Reuters) - New York state lawmakers gave final approval on Friday to a bill that would allow limited access to medical marijuana in New York, joining 22 other states where cannabis has been

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Journal of Patient Experience

Journal of Patient Experience | Co-creation in health | Scoop.it

Giving voice to our patients and our providers, the Journal of Patient Experience (JPE) is a peer-reviewed journal proudly affiliated with the Association for Patient Experience. JPE aims to cover a wide scope comprising new technologies, processes, methods, research, case studies, best practices, applications and perspectives in the emerging field of patient experience. Published quarterly, JPE will serve as a forum to share:
 

  • Research findings and case studies
  • Developments and trends in the field
  • Lessons learned and reflections
  • Perspectives from industry leaders, innovators, caregivers, patients and families
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Assisted dying is not the same as euthanasia | BMJ

Assisted dying is not the same as euthanasia | BMJ | Co-creation in health | Scoop.it

We are sympathetic to the article by Raymond Tallis ‘Assisted dying is not the same as euthanasia’, (Observations BMF 31 May 2014 Volume 348). Living and working in Scotland, we are supporters of the Assisted Suicide (Scotland) Bill and share Prof Tallis’ distaste for the tactics used by opponents of assisted dying.

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La communauté, le mythe, la politique. Rencontre avec Jean-Luc Nancy

La communauté, le mythe, la politique. Rencontre avec Jean-Luc Nancy | Co-creation in health | Scoop.it
Première partie (73mn)
Le commun, le communisme, la communauté.
Le fascisme, la communion.
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Seconde partie (22mn)
Le récit, le mythe, la correspondance
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Troisième partie (75mn)
Le politique, la politique, la religion civile.
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Entretien radiophonique : Emmanuel Moreira, Amandine André
Réalisation : Emmanuel Moreira
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Why are patients' using social media for health? |

Why are patients' using social media for health? | | Co-creation in health | Scoop.it

As we await word from the FDA on final social media guidelines and, before any biopharma organization implements social media we need to understand “why” patients are using social media for health, what THEY want and need and how social media impacts healthcare decision making.


Via Plus91, Lionel Reichardt / le Pharmageek
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Andrea Robotti's curator insight, June 28, 1:32 PM

Nel bene e nel male ci sono sempre più persone che utilizzano gli ambienti social per non rimanere spiazzati nei momenti in cui vengono prese le decisioni importanti circa il loro stato di salute e/o di malattia.

Secondo questa indagine portata avanti negli Stati Uniti durante l'anno 2012, emerge come solo l'1% si affidi totalmente al clinico. Il restante 99% si suddivide tra varie sfumature di atteggiamento che vanno dalla richiesta di pareri terzi, alla ricerca di informazioni da affiancare alle conoscenze del medico sino ad arrivare a situazioni di piena consapevolezza della situazione da ambo le parti, le quali risultano in una decisione condivisa.


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Meet Generation Z: Forget Everything You Learned About Millennials

Marketers have been focused on Gen Y (a.k.a. Millennials) for more than a decade. In fact, Millennials are the most researched generation in history! But Gen…

Via Claude Emond
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Ma. Caridad Benitez's curator insight, June 24, 6:22 AM

Por si con los Milenials no alcanza para salvar el mundo, tenemos ya en ebullición los salvadores del planeta. Generación Z, la súper evolución masiva! 

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Can media images of obese people undermine health messages? An experimental study of visual representation and risk perception.

The findings suggest that the use of morbidly obese models in messages regarding the health risks of being overweight may undermine the impact of these messages among those who they most aim to reach; the reader may perceive a reduced risk of being 'only' overweight, and that a higher weight is needed for the negative effects of excess weight to occur
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Effective Health Promotion Strategies

Experts in the field of social marketing were brought together by the California Office of Binational Border Health to share their knowledge and help your ag...

Via Jeff French
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Angela Coulter: Person centred care—what works?

Angela Coulter: Person centred care—what works? | Co-creation in health | Scoop.it
“There’s no evidence that it works.” In these days of evidence based medicine, that’s a real clincher—a good reason to avoid a treatment or procedure that offers no proven value.

Via Informed Medical Decisions Foundation
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Cancro. Ecco perché serve un nuovo modo per parlarne. Il libro di Donghi e Peluso

Cancro. Ecco perché serve un nuovo modo per parlarne. Il libro di Donghi e Peluso | Co-creation in health | Scoop.it

Gli obiettivi delle cure in oncologia si sono oggi spostati dall'eradicazione, alla cronicizzazione del tumore; per questo, anche le parole per dire 'cancro' e i discorsi intorno a questa malattia, hanno bisogno di una nuova semantica, di nuove considerazioni. Lo spiegano nel loro libro Pino Donghi e  Gianfranco Peluso

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The Behavioral Intervention Technology Model: An Integrated Conceptual and Technological Framework for eHealth and mHealth Interventions

A growing number of investigators have commented on the lack of models to inform the design of behavioral intervention technologies (BITs). BITs, which include a subset of mHealth and eHealth interventions, employ a broad range of technologies, such as mobile phones, the Web, and sensors, to support users in changing behaviors and cognitions related to health, mental health, and wellness. We propose a model that conceptually defines BITs, from the clinical aim to the technological delivery framework. The BIT model defines both the conceptual and technological architecture of a BIT. 

Via bacigalupe
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Vitamin D and mortality: meta-analysis of individual participant data from a large consortium of cohort studies from Europe and the United States | BMJ

Vitamin D and mortality: meta-analysis of individual participant data from a large consortium of cohort studies from Europe and the United States | BMJ | Co-creation in health | Scoop.it
AbstractObjective To investigate the association between serum 25-hydroxyvitamin D concentrations (25(OH)D) and mortality in a large consortium of cohort studies paying particular attention to potential age, sex, season, and country differences.Design Meta-analysis of individual participant data of eight prospective cohort studies from Europe and the US.Setting General population.Participants 26 018 men and women aged 50-79 yearsMain outcome measures All-cause, cardiovascular, and cancer mortality.Results 25(OH)D concentrations varied strongly by season (higher in summer), country (higher in US and northern Europe) and sex (higher in men), but no consistent trend with age was observed. During follow-up, 6695 study participants died, among whom 2624 died of cardiovascular diseases and 2227 died of cancer. For each cohort and analysis, 25(OH)D quintiles were defined with cohort and subgroup specific cut-off values. Comparing bottom versus top quintiles resulted in a pooled risk ratio of 1.57 (95% CI 1.36 to 1.81) for all-cause mortality. Risk ratios for cardiovascular mortality were similar in magnitude to that for all-cause mortality in subjects both with and without a history of cardiovascular disease at baseline. With respect to cancer mortality, an association was only observed among subjects with a history of cancer (risk ratio, 1.70 (1.00 to 2.88)). Analyses using all quintiles suggest curvilinear, inverse, dose-response curves for the aforementioned relationships. No strong age, sex, season, or country specific differences were detected. Heterogeneity was low in most meta-analyses.Conclusions Despite levels of 25(OH)D strongly varying with country, sex, and season, the association between 25(OH)D level and all-cause and cause-specific mortality was remarkably consistent. Results from a long term randomised controlled trial addressing longevity are being awaited before vitamin D supplementation can be recommended in most individuals with low 25(OH)D levels.
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Andrea Robotti's curator insight, June 28, 9:09 AM

Un'interessante metanalisi effettuata su studi clinici condotto sia in Europa sia in America ha dato chiare indicazioni riguardo la correlazione tra la diminuzione dei livelli di Vitamina D3 e l'aumentare della mortalità, con particolare attenzione ai casi di malattie cardiovascolari e oncologiche.


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Women's right to vote and the e-patient movement

Women's right to vote and the e-patient movement | Co-creation in health | Scoop.it
All of this may sound familiar to patients whose opinions are considered not worth hearing because, after all, they’re patients, so what could they know?
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The New York Times innovation report is great, but it left out one very important thing

The New York Times innovation report is great, but it left out one very important thing | Co-creation in health | Scoop.it
The 97-page internal report on what the New York Times needs to do online contains many things of value, but it glosses over one important point: the way the NYT does journalism has to change, not just how it is promoted or displayed

Via Pierre Levy
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What's in pharma's future? Patient centricity, healthcare services, competition with big data firms. Profits come from customers!

What's in pharma's future? Patient centricity, healthcare services, competition with big data firms. Profits come from customers! | Co-creation in health | Scoop.it
A survey by EyeforPharma looks at trends impacting future of the life sciences industry like patient centricity, big data companies, and moving "beyond the pill."

Via Celine Sportisse, eMedToday
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Women, Cancer, and Social Media

Women, Cancer, and Social Media | Co-creation in health | Scoop.it

Since its inception the Internet has played a role in healthcare. But what started as primarily a source of information, as patients learned the benefits—and the pitfalls—of “googling” a diagnosis, has now evolved to become a much more interactive experience. Communities in which members share insights and support, often with expert direction, are a huge draw for patients facing a variety of diagnoses today. Networks built around cancer—whether through Facebook, Twitter, and the like or blogs and hosted communities—have a particularly active presence in healthcare social media.


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Reading literary fiction improves empathy, study finds

Reading literary fiction improves empathy, study finds | Co-creation in health | Scoop.it

New research shows works by writers such as Charles Dickens and Téa Obreht sharpen our ability to understand others' emotions – more than thrillers or romance novels, writes Liz Bury


Via Giovanna Marsico, Lionel Reichardt / le Pharmageek
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Changes in antidepressant use by young people and suicidal behavior after FDA warnings and media coverage: quasi-experimental study | BMJ

Changes in antidepressant use by young people and suicidal behavior after FDA warnings and media coverage: quasi-experimental study | BMJ | Co-creation in health | Scoop.it

AbstractObjective To investigate if the widely publicized warnings in 2003 from the US Food and Drug Administration about a possible increased risk of suicidality with antidepressant use in young people were associated with changes in antidepressant use, suicide attempts, and completed suicides among young people.

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Google and Apple want to be your doctor, and that’s a good thing

Google and Apple want to be your doctor, and that’s a good thing | Co-creation in health | Scoop.it
New digital health offerings from Apple and Google could shake up health care.
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Prévention, accès aux soins et droits des patients au cœur de la nouvelle loi santé

Prévention, accès aux soins et droits des patients au cœur de la nouvelle loi santé | Co-creation in health | Scoop.it
La ministre des affaires sociales, Marisol Touraine, présente jeudi une loi de santé publique élaborée sans grandes marges de manœuvre budgétaires.
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No powerpoint inside : 5 solutions pour faire une présentation sans powerpoint

No powerpoint inside : 5 solutions pour faire une présentation sans powerpoint | Co-creation in health | Scoop.it
Cliquez pour connaitre nos 5 solutions pour faire une présentation sans powerpoint

Via Catherine Pascal
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Catherine Pascal's curator insight, June 2, 4:15 AM

 Prezi.com, Bunckr, Mindmaster, vidéos, speedating : tendances ....