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Co-creation in health
E-citizens, e-patients, communities in shaping e-health, health literacy.
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Quels modèles pour les déterminants sociaux de santé: au de là de l'individualisme

Conférence au Colloque "Développement durable: Santé, Solidarité, Territoires", Université de Sétif 1 - le 2 Février 2014
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Why I Don't Like Scoopit Links on Twitter [+Scenttrail Comment]

Why I Don't Like Scoopit Links on Twitter [+Scenttrail Comment] | Co-creation in health | Scoop.it

I’m seeing more Scoopit links in my Twitter stream and I’m not crazy about it.  Sure it’s quick and easy to share with Scoopit.  But it not quick and easy to consume. For me it's all about the econ...

Marty Note (here is comment I wrote on Dr. V's blog)

Appreciate Bryan’s and Joseph’s comment, but I rarely use Scoop.it as a pass through. More than 90% of the time I’m adding “rich snippets” to content I Scoop.

Rich snippets are “blog” posts that fall between Twitter and the 500 to 1,000 words I would write in Scenttrail Marketing. I often create original content ON Scoop.it because whatever I’m writing falls in the crack between Twitter’s micro blog and what I think of as needing to be on my marketing blog.


I was taught NOT to pass through links on Scoop.it early on by the great curator @Robin Good . Robin has well over 1M views on Scoop.it now and his advice along with the patient advice of other great Scoop.it curators has my profile slouching toward 150,000 views.


Bryan is correct that some curators new to Scoop.it haven’t learned the Robin Good lesson yet. I agree it is frustrating to go to a link and not receive anything of value back, to simply need to click on another link. Curators who pass through links won’t scale, so the Darwinian impact will be they will learn to add value or die out.


For my part I always identify my Scoop.it links, probably about half the content I Tweet and about a quarter of my G+ shares. I also routinely share my favorite “Scoopiteers”, great content curators who taught me valuable lessons such as don’t simply pass through links but add “micro blogging” value via rich snippets.


When you follow or consistently share content from a great curator on Scooop.it you begin to understand HOW they shape the subjects they curate. I know, for example, Robin Good is amazing on new tools. Scoop.it anticipated this learning and built in a feature where I can suggest something to Robin.


This is when Scoop.it is at its most crowdsourcing best because I now have an army of curators who know I like to comment on and share content about design or BI or startups and they (other Scoopiteers) keep an eye out for me. There are several reasons Scoop.it is a “get more with less effort” tool and this crowdsourcing my curation is high on the list.


So, sorry you are sad to see Scoop.it links and understand your frustration. You’ve correctly identified the problem too – some curators don’t know how to use the tool yet. I know it is a lot to ask to wait for the Darwinian learning that will take place over generations, but Scoop.it and the web have “generations” that have the half life of a gnat so trust that the richness of the Scoop.it community will win in the end and “the end” won’t take long.


To my fellow Scoop.it curators we owe Bryan and Joseph thanks for reminding us of what Robin Good taught me – add value or your Scoop.it won’t scale. That lessons is applicable to much more than how we use Scoop.it.


Marty

Added to G+ too
https://plus.google.com/102639884404823294558/posts/TUsNtsAsjWp

 


Via Martin (Marty) Smith, NLafferty
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Karen Dietz's comment, August 22, 2014 2:07 PM
Right on Marty! I'm re-scooping this as a way to help that learning along about how to really use Scoop.it well and leverage it.
Karen Dietz's curator insight, August 22, 2014 2:25 PM

FYI Folks -- I trust that the reviews I write about the articles I curate help people along in their business storytelling journey. I know that there are many curators out there who do not add reviews/comments to the articles they highlight. 


As a result, Scoop.it and other curation sites are getting a backlash because audience members are tired of getting a link to an article that brings them to Scoop.it, and then requires another click to get to the article. Now I know that is annoying. And there is nothing of value offered between clicks.


Marty's response to the original blog post is right on. Read it along with all the other comments. Truly illuminating.


Other than a rant for me, what's the value of this post to you and business storytelling?


Namely this -- no matter what medium you use -- blogging, curating, digital storytelling -- make sure you are actually adding value for your audience. Expand their knowledge, give them tools, show them how, and offer your excellent insights. The stories you share have to connect to your audience in these ways. Anything else is a waste.


All of these posts and reviews add up to telling your story in a big picture way. So thanks Marty for addressing this issue, and reminding us about principles for quality curation. I've learned a lot from both you and Robin!


Karen Dietz

Bob Connelly's comment, November 23, 2014 7:11 PM
Being new to Scoop.it, I was glad to read this. I wouldn't have thought about this...
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Living With Cancer: Finding Calm in the Storm

Living With Cancer: Finding Calm in the Storm | Co-creation in health | Scoop.it
While cancer proves that we cannot control our bodies, my support group continually reminds me, we can try to guide our minds and spirits.
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Le progrès,c'est nous! Pierre LEVY


Via Claude Emond, Pierre Levy
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Claude Emond's curator insight, March 3, 2014 9:39 PM

Un 6:28 minutes avec Pierre Levy

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L’internet et les épistémologies des sciences humaines et sociales

L’internet et les épistémologies des sciences humaines et sociales | Co-creation in health | Scoop.it
Les ordinateurs et les réseaux nous rappellent à quel point notre pensée est instrumentée et nous font prendre conscience qu’elle l’a toujours été. Pour le dire autrement : la culture propre à l’informatique apparaît surtout technique. Mais elle n’est que la traduction contemporaine de l’ensemble des savoir-faire liés à la maîtrise de l’écriture. Nous (re)découvrons alors un lien étroit entre culture technique et culture des savants et des érudits, et les anthropologues ont montré la relation entre cette dernière et la culture au sens large : par effet de domination (le pouvoir de l’écrit) et parce que l’écriture invite à la réflexion sur les objets qu’elle manipule ou met en évidence. Il y a donc un lien direct entre culture technique propre à l’écriture et culture d’une société. Nous montrons alors comment l’écriture électronique et en réseau infléchit les problématiques et les épistémologies de disciplines communément regroupées sous l’étiquette « sciences humaines et sociales » (SHS) : nouvelles méthodes, potentialités combinatoires, questions posées par les usages du « numérique », etc., mais aussi savoir-faire élémentaires (écrire ou repérer un signe dans un texte). Certaines de ces problématiques commencent à être abordées par des personnes qui se revendiquent du mouvement des « humanités numériques ». Nous montrons que la faiblesse argumentative des représentants de ce mouvement est moins préoccupante pour les scientifiques que la facilité avec laquelle ils se font entendre : outre le dévoilement sociologique du monde universitaire actuel, toujours instructif, ce n’est pas tant l’essor des « humanités numériques » qui pose problème (parce qu’elles seraient mal définies ou joueraient d’un oxymore peu efficace épistémologiquement) que le silence de représentants des « SHS » quant à l’évolution des contours de chacune de leur discipline sous l’effet de l’écriture contemporaine. Pourtant, l’étude de cet effet, déjà balisée par des épistémologues, est prometteuse. Et elle permet de comprendre ce qui se « fabrique », de façon profane comme savante, en matière de culture numérique.
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De la domination masculine, par Pierre Bourdieu (Le Monde diplomatique)

De la domination masculine, par Pierre Bourdieu (Le Monde diplomatique) | Co-creation in health | Scoop.it
La domination masculine est tellement ancrée dans nos inconscients que nous ne l'apercevons plus, tellement accordée à nos attentes que nous avons du (...)

Via Luis Manuel
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"L'inégalité salariale entre hommes et femmes est le chantier le plus urgent à traiter Propos recueillis par Dominique Perez, publié le 08/03/2014

 Le projet de loi sur l'égalité homme-femme ne suffira pas à régler les inégalités au travail, selon Mary-Daphné Fishelson, avocate et présidente de l'Association française des femmes juristes, qui prône un changement sociétal.  Imprime Zoom moinsZoom plus0 Voter (0  En savoir plus sur http://www.lexpress.fr/emploi-carriere/emploi/l-inegalite-salariale-entre-hommes-et-femmes-est-le-chantier-le-plus-urgent-a-traiter_1498257.html?xtor=EPR-181-


Via Catherine Pascal
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Catherine Pascal's curator insight, March 8, 2014 9:30 AM

;-) A poursuivre et à suivre ! 

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Aldous Huxley and Christopher Isherwood: Writing the Script for Gay Liberation -

Aldous Huxley and Christopher Isherwood: Writing the Script for Gay Liberation - | Co-creation in health | Scoop.it
Christopher Isherwood and Aldous Huxley shared a long friendship as well as a belief in the religious philosophy of Vendanta. The writers’ connection is revealed in A Single Man, Isherwood’s groundbreaking novel.

Via Luis Manuel
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"I want to build a healthcare community..."

"I want to build a healthcare community..." | Co-creation in health | Scoop.it
The immortal phrase that should bring everyone out in a sweat; whether client side or agency side. Building an online community is one of the hardest things to do, not simply in healthcare. It needs considerable investment, time, research, and also a little bit of luck. 

Via Alex Butler, Andrew Spong
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Mira Alison's curator insight, March 11, 2014 3:40 AM

Of course you have a website now. Make sure that your web pages are loaded with your main keywords, so that they have a natural flow of content . Also make sure that the word can be found somewhere in the titles ( at least your top three )Once you have that all set up , make sure that you have set up the links to those pages through the site pages on the Internet.Read for more information:

http://cuxtomizedfatloss.blogspot.com/p/fat-misfortune-extreme-methodology-to.html
Dr Martin Wale's curator insight, March 14, 2014 4:53 AM

So much to do...

Vigisys's curator insight, March 15, 2014 6:58 AM

Une communauté c'est bien, un réseau de soins numérique c'est mieux, mais le challenge est encore plus grand ! C'est ce à quoi nous nous adressons avec nos projets Indesir.fr et vigidiab.fr. 

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Pharma, patients and social media. What’s the story?

Pharma, patients and social media. What’s the story? | Co-creation in health | Scoop.it

Over the last 12 months, many people – myself included – have spoken about the ways in which the pharmaceutical marketplace is really beginning to embrace the digital revolution; mobile technology, social media…the list of tactics goes on and on

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Worldwide cancer mortality statistics : Cancer Research UK cc @giomarsi @cathcerisey

Worldwide cancer mortality statistics : Cancer Research UK cc @giomarsi @cathcerisey | Co-creation in health | Scoop.it
  1. In 2012, there were an estimated 8.2 million deaths from cancer in the world (Figure 2.1): 4.7 million (57%) in males and 3.5 million (43%) in females, giving a male:female ratio of 10:8.1 The age-standardised (AS) mortality rate shows that there are 126 cancer deaths for every 100,000 men in the world, and 83 for every 100,000 females.

Via PatientView, Lionel Reichardt / le Pharmageek
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PatientView's curator insight, March 5, 2014 7:55 AM

The extent of problem with cancer expertly visualized by @CRCUK

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The Spiritual Component of Autism

The Spiritual Component of Autism | Co-creation in health | Scoop.it

The response to my last post on autism and Asperger’s really overwhelmed me. I didn’t expect to get such a positive response. I was literally bracing myself for the worst. The post seemed to touch a lot of people, particularly women who believe they may be on the spectrum. Just being able to make one person feel less alone made that post worth publishing.

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7 Definitions of Big Data You Should Know About

7 Definitions of Big Data You Should Know About | Co-creation in health | Scoop.it

Via Claude Emond, Pierre Levy
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Claude Emond's curator insight, March 7, 2014 9:56 PM

«This is a handy and cynical guide to seven different definitions of Big Data. The one thing that everybody does agree on? It's a big deal.»

Lorena Betta's curator insight, March 25, 2014 12:32 PM

#Big Data

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Stanford to offer new undergraduate majors integrating humanities, computer science

Stanford to offer new undergraduate majors integrating humanities, computer science | Co-creation in health | Scoop.it
Faculty Senate approves two "joint majors" on a pilot basis, bringing computer science together with English and music. More joint proposals are expected.

Via Pierre Levy
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Simple Rules for Effective Meetings

Simple Rules for Effective Meetings | Co-creation in health | Scoop.it
Here's a new rule for people who wish to create a meeting: Al Pittampalli asks "What difference could you make that requires no one’s permission other than your own?"  Do that first.  Don't call th...
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Why High-Impact Exercise Is Good for Your Bones

Why High-Impact Exercise Is Good for Your Bones | Co-creation in health | Scoop.it
For stronger bones, sprint. Jump off a box 15 inches or higher at your gym and jump back up. Hop in place.
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Journée des droits des femmes: "L'avortement est un droit humain fondamental"

Journée des droits des femmes: "L'avortement est un droit humain fondamental" | Co-creation in health | Scoop.it

L'ONG Médecins du monde lance samedi "names not numbers", une opération de mobilisation pour l'accès universel à la contraception et l'avortement. Interview.


Via Giovanna Marsico
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Épistémologies digitales des sciences humaines et sociales

Épistémologies digitales des sciences humaines et sociales | Co-creation in health | Scoop.it

Via Pierre Levy
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luiy's curator insight, March 7, 2014 11:16 AM

Les humanités numériques désigneraient un ensemble de pratiques visant à utiliser les médias ou les outils numériques pour analyser des données et/ou diffuser les connaissances produites. De façon générale, nous constatons que la notion de média est insuffisante : en quoi un nouveau canal de diffusion des connaissances pourrait à lui seul transformer des pratiques et des problématiques de chercheurs ? En fait, parce qu’elles sont intimement liées à l’écriture, instrument intellectuel par excellence, les techniques récentes font émerger de nouveaux objets d’études, de nouvelles façons d’aborder des problématiques anciennes, en même temps qu’elles nous offrent un regard renouvelé sur des pratiques que nous croyions banales, ne méritant pas d’être commentées ni mises en perspective. Bien au-delà des humanités numériques, c’est donc l’ensemble des sciences humaines qui subit des transformations majeures.

 

------------------------------------------- 

 

Problèmes et concepts

 

- Éric Guichard, L’internet et les épistémologies des sciences humaines et sociales [Texte intégral] 

 

- Thierry Poibeau, La linguistique est-elle soluble dans la statistique ? [Texte intégral] 

 

- Stéphane Lamassé et Philippe Rygiel, Nouvelles frontières de l’historien [Texte intégral] 

 

- Emmanuel Lazega et Christophe Prieur, Sociologie néostructurale, disciplines sociales et systèmes complexes [Texte intégral] 

 

- Paul Mathias, Les internautes ont-ils une âme ? [Texte intégral] 

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Giovani e salute nel progetto dell'Università di Udine

Giovani e salute nel progetto dell'Università di Udine | Co-creation in health | Scoop.it

Sensibilizzare i giovani a stili di vita sani tramite disseminazione in rete di buone pratiche con video, social network, blog, forum e un portale, e incontri tematici con giovani medici

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In-Depth: A brief history of digital patient engagement tools | mobihealthnews

In-Depth: A brief history of digital patient engagement tools | mobihealthnews | Co-creation in health | Scoop.it

Without a doubt patient engagement is one of the more important trends in healthcare and health IT right now. Over the past few years the tools that look to enable patient engagement between providers and patients have changed markedly. It is important to note, however, that the tools themselves are just a small part of the story — they can go a long way toward improving patient engagement, though. The drivers of the patient engagement buzz are varied, but one big one is the federal government’s Office of the National Coordinator’s (ONC) Meaningful Use (MU) program, which is beginning to include requirements for very basic patient engagement services.

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Doctors and social media: It's time to embrace change

Doctors and social media: It's time to embrace change | Co-creation in health | Scoop.it
I recently took on a position of medical journal editor. It is with the Journal of Kentucky Medical Association. It’s been a good learning experience. Part of the job of...

 


Via Marie Ennis-O'Connor, Denise Silber
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Denise Silber's curator insight, March 6, 2014 4:46 PM

add your insight...

 
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Early Specialty Palliative Care — Translating Data in Oncology into Practice

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Study suggests that social-network support for causes might be only a click deep | #SNA #donations

Study suggests that social-network support for causes might be only a click deep | #SNA #donations | Co-creation in health | Scoop.it

Social media may fuel unprecedented civic engagement.


Via Jesse Soininen, luiy
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luiy's curator insight, March 5, 2014 10:34 AM

Lewis and colleagues analyzed the donation and recruitment activity of more than 1 million members of the Save Darfur Cause between May 2007 and January 2010. About 80 percent of the members had been recruited by other members and about 20 percent had joined independently.

 

Of these 1 million-plus members, 99.76 percent never donated any money and 72.19 percent never recruited anyone else.

 

The Save Darfur Cause on Facebook raised only about $100,000. While the average donation amounts were similar to more traditional fundraising methods ($29.06), the donation rate was much smaller: 0.24 percent. Compare that to mail solicitations which typically yield donation rates of 2 to 8 percent. The larger Save Darfur campaign, the researchers note, raised more than $1 million through direct-mail contributions in fiscal year 2008 alone.

 

Interestingly, those that had joined the Facebook cause independently were both more likely to donate and to recruit.

Social and financial contributions, though rare on both counts, also tended to go hand-in-hand. Those individuals that did recruit were nearly four times as likely as non-recruiters to donate. And donors were more than twice as likely as non-donors to recruit.

The data contained no demographic information on the cause's members. Nor, the researchers write, could they estimate "the personal significance of [the joining] gesture to participants or the symbolic impact of the movement to onlookers.

 

"It is possible," they add, "that the individuals in our data set contributed to Save Darfur in other meaningful but unobserved ways."

 

Still, Lewis and colleagues believe the study gives some valuable insights into collective action in a digital age.



Read more at: http://phys.org/news/2014-03-social-network-click-deep.html#jCp

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Jesús Garrido: un gran éxito de marketing online para médicos en 35 minutos - Blog de Qoolife

Jesús Garrido: un gran éxito de marketing online para médicos en 35 minutos - Blog de Qoolife | Co-creation in health | Scoop.it

El blog de Franck Scipion ha publicado una vídeo entrevista a Jesús Garrido, autor de Mi pediatra o online y médico que ofrece consulta online a través de Qoolife, en el que lo sitúa como un gran éxito de marketing online para médicos. Durante la entrevista, Scipion repasa el fenómeno de médicos que dan la cara en Internet y asocian su imagen a contenidos de calidad y ahonda en las razones por las que un médico puede querer estar presente en el mundo online en apenas 35 minutos. 


Via Ignacio Fernández Alberti
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