Co-creation in health
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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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L’intelligence collective : un nouveau leadership ?

L’intelligence collective : un nouveau leadership ? | Co-creation in health | Scoop.it
Dans un monde incertain, changeant, global et ultra connecté, les modes de leadership traditionnels qui intronisaient un chef clairvoyant,...
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How to exploit twitter for public health monitoring?

How to exploit twitter for public health monitoring? | Co-creation in health | Scoop.it

Detecting hints to public health threats as early as possible is crucial to prevent harm from the population. However, many disease surveillance strategies rely upon data whose collection requires explicit reporting (data transmitted from hospitals, laboratories or physicians).


Collecting reports takes time so that the reaction time grows. Moreover, context information on individual cases is often lost in the collection process. This paper describes a system that tries to address these limitations by processing social media for identifying information on public health threats. The primary objective is to study the usefulness of the approach for supporting the monitoring of a population's health status.


The experiments show that the system provides information on health events identified in social media. Signals are mainly generated from Twitter messages posted by news agencies. Personal tweets, i.e. tweets from persons observing some symptoms, only play a minor role for signal generation given a limited volume of relevant messages. Relevant signals referring to real world outbreaks were generated by the system and monitored by epidemiologists for example during the European football championship.


But, the number of relevant signals among generated signals is still very small: The different experiments yielded a proportion between 5 and 20% of signals regarded as "relevant" by the users. Vaccination or education campaigns communicated via Twitter as well as use of medical terms in other contexts than for outbreak reporting led to the generation of irrelevant signals.


Conclusions: The aggregation of information into signals results in a reduction of monitoring effort compared to other existing systems. Against expectations, only few messages are of personal nature, reporting on personal symptoms. Instead, media reports are distributed over social media channels.


Despite the high percentage of irrelevant signals generated by the system, the users reported that the effort in monitoring aggregated information in form of signals is less demanding than monitoring huge social-media data streams manually. It remains for the future to develop strategies for reducing false alarms.


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Comment définir la “santé connectée” (ou l’e-santé) ?
● Le concept : …

Comment définir la “santé connectée” (ou l’e-santé) ?<br/>● Le concept : … | Co-creation in health | Scoop.it
Comment définir la “santé connectée” (ou l’e-santé) ?
● Le concept : 
Aujourd’hui, il nous est possible de suivre et d’évaluer notre forme et notre santé… - MyBiody Balance – Google+

Via Emmanuel Capitaine
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Health Inequalities and the 1% - Wolfson Annual Lecture 2014 - YouTube

The Wolfson Research Institute welcomed Professor Danny Dorling to deliver the Wolfson Research Institute for Health and Wellbeing's Annual Lecture 'Health I...
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Determinants of health information-seeking behavior: implications for post-treatment cancer patients.

Health information-seeking behavior (HISB) is active need-fulfillment behavior whereby health information is obtained from diverse sources, such as the media, and has emerged as an important issue within the transforming medical environment and the rise of medical consumers. However, little is known about the factors that affect HISB and its associations, and the healthoutcome of HISB. The aim of this study was to examine individual and social contextual factors associated with HISB and to systematically review their effects on health status among post- treatment cancer patients. Individual determinants of HISB included demographic factors, psychosocial factors, perceived efficacy and norms, and health beliefs. Contextual determinants of HISB encompassed community characteristics, neighborhood social capital, and media advocacy. Improving through factors on these two levels, HISB raised individuals' self-care management skills and medical treatment compliance, and enhanced shared decision-making and medical treatment satisfaction. Moreover, because HISB can differ according to individuals' socialcontextual conditions, it can give rise to communication inequalities. Because these can ultimately lead to health disparities between groups, social interest in HISB and balanced HISB promotion strategies are necessary.
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Evidence based medicine: a movement in crisis?

Trisha Greenhalgh and colleagues argue that, although evidence based medicine has had many benefits, it has also had some negative unintended consequences. They offer a preliminary agenda for the movement’s renaissance, refocusing on providing useable evidence that can be combined with context and professional expertise so that individual patients get optimal treatment

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Posttraumatic growth, dyadic adjustment, and quality of life in breast cancer survivors and their husbands

Abstract
PURPOSE:

The purpose of this study was to identify whether the couple perceived breast cancer as a traumatic event, to evaluate the association among posttraumatic growth, dyadic adjustment, and quality of life and to explore the predictors affecting quality of life of the couple.

METHODS:

A cross-sectional comparative survey design was utilized. Participants were 57 couples recruited from a national cancer center in Korea. Data were analyzed using paired t-test, McNemar test and independent t-test. On the basis of variables found to be significantly associated with quality of life, multiple regression was used to examine the simultaneous influence of multiple predictors.

RESULTS:

Breast cancers survivors and spouses perceived breast cancer as a traumatic event (43.9% and 24.6%, respectively). The global quality of life was explained by perception as trauma (β=-19.79) and posttraumatic growth (β=0.46) in survivors, and perception as trauma (β=-18.81) and dyadic adjustment (β=0.53) in spouses.

CONCLUSION:

Results suggest that future research should use qualitative methods to evaluate why contemplating reasons for cancercontributed to posttraumatic growth, examine other potential predictors of quality of life such as dyadic adjustment and intimacy, and identify links between posttraumatic growth and other psychological outcomes such as distress and well-being, using prospective analyses.

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The BMJ -Treating the patient and not the disease

The BMJ -Treating the patient and not the disease | Co-creation in health | Scoop.it
It was the biggest turnout for many a year. In our small coastal town in the north west of England, 5000 of us stood together bare headed for an hour on a magnificently clear but cold November morning. The Salvation Army brass band was muted but played beautifully, and there was pomp and circumstance aplenty.
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Concepts and definitions for "actively dying," "end of life," "terminally ill," "terminal care," and "transition of care": a systematic review.

One of 16, three of 134, three of 44, two of 93, and four of 17 articles defined or conceptualized actively dying, end of life, terminally ill, terminal care, and transition of care, respectively. Actively dying was defined as "hours or days of survival." We identified two key defining features for end of life, terminally ill, and terminal care: life-limiting disease with irreversible decline and expected survival in terms of months or less. Transition of care was discussed in relation to changes in 1) place of care (e.g., hospital to home), 2) level of professions providing the care (e.g., acute care to hospice), and 3) goals of care (e.g., curative to palliative). Definitions for these five terms were rarely found in dictionaries, textbooks, and organizational Web sites. However, when available, the definitions were generally consistent with the concepts discussed previously.
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Cancer, les patients ne bénéficient pas assez des soins de support

Cancer, les patients ne bénéficient pas assez des soins de support | Co-creation in health | Scoop.it
Il existe un décalage entre la perception des cancérologues sur les soins oncologiques de support (SOS) et celle des patients, selon le 2ème Baromètre réalisé auprès de plus de 700 médecins et 1 500 malades.

Via Stéphanie Chevrel
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BMJ - Richard Smith: Communicating with patients about ductal carcinoma in situ

Ductal carcinoma in situ (DCIS) is a condition we don’t understand. We don’t know its significance, how to describe it, and how to treat it. Worse, we may have created it. Its incidence in the US in 1975 was 1.87 per 100 000; now it’s 32.5. During that time there has been no drop in invasive cancers.
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Patients can be part of the solution, we just need to let them in - Health Foundation

Patients can be part of the solution, we just need to let them in - Health Foundation | Co-creation in health | Scoop.it
In health care, we’re continuing to (unwittingly) make ourselves and our patients dependent on a system we increasingly can’t afford to fund. Will we ever systematically let patients, carers and others in? asks Mark Duman.
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The young have paid enough for austerity in Britain. It is time for oldies to pay more. The Economist

The young have paid enough for austerity in Britain. It is time for oldies to pay more. The Economist | Co-creation in health | Scoop.it
“TODAY, we take decisive action to deal with the debts we have inherited.” So declared George Osborne, Britain’s chancellor, in 2010 when announcing his plans...
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Compassion fatigue: the cost some workers pay for caring

Compassion fatigue: the cost some workers pay for caring | Co-creation in health | Scoop.it
Health and social workers often choose their profession because they want to help people. But seeing trauma and suffering on a regular basis can have a deep impact on these workers. “Compassion fatigue” is a response to the stress of caring for people at times of crisis and is often referred to as the cost of caring.

Researchers first identified compassion fatigue in the 1970s when they recognised certain psychological symptoms among health care and social service workers. The term “compassion fatigue” was coined in the early 1990s to describe nurses who worked in emergency care and were experiencing symptoms similar to burnout.

Via Edwin Rutsch
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The Death of the Patient: Moving from 'Healthcare' to 'Health' and 'Patient' to 'Person'

The Death of the Patient: Moving from 'Healthcare' to 'Health' and 'Patient' to 'Person' | Co-creation in health | Scoop.it
Today, if you speak to anyone in the healthcare world, the discussion always begins and ends with making the change to a “patient centered care model” or putting the patient at the center of the care continuum. So much so, we recently added a “5th P” - Personal Responsibility - [...]
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An ePatient's Search for Hope - Curetoday.com (press release)

An ePatient's Search for Hope - Curetoday.com (press release) | Co-creation in health | Scoop.it
An ePatient's Search for Hope
Curetoday.com (press release)
The panic bowled me over like a 50-foot wave. Alone at home, I became a puddle of hopelessness--for about an hour.
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Too much guidance? : The Lancet

Michael Rawlins (March 5, p 904)1 predicts that the UK's National Institute for Clinical Excellence (NICE) will be issuing ever more guidelines in the future. We would be interested to know whether NICE plans to examine the effectiveness of its publications.
Although early work on the effect of introducing clinical guidelines for specific conditions showed positive outcomes,2 whether equal benefits are reaped by publishing multiple guidelines is less clear. Such benefit would be particularly questionable for generalist clinicians whose practise includes unselected patients, and who have to be familiar with guidance produced by many organisations.
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Global surveillance of cancer survival 1995–2009 ... in 67 countries : The Lancet

Background
Worldwide data for cancer survival are scarce. We aimed to initiate worldwide surveillance of cancer survival by central analysis of population-based registry data, as a metric of the effectiveness of health systems, and to inform global policy on cancer control.
Methods
Individual tumour records were submitted by 279 population-based cancer registries in 67 countries for 25·7 million adults (age 15—99 years) and 75 000 children (age 0—14 years) diagnosed with cancer during 1995—2009 and followed up to Dec 31, 2009, or later. We looked at cancers of the stomach, colon, rectum, liver, lung, breast (women), cervix, ovary, and prostate in adults, and adult and childhood leukaemia. Standardised quality control procedures were applied; errors were corrected by the registry concerned. We estimated 5-year net survival, adjusted for background mortality in every country or region by age (single year), sex, and calendar year, and by race or ethnic origin in some countries. Estimates were age-standardised with the International Cancer Survival Standard weights.


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A new dawn: The role of social media in diabetes education


Via Marie Ennis-O'Connor
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Rescooped by Giuseppe Fattori from #Web Marketing, #Semantic Web,#Management,# Community Management, #Audit Social media, #RSE
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Psychologie du consommateur & paiement sur internet (infographie)

Psychologie du consommateur & paiement sur internet (infographie) | Co-creation in health | Scoop.it
Voici une infographie passionnante sur la psychologie des consommateurs sur les sites de e-commerce. Voyons quels sont les critères de confiance qu'un acheteur potentiel va prendre en compte pour p...

Via Catherine Pascal
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Social Media and Oncology Patient Care

Social Media and Oncology Patient Care | Co-creation in health | Scoop.it
With the uptake of social media in recent years, the exchange of information through such outlets has been on the rise, including communication related to oncology patient care. Increasingly, patients turn to online sources, such as social media, for information on their cancer diagnoses, treatment options, and forming support communities.1

Via Philippe Marchal
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The power of information: Putting all of us in control of the health and care information we need

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Digital health: Co-creation, the key to the future | LeWeb Blog

Digital health: Co-creation, the key to the future | LeWeb Blog | Co-creation in health | Scoop.it
In this second post on LeWeb Blog, Lionel Reichardt explains why the future is bright for digital health startups
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The war against heart failure: the Lancet lecture : The Lancet

Heart failure is a global problem with an estimated prevalence of 38 million patients worldwide, a number that is increasing with the ageing of the population. It is the most common diagnosis in patients aged 65 years or older admitted to hospital and in high-income nations. Despite some progress, the prognosis of heart failure is worse than that of most cancers. Because of the seriousness of the condition, a declaration of war on five fronts has been proposed for heart failure. Efforts are underway to treat heart failure by enhancing myofilament sensitivity to Ca2+; transfer of the gene for SERCA2a, the protein that pumps calcium into the sarcoplasmic reticulum of the cardiomyocyte, seems promising in a phase 2 trial. Several other abnormal calcium-handling proteins in the failing heart are candidates for gene therapy; many short, non-coding RNAs—ie, microRNAs (miRNAs)—block gene expression and protein translation. These molecules are crucial to calcium cycling and ventricular hypertrophy. The actions of miRNAs can be blocked by a new class of drugs, antagomirs, some of which have been shown to improve cardiac function in animal models of heart failure; cell therapy, with autologous bone marrow derived mononuclear cells, or autogenous mesenchymal cells, which can be administered as cryopreserved off the shelf products, seem to be promising in both preclinical and early clinical heart failure trials; and long-term ventricular assistance devices are now used increasingly as a destination therapy in patients with advanced heart failure. In selected patients, left ventricular assistance can lead to myocardial recovery and explantation of the device. The approaches to the treatment of heart failure described, when used alone or in combination, could become important weapons in the war against heart failure.
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